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Synchronous Signet Ring Cell Carcinoma

AKRICH
AKRICH CSN Member Posts: 8 Member
in Colorectal Cancer #1

Hello all, I see there doesn't appear to be any current post regarding SRCC so I thought I would start a new thread. I was diagnosed with Synchronous Signet Ring Cell Carcinoma in January '25 stage III. At that time the MDC at University of Colorado settled on chemo and radiation. FOL FOX and radiation for the rectal tumor. The thought at time was to shrink the tumors and the operate. I had a rectal tumor (Left side descending) and a cecal tumor (Right side ascending).

Well, the tumors shrugged off the Chemo as SRCC is known to do and in late September my right side cecal tumor had closed off my large intestine. The doctor went to remove the tumor and found it had spread to my abdomen. Now I have peritoneal carcinomatosis in addition.

I am no longer a candidate for surgery as the cancer has spread; and I am now considered incurable as well. I am doing palliative chemo (FOLFIRI + bevacizumab) and living my best life possible.

Current condition, 2 Nephrostomy bags (One for each kidney), 1 ileostomy bag (for colon)

My understanding is SRCC is 1% of colorectal cancers and Synchronous SRCC is 4% of the 1%.

So, the chances of having what I have is 4 out of 1000 if my math is correct.

Also, I am not a candidate for clinical trials as I am prone to kidney infections. That takes you out of the running. I am not a candidate for immunotherapy because that requires a specific genetic make up and I don't have the correct genes.

With this luck, I need to stay out of Vegas for sure :-).

The reason for this post is not to whine, as I am comfortable with my future however it plays out. I am blessed in so many was except cancer and have learned so much in the past year about people. Suddenly someone views: political, religious, social, or otherwise makes no difference. When a nurse comes to help me, I am appreciative, and when I find out someone else is fighting cancer, I am empathetic.

I would like people to know; I am here to help or listen if they need someone. I am curious if anyone else is fighting a similar diagnosis. If so, please share your experience.

Best Regards,

Rich

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Comments

  • SnapDragon2
    SnapDragon2 CSN Member Posts: 731 Member
    #2

    You have def been thru it and have a great spirit about you.

    CRC is an  Epithelial disease that is also UV deficient. Sunlight on your skin (80%) is very beneficial and helps with circadian rythym. Circadian rythym is your photorepair of your cells.

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  • AKRICH
    AKRICH CSN Member Posts: 8 Member
    #3
    https://csn.cancer.org/discussion/comment/1725817#Comment_1725817

    Do you have sources to refer to regarding your claim. I cannot find anything that show UV-A or UV-B being beneficial.

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  • jadesanh2
    jadesanh2 CSN Member Posts: 1 *
    #4

    hi AKRICH, I had ascites in my abdomen and a mass near my lower pelvic . They thought I had metastasized ovarian cancer so they did surgery to removed mass,omentum , ovarian, fallopian tubes, uterus and cervix. Pathology came back that the origin of cancer might be in colon and is very aggressive . Had spread to omentum, ovaries uterus etc. I’ve been googling and I think mines is SRCC of the colon . I will be getting colonoscopy soon . Most likely I’m in the same situation as you . There is not much support on this cancer because it’s very rare . I would like to keep in touch so we can share information.

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