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    Caregivers

     

    Discussion List

    • User: "mrsgeb"

      Actively Dying

      Hospice listed my husband as "Actively Dying" on Monday and had to sedate him because he was so agitated and in so much pain. I asked what Actively Dying meant and was handed a booklet and was told it…
      154 views
      20 comments
      0 point
      Started by mrsgeb
      Most recent by grandmafay
      Caregivers
    • User: "pattynonews"

      2 week

      Well it has bee 2 weeks since jack passing, It is not getting any easier I cant believe I am taking a job that starts tomorrow as a caretake for someone else, It is so hard Im just having a hard time …
      67 views
      4 comments
      0 point
      Started by pattynonews
      Most recent by geotina
      Caregivers
    • User: "jamjoe"

      how wise are you??

      anyone out there who has walk this road ? more than ten years ago i was my brothers caregiver back in 93 when it was new, at least new to me. he died from colon cancer (lynch syndrome) at age 33.he wa…
      26 views
      3 comments
      0 point
      Started by jamjoe
      Most recent by slickwilly
      Caregivers
    • User: "junklady"

      Difficulty breathing, need some direction

      My husband has end stage laryngeal cancer. He had trach tube put in Sept. to help with breathing. Lymph nodes in neck and collarbone growing. Trach tube changed last week by Dr. There was some bleedin…
      23 views
      3 comments
      0 point
      Started by junklady
      Most recent by pattynonews
      Caregivers
    • User: "pattynonews"

      ashes

      Well I had to pick up Jack ashes it seems to be finalzed that Jack is really gone, and but I still wait for him to come home and I was a little upset with a comment that Jacks brother said to his sist…
      21 views
      5 comments
      0 point
      Started by pattynonews
      Most recent by geotina
      Caregivers
    • User: "jelly_bean"

      How do I do this?

      I'm 27 yrs old and caring for my mother who has cancer of the tongue. She just recently had her third surgery and will start radiation in 5-6 weeks. My dad and grandparents and I are working together-…
      21 views
      4 comments
      0 point
      Started by jelly_bean
      Most recent by CherylMike
      Caregivers
    • User: "pattynonews"

      confused

      Im trying I just seem to be losing everything, when Jack got sick I had to give up my apartment, now I am stuck in a situation and no way out, I made the promise to Jack to take care of his dad, but h…
      21 views
      0 point
      Started by pattynonews
      Caregivers
    • User: "onlyhuman"

      time to make the quality vs quantity decision

      We have had a massive 24 hours. Paramjeet (my hubby) has been deteriorating rapidly since last Wednesday so we were expecting bad news from the scan results (for the scan he had last Friday) but we we…
      40 views
      4 comments
      0 point
      Started by onlyhuman
      Most recent by onlyhuman
      Caregivers
    • User: "pattynonews"

      everyone is judging me

      I ready to call it quits, if i cry to much im told pull your self together read a grieving book, I plan on going out with my friends to see Jacks old band im told im cheating on Jack I give up , I pro…
      24 views
      5 comments
      0 point
      Started by pattynonews
      Most recent by CherylMike
      Caregivers
    • User: "pattynonews"

      thank you

      I want to Thank all of you for your support this site has gotten me through alot of stuff, and I will continue to sty on becasue maybe I can help someone else, Im so use to getting up so early with Ja…
      21 views
      6 comments
      0 point
      Started by pattynonews
      Most recent by Barbara53
      Caregivers
    • User: "pattynonews"

      i cant do this

      I dont think I can do this without Jack We creamated him this morning, it is real now he is gone and there are people causing so much drama and Jack was here to stop all the stupidess, Im trying so ha…
      38 views
      9 comments
      0 point
      Started by pattynonews
      Most recent by allackey
      Caregivers
    • User: "onlyhuman"

      I have dibs on the most stubborn partner

      Just letting off steam. Hubby was put on dex by the oncologist about a week or so ago and has been having chest pains for the last few days. His left arm has even become numb but he will not go to the…
      31 views
      1 comments
      0 point
      Started by onlyhuman
      Most recent by Daddyslittlegirl
      Caregivers
    • User: "pattynonews"

      arrangements

      well we had to make the arrangement for Jack, I got to see him one more time and kiss his forehead, I love him and miss him so much I am so lonely and in the middle of all of us grieving I had to deal…
      21 views
      6 comments
      0 point
      Started by pattynonews
      Most recent by pipwe1
      Caregivers
    • User: "pattynonews"

      My love is gone

      Jack went home this morning, at 9:30 , Im going to miss the most amazing man I have ever met, he truly showed me how to love again, I feel so numb there are people here but I feel so alone, Now Im in …
      23 views
      16 comments
      0 point
      Started by pattynonews
      Most recent by trish07
      Caregivers
    • User: "pattynonews"

      its so unfair

      I feel like I have been cheated with time with Jack, We meet in June 2009 and he was dx in Aug 2009, and I decided to stay and we fell so much in love, We had such a short time and most of the time wa…
      23 views
      3 comments
      0 point
      Started by pattynonews
      Most recent by pattynonews
      Caregivers
    • User: "[Deleted User]"

      scheduled CSN outage tonight

      The site will be down tonight from 1:00 to 5:00 a.m Eastern Daylight Time for scheduled maintenance. Greta Your CSN staff
      21 views
      0 point
      Started by [Deleted User]
      Caregivers
    • User: "SonSon"

      Signs...

      Here is a touching story I just stumbled upon... http://neatorama.cachefly.net/notes-left-behind.htm Wonderful signs left behind.
      21 views
      0 point
      Started by SonSon
      Caregivers
    • User: "mrsgeb"

      Ready to go

      Last night my husband told me he was "ready to go". He has been fighting since December 2008 and can no longer even go to the bathroom on his own, he can't walk, can barely eat or drink and is confuse…
      23 views
      4 comments
      0 point
      Started by mrsgeb
      Most recent by mrsgeb
      Caregivers
    • User: "pattynonews"

      sedated

      Well we had to sedate Jack heavyly so most likely he will not wake up again he woke up in the worst pain and fear in his eyes and I never want to see that again, so they have him on hydromorphone pump…
      23 views
      13 comments
      0 point
      Started by pattynonews
      Most recent by heatherstar70
      Caregivers
    • User: "Buzzard"

      Something to hopefully lift all spirits.....

      John Nimmons (screen name snomminj) Posted this today for all of us in the colorectal cancer thread......It is very exciting to read...I hope you enjoy this....I hope it comes to past to help everyone…
      23 views
      3 comments
      0 point
      Started by Buzzard
      Most recent by soccerfreaks
      Caregivers
    • User: "pattynonews"

      Jack is resting comfortably

      Well I think I have had my fill on hospice nurse , well not all of them but , We had a great nurse last night, and she said the other nurse were over medicating Jack we kicked back on the pump and his…
      29 views
      8 comments
      0 point
      Started by pattynonews
      Most recent by grandmafay
      Caregivers
    • User: "pattynonews"

      Jack is still fghting

      Well Jack is still fighting and holding on, his body is starting to shutting down but is heart is so strong, he woke up yesterday Told me he loved me, held me and took his drums sticks and held them i…
      24 views
      1 comments
      0 point
      Started by pattynonews
      Most recent by grandmafay
      Caregivers
    • User: "glasus"

      full moon

      Has anyone else recognized that during the full moon phase, things are just weird. I am sorry I know that is truly not a health care type question. What I am asking is for other to report with their o…
      25 views
      5 comments
      0 point
      Started by glasus
      Most recent by grandmafay
      Caregivers
    • User: "JL1988"

      help me

      My 43 year old husband was diagnosed with stomach and liver cancer this month. The doctor did not give any hope past 10 months. What do I do next---I cry all the time, this is not good for my husband.…
      39 views
      18 comments
      0 point
      Started by JL1988
      Most recent by AceSFO
      Caregivers
    • User: "pattynonews"

      Jack is still fighting

      Well Jack still has that fighting spirit, it is getting harder he pretty much stays in bed, but he is still can communicate when he is awake, but he is weak, and tired, his breathing his slowing, we d…
      38 views
      6 comments
      0 point
      Started by pattynonews
      Most recent by trish07
      Caregivers
    • User: "MichelleP"

      Where are you?

      I've been on this board for a couple of months now. I'm a full time caregiver for my husband with stage IIIB adenocarcinoma. He is unable to do much of anything for himself and my life consists of car…
      69 views
      22 comments
      0 point
      Started by MichelleP
      Most recent by mrsgeb
      Caregivers
    • User: "grandmafay"

      After the Memorial Service

      If caregiving is hard and it is, no longer caregiving is very hard, too. My husband's memorial service was Saturday. It was just what my husband wanted, gospel music and storytelling. One of our daugh…
      36 views
      6 comments
      0 point
      Started by grandmafay
      Most recent by SonSon
      Caregivers
    • User: "mrsgeb"

      Caregiving alone

      I was wondering if anyone else is caregiving without any help and if you might have advice on how to better manage my time. Hospice comes a couple days a week, but they are only here for about an hour…
      49 views
      10 comments
      0 point
      Started by mrsgeb
      Most recent by mrsgeb
      Caregivers
    • User: "techieGirlVA"

      Angry, exhausted, and looking for realistic answers - GBMIV caregiver

      My mother-in-law was diagnosed in February of this year with an inoperable GBM, stage IV. She is 60 years old, and is also an insulin dependent diabetic, has advanced COPD, and advanced heart disease.…
      53 views
      6 comments
      0 point
      Started by techieGirlVA
      Most recent by SonSon
      Caregivers
    • User: "pattynonews"

      Holding on still

      Well Jack is holding his own, His sister took the nite shift so I got some sleep, and it was a very spirtually expeience with the priest an all, and I finally got some sleep last night and all of a su…
      22 views
      3 comments
      0 point
      Started by pattynonews
      Most recent by trish07
      Caregivers
     

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