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Colorectal Cancer

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Brother diagnosed with stage 4 colorectal cancer
My brother was diagnosed with colorectal cancer 2 years ago and had his colon removed. Then 4 or 5 months ago, he was again diagnosed, this time with stage 4 cancer. It has spread to the kidneys and lymph nodes and was given a year to live. He is wasting away so quickly going from 160lbs. to only 114lbs. He hardly eats…
Tips for managing side of effects Oxycaliplatin infusion
Hi, I stage 3 colon cancer and the tumor was removed by surgery. I am now undergoing CAPEOX treatmetnt. I am posting this question in hope that you might share insight on managing side effects. I have read all the patient education information about the cold sensity after oxaliplatin infusion, but I believe those of you…
CEA level
Has anyone had experience with CEA levels rising exponentially but CT Scans showed no evidence of disease. My oncologist has ordered a PET Scan. What happens if the PET Scan is negative? What are next steps should one take?
pain in hips after radiation
five year cancer surviver!!!! But i believe radiation in my hip area has caused me to have pain in my hips ,i cant hardly put on my socks or sit indian style i get charlie horses in that area when in my exersize class.doctors say they dont think it was radiation that caused that but i disagree has anyone else had this…
need infor about high-dose IV vitamin C
Hi dear all, I read a few articles about high-dose IV vitamin C, I believe it will at least help with reducing the side effects from chemo. Since my husband will start chemo soon, I would like to have him give a try. So if you had experiences with high dose IV vitamin C, please help me with these questions: 1, what dosage…
where to purchase / buy Vitamin C IV mega dose?
Hello, Due to the pandemic, all clinics in Illinois ran out of Vitamin C IV. Now all patients have to look for other solutions to find Vitamin C Intravenous to continue the therapy. So we can call it a humanitarian case. Question to the members of this forum ... does anyone know the distributors of Vit C IV (contact and…
Late stage 3 colon cancer
HI, Very new to this. In March of this year I was diagnosed with late stage 3 colon cancer that has metastised in the liver with three tumors at tge very top periphery of the liver. I have had 8 chemo treatments so far with my 9th tomorrow. They have been using oxyplatin, folfox4 and cetruximab. Oncologist says the tumours…
Sometimes good news is as hard to process as bad news
So I met with the new surgeon yesterday to discuss my APR. It's been a month since I finished six weeks of chemoradiation. I feel great with no lasting side effects I am having almost perfect bowel movements and my blood counts are stabalizing for the first time in nine months. The surgeon did a physical exam of the area…
signet ring cell carcinoma
Has anybody else had this type of cancer and if they did can you please tell me more about it Pat
Completed 6/12 rounds of FU5 chemo (and surgery) - now DOC says I need to add immunology therapy?
Hello all and thanks for taking the time. I was diagnosed with 3c colon cancer in JAN 2025. Went through initial four rounds of chemo, followed by surgery to remove a 10 cm tumor (shrunk to 6 cm after 4 treatments, but then increased to nearly original size before surgery. Pretty feisty) . cancerous. It was a 10 hour…
y90 is a complete load of crap
Yes that's true, the treatment stinks and it made me even worse. The tumor they went after increased in size and I even have some new tumors. I'm done with the fake promises of wonder drugs. The name of the game is money and they are raking it in.
Another CEA question
Hi all, Summary: Dx with rectal cancer 4/05, treated with chemo/radiation and then local excision; recurrance 4/06, treated with AP resection/colostomy and 9 cycles of Folfox chemo ending 11/06. All my CEAs had been less than 1 or 1 until 4 weeks ago when it had risen to 3.5. CT scan had questionable area of markings but…
Anal Cancer - no one to talk to - does anyone survive this disease and come out with reasonable norm
I am a 43 year old female. I watched the Farrah Fawcett documentary regarding her experience with anal cancer and had never heard of it prior to that. I was shocked when only 3 weeks later I was diagnosed with the same thing - especially because I am the picture of health, other than this disease. I was diagnosed with…
Mother in Law with extensive colon scarring and poor quality of life
hello all I've come to this forum as we are at our wits end as a family. I'm trying to find some advice/guidance on what i can do to help my mother in law who is suffering more and more from the effects of colon scarring due to radiotherapy. She has extensive nerve and muscle damage meaning she can't really keep anything…
Bowel frequency after reversal
My husband had stage three colorectal cancer. He had a resection and a temporary colostomy bag. He has since had his bag reversed but, ever since then he has been dealing with frequent bowl movements. He will need to use the bathroom up to 15 times a day and each time he will pass just a small amount of stool. Has anyone…
Malignant plural effusion from lung met colorectal cancer origin
My husband's scan today revealed a plural effusion highly suspect for malignancy from colorectal cancer lung met. Has anyone had experience with this? Trying to figure out what to expect. Thanks so much.
Advice/experience for a friend
My dear friend had a total collecting and rectal pouch created as a result of ulcerative colitis when she was young. She received news earlier this year that she had developed adenocarcinoma of her rectal pouch. She was initially told the plan was for radiation chemo then surgery that would leave her with a permanent…
Still have neuropathy from Folfox/Oxy chemo
Hi, I am new to the forum, I was diagnosed Nov 2015 with a tumor in the rectum. Had 28 traditions, 6 weeks of 24/7 chemo, surg resection of tumor with temp illiostomy (for 12 weeks) then take down, then 12 sessions of Folfox/Oxy plus others that I don't remember currently. I had many of challenges others have experienced…
Major post-LAR gains after switching anti-depressant
Here's an FYI that I hope can help others. Stage 3 rectal cancer, had LAR eight weeks and on temp ileostomy, severely suffering, unable to stand up and walk for the last 3 weeks due to tenesmus, pain and incontinence. It turns out the anti-depressant given by my family doc was a stimulant and it neither helped me mentally…
CRC lung nodule..... chances can be Mets?
I was diagnosed (40yo female) 3c rectal tumor July 2024, did chemo and radiation august 2024 through Feb 2025, LAR in April, iliostomy reversal this past June. My CEA in May 3.8, July: 38. Just had CT scans done yesterday and found a 1.4x1.5cm spot on lower left lung. (A spot was noted in June 2024 petCT 3mm lower left…
On-line ostomy forum
For those with an ostomy because of cancer (like me), you may want to also join meetanostomate.org. I think this site has been mentioned on this site before but its been several years. Like this site, people with ostomies (for any number of reasons) share advise, encouragement. Having recently joined both sites, I have…
Port removal
the doctor surprised me at my last visit. In April of last year I had a tumor removed from my colon and a met just on the outside of the same area. 12 treatments later including 5fu pump Two positive lymph nodes after surgery of removing both I have not had a positive test. Two CT scans and tumor markers have all been…
Post chemo issues and severe foot neuropathy
I am nine months post radiation and chemo and still have hand tingling and finger numbness along with severe foot neuropathy (albeit somewhat better than five months ago). A month after chemo my feet (and left leg up to my knee) got severely worse from just the pins and needles feeling that developed after the fourth chemo…
Right hemicolectomy in a couple weeks. Looking for info on hospital and recovery experiences
Hi. Newly diagnosed with ulcerated invasive moderately differentiated adenocarcinoma (boy I hope I got those words in the right order…). Surgery coming up in a couple weeks. I'm getting and seeing inconsistent info on how long I might be in the hospital and what I should be prepared for coming home. I know it's different…
Insurance Denial Tumor Marker Test
Hello. My husband is a stage 4 colon cancer survivor, diagnosed in May 2006 with surgeries in May 2006 and October 2007 and chemotherapy treatment. He is feeling great. I am grateful beyond my ability to express my feelings for my husband's positive response to his treatment. On a negative note, however, as I've posted…
I'm a "survivor"?
Was diagnosed with rectal cancer in Feb '21. Felt like I died that day and I still haven't recovered. Trying to figure out how to be a survivor after everything that's happened in the last (almost) 3 years. At this point I've lost literally everything but my life, car, and a few possessions. I can't do this alone anymore.…
PTSD?
hello I’m new here today and the reason for me joining was wanting to know how people have dealt with their PTSD when it comes to your scans and bloodwork coming back normal for the last year and a half after stage three colon cancer six months of chemo every time I get a bump or don’t feel right I have my mind just goes…
Hello
Hi all. Just popping in to say hello. 12 years NED. I never adapted to the new format so I don't come on much. It used to he user friendly. It's really hard to follow on my phone. I have a lot of post cancer issues, deal with a lot of pain from the botched surgery but I bet a lot of us can sat that. I just keep on trucking…
Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
13 Years NED from stage 3b Signet Cell Colon Cancer
I have not posted in years, sorry for that. I am at 13 years NED and I just had my annual colonoscopy - all clear. I had 12 rounds of 5fu and oxciliplatin along with the right side colon removed. Sending all the best to everyone no matter where you are on this journey!

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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