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last week--high-grade serous carcinoma--this week adding in a high-grade sarcoma
Hi, folks, last week, a couple of the seniors here suggested I take a deep breath. I needed it--this week saw a respected gyn/onc here in the Philadelphia area. Very smart. Runs his shop like a clock, and is highly placed in the health system I am now going to. He said I had Stage IVB (because it had spread to the inguinal…
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Endometrial Adenocarcinoma that is involved Adenomyoma’s
I am 60 and recently diagnosed with Endometrial Adenocarcinoma. After my surgery my pathology report looked good with just a 3mm Myometrial invasion, and clear lymph nodes, fallopian tubes, and ovaries. However it also stated that In addition to superficial Myometrial invasion, the tumor involves the Adenomyoma/s…
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Reading recommendations for someone with a new diagnosis
Hello! I recently have been diagnosed with Endometrial cancer. It was a total shock and I am still just trying to process everything that I have going through my head. I am in my early 40's and had basically no symptoms. I have had heavy periods my whole life and the last time I went to the doctor for blood work I…
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Endometrial endometrium adenocarcinoma
Very scary words FUGO Grade 2 - nothing more on the report. I met with doc and being referred to gyne oncology doctor. Hopefully I’ll know when they can see me by Friday. the first part of my report says…. benign endocervixal glandular mucosa with background reactive appearing ectocervical squamous epithelium negative for…
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Just had first chemo
I had my first chemo with Keytruda on Thursday. During the night, I started having severe leg, ankle and foot pain. Like muscle or bone pain. And leg weakness. It has continued all through the day. Tramadol, Tylenol and ibuprofen aren’t really helping. Has anyone experienced this? Did you find anything to help? Is it a…
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Surgery 5 years ago today
Just sharing, 5 years ago today I was recovering from a few hours post surgery, scared of the results, even though the surgeon said there was nothing else seen. A week later I got the pathology results, no malignancy seen in the hysterectomy specimen. I still did not believe it. Here it is 5 years later I am starting to…
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genetic testing and assays
There a few newer members here, and while I know the board has been on the quieter side, and these articles have been posted before, I wanted to share them so everyone can see that things are continually changing and getting genetic testing may discovered some of the new drugs are showing promise where the chemo/radiation…
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My moms cancer is recurring (for the second time) and I’m confused, please help
My mom is 56 years old, and the strongest woman I know. She had lung cancer when I was really young, and they cut out one of her lungs. I guess it wasn’t deemed necessary, but she didn’t go through chemo. 3 to 4 months ago she was diagnosed with uterine/cervical cancer. About a month ago, they noticed a growth in one of…
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Research article on resistant tumors
This is not specific to uterine cancer but is so interesting https://www.bbc.com/future/article/20230704-the-mystery-of-microbes-that-live-inside-tumours
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FIGO staging updates for endometrial cancer
Just came across this news. The FIGO stages now have a bit more detail in the breakdown. I hope this will help to improve treatment for anyone diagnosed in the future. Inclusion of the various histological types, tumour patterns, and molecular classification to better reflect the improved understanding of the complex…
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Terrified and can’t decide what to do. Precancerous, doctor tells I need full removal of everything
Hi everyone! my biopsy came back with borderline adenocarcinoma, and suddenly I was offered atomic bomb version - full removal of uterus, ovaries, cervix - all of it. Sounds a bit too excessive to me, and I am not sure what to do? They say it has 25% chance of developing cancer. I am 52, thin, fit, eating healthy and never…
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just diagnosed with endometroid adenocarcinoma stage 1
I was just diagnosed with stage 1 utereine cancer and have an appointment with a gyn/onc next week. I am so nervous about all this. .I am on HRT and they told me to just stop it.. I dont want to stop it cold turkey and I am hoping I can take it after surgery.. I wont be able to function without it. . has anyone else had…
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I feel alone…
Hi, so I wanted to tell my story and maybe just get some advice. I was diagnosed with Endometrial Cancer at 22 years old. My doctor says I’m one in a million for this diagnosis.. I feel guilty for being diagnosed on my moms birthday, I feel like now she just connects her birthday with the day her little girls whole world…
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Looking for information on/experiences with conservative treatment (Mirena/levonorgestrel)
Recently diagnosed with endometrioid adenocarcinoma FIGO grade 1 and had a Mirena IUD placed due to being at high risk for complications from hysterectomy. Does anyone have experience with this? Approximately how long did it take for relief of symptoms (bleeding, discharge) with this treatment ? What side effects were…
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4.5 yrs out, 2 brief bouts peritoneal irritation, and Ca125 up
Hello to all. Since I completed surgery, chemo, and radiation for uterine serous/clear cell, 1a but isolated tumor cells found out in one sentinel node (surgeon only took one sentinel node on each side), I have only come on annually, to report that I've had no recurrence of the uterine serous. (I do also have an indolent B…
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Skin care/household products after cancer treatment
Has anyone switched up their skin care and household products? I'm trying to get better about using cleaner products to help reduce the chemicals, if possible. I have very sensitive skin so it takes awhile to switch. My daughter got on me about some of the things I was using, and she was right. Anyway, I switched body…
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New To All Of This - Overwhelmed
This is my first time on this site. I was recently diagnosed with endometrial cancer. I am scheduled for a hysterectomy and lymph node removal in six days. It's been a bit of a waiting game until that is done and I know exactly where I am as far as stages and how far the cancer has gone. I am feeling so overwhelmed with…
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Letrozole side effects? stage 1A
Hi - I'm new to the board and this is my first post. Was diagnosed with stage 1A, grade 2 endometrial cancer earlier this year. Had full laparoscopic hysterectomy early August (overall healing ok) - no spread, lymph nodes clean - but positive pelvic wash. Surgeon and hematologist have put out the option of taking letrozole…
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Roll call for Endometrial Adenocarcinoma any stage
No many active posts now, so I said let start this topic just for information, anyway the difference between Endometrial adenocarcinoma and UPSC is minimal. Thanks I'm Endometrial Adenocarcinoma Stage 4. Diagnosed in April 2015.
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Newly diagnosed
Would anyone care to comment on what kind of pain they experienced while waiting for surgery? A small amount of spotting and what felt like menstrual cramps at age 67 led me to see a gynecologist that did an US and a biopsy. The biopsy showed group 1 cancer cells. I have met with a gynecological oncologist and I am…
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Icing hands and feet to prevent peripheral neuropathy from carboplatinum, taxol, other meds
Just a reminder to newcomers here that this works. I was in for a completely unrelated treatment last week, and saw a woman beginning chemo who had been offered the scalp icing to save her hair, but had not been offered hand/foot icing, which I think is a terrible shame, since hair grows back quickly, but the pain of…
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Recurrence of uterus cancer in vaginal cuff
I have asked questions before and everyone was so helpful. i was recently diagnosed with recurrence of my uterus cancer in the vaginal cuff. The standard care seems to be external radiation and brachytherapy? I went to Stanford and the Mayo Clinic and was basically given the same options? Has anyone out there had…
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Lymphedema
In the thread entitled "How many lymph nodes? (Includes Recap of Lost Posts)" ncg007 commented that she had developed lymphedema about 2.5 years. I've also developed lymphedema at about the same time post-surgery. After a deep vein thrombosis ultrasound to ensure that I didn't have any clots, I met with the occupational…
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Confused with Mother's treatment plan
Would like some help in managing my mother's treatment plan: My mother is 86 and has been diagnosed with Metastatic stage 4 endometrial cancer (uterus being the primary source). She had about 7 cycles of chemotherapy consisting of Carboplatin and Taxol from Aug 2022 to Feb 2023. The PET scan in Jan 2023 showed her 80% free…
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Article on Brachytherapy
I hope this link works an interesting article. https://www.medscape.com/viewarticle/991987?ecd=WNL_mdpls_230530_mscpedit_nurs_etid5478199&uac=389007SR&spon=24&impID=5478199
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Checking In! Year 2 Surgery Anniversary & NED!
Sorry I have not been around for months and trying to get caught up on many posts this morning. Always difficult to see new members joining the group but gratifying to read my positive posts and more good and long NED news from members. I am coming up on 2-year surgery anniversary on June 10th and just a good 3-month…
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Newbie question
Just got biopsy results... carcino sarcoma... I am a BC survivor, and 10 years on Tamoxifen... looks like this cancer is extremely complex and aggressive. Any recommendations for treatment in Whittier, CA? I am close to City if Hope and USC Norris cancer centers. Within PIH network. Ihave been referred to a Dr. Im in…
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Uterine Cancer Mortality on the Rise, but Research Remains Underfunded
I came came across this article recently and it infuriated me. Very upset to read about uterine cancer funding particularly in relation to mortality. I was not really surprised that breast cancer is the most funded but shocked at the variance.. I wish there was more we can do s a patient, survivor and consumer to lobby for…
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I am 72 and have terrible vaginal dryness
I have tried just about everything I can find without much success. I thought Replens worked the best but my husband is telling me it burns his mouth during oral sex. He says the burn is similar to drinking coffee when its to hot and you burn your tongue. Has anyone else heard of this? If i don't use anything to help the…
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Hopeful news and why genetic testing is critical to us