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Anal Cancer

Chemo question....
Hi all, So I am scheduled to begin chemo next week as part of my treatment for my recurrance of anal cancer. As of now, the plan is to receive 5FU/Cisplatin as I did initially 4 yrs ago. A few weeks ago I had surgery to remove the mass in my lung and I will not be getting radiation at this time. When I went through…
5 months post treatment
Hi there, I'm so relieved as I just had my first pet scan last week. Everything is good. I'm NED! Yay.... I'm still hurting while going #2. It's still so painful. I still go #2 at least 4-5 times a day. I've changed my diet so I'm not eating salad's, fresh fruit, etc its just so frustrating. is there anything they can do…
Off Today for 2nd Round Opdivo
Thank you all for your good wishes. I'm leaving in an hour, heading back to Houston for round two of the Nivolumab and I'm hoping it will be a lot less eventful than the last visit. My doctors here have decided that my daily fever is something called "tumor fever" and is caused by the tumors themselves growing and stealing…
Fatigue
I am @ 7 weeks post treatment. Anyone want to comment on fatigue? I have days where all I am able to do is make a cup of tea. I know as soon as I get up that I'll be going right back to bed. Is this normal? I've got things to do! Life to live! Everyone tells me I am trying to go to fast. Thoughts?
Dr John Skibber. MD Anderson
i just returned from MD AndersoN. Dr Eng also told me I did not qualify for the trial. 1. There was a wait list and 2) she did not consider my cancer metasized. My 4 cm tumor is on my left uterer tube and has invaded my pelvic wall, muscle and sciatic nerve. All my reports say I have met disease but Dr Eng considers it…
9 years for me
This day, 9 years ago, I was diagnosed with T3,N0,M0 anal cancer. 9 years later, doing amazing with a great attitude and a little man who is turning 10 at Christmas. I remember seeing a post on occasion when I was first diagnosed of a 'long time' survivor and I hope that I can at least inspire one other person to keep…
Nivolumab/Opdivo Clinical Trial
Last Monday, the 3rd, I got "the call" from MD Anderson that I had moved up to the number 3 slot on the waiting list and nos. 1 and 2 were going in this week, so could I be prepared to go on August 17th. Well, there is a lot of pre-testing involved, blood tests, ct scan, biopsy etc and apparently, one of the people ahead…
CT testing-how many years?
I had my CT scan yesterday and NED! I met with 2 oncologists. My medical oncologist said everything great, see you next year. My radiation oncologist said you really don't need to see me again or get any more scans, unless something comes up. It has been 4 years since your diagnosis and your cancer isn't going to come…
What do I do and what questions should i be asking?
Hi all! First off let me start by introducing myself, my name is Tim, Im a 47 yo gay guy who has been HIV positive since 2007. My cd4 count is good and am considered non detectable. 2 years ago I had a sore in my perianal region that just would not go away. To describe it as being painful would be an understatement! After…
CT Scan shows "suspicious nodules"
Hi - I am new here and was hoping to get some help from you. I was diagnosed in January 2014 with Anal Cancer. There was the tumor and also 2 lymphnodes in the area affected. The OR was very confident that I would be cured. Anyway, I just had a follow up CT scan and I was told there were 3 suspicious nodules in the lungs.…
Poop
I've been lurking on this site for years and am so very grateful for all the advice you've shared. I am almost five years post treatment and have an embarrassing question. When I have a bowel movement, they are soft and there is almost always some that doesn't get pushed all the way out. I end up using a huge amount of…
Getting Aggressive (with suspicious nodules)
Hi- i posted recently about the "suspicious nodules" that were on my recent cat scan. To get right to the point, my Oncologist and the thoractic surgeon want to go right in, remove a lung lobe, biopsy the 5 nodules, and go from there. This of course has thrown us for a loop. I will be in hospital for as long as a week.…
NY/NJ area hospitals?
For the past 18 months, due to anal cancer, I've been utilizing MD Anderson for some of my care. I've been mostly happy with care received. They are one of the few in this country with a specialization in anal cancer treatment. For reasons too complicated to explain here, I may have to move to Northern New Jersey. It's…
TallOrder
-Hello, Just wanted to make sure you saw the post on the thread you commented in with Winniepeg, see below Winnies last post here was 5-26-14 just over a year ago. Last on line 7-7-15 if you look at her profilie. Winnie are you out there will you post and let us know how you are. Thank you, Lori * Also, if you look at the…
Three Years
Three years to the day when I found out I was cancer free after chemo and radiation for Stage III Anal Cancer! I praise God for every day of my life and all the blessings I've received. Blessings to all those on this board who are fighting the fight! Life is good and worth the struggles we all must go through. My best to…
Just for fun!!!
Hi all, this was shared by a friend on my facebook news feed and I think maybe we should all have on our cars..... katheryn
Sour mouth
Today it is was first day for chemo and radiation.i have Xeloda in the morning and evening - 1650 mg for each. Metomicin infusion And radiation.i fill ok,but around evening I founded I have a sour throat and it fill like my mouth it sour ,in throat I have few yellow dots. What I need to do? It a first day only??????
Stage IV Updated
Sorry for long absence. It has been an ordeal the past several months. I last posted in February. Since then, I underwent 5 1/2 weeks of radiation at MD Anderson, followed by 3 months of painful recuperation. I was just starting to feel better when I went back to MD Anderson for cat scan follow up. They told me NED in anal…
Update
Just a mini update. We had the second opinion yesterday. She didn't have any of our details! She has since seen the MRI and agrees that whatever it may be is indistinct. They have requested the histology and I believe they will do their own pathology tests on the sample taken during the biopsy last month. One other thing,…
How I was cured of Stage 4 anal cancer--liver metastases
I was diagnosed with Stage 4 anal cancer in January 2008. I had an anal tumor, a second tumor in my rectum, and uncountable metastatic tumors in my liver, the largest of which was 5cm in diameter. I was treated with Paclitaxel, Carboplatin, and Xeloda, every three weeks, until July of 2008. (No radiation.) This was chosen…
Lymphedema
Has anyone been diagnosed with lower limb (ankle,feet) lymphedema? a possible side-effect of pelvic radiation
Intercourse after chemo and radiation
So I am a month out and I have to say that sex is very painful even though I have been using dialators. When does the pain go away? It is terrible pain!! Any help on how to make this better?
Brachytherapy clinical trials
Hey guys, So I was checking out the link provided by ouch ouch ouch and Martha back last year about a clinical trial for high dosage Brachytherapy in New York. It appears to be open still now. Is there any reason why British nationals could not enroll on it, if we were willing to pay?
Just a very quick question about colostomy forums and websites
Hi guys, This is a complete long shot, but I am trying to find any programs out there which might be looking for "human guinea pigs" on which to use an artificial anal sphincter. I know they did some experiments a few years ago which were successful. My mum would be keen on this if such an idea existed. Could anyone…
Biopsy results
Not great news, unfortunately. The results show a few cancer cells remaining. We're talking minimetres. Mum has to have her anal sphincter out in a curative operation to remove the tumour. There will be margins etc. Right now we're all shocked and devastated. Oh an mum will have to wear one of those bags for the rest of…
perianal squamous cell carcinoma in sitiu
I posted here previously here about my ordeal with this and having it removed etc, and am so delighted today to hear the good news that my biopsys are clear - no evidence of further dysplasia. Even though, reading other peoples posts, this wasn't as serious a situation as others were in, it has certainly been hugely…
MD Anderson
We are going to get a second opinion with the Royal Marsden in London and possibly a third with BUPA. I've heard a lot about MD Anderson in Texas, that it's supposed to be the best around etc. Does anyone know how the process would work for U.K nationals to seek a referal to MD Anderson? We wouldn't want to fly all the way…
Clinical trial for non-surgical treatment of recurrent anal cancer or rectal cancer.
I saw this tonight on the Memorial-Sloan Kettering Cancer Center website - a clinical trial for treatment of recurrent anal or rectal cancer where the person cannot have a resection performed or who does not want one: "A Phase I Study of High-Dose-Rate Brachytherapy plus Chemotherapy in Patients with Recurrent Rectal or…
My 6 month check up- Laz
Yesterday I received a news that my CT is clear against. I was a little worried because the CEA in my blood went from 1.3 to 1.7. Under 2.5 is normal. I have been feeling good most of the time, working hard and started some new business adventures. I am always a little cautious though: the "what if?" Is always in my head…
Ugh, please help, again!
Hey guys, So we are waiting for next Tuesday to get the MRI and biopsy results. Our head nurse who knows my mum gets anxious rung today to confirm a CT scan in July. Apparently, this is norma as mum had a CT scan last July and you supposedly have them every year. However, the oncologist said she'd have the CT in October,…

Anal Cancer

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