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GBM IV..another stable MRI!
there is HOPE!..hang in there!...my mom has now had 3 stable MRIs. we are in our first 7 months since DX. BUT she has now had 3 stable MRI's... She has had a rocky raod but I believe its starting to smooth out! Since Dx she has had 2 surgeries, Rad. and 3 differnets kinds of chemo..but now I think they have a handle on…
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acc .
i have sinus cancer the fancy word for it i cant spell it . but i also had sinus traing . i had a couple a tumors taken out of the tumors takenn outthe size like a fist.thank god it is in remission
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ESSIAC TREATMENT
Hello. I hope all is well with everyone. My mother is battling advanced stage vaginal cancer. It has spread to her lungs and liver. Her days are numbered now. I was wondering if anyone has used the Essiac Tea treatment for cancer. If so, how was your experience? Please respond as soon as possible. Thank you for listening.…
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METASTATIC BRAIN TUMOR PROGRAM
http://www.neurosurgery.medsch.ucla.edu/Programs/BrainTumor/Metastatic_Intro.html
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Temador & Low Grade Glioma Outcomes
Temador is being used more in Low grade Gliomas. Anyone who has this experience, and what has been outcome so far?
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I need some help,please (tectal glioma survivor)
OK, I have survived 43 brain surgeries, two comas, radiation therapy, having my whole skull taken off and made thinner because my brain was swelling and I was dying, and lots of other 'stuff' Not fun, but I survived. I have just been diagnosed with someting called an 'acoustic neuroma'. Esentially another brain tumor. OK,…
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PXA & AA mixed
hi. has anyone heard of PXA being mixed with AA? just wondering about experiences
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GBM
Is there anyone out there that has been diagnosed with GBM or know of anyone that has been diagnosed with GBM & they were considered inoperable? EVERY single web page & story speaks of surgery right away for almost everyone. I just wanted to hear from someone who has been told that it would be a last resort & they are not…
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How do you cope?
My mother was diagnosed with GBM4 three weeks ago. We had no real beforehand suspicion anything was wrong. They have told us, it is inoperable and have told us the time frame for death will usually occur in typical patients (like your loved one is a typical patient) in three months. After having been given the treatment…
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Loss of Feeling in Genital Area
Hi, I am a survivor of a Malignent (sp?) brain cancer which I was diagnosed at Age 12 and finished receiving my treatment at ager 14. Went through Radiation and Chemo therapies and will be considered cancer free in Janurary (I am now 20 going on 21). My question today is I am a female and for the past few years I have been…
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Astrocytoma and Temodar
Currently on 8th treatment of Temodar - is definitely helping to shrink the tumor - looking for anyone that has been on temodar and dealt with side effects. I am currently on it for 5 days then off for 23 and back on for 5 etc.
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Need help!
Hi, My neighbor's 30 something son had surgery and radiation for a oligodendroglioma and now has some mental changes that make him unable to work. He is getting no follow up, has no job, no medical insurance. His dad is wondering if he might be able to get SS disability. He's done some research but just deadends so far.…
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gammaknife or cyber knife?
My dad had a lung met. tumor removed (rt.temp lobe)surgically on 6/28/05. A recent MRI showed 3 new small lesions: one in the same spot (1.4cm), one a bit above 2mm and one 3mm in back. He decided not to have whole brain (or any yet)radiation after his brain surgery and was getting ready for lung surgery before this…
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How's everyone doing?
Just wondered how the brainybunch is doing? I'm doing very well at the moment and want to hug the rest of the world, starting with you guys. I was diagnosed with GBM grade IV in dec 04. I've had my rads and a cranio, no chemo as of yet. My scans have all been the same since RT, no regrowth! I initially had an eggsized…
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Newly diagnosed with GBM
Hi, Im Chris, Im 24 and Im from England. On 5th August, I discovered that I had a GBM. This did not come completely out of the blue and so is not a massive shock to me- no tears or anything like that, although obviously it wasnt news which I wanted to hear. I was first diagnosed with a mixed oligoastrocytoma (II/III)…
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my mom has GBM 4 and is going in to her 21st month...
in late december 03 my mom was diagnosed with gbm level 4 and had surgery to remove the largest of 5 tumors i believe in the first week of january 2004. she was 48 at the time of diagnosis and she is now 50. after that she went to radiation for 6 weeks and was on 12 rounds of temodar which all worked very well for her and…
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Astrocytoma
My husband who was diagnosed ten years ago with an oligodendroglioma was in remission up until this past January. He was diagnosed with an astrocytoma graded between a 2 & 3. The doctors say that since he has had two surgeries and extensive radiation that he can't have anymore. All they can give him is chemo again. He is…
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for bjenglish
My son's situation seems similiar o what you described. We have questions as to the size of your tumor, it's location and what symptoms you experienced. Any info you can share will be greatly appreciated. KM's Mom
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Please Help, need info for 11 year old with Glioblastoma MultiForme
Hi all, I am posting this on behalf of a friend I have colon cancer myself. Any feedback or advice would be greatly appreciated The 11 year old was initially diagnosed in October, 2004 with a GBM (Glioblastoma MultiForme) in the cerebellum. Based on the MRIs at the end of June and again on July 25th, this initial tumor is…
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Glioblastoma death?
My brother has GBM and has reached the end of treatments. Can anyone give me an idea of what to expect in the next months? shelly
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Expecting the unexpected.
My mom was diagnosed 4-05 with glioblastoma multiforme. We were not given much hope. The treatments did no good for the tumor. She continued to show signs of going down hill. She finally had a seizure and for the past 2 weeks has talked very little, even acted like she didnt know us or that we were in the room. Cannot feed…
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pregnancy after tamoxifen
i have been on tamoxifen for 4yrs and wld like to stop it now and get pregnant. I am 37yrs old. My cancer was estrogen positive. anyone can give me any feedback please.maybe someone has done it before?thanks so much
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Glioblastoma Multiforme
My aunt is now in her 4th stage of cancer. It is very hard to see her like this. Does anyone know of any alternative treatments they can tell me about? Please let me know!
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What to expect?
I have a very good friend in her ealy 20s. Less than two months after completing chemo for a brain tumor, the doctors found another tumor, of the same variety, in a different part of her brain. The new tumor is inoperable and, despite the past few months of chemo, still growing. I don't know where to find realistic…
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Brain tumor
Please if anyone out there has had or known anyone who has had glioblastoma or lymphoma of the brain please email me at jodnns@aol.com My son has just been diagonosed with one or the other, we want know for sure until next week. Thanks, Betty Jones (Tex.)
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Chemo & Meds ?
Hello everyone, I'm new to this message board. My husband was diagonsed with a GBM in April of 04, he had surgery to remove a plum sized tumor that was on his left side between his frontal/parietal lobes & very close to his speech center. He immediately started with the Temodar and radiation (tomo-therapy). However 4…
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Glioblastoma Multiforme Grade 4 question
Hello. Late last September, my father was DX'd with Glioblastoma Multiforme Grade 4. In October he had the Tumor removed, and treatment seemed to be going great till about a month ago. They said that the swelling was going up and not sideways, but it was found that the tumor came back. They advised my father that if he…
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Whole Brain Radiation
My partner was diagnosed with two metastatic brain tumors in November. In December he had the larger of the two brain tumors (about the size of a small lemon) removed and is now ready to start radiation. We've spoken with about a half dozen Dr.s (radiologists, oncologists etc.) and they all concur that whole brain…
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thoughts on a tumor being "inoperable"
Hi there. My boyfriend has recently been diagnosed with an Anaplastic (grade III) oligodendroglioma. The word from our hospital is that it's inoperable, in that it could cause a lot of damage to try to remove it. What are other folk's thoughts on whether there might be another surgeon out there who COULD operate on it?…
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surgery after-effects
I had surgery 3 months ago for brain cancer. I continue to experience a sensation of running liquid in my head in the area where the surgery took place. Has anyone else had such an experience?