Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

From Stage 1A Grade 1 Endometrial Adenocarcinoma to 6 yrs NED to Metastatic Stage4B
Greetings everyone! Along with sharing my journey here and checking in to support others in theirs, I am wondering if anyone has had experience with Stage 1A Grade 1 Endometrial Adenocarcinoma recurring after 6+ years being NED at each 3 month, six month, exam. The first time I was diagnosed (at 58) it was removed (via a…
Atypical Glandular Cells Undifferentiated on Pap Smear
Hi all! Who started out with Atypical Glandular Cells Undifferentiated on Pap Smear? I'm trying to find literature about this and what this means!? My GYN did not explain.
Greeting to all brave souls here
I am new to this site. 57 year old. had last menstrual period at age of 55 and became menopausal at 56. 19 months after last period started having spotting. contacted my GYN dr and had TVU. It was found to have no fluid but 5.18 endometrial thickness. i am going to be scheduled to have hysteroscope with biopsy. I am scared…
My sidetrip to Colorectal Cancer and a Reminder
I'm now 3 weeks post-op from a right hemi-colectomy (resection of terminal ileum, cecum (with appendix) and ascending colon). At age 70, the surgery did knock me out, and fatigue is still an issue. The incisional pain is minor but I have thick scar tissue bisecting my navel (I think he must have ended up with an open…
Endometrial hyperplasia or cancer concerns
I'm 4 and a half years postmenopause. I had some light bleeding 9 months ago, light bleeding 7 months ago, and then a little heavier bleeding for almost a month in December 2023. I have never taken HRT for menopause. At first, I was uneducated about bleeding post menopause was something to be checked immediately. I didn't…
Surviving UPSC
In August of 2025, at 63, I was diagnosed with uterine cancer. On September 30, 2015, I had a complete hysterectomy and was diagnosed with Stage III, UPSC. I came to this board a little bit after that looking for answers. I only made it through three chemos of carboplatin and taxotere. In December of 2015, I had a stroke…
Anyone using Fulvestrant or another SERD?
Looks like I may be changing from anastrozole (an aromatase inhibitor) and Ibrance to fulvestrant or imulestrant and staying on Ibrance. I'm in remission after two recurrences, and it looks like I can stay on the lower dose of Ibrance, but all my research points to changing the ai to a serd. I would like to hear the…
NED UPSC for 10 years!
I joined this board in October 2013 shortly after receiving my diagnosis. In December 2013 I had surgery at Moffiitt Cancer Center in Tampa Fl followed by chemo and internal radiation therapy. I am one of the very few lucky survivors to have never had a recurrence and am still NED today. I don’t think I realized until…
Uterine carcinosarcoma treatment experience
my mom had a recurrence of uterine carcinosarcoma after first round. It is stage IV and has spread to distant organs. Can you share your experience with this cancer, treatments (names of meds) and any other info you may think would be helpful. Thank you!
Vaginal estrogen and its alternatives
Hello! This is my first post. I am in my 60's and had stage 1a, grade 1 endometriod adenocarcinoma, and am currently 8 weeks post op recovering from total hysterectomy. Nothing found in lymph nodes, so no further treatment. My doc told me that 95% of endometriod cancer has estrogen receptors, but unfortunately I don't know…
Going to SGO in San Diego tomorrow, will I see any of you?
Hi This is my first time going. I will go to anything that has endometrial or uterine cancer in the title. I will be wearing a pin that has four women in black swimsuits and white swim caps. Probably will be wearing a pink or black mask. Corby
CDK 4/6 inhibitors and either an aromatase inhibitor or fulvestrant & Metastatic Endometrial Cancer
Hi, Okay, I'm trying to reach out another way. I have metastatic endometrial cancer er+ pr+ her2-, mutations: pten, pik3ca, ctnnb1, SPOP, mss stable, and tmb low. I have been on Ibrance and anastrozole for 6 years. I know that there are possibly some doctors prescribing one of the other two CDK 4/6 inhibitors to…
Chemo-resistant cancer mutation
Hi folks, thanks for all the helpful info and support on this forum. I've been browsing occasionally since diagnosed with Stage IV endometrial cancer last year but this is my first time posting. I've been fortunate to have nothing observable since surgery, although it makes it weird fighting this invisible disease. Anyhow,…
Newbie stage 4 looking for support and guidance
Hi all - My name is Jill and this is my first post. I was just told I have stage 4 uterine CA (serous) with mets to the omentum and peritoneum. The biopsy of a retro abdominal mass came back came back as “poorly differentiated adenocarcinoma of muellerian origin”. Doc says surgery is not an option because the mets in my…
Ureter Stent Kidney To Bladder -anyone else?
So my story began last year about this time. I was diagnosed with uterine/endometrial cancer which was in my cervix so at first they weren't sure if it was cervical or what. I had external beam radiation and six rounds of low dose carbo. I switched to Sloan Kettering and it was the best decision I could have made. I had…
2 year update
It's been 2 years since my last radiation treatment for Endometrial Cancer stage IIIa. I highly recommend probiotics with many different strains to help get stools back to normal. I had severe diarrhea on and off for a little over 1 year before I did this. I'm totally back to normal and can eat normal food again without…
Looking for transportation
Hi I am new here. Looking for transportation to get to an oncology specialist 3 hours away. any ideas? Thanks!
Uterine papillary serous carcinoma (UPSC), Brain metastasis
Hello all, I'm new to this forum. Dx'd 2017 with UPSC stage 4B. Metastasized to lung, brain, adrenal gland over the course of 2019-2021. I've been NED since Sept 2021 (after adrenal gland removed). More details on my profile. I'm curious to know of others who had USPC metastasized to brain - symptoms, treatment, status…
My endometrial cancer surgery
As promised I am updating here on the next step. I have been called in to; to attend a Pre Admission Clinic ( PAC) on the 2nd of January The surgery is scheduled for the 8th of January. I was wondering what exactly happens at a pre-admission clinic? Do they do more tests and answer our questions? I have been given 4 hours…
Question on post D&C operative report
Hello all, 39, premenopausal. After more than a year with increasingly heavy (but regular) menstrual bleeding and anemia, in late 2023 I found an OBGYN clinic that could see me several months earlier than my regular OBGYN. On my first visit, I had a pelvic exam and PAP smear, which found a slightly enlarged uterus and good…
Unexpected D&C results for CAEH - Likelihood of cancer?
I am 48 and haven't had my period in a couple of years. I had unexpected bleeding in September 2023, finally got an appt in October 2023 with my gynecologist who used ultrasound to diagnose 1cm thickness of my endometrius and a polyp. I had my D&C on Jan 2, 2024 and thought it would be like a previous polyp. Benign and no…
Experience with Keytruda/Lenvima?
I am trying to decide which regimen, among three of four choices, to try. The first best would be another carbo/taxol, but I am unwilling to lose my hair again. The second best choice -- medically best, I mean -- would be Keytruda/Lenvima. It seems like most posts about that combination have been pretty dire in terms of…
Uterine Serous Carcinoma
Hello- I am new to your board. I am stage 3C2 and 61 years old. I was diagnosed in October. I had open abdominal surgery Nov. 7 to remove my uterus, cervix, etc... and 4 enlarged cancerous lymph nodes. Next Wednesday (29th), I start chemo ...6 cycles once every 3 weeks. I want to try icing/cold therapy on my hands and…
USPC and breast cancer
I have gone through 2 bouts with BC, one in 2002, the next in 2010 (new primary in lateral breast, NOT recurrence.) In Oct 2011, less than a year after my last chemo for BC I was dx with USPC grade 2, stage 1a. Now here is what I want to share..... My onc said uterine CA has been associated with BC but because many women…
Endometrial biopsy
I am just curious if anyone's endometrial biopsy missed cancer. If so, how did you find out about the cancer?
I was just diagnosed today, I think I've had symptoms for a long time, anyone else?
my diagnosis is Endometrioid adenocarcinoma, FIGO 1. and my doctor says the outlook is good because it's not something that's been going on for years and years but now that I think about it, I have had symptoms for years and years, I have had difficulty in urination and I guess that's a symptom, now I am super worried
New to Board - Anyone recently diagnosed with Endometrioid Adenocarcinoma FIGO Grade1?
Greetings, I was diagnosed Dec 28 with endo cancer. Trying to get my arms and mind around this. I am 58 yrs old and had post-menopausal spotting which led to an ultrasound and then a biopsy. Full hysterectomy scheduled for Feb 5, 2024, and staging will be done with tissue sample as well as identification if cancer has…
Port - take it out or not?
My last chemo was 6 weeks ago, I want this port out. My Dr said she recommends leaving it for a while but I could have it out if I want. It bothers me, I’m always bumping it and sometimes it itches. Should I be cautious and live with it? I choose to think I am done with all this and the port is not needed anymore, so I…
UPSC: 11 years NED
Hi all - it’s been awhile since I’ve posted so wanted to pop in! 2 months ago I celebrated my 12-year cancerversary. I was surprised with a UPSC diagnosis 10/20/11 after a robotic hysterectomy (had a fibroid in an awkward spot near my cervix - dr tried a D&C but I had a septum in my uterus [im just full of surprises] hence…
Shifting my attention slightly
Hello ladies, Does anyone know about changes in microsatellite instability from "stable" to "high?" And what about changes from mismatch repair deficiency "absent" to "present?" I thought the designation was always one way or another and was imprinted in all your cells. I think now it is dependent on the tumor tissue. I am…

Uterine/Endometrial Cancer

Discussion List

Discussion Boards