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glioblastoma multiforme

blueeyes22
blueeyes22 CSN Member Posts: 5
edited March 2014 in Brain Cancer #1
help!A family member 4 months ago was diafnonsed with glioblastoma multiforme. Sense of smell and taste were lost for a short period of time. Heachaches for only two weeks and none since January.A biopsy was done the end of January but came back inconclusive.MRI with and without enhancement showed a butterfly lesion across the left and right frontal lobes.Dr.s said radiation and chemo needed to be started immediately.They were started on Temador and 7 weeks of radiation.It was been 1 month since treatment ended. 6 mgs of decadron a day has bloated the face and stomach while losing muscles in the legs. They are able to walk around, clean up, dress ect.With a biopsy being inconclusive it is now my concern now that no other symptoms are present if this LESION was misdiagosed and it is not a glioblastoma multiforme. It is not important what was but it is important what is ahead, we were told 3 month with an additional 3 months if chemo and radiation were done.There is no decrease nerologically or otherwise and no definate proof from test just the mri that showed a butterfly lesion. Does that always mean cancer?
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  • dipndap
    dipndap CSN Member Posts: 1
    #2
    ALTHOUGH I AM NOT FAMILAR WITH A BUTTERFLY LESION, MY SON HAS A GM AND WAS FORTUNATE ENOUGH TO GET TREATMENT AT DUKE BRAIN TUMOR CLINIC IN DURHAM,NC. I WOULD SUGGEST A 2nd OPINION FROM A FACILITY THAT HAS A GREAT REPUTATION IN DEALING WITH BRAIN CANCER. WISH YOU AND YOURS THE BEST.
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