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Uterine/Endometrial Cancer

Introduction: Getting Started with the Uterine Board - Updated 4/12/2022
You've found your way here because you or a loved one either has uterine cancer or there are initial indications that cancer might explain the symptoms now being experienced. This Board is a good place to learn more about what you can expect as there are initial appointments with doctors, tests, test results, and if…
Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
Uterine Board Frequently Asked Questions (FAQ) and Other Information - Updated 4/12/2022
While any member can create a new forum topic or respond to an existing topic, this page was created to provide members with quick links to certain posts on topics that others have found useful or informative. It also includes links to outside references and help on using certain features of this site. Here are the main…
Uterine papillary serous carcinoma
I was diagnosed with USPC in August 2024. Had total hysterectomy (stage 1b, no metastasis or lymph node involvement). I have had 3 rounds of taxol/carboplatin and should be starting external radiation after first of year. Other than neuropathy and some short term muscle pains, I handled the first three rounds of chemo ok.…
What to do when you get a recurrence of Endometrial Cancer In 6 months
My mom is my everything. She was diagnosed with endometrial cancer. She had a hysterectomy, & chemotherapy with paclitaxol & carboplatin. Was in remission for only 6 months post 5 cycles, she was supposed to have 6 cycles, but could not have her last cycle due to neutropenic fever putting her in the hospital, & since her…
Advice re biopsy
Hoping for a little advice, first my history; I’m 51 post menopausal, have 3 kids had 4 miscarriages, Mom had breast cancer. I’ve had cramping for a while and pain in the tops of my legs, I then had some spotting so went to obgyn, had transvaginal scan which showed cyst in cul de sac and thickening of lining at 6.3. Dr…
JOINT PAIN AFTER CHEMO
I went through 6 rounds of carboplatin and taxol chemo treatments this past year. I finished in April and a few weeks later I began to feel extreme joint pain. My Doctor said it was probably because I had not been active during my chemo, but as I was reading on here, there are many people who have gone through similar…
Post vaginal brachytherapy side effects
Diagnosed with stage 1a after total hysterectomy and will meet with radiologist next week. I was told it is up to me if I want to do further treatment as my pathology was very clean. I would be interested in any potential side effects that you may have experienced with this therapy. The limiting factor is my age (68);…
Not sure what to expect...anyone else been through similar?
Hi! Wondering if anyone had similar ultrasound findings and what the results were? I had a biopsy done a few days ago and now waiting on results. I'm 3 months into taking tamoxifen because I was diagnosed with breast cancer in April of this year, but that would be very quick for these changes to happen. Horrified at the…
Question on endometrial cancer stage 1A Figo grade 2 nuclear grade2 endometrioid adenocarcinoma
I just had a hysterectomy on 11/11 with large fibroids. I was unexpectedly diagnosed with endometrial cancer stage 1A FIGO grade 2 nuclear grade 2 endometrioid adenocarcinoma. I met with my gynecology oncologist today, and he said he wants the radiology oncologist to determine if radiation is needed. Since this was not an…
New to site
I am 30 years old and I just got dignaose with Endometrial Cancer. I have lot of questions and a lot of things I do not understand. I will be going to see a specialist on Oct 1st. To say I am scared is an understament. I found out on Wed since then I have hardley slept and have spent most of the time crying. Family and…
Synchronous primary cancer
Hello, I am a 54 year old who last year was diagnosed with endometrial and ovarian cancer. I have finished radiation, chemo, and brachytherapy and currently on Keytruda. Is there anyone else on here that has been diagnosed the same?
Feeling Ugly
It has been four months since my last chemo and my recent CT scan showed no evidence of cancer. I know I should be ecstatic, but I am so depressed. I know this is selfish of me to feel this way, and I am super lucky to be alive, but I feel so ugly since chemo. My hair is growing back, but it's not the beautiful red it used…
Follow ups after surgery
Just diagnosed w endometrial cancer caught early stage1A1 had my surgery which went very well and now just have the every 3-4 month check for reoccurrence, my first coming up next month. My gyn/onc said I could follow up w my regular gyn whom I have a appt w the month after. Im at the nervous stage of “what if its back”.…
Frodolass Update...
I also posted to the "long" thread which I read and found some great information. I just wanted to introduce myself. I'm 52 years-old and was diagnosed with UPSC with clear cell features in early August. I had a total abdominal hysterectomy with ovaries and fallopian tubes removed as well. I hadn't been to the doctor in a…
UPSC - Any survivors greater than 5years?
Hello Fellow UPSC sisters.. I would like to start a discussion on looking at recurrance rates and survival from the USPC group. This may sound depressing, but I think it would be positive to put light on this "Rare Agressive Cancer". I had surgery (TAH + BSO and pelvic node clearance Aug 2010). Surgical staging IIIC. (Node…
Any low grade endometrial cancer stage 4 survivors out there?
Hi, Just wondering if there is anyone with low grade stage 4 endometrial cancer and if so what treatment options were you given and how successful are the treatments for your low grade cancer? I'm needing some hope for a newly diagnosed friend. Any stories of hope would be really appreciated!
Joint pain
I’m receiving Keytruda infusions every 3 weeks. My knees and hips are hurting. I’ve read Keytruda can cause joint pain. I’m using cold / heat packs on my right knee which is swollen and difficult to bend. Any suggestions on how to reduce the joint pain?
Stage 4b cancer
Hi. Anyone else diagnosed with stage 4b cancer? Last December had an 8 hour surgery to remove lady parts and the visible uterine cancer that spread and was wrapped around my bladder and other parts. 6 rounds Chemo ended in April. now in immunotherapy infusions for years. Having all kinds of side effects. Hoping others have…
Uterine Carcinosarcoma, any survivors out there?
Hi everyone, My mom was diagnosed with carcinosarcoma in Dec '08, she had a total hysterectomy and removal of pelvic lymph nodes (cancer was found there). Since then has done chemo and radiation, finishing in the summer of '09. She's doing ok now, but I was just wondering if there was anyone out there with a similar…
Recently Diagnosed and Adjusting
I was diagnosed with endometrial cancer on July 2nd. Had radical hysterectomy on July 18th. They thought it was going to be a simple day procedure but discovered that cancer had spread to a lymph node which they couldn’t removed because it was too close to a major blood vessel. I ended up staying a night in the hospital.…
anyone heard of this person?
Has anyone ever heard of a Dr. Mark Stengler? Is he for real or another scamer? Thoughts anyone?
Stage 1 Endometrial Cancer - Now what
Hello everyone, I am new here. I just had surgery for Endometrial Cancer. The pathology report came back as stage 1. The GYN oncologist said I am cancer free and that I should return every 3 months for 3 years and then every 6 months for 2 years and then once a year for life. That is all he said. I feel like there should…
Everolimus, Anastrozole, & Metformin for ER+ PR+ HER2- PIK3CA EC/UC
Anybody on this combo? What side effects are you having? This may be the next treatment for me. I know that I am just a voice in the wind, but I figured I'd ask here for the fun of it. The answers of course will come when I talk to people with breast cancer who have my molecular profile. BTW about 30 to 40% of ec/uc…
First Visit
Hello, I had my first meeting with the oncologist today for my endometrial cancer. She was very thorough and personable. My best friend and sister were with me. I do not have a husband or children. My one daughter passed away in 2020. I was happy to have their love and support. It was a very long day that started at 4:00…
4th Recurrence
Hello, I'm Marchu from Buenos Aires. I have cervix cancer since 2017, when I had an histerectomy, then I had recurrences in 2018 and 2020 in which I received radio and chemotherapy. Then in 2023 I had a 3rd recurrence, and I received chemo and inmunotherapy which at first worked, but now that I'm receiving only…
Annual checkups
I am right at 6 years post surgery and almost 6 years from the end of chemo, and brachytherapy with no recurrence. I still go for annual checkups with my oncology GYN. How many of you continue to do this? I really love my Dr but she is retiring at the end of December. I will still go to the same oncology center and the PA…
Six years no recurrence after uterine serous/clear cell stage 1a with isolated tumor cells in node
Hi. I'm coming up on the six year anniversary of my diagnosis and treatment for uterine serous/clear cell cancer. Mine was in the upper part of the uterus, and one sentinel node had isolated tumor cells in it. I was treated with hysterectomy, 6 rounds of carboplatin, Taxol, and added in Herceptin, which was not standard at…
Do I have to take steroids after doxil
S teroids
dietary suggestions during pelvic radiation
Does anyone have suggestions for me related to good nutrition during pelvic radiation for uterine cancer, post hysterectomy.
Endometrial SEROUS carcinoma
I was diagnosed with endometrial serous carcinoma 10/21. I had a total hysterectomy, chemotherapy, and brachytherapy ending 6/22. I had a CT and PET scan 7/23 which showed cancer recurring in the retroperitoneal lymph nodes. I have my last radiation treatment today (total of 28) and am wondering if there's anyone else on…
Nine years later recurrance in lung
I had stage 1a grade 1 endometrial cancer 9 years ago. I had a full radical hysterectomy, and the Dr.s felt there was virtually no chance it would return. No chemo or radiation was suggested or offered. Nine years later I started to cough blood and after loads of tests, it has been determined that I have an endometrail…
Recurred once again
I'm back at what someone on this board called, "Whack a Mole" after finding another tumor in my abdomen, near my navel. Nuts! I almost made it to two years NED> Biopsy and resection followed. The tumor had invaded the mesh that was installed after a prior resection took much of the muscle and my omentum. So new mesh for…

Uterine/Endometrial Cancer

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