Stage lllB T4pn1

justTam

Hello!

I was diagnosed with Stage 3b CC- 1 lymph node affected, 1.9 cm tumor removed with all clean margins. I have completed 6 cycles of Folfox and I can no longer deal w/the side effects. Up until yesterday docs have reduced dosage and removed 3 medications leaving me with only 5 FU. To me this doesn’t make a bit of sense.
Has anyone heard of this or been through similar situation. I also started my treatments exactly 6 wks after surgery.

Thank you in advance for any advice, similar stores/outcomes etc.

Tammy

bibliophile

So sorry that you are having such a tough time with the chemo. Everyone responds differently. I tolerated the oxaliplatin, but most recently they added irinotecan to my FOLFOX(IRI) and that took me out pretty hard. At least you got through 6 cycles. Here's to hoping that will be sufficient and you will be good! A smaller tumor, clean margins and only 1 lymph node all sound positive!

justTam

https://csn.cancer.org/discussion/comment/1726283#Comment_1726283

Thank you so very much for your response. The doctor has removed all other meds except the 5 FU as a standalone. I haven’t read much that states the efficacy by itself is only 10%-15% protection. Not sure it’s even worth it. I feel the health of my organs are suffering from this treatment. It’s hard to believe that a patient that currently has a tumor and presence of cancer receives the same treatment as a patient that is NED. It’s just a standard treatment and not tailored to each individual.
May I ask how you are and when you were diagnosed? I’m very happy to have connected with others. It’s very hard for people to understand when not faced with these issues. Thank you for listening and responding. It means a lot.