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Need to know others are there
My husband is a 3-time cancer survivor, twice with Prostate and once with lung. He has had surgery and radiation for the prostate, each about 5-years apart. In between these treatments he was diagnosed with lung cancer and had a lobectomy. He has been in remission for 2 years. Perhaps as a result of the treatments and the…
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Trying hard not to let this get to me, looking for inspiration
Hi, I just signed up. My mom is stage 4 with breast cancer found in her liver and bone. She moved to be near me from Oregon. My brother is nowhere involved in this at all and the family has a long history of drama... So, now she is here with me and my family. And now, I'm the center of balance for my kids, my hubby, my…
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Mother is dying of Stage 4 bone and Breast cancer'
Hello everyone. I am new to this site. I need to find some help and support. My mother is on hospice and I am the main caregiver for her at home. I am living here in her home. Left my job to help her,because no one esle in the family could help full time.My mom wanted to come home. Do not have much support from other…
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Struggling to Care for Mother (vent)
My mother is stage 4 metastatic breast cancer that has spread to most of her bones and spine. I am her caregiver. I have a brother who is basically uninvolved. He visits her from time to time but doesn't help with her care. I also work full time and am gone about 11-12 hours a day and then have to run her household in my…
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Noise from pump
My brother has to wear a pump 3 days a week every other week and the clicking sound it makes is driving him crazy. He can't walk around with headphones all the time. Is there anything that I can buy for him that is made to go around the device to muffle the sound? I have been searching the internet and can't find anything.…
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I don't know what to cook for my mother (post chemo and bone marrow transplant)
Hello , I am taking care of my mom who had a bone marrow transplant done. She received chemo and is dealing with the side effects such as the metallic taste in the mouth. She is using plastic utensils and not metal anymore so that helps a little bit. But the food still tatses different and its hard for her to eat . We both…
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Caregiver for my grandma
Hi all, My grandma is 85 years old and is a dementia patient. She is currently staying with my mom, but since my mom is working, we need someone to take care of her while she is away. I suggested that we could hire a nanny to take care of her. So, planning to hire an in-home caregiver for her from C-Care health services in…
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My husband is home full time now on Disability since 06/2015
I am wondering how unusual this is. My husband is home full time now on Disability since 06/2015. He usually naps for a couple hours every day. There are days when he takes 2 naps a day and there are rare days when he takes none. I have encouraged him to take up a hobby or do volunteer work. His life revolves around just…
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Should I make the suggestion?
Hello all. First post here. A little background: My 36-year-old wife of 16 years was diagnosed last summer (at 35) with stage-4 colon cancer after giving birth to our second child. Actually she had to deliver two months early because of illness which we found out shortly after to be the cancer. Our first child passed away…
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Help I need some answers
My husband was told by the Dr Nov 1,3026 that they were 99% sure that he had lung cancer . Three day after that he had a spot removed on his right hip that sent that in for a biopsy and it came back as a secondary cancer . Since than he has had small lumps piping up on his shoulder and his leg and his stomachs . He has a…
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Wife was diagnosed in April-2016
My wife of 15 years was diagnosed with Stage 4 Colon cancer in April of this year and life as we once knew it was totally flipped upside down. Since she was diagnosed I have had to drastically alter our families way of life. We have a 9 year old and she has an 18 year old son from a previous marriage. My wife is only 40…
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My song for all of you
https://www.youtube.com/watch?v=DhX8kYb3jc0&feature=share Lay back, turn your speakers up a little with a glass of wine and enjoy. It's my blessing you all of you for your bravery, courage, diligence to those you love.
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She's gone
My wife died at 10:00 November 22nd. Her 2 adult chidren, their wifes, my daughter and myself were at her side. She died "Peacefully" (as if there is such a thing in death) but did not appear to suffer. I did my best to be her caregiver, it was an honor, a privilage to care for my soul mate. David
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The end is nearing
My wife was diagnosed one year ago (November 11th) with Leiomyosarcoma (very rare, go figure) We went to Stanford for clinical trials that did nothing. She opted for traditional chemotherapy knowing there was no chance of a cure and stopped last March because it made her too ill She has not eaten in 2 weeks. Sips of water…
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She passed away on friday
We took her to the ER on thursday as she was breathing harder than usual. She has been looped from the meds for a few weeks since her last hospital stay, inspite of my steadily reducing the doses. Tests and xrays were fine and they didn't see a reason to admit her. We brought her home and she died that night in her sleep.…
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So, today's events... A rant.
Today, I helped my mom clean her hair. About a week ago, she had a craniotomy, where they removed a tumor about the size of a marble. This week, she was finally allowed to wash her hair. However, my mother has very frizzy, curly hair that does not brush or detangle easily, so you can imagine that after about 2 hours of…
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So Angry.....and so Sad
My husband was daignosed with Omentun Cnacer on April 11, 2016. Everything now sucks. I have so MUCH anger over my husabnd's cancer that sometimes it disables me. But I try no to show it. His is a cancer that there is NO cure for, so only time will tell. But all I can think about is how angry I am that we have lost our…
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PTSD
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Steroid Rage
I have posted a few times about the change in my husbands personality. The doctors told me "steroids cause mood swings". After taking my husband off steroids(dexamehtasone) for two weeks and his calm personality returning we went to the doctor only to be told that the dexamethasone along with the revlimid are what fight…
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Ranting for the sake of ranting
So, here is yet another post about my mother and the constant rant my family has going. This past week, my mother has been on edge. Her head has been hurting, she is complaining of weakness and cramps. Now, there are several drugs she is detixing off of, which may be the cause for her angry mood but they were stoped almost…
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Mother has metastisized breast cancer - What questions should we be asking?
My mother-in-law has stage 4/metastisized BC - Ductal Carninoma, lungs, lymph nodes. She cannot get a PET scan because she can't lay down due to coughing and mucus. So were not sure where else it has spread. She was working with a natural health practitioner for the last six months and refused medical treatment until just…
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Can open...worms everywhere!
Sooo...I am caring for my mom since her cancer diagnosis almost 6 mos. ago. It is terminal. She is mostly bed ridden so I have been unable to go back to work since I got laid off in July. (She was only receiving a small amount of SSI so it's not like we could hire someone to come in and take care of her) She and I have…
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hospice
I need hospice help desperately. Does anybody know where I can post about Hospice care. My wife is very sick and there is no more treatment for her at Sloan. She does not want a clinical trial or a 2nd opinion. She is waiting for a bed at a hospice and I need help and a place to post about this situation.
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DNR
When my husband started hospice he was terminal but still able to do everything for himself. Hospice asked him if he wanted to sign a DNR but he declined because at that time it was hard for him to think about being in that position. Over the last few days my husband has gotten much worse and now he'a confined to the bed…
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Loss of a long time friend
I lost a good friend this past week to a head on traffic accident. Blindsided all of us. I spoke with him about a week ago. He was supportive to me and my wife who is suffering from her cancer. I have a voice message he left on my cell phone that I forgot all about. When I heard it tonight that did it-the tears flowed.…
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So, today's events... A rant.
Today, I helped my mom clean her hair. About a week ago, she had a craniotomy, where they removed a tumor about the size of a marble. This week, she was finally allowed to wash her hair. However, my mother has very frizzy, curly hair that does not brush or detangle easily, so you can imagine that after about 2 hours of…
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Sometimes I just need.....
In November of 2015 my husband of 21 years finally decided it was time to go to the doctors. He should have gone five years earlier. It was on a Sunday so to the emergency room we went. A CT scan showed a baseball sized tumor just above his colon. His red blood cell count was so low its a miracle he made it to the…
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New to CSN (should have joined months ago..)
Hi everyone. I am typing all this out as my mom sleeps. It's been a very long night, and I need support. My mom initially was diagnosed with breast CA about 5 years ago and went to into remission officially last March. Then she was re-diagnosed in June. This time came back with a vengeance, and long story short, this past…
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Emotional torture
I was told by Hospice that my wife has days to weeks of survival left. She eats perhaps a piece of toast and that is her entire meal for the day, she has visible weight loss and people who have not seen her are somewhat taken aback. I sleep on the couch and she is in the guest room because she can toss and turn too much,…
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Visitors that wear out their welcome and are clueless
I may have addressed this before-my head is spinning I don't know one day from the next. I about popped my cork the other day. My wifes half sister has a tendency to stay longer than I'm comfortable. It was a bad day. I told her my wife was really miserable and not to bother her. When I came into the house she had her feet…