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Occupational therapy and lymphatic massage
Has anybody had occupational rehab during or after treatment? My RO referred me because I am a high risk for lymphedema and for some lingering side effects (fluid pockets, peripheral neuropathy). I don't have lymphedema, so this is more of a preventive thing. The plan is to see the therapist 2X/week for a month or so for…
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Tamoxifen.....devil or healer?? I need advice...
Hi everyone, I haven't been on in quite a while....returned to work and I'm exhausted all the time. July 21 I will be one year without the deadly boob that was trying to kill me. Here's my problem, and I know that a lot of you have gone through it...so advice please? I've been on Tamoxifen for 10 months. My oncotype DX…
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Anybody got nuropathy
I finished 18 rounds of chemo a year ago and am still having problems with nueropathy. I finaaly had to make the oncologist address the issue since before she would always blow me off saying it would go away. She has put me on gabapentin but I don't think it is really helping. Has anybody found a med or suppliment that…
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Being a clutz makes life interesting!
Hi everyone. I know its been a little while since my last update. I was just getting myself all excited about going back to work this month. Well last week i was getting my groceries out of the trunk of my car and i fell...i fell into my trunk...lol I bent my knee sideways...i found out they dont bend that way...so yes it…
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Has anyone ever had a DNA test to see if you can take a certain chemo?
A friend of ours oncologist had him take a DNA test to see if he could have the chemo Erbitux. His onco said it was to see if it was compatible for him. I've never heard of this and just wondered if any sister here had one before. Thanks! Leeza
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pain after reconstruction
hiya, i was just wondering if anyone out there might know anything about this. i had the recontruction done about 2 1/2 years ago and since then everytime i take a deep breath i have so much pain on the right side. no one knows why it's hurting and the dr.s do not think it's a big deal. anyone have any thoughts on this…
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Nipple Tattoo's
Did you have your plastic surgeons office do them or seek out the professionalism of a tattoo artist?
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TRAM HERNIA
I chose the Tram Flap procedure for my surgery since I would get a tummy tuck with the deal. My tummy was flat for about two weeks. Then I herniated on that one side, and it is huge. I can tell where the muscle is fine on one side and gone on the other. I am probably among the few though. I was probably too fat to begin…
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Nipples/No Nipples?
I've had a bilateral mastectomy and reconstruction. Trying to decide if I want to have another surgery to get nipples. My plastic surgeon wants to do a skin graft to create the nipples, which would mean another surgery and general anesthetic. I've heard of other surgeons that do a kind of "pucker stitch" to create the…
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This is worth repeating...
I thought it is a good time to share an old post from our dear Chenheart...a very special lady. So many new ones have joined our family of Kindred Spirits lately~we sigh that you have had to find us, but of course welcome you with open ♥ You may have noticed, or even posted about the fact that many of our friends, family…
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CHEMO-INDUCED PHERIPHERAL NEUROPATHY
I definitely have this from everything I've experienced and read. I know it seems like nothing when living or dying is the only thing that matters, but I have dealt with this for ten years and am told that everything should be normal now. I need a diagnosis now because it is interfering with my job. The doctors just don’t…
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Newbie
I am 46 and have had a lumpectomy and port put in. I am on my 2nd chemo cycle and doing ok. My hubby has been very supportive to the point we had a shaving party..we are both bald now. :) I am on here cause I know this may sound crazy but I have been waiting for this momment in my life since I was 15. My mother had breast…
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Anyone else still feel "dumbed-down" several years out from treatment?
I finished chemo and radiation August of 2008. I've been on Tamoxifan ever since. I used to be rather bright but chemo really affected my cognitive abilities. I lost most of my vocabulary, couldn't understand conversations, couldn't read. I do brain games alot, eat well, take my supplements, but I am still not who I used…
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TRAM - Any problems
I've had both breasts removed and have been through chemo and all that and am interested in the TRAM reconstruction. Will go to the plastic surgeon on 1/9 but wanted to know if anyone can give me ideas on what the surgery/recovery was like. Thanks so much.
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crap
Things were going really well..or so i was told. Then on 6/14 I started having some perception and balance problems. By lunchtime I needed to call an ambulance,by mid afternoon I had been flown by chopper to a hospital in Philly specializing in neurosurgery. Long story short...brain met. Just 1. Had it removed and am…
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nipple tattoos
Can anyone recommend a nipple tattoo place in the ny-nj area? I had mine done 10 years ago (this is my 10th anniversary of being cancer free!!!) My plastic surgeon did the original, but it faded quite a bit - it's been like this for quite some time, but I decided to retattoo as an anniversary present to myself! I think I…
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sunburn and a way to keep it cool
Hi guys, I took my daughter and her friend swimming. I had my daughter spray my head with sunscreen, but she missed a large spot just above my forehead. So of course I have a sunburn there. Anyway, I found a really cool (forgive the pun) way to keep my scalp cool. My daughter's dance teacher gave all the backstage mom's a…
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A question for CypressCynthia...
Hi Cynthia! I hope you're doing well. I had a question for you. I know you were dx at 33. I was dx at 32, last year. Did you do annual check-ups, always? If so, what kind of tests did you do after you finsished treatments? Was your tumor estrogen+ (by a lot)? I pray I do as well as you have been. I know you've also been…
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any other Alaskans out there.? How to send private messages.?
How do you send private messages on here? I was wondering if there are others from Alaska on here .... being in such a large state with great distances apart, it is hard to find a nearby support group ...... glad to have this site Sue D
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Tongue-tied?
Okay, not sure if I can blame this on Chemo brain or perhaps Menopausal brain fog but I feel like I get my words mixed up and they come out sounding like I'm tongue-tied. I can carry on a conversation but it just seems like I've noticed it getting to be a little more often that I "mix" words. I feel okay, and I know what…
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TRIPLE NEGATIVE QUESTION / ADRENAL GLAND
Hi Pink Sisters It's been a while since I've been on here and I hope this finds all of you doing well. I have a question for any of you that had/have TRIPLE NEG BREAST CANCER. I had it back in MARCH 2009 and had both breast removed and no cancer in lymph nodes. In 2010 I had a CT scan and all was clear of my ADRENAL GLAND.…
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From arimidex to fareston
Hi all! Hope your fourth of July celebrations were all fun! I have written before complaining about arimidex. I was on it for 4 months and I couldn't take it anymore. I tried everything in my power to make it work. I honestly hurt as bad as I did when I was going through chemo. So my oncologist gave me a month off of any…
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Today is MMontero38's Birthday!
HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY DEAR LILI HAPPY BIRTHDAY TO YOU!! AND MANY MORE...!!! May your day be filled with extra special blessings and all things that make you smile! ♥ Cat
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watery eyes?
Anyone on taxotere and cytoxan have problems with watery eyes? Ever since my last chemo ( Tue.11/10) my eyes water all the time to the point the vision becomes blury. Another of those fun side effects.
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This is spot on!
This is a great article in the huffington post, I wish I would have read this at the time of my diagnosis.It is spot on Article: http://www.huffingtonpost.com/jeff-tomczek/cancer-advice_b_1628266.html Enjoy, Ayse
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Struggling
It has been rather difficult to read some of the post on this board, in particular some of the people over the 6 -12 months who have gotten mets and some who have passed away. I have been trying for a few months to stick my head in the sand and believe all is well and hunky with myself, in some way that is true however I…
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Oncologist visit
I saw my onc this am and he pronounced me stable. My markers are virtually unchanged and he is satisfied, so I am too. Best news is that I don't have to see him for 3 months. :-) That makes me a total of 3 years since metastasis and 25 years since original diagnosis.
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Today is GrandmaJ's Birthday!
HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY DEAR JUDY HAPPY BIRTHDAY TO YOU!! AND MANY MORE...!!! Wishing you a day filled with love, laughter, and all the things you love most! ♥ Cat
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Back from NJ--PET results in
On Tuesday night, we had a message on our phone from my rad. onc. when we returned from our trip to visit my husband's family in NJ. PET SCAN IS NEGATIVE!!!! There is NO EVIDENCE OF DISEASE!!! This was a million times better than winning the lottery. Kevin and I whooped and hollered and did the happy dance. I had an…
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Ned is on my dance floor now
I suspected that I probably was NED status already. But just to be sure when I went into see the surgeon after my baseline bilateral mamogram for discussion of the film I asked him if I was of NED status. So he gave me a quizzical look and asked me what NED meant. I replied "No Evidence of Disease". And he said "Yes" Music…