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What to expect?
I have a very good friend in her ealy 20s. Less than two months after completing chemo for a brain tumor, the doctors found another tumor, of the same variety, in a different part of her brain. The new tumor is inoperable and, despite the past few months of chemo, still growing. I don't know where to find realistic…
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Brain tumor
Please if anyone out there has had or known anyone who has had glioblastoma or lymphoma of the brain please email me at jodnns@aol.com My son has just been diagonosed with one or the other, we want know for sure until next week. Thanks, Betty Jones (Tex.)
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Chemo & Meds ?
Hello everyone, I'm new to this message board. My husband was diagonsed with a GBM in April of 04, he had surgery to remove a plum sized tumor that was on his left side between his frontal/parietal lobes & very close to his speech center. He immediately started with the Temodar and radiation (tomo-therapy). However 4…
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Glioblastoma Multiforme Grade 4 question
Hello. Late last September, my father was DX'd with Glioblastoma Multiforme Grade 4. In October he had the Tumor removed, and treatment seemed to be going great till about a month ago. They said that the swelling was going up and not sideways, but it was found that the tumor came back. They advised my father that if he…
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Whole Brain Radiation
My partner was diagnosed with two metastatic brain tumors in November. In December he had the larger of the two brain tumors (about the size of a small lemon) removed and is now ready to start radiation. We've spoken with about a half dozen Dr.s (radiologists, oncologists etc.) and they all concur that whole brain…
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thoughts on a tumor being "inoperable"
Hi there. My boyfriend has recently been diagnosed with an Anaplastic (grade III) oligodendroglioma. The word from our hospital is that it's inoperable, in that it could cause a lot of damage to try to remove it. What are other folk's thoughts on whether there might be another surgeon out there who COULD operate on it?…
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surgery after-effects
I had surgery 3 months ago for brain cancer. I continue to experience a sensation of running liquid in my head in the area where the surgery took place. Has anyone else had such an experience?
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Oligodendroglioma - Returned
Hi, I was wondering if anyone out there has had a reoccurring Oligodendroglioma. My husband is now almost five years out and has just completed his second surgery and is now doing Chemo for the second time. He is doing well but now we know that the tumor can and has returned and it's a little unsettling. We are trying to…
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Warning signs?
I was diagnosed with terminal prostate cancer 27 months ago and have outlived my diagnosis. I lost my job due to this and have no insurance but may have some in about 5 months. My doctor wants me to get a cat scan of my brain due to trouble with dizzyness and balance and I wondered if these are typical warning signs of…
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GBM. Tips for kids?
Hi! I am 26 yo with a 5 yo daughter. I was recently diagnosed with a GBM grade 4, I have had surgery and radiation. I will begin chemo shortly. I have been very open with my daughter and told her the truth whenever she has had any questions, maybe not always the whole truth.... If there is anyone out there who would like…
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Learning to cope with it all?
My husband had a grandmal 2 years ago and they found a slow growing astrocytoma he went through surgery but they could not get it all and then radiation for 25 visits, he is hanging in there we were told it will get worse and if they give him 6 years they feel they have done their job. He continues to have partial…
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Anyone else surviving stage 4 after one year with no Tumor Re-Growth?
I had a stage 4 tumor removed over a year ago. The doctors seem amazed that I'm still here and with no sign of re-growth to this point. Just wondering how long someone else might be going without it coming back. Thanks...Mary
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Sister just diagnosed w/brain tumor possibly ogliodendroglioma
Well, this is a first for me. Getting to the point, my sister is just beginning the whole scary path. At this point she has not been officially diagnosed. She has her biopsy next Wednesday and gets the results a week from tomorrow. Right now, I am just looking for something possitive to hold on to. Everyone seems to have…
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Whole Brain Radiation--Does Anyone Know?
My mother-in-law has just completed whole brain radiation to treat non-small cell adenocarcinoma lung cancer that mets to the brain. I think we're at an all-time low right now. She hasn't bounced back from the radiation at all. She requires constant care, cannot feed herself or perform even basic functions without…
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oligodendroglioma II
I had my tumor removed on the 8th Jan and have undergone my 1st chemo last saturday (feb 18th). am feeling a little better now compared to the days immediately after the chemo. am wondering how others out there are coping with their chemo sessions. also, i plan to go back to work next week as i have run out of medical…
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on my 3rd
Hi I'm new have my3rd astrocytoma I have had a full right temprol lobe lebectomy but all good. I believe I am lucky though as I can see hear walk and have the sensation of touch I'd rathed have them and have a tumour. I also believe doctors hurt to make you better
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astrocytoma brain cancer
My aunt Rachel is 29 years old and was diagnosed in April of this year. She is now in the forth stage-terminal. The docters say it is inoperable. Please write back if you have had success or good news.
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survivor rates?
My step-mom, 46, was diagnosed last week with her 4th cancer. The first, breast cancer, was found and treated successfully in the 90's. Last summer, doctors found endimetrial cancer and radiated sucessfully. December 2003, the cancer was found once again, this time in her lung. After going through months of chemo we…
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astrocytoma brain cancer
My aunt was diagnosed in april of this year. She is now in stage 4-terminal. The docters say it is inoperable. We're all worried and scared. Please write back if you have had any success with this.
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Skin Lesions
MIL is suffering from renal cell carcinoma that has metastasis to the brain. This week she has developed sores on upper thighs. Hospice nurse said, with a great deal of certainty, that the sores are skin lesions. Has anyone else experienced these skin lesions. As one of her caregivers I would really appreciate any input.
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oligodendroglioma
My boyfriend has been diagnosed with oligodendroglioma type I and II. He had surgery, and tomorrow there is his first time meeting with the oncologist. We are pretty scared and depressed about undergoing chemotherapy. Could you please tell me how your experience with chemo has been? What about the use of pain killers? I…
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personality change
My mum has recently been diagnosed with brain cancer; which we have been told is terminal- she is only in her early 40s and I am just 20. The scan showed she has several tumors on the brain. For some time members of my family and myself have noticed changes in her personality and she had become paranoid about things. In…
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Trouble taking Temodar
I have been taking Temodar for over a year now. I took a low dose every night during radiation and then started the 5 days on, 23 days off routine (I've done 11 rounds of that). During the past couple of months, I get extremely anxious right before I take the Temodar, to the point where my gag reflex is so sensitive that I…
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familial cancer
I recently underwent surgery for a oligodendrioma (brain cancer) and on Chemo. My brother also had brain cancer (10 years) ago. Does anyone have good references as to familial links to brain cancer? My neurosurgeon says there is no data for this type of cancer, but the chance of this occuring environmentally is unlikely.…
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Alternative medicine
Does anyone have personal info about Protocel? We asked the dr. about it and he did not hear of it. I also heard about Agaricus mushrooms on this site. Does anyone have any first hand info regarding these two remedies? A family member with GBM4 is about to have his third tumor removed. Any info would be appreciated.
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"Processing" problems
I have the silliest problem since my surgery, chemo and radiation...I do some things backwards! LOL. LIke, for instance, I walk into a room and turn the lights off instead of on..or I start to dry my hands before I wash them..or I put the lid down on the toilet then realize I need it up to use it!! Kinda cracks me up, but…
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"Sugar-Coating" of the Brain???
My father was diagnosed with cancer a couple months ago after he broke his arm while moving into his new home. The accident was actually a blessing, as this caused the doctors to find the cancer. Without going into the whole story, I just found out today that my father has what he explained as a "sugar-coating" of the…
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drugs
: Science Friday will be discussing the Drug Companies and whether they are interested in Cures or Profits tomorrow. The program usually airs at 10 AM in my area;check your local PBS station. bud
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Radiation question
I just completed chemotherapy for breast cancer and my best friend just completed brain surgery and is almost half finished with radiation for gliblastoma. Right now she's sleeping all the time and her family doesn't want visitors. I'd like to hear from others who went through this during radiation but got better. I'm…
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GBM- what to expect?
My 82 year old Grandmother was diagnosed with GBM, on the left side and back of the brain, in December 2003. Both of the tumors were inoperable, so she decided to take two weeks of chemo and radiation. Now she has made it to the 6 month mark, with an approximate survival rate from 6 months to 1 year. Can anyone who has…