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Need help with my Dad
My dad had his surgery on April 8th of this year 1/2 of his esophagus gone and 1/3 of his stomach was brought up and attached. He is still having such a had time eating. If he does not take nausea pills everyday he can't function. He is eating the small meal that are suggested but will just randomly throw it up and can not…
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Spoke to a Paul
I spoke or wrote to a Paul who has gone threw this. I think it was back in March. You gave me some advice for my Dad and sites to go to on Dumping syndrome and other things. If you are on the network today could you write back to me. My dad needs some more help. Or email at krandall@ajchebuske.com Thanks
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Question about eating after surgery..
My hubby will be having the surgery soon and I want to try and get all the info I can on feeding him after. I have heard about sugar and milk in your diet after surgery. Right now he is eating most anything he wants and I also still make him shakes for xtra calories and vit. The shakes are carnation instant breakfast mixed…
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So many newbies
I hate this. I mean, I am so happy that you found this place, but I am sorry you needed to. I have been thinking on what I would want to be told if this were a year earlier...and this is what I think the thing is I have learned from our journey. Live. I wish I would have done that when we were first told. Because I lost…
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stereotatic radiation
Ed saw a radiation oncologists yesterday regarding his brain tumor and they are suggesting stereoatic radiation in Boston Dana Farber Cancer Center to deal with it. It is all new to me and I was wondering if anyone has heard of this treatment before? thanks linda
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Just Checking in
It's been awhile since i've posted but I try to read often. Robert has finished his chemo and radiation as of May 20th. He actually did great, lost about 30 lbs during the whole course of things and in the last couple of weeks gained about 5lbs and is eating like a horse! And i've been cooking up a storm when we are home…
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My husband has just been diagnosed, too
Hi, my name is Liz. My husband Tom was just diagnosed with EC that has spread to his spine. He had an MRI, petscan, biopsy of the spine and an endoscopy. As you know, I am just heartbroken and devastated. The onc said chemo only and wants to start on Tuesday. We have an appt tomorrow for a consultation. A little background…
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Just had the Ivor Lewis Surgery - Question
I had the surgery on 6/7 and just got out this past Wednesday. I am doing pretty well but have this pain in my ribs up under my right armpit that at times is a 5-6 on the pain scale. I left a message for the nurse at my surgeon's office about it and am awaiting a return call. My question is - is this a broken or cracked…
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Lyle's online Guestbook
I wanted to share Lyle's online guestbook. His obituary was very small and simple...much more is going into the service. We are playing one of the songs recorded by Lyle during the service. I wish I could share it with all of you!! http://www.legacy.com/gb2/default.aspx?bookid=193417016806 Susie
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Happy Father's Day to all the Dad's on this board
We are grateful to be here in Colorado's beautiful mountains on this Father's Day. Jim will see an Oncologist locally on Tuesday. Perhaps we'll get a new perspective and a more hopeful outlook than our last visit in Houston. He's feeling pretty well, fishing and having a great time, but tires very easily. Altitude might…
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Dad did great through treatment, now that we are home he has a high fever with no cause!
So my dad went through treatment well. We came home Thursday, and Sunday he developed a fever of 102.5. We took him to the ER and they gave him a bag of antibiotics but he was allergic to it; however, he finished nearly the whole bag before he broke out (it was levaquin). They did blood cultures and called an oncologist…
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Happy Father's Day CSN DADS!!!!
I just wanted to wish all of the csn dad's a very Happy Father's Day! Love, Tina
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What would be a good fathers day gift?
Hi All! Never before have I really put that much thought into fathers day. My dad just sees it as another day, but this year will definitely be special for all of us. I'd like to think of something meaningful to get get him. Anything to lift his spirits, keep him comfortable, etc. FYI- he doesn't really like to read (he…
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Question about esophageal stent
Has anyone had problems with their stent plugging? He has had it happen twice now. After some time and a fizzy drink it came unclogged. Just wondering if this has happened to anyone. Thanks Nancy
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Thought I would check in~
Hello everyone, It's been a while since I've posted on here, but I've tried to read a few posts almost every day. First of all I want to give my sincerest condolences to Lyle's loyal and loving wife. My thoughts and prayers are with you daily. I also think of, and pray for all on here who are enduring this seemless never…
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Anyone have/had a j-tube?
My dad will be having a j-tube placement on Monday so I've started to research how it all works. I have a basic idea about where the tube is inserted. I'm just wondering about the length of the surgery, hospital stay, etc. Our pre-op appointment is on Friday but I like to come to appointments prepared to ask good…
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My father has Stage 1 and just had the Ivor Lewis Surgery 5/24
Hello, I know we were extremely lucky that my father's esophageal cancer was caught early. We met with oncology and surgery before his recommended surgery was scheduled. He had the Ivor Lewis surgery on 5/24/2010 for moderately differentiated adenocarcinoma of the esophagus. He had a previous diagnosis of Barrett's and…
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Here is the link to my Daddy's obituary
I thought i would share with all of you here my dad's obituary, because all of you here have been such a great part his journey. http://www.webfh.com/fh/obituaries/obituary.cfm?o_id=312959&fh_id=10503&s_id=78555BD05AD192A9E5C5E1D391F5E6AF Thanks to all of you for all of the condolences you have sent my way after my posting…
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For a friend
Hello to all. I am a frequent visitor to the lymphoma area on this site and the folks there have been a Godsend to me. Now I want to help a friend and I knew right where to go. She just called to tell me that her husband had a biopsy done and the results show adeno esophageal cells. His next step is a PET scan. I don't…
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New....but not to EC
Hi All....I'm the daughter of BigJim64. He doesn't know that I even logged him in to this amazing website. He'll find out later today. Dad is 64. He was diagnosed with EC on October 16, 2009. He did radiation. He did chemotherapy. He had his esophagectomy on February 24, 2010. Yesterday, he was told that the cancer has…
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Layne doing well
May have to move on and really FIGHT for our spheres, but I'm ready to do that. Still no answer as to why the biopsies show no cancer though supposedly they are dead center of the largest tumor showing. I just know God is doing what he is doing and we are doing what he asks of us. :) We miss you all. Been very busy with…
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My treatment is finished,some questions about Radiation.
I just finished my 6 weeks of radiation and also was disconnected from my last 5FU 96 hour infusion last week.I'm wondering about radiation effects that others have had..It seems like the last week my appetite has gone down to nothing,I'm getting my calories from shakes made from ensure plus and benocalorie and other…
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Ed got bad news today!!!!
Ed was having difficulty with his balace this week walking along with severe headaches off and on, went to er this morning, got admitted, had ct scan of head, came back with 1" tumor in his brain, the cerebellum part, the back of his head. the doctor is doing an mri in the morning and we have a consult with his oncologist.…
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Where does one start on this journey
New here and wanted to say hello to you all. 57 yr old male married 31 yrs 2 wonderful grown children and a loving wife still by my side. I was diagnosed with stage 4 esophageal cancer just Tuesday past, we are devastated at the news and feel so lost. I am hoping to find info on this site through members with the same…
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medical records / curcumin
My husband was diagnosed with a stage 4 esophageal adenocarcinoma and it had also appeared in the liver with a one centimeter area that was biopsied. He was diagnosed in late February 2010 He has been receiving treatment at Sloan Kettering in NYC. He now has a mediport and every two weeks he gets oxyplatin and 5FU. He has…
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Neuropathy?
I was wondering if anyone else is struggling with neuropathy? My hubby's big toe on his left foot has been hurting for months. At first, the Dr.'s said it was just a weird after affect from surgery. They ruled out gout and now think that it is neuropathy. He is now going to physical therapy for it - they use an ultrasound…
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We hit a bump in the road.
It seems we have hit a bump in the road of our journey, and as a the caregiver, I cant help but ask myself where I went wrong. We were so excited that the chemo has worked so will (he had three rounds) and now was going to see the surgeon. We went in Wed. for a contrast Ct for the surgeon to look at and tell us if surgery…
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Five FU and Oxaliplatin
The cocktail for chemo that the Cancer Treatment Center has prescribed for Dale is called FOLFOX - it is 5-FU, Oxaliplatin, and something that starts with an L. Has anyone ever heard of this and what kind of things should we be ready for - mouth sores, fatigue, low white count, and nausea we know about. Also…
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Extreme Fatigue
My father started his second line of treatment last Thursday. He has experience extreme fatigue -- can't even get out of bed. I know it's not depression because he's had a great attitude about this. He's had fatigue over the past 6 months, but not this bad. My mom took him to the cancer center and his blood work was…
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Singing in heaven...
Hello my friends! Lyle went to be with the Lord this morning just before 2am. He was surrounded by many of us who love him deeply and he went calmly while asleep. I will miss his presence in our home, when I sing in choir at the church, and when I have something I want to just bounce off of him. We met 7 years ago today!…