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Brain Cancer

Need Help Friends... Dad is trying clinical trial of sutent(sunitinib) Anyone hear of it?????
The drug is like avastin used for gbm to kill blood vessels of tumors except it is being used now for kidney cancer and liver cancer. The cpt11/avastin worked well immediately in May08 and prob. saved him with the amount of swelling he had reversed as well as the tumor reduction. However, the tumor today grew 25% which is…
Glioblastoma Multiforme
Back in February a family member was diagnosed with glioblastoma multiforme. They received one round of Temador and 32 days of radiation. The tumor is inoperatable. It was truly been a rollercoaster ride. Three monthes ago they were unable to turn in bed or get up without help, needed a walker and was very confused. Today…
DH Newly Diagnosed
Hello. My dh was recently diagnosed with gr4 glioblastoma (primary, 6 lesions scattered around his brain). He will begin radiation tomorrow, but high liver counts preclude him from starting Temodar as scheduled. We are hopeful, but realistic, about his prognosis. That's not my issue at the moment, though. The portions of…
Astrocytoma WHO grade III survivors
Has anyone who has had a Primary Astrocytoma been able to get back to the exuberant, energetic lifestyle that they once had? I'm getting better (after seven years) but I still have so many difficulties.
caregiver support
My mother has been battling cancer for 23 years. It all started in her breast. Now for the 4th time she has cancer again and it is in her brain. She has had all over brain radiation and gamma knife followed by chemo. I have taken care of her for the last 2 years....non stop. I am a sigle mohter of a 9 year old and this…
Treatment has changed
I just wanted to let everyone know that I first was diagnosed with Brain Tumor in 1999. At that point I was given radiation and a Chemo drug. My Tumor was considered a mixed glioma (Olyodendraglioma and Astrocytoma) and little did I know the Chemo drug only worked for one of the above types of glioma. My Tumor re-occured…
glioblastoma
Many of you have read previously information that I have posted. It has been five months since my husbands diagnosis with GBM. After his first round of Temador and his 6 weeks of radiation therapy he became so physically sick, he could not get up, turn over, or walk stairs. At this time there is NO treatment that can cure…
GBM
Hi...my step-mom was diagnosed with GBM on June 26, 2008. It started out that she was having a slight twitch. She had been through some highly stressful events in the past few years, (her father dying and MY father having been diagnosed in 10-07 with esophogeal cancer.) I must add that my father had successful surgery and…
My Dad GBM Grade IV. Multiforme "Glad to be here".
I am posting my first messege as compared to hundreds over at the National Brain Tumor Foundation Messege Board. I look forward to learning a great deal as I did and continue to at the NBTF messege board. These sights are a wealth of real, actual, and living data information to combat a disease very little know or care…
glioblastoma multiforme IV
4 months ago a family member was diagnoses with GBM IV.Surgery is not an option for it is located across both frontal lobes.Radation concurrent with temador has since been completed.They can no longer work, drive, shower, dress, is often confused and fustrateds, and has basically sits around and is off in their own world…
GBM IV - Avastin, wound not healing
In a nutshell, my mom and best friend was diagnosed with a GBM stage IV in Jan 2007. She's had multiple surgeries and the tumor has returned once in Sept. 07. Since that surgery, she has had several surgeries to heal up the incision on the top of her head to no avail. She had another surgery yesterday as the incision…
My Dad
My dad was diagnoised with a fist size brain tumor 1 month ago. Can't biopsie. Has progressed downwards quickly. Last night hospice brought in steriods, Decadron. Saw a small improvement with walking and speaking. He is on so many drugs. Atavan, Haldol, steriods, dilantan, and those are just the new ones. Hard to watch him…
glioblastoma multiforme
help!A family member 4 months ago was diafnonsed with glioblastoma multiforme. Sense of smell and taste were lost for a short period of time. Heachaches for only two weeks and none since January.A biopsy was done the end of January but came back inconclusive.MRI with and without enhancement showed a butterfly lesion across…
New dx of GBM
My dad was just diagnosed with glioblastoma multiforme about five weeks ago. MRI showed up to nine lesions, most of them in the left lobe. The doctors here (and at Mayo Clinic) said with his age (he's 65) and the numerous tumors that surgery is out of the question. They also stated that the risks of treatment with…
Nursing Home Abuse
I need suggestions if anyone has any. My dad is in a nursing home because he is slowly passing from a brain tumor. He has been there 3 1/2 months. The first month everything was good. After that I started to notice that his room was not getting cleaned and I would find old urine on the floor.He would have the same clothes…
cpt1/ irinotecan
anyone know anything about it
Medication Side Effects -- heartburn
I have a friend wiht GBM who is taking keppra for seizures and it gives her a terrible burn. This has become much worse since she started avastin and another drug which impact the mucosal tissue. The steroid she takes to reduce swelling also causes heartburn. Rice and rice cakes help, but they are constipating. Does anyone…
Coping help
Please help with any information that you can. I really would appreciate it. If you have a glioblastoma I know the nature is to sleep most of the time especially with radiation and chemo theraphy going on together. My question is how much does this tumor, (right and left temporal lobes), effect your understanding of…
glioblastom.
My husband was just diagnosised with glioblastoma IV. He was treated at one hospital then transfered by ambulamce to a brain and trauma hospital. We are told that it is in his right and left lobes. He had a biopsy that showed nercrosis. It is very deep and crosses and area they can not operate on so it is inopertable. That…
RE: 'oldbrain'
oldbrain was a brain cancer survivor and a member here at csn. We lost him on Feb. 20th in a car crash. Following is a link to his online obit where you can sign the guest book and leave a message if you choose to do so. Gerry was a very gentle man. He will be sorely missed by those who came to know him at csn.…
Brain Cancer Widow
My name is Mellisa Dockins and I am 28 years old. I had been married for almost 6 years and together with my late husband for 8 years. We have a gorgeous little 5 yr old boy. Off and on I had left my husband several times hoping he would get his priorities straight. I never wanted to divorce him. I just wanted him to want…
glioblastoma multiforme
July 28, 2007 is when I took my dad to the hospitial because we had thought that he had a stroke. He was having weakness on the left side of his body and memory loss. The ER docs did a cat scan and they found the tumor. Aug 3, 2007 they operated on him and were only able to remove the top half of it and they told me he had…
Father just diagnosed with Astrocytoma Stage 3 - need help
2 days ago we were told my father has stage 3 astrocytoma. There were 5 places in the U.S. that were recommended for us to research in the next week to determine where we would like to start chemo and radiation: MD Anderson, Mayo, UCSF, Duke, and NY-Methodist Hospital. Do you know if any of these are better than an other?…
Stereotactic Radiosurgery and results of the surgery
Hi. I am looking to talke to someone who has experienced stereotactic radiosurgery and was wondering how they are feeling after it. My Dad had this procedure 9 weeks ago. He is also on Decadron. He still experiences many headaches and has a lot of swelling. He is very uncomfortable. The good news is that the latest MRI…
Resources for my sister Suzy
My sister is in need of any resources for living communities, groups, activities, assistance in Maine. She has partial blindness, memory issues. She has been in remission for a very long time (diagnosed and treated at 19, she is now 38). She isn't able to work and is desperately lonely. Myself and my family just don't know…
new survivor
Hi, I started this by reading some of your discussions. You have me in tears. I was diagnosed in December. Found the lump myself on the 5th. Had ultrasound and mamo on the 6th. Biopsy on the 12th and bad news on the 14th. Met with surgeon the following tuesday and mri on thursday. The mri showed 7cm of tissue and the left…
Prayers will help.
My dad has been diagnosed recently with brain cancer. It all began with a pretty large bump in his head that started showing on Oct. 2006. We all thought that it wasn't at all serious since my dad was ok at that time and wasn't complaining. It all got serious when blood started to flow from my dad's head. We had it…
Glucocorticoid receptors in glioma
Might be of interest to glioma patients. This suggest the drug mifepristone (also called RU486) is transcriptionally active so could be used in combination with chemo/radiation to improve efficacy of those treatments: Implication of glucocorticoid receptors in the stimulation of human glioma cell proliferation by…
Meningioma treatment options
For those who may have difficult to treat meningioma where surgery or radiotherapy may carry a high risk of adverse outcome (due to the location of the tumour) here is some information that may be of use regarding an alternative treatment option. The fight for a life-saving drug: a personal perspective…
Treatment for Low-Grade Level II Astrocytoma
I had 4 brain surgeries to remove my tumor in 2005. My doctor is wanting me to begin Temodar at this time. What treatment have many of you undergone who have had the same grade of brain tumor?

Brain Cancer

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