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Thyroid Cancer

Radiated on purpose as an infant in the 1950's, cancer developed years later
I was born in the 1950's and treated with radiation as a newborn. I weighed 9lbs. 6oz. and my mom was told I was too big and had an enlarged thymus and radiation was necessary to prevent me from growing to gigantic proportions. Years later it came out that many babies were treated with radiation. The doctors I've found who…
Metastatic Papillary thyroid carcinoma
My husband has been diagnosed with metastasis papillary thyroid carcinoma in October 2023. He has undergone thyroidectomy and neck dissection (8 hour surgery!). 20 out of 30 lymph nodes were cancerous. He has had 1 treatment of R-131. His thyroglobin has been consistent and never elevated. So, clearly this is NOT a good…
anaplastic cancer of Thyroid
I have a good friend who was just diagnosed with anaplastic cancer, the worse thyroid cancer there is. They don't give her much hope and have evened suggested no treatment. She is desperate to find someone else who has gone through this or maybe a family member who has had the same. Any information would be very grateful.…
Medication for Metatsatic RAI resistance DTC
I had a TT with neck dissection in June 2023 and RAI last September. My lung nodules did not take up the RAI. My cancer was DNA tested, and they know it's an RAI-resistant strain that is aggressive. My 6-month check found my lung nodules have grown ~2-3mm (the largest is now 15 mm). I am scheduled to now see another…
Conservative treatment question
I recently underwent surgery to remove one lobe and the isthmus of my thyroid because they were obstructive. Despite benign results from FNA and DNA, path reports came back with two types of cancer in the removed lobe: papillary (very small), and follicular (3.7 mass). My surgeon is going to treat by leaving other lobe in,…
Problems they don't tell you about
Hello, new here and just diagnosed with thyroid cancer while undergoing eye cancer treatment. The endocrinologist recommends complete removal of the thyroid and does not expect needing any further treatment for the thyroid cancer after surgery. Many people say you can live without a thyroid, no problems. I'm looking for…
Thyroid cancer survivor imposter syndrome.
My husband works with hospice, and I only underwent a surgery and thyroid replacement hormone. I'm left feeling it difficult to express my many emotions (diagnosed less than a week ago) because my cancer isn't as bad as what hospice patients go through. Husband says he is supportive, but I can sense some resistance to…
Thyroid cancer & Rai Treatment
I was 33 when I got diagnosed with thyroid cancer, had a full thyroid removal (2 masses)and had rai treatment after. The recovery from surgery went well but Rai treatment was hell. I want to know was this hell for anyone else??I was on the no iodine diet for a full month, my hormone level had to drop and then I was able to…
I’m new
Hi, folks! I found out two weeks ago that I have papillary carcinoma. Of course I have been scouring the internet for information. I have an appointment with an ENT specialist a week from today and will hopefully have a surgery date set ip at that time. I would appreciate any suggestions, tips for preparing for whats ahead…
Hi everybody
SO I have PTC hopefully soon I will have it removed I have an appointment on Monday with the surgeon. I also have several nodules on my lungs that haven't changed in a year and a mass on my breast that could be cancer or pre cancerous and a cyst on an ovary that has to be surgically removed. I've had 9 biopsies and almost…
Effectivity of second RAI treatment without second operation?
Hi! So I was diagnosed with papillary thyroid carcinoma in 2017. Had a total thyroidectomy with bilateral neck dissection for some cancerous lymph nodes in July. RAI (105 mci) in August of the same year. Did a whole body scan in 2018 and it showed that the ablation worked. Haven’t had any symptoms ever since then. However,…
Hello
I just read my blood test results and my thyroid is through the roof at 9.30. I was diagnosed in 2021 with brain,spine and lung cancer. September of 2022 I ended up in the hospital for 30 days with pneumonia. I wasn't supposed to make it out. I was told to prepare for end of life. Well, I did make it out. But,…
FNA best provider for most accurate results Portland, Oregon?
I live in Portland, OR. Need FNA of thyroid and want to go where test and results will be most accurate. Where should I go? OHSU Thyroid Center or an interventional radiologist at Providence or Legacy hospitals?
Papillary cancer chest nodes and lung micro nodules
Hello all, I had a TT with neck dissection in Nov 23. I currently have medastinal level 3 nodes (2)that are enlarged. I had 200 RAI on 3-27-24.The previous chest C/T shows micro lung nodules. I was looking for anyone that had experiences with this? Treatments, etc. Thank you in advance.
High TG 6 months post-op
I’m mid 40s, had severe hypothyroid symptoms for about a year, then a partially obstructed airway which led me to this diagnosis: papillary thyroid cancer (follicular variant) diagnosed post-op. Thyroidectomy in September 2023 and just got my TG results. It’s 5620 ng/dL, which is much higher than expected range. I don’t…
Side Effects from Medication Adjustment
I was diagnosed with papillary thyoid cancer in 2022, and had my thyroid removed in December of 2022. My TSH has been suppressed since my surgery, hovering around .03, for about a year. About 3 weeks ago, my levothyroxine dose has finally been decreased enough that my TSH is starting to rise a bit. My issue is that while…
Did your nodules hurt?
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now), radiating up behind…
Lenvima??
Hi everyone, does anyone have experience with Lenvima? I am interested in learning more about the side effects and how soon you might have started to see results on this med? This is for idione refractory metastatic thyroid cancer ... w lesions on the brain. Thank you.
Question about Father's TSH and Large Nodule
Hello, Thank you for reading my message about my father. Father is 87, lives in India. Primary care Physician did a routine physical and found a very high TSH of 9.82 (0.34 - 4.25) and normal values of T3 and T4. TSH was previously measured in July 2021, and it was 4.5 and since it was borderline, no further testing was…
Starting the journey
Ultrasound revealed two large modules with a rating score of 7. My doctor is on vacation. Had to fight to get ultrasound and also the biopsies next week from his covering PA. So I don t know yet what type of thyroid cancer I have. My question is how to find the best treatment facility. Looking at Moffit and Mayo. Thank…
Possible Thyroid Cancer - Any Information Would be Helpful
I had an ultrasound on my thyroid nodule which came back as TI RAD 5. The size of the nodule is .61 cm. Was told to wait a year and have another u/s. I had and still have other symptoms, which is why I went to see my doctor in the first place. Swollen and, at times, painful neck, difficultly swallowing, hoarseness in…
thyroid cancer and WEED !
hello everyone. I've been a weed smoker for 2 years(becuse of my anxiety). 8 month ago i startet to feel pain on my throat when i was smoking , and the pain increased over next month. long story short , i had my thydoid removed because of cancer , 3 weeks ago (since it was on early stage the cancer mass was not too big)…
Papillary Thyroid Cancer
Hello all, I have PTC with one or more Lymph nodes involved, left side. Having total thyroidectomy soon and probably RAI. I had SCC base of tongue in 2018, I went to the head and neck cancer forum in 2018 and joined and received so much helpful information and tips that helped me through that ordeal. Please check my bio if…
tall cell thyroid cancer
any one have tall cell thyroid cancer id like to hear your story
Medullary and papillary thyroid cancer
I have read that this is extremely rare having both cancers at the same time. Has anyone else here dealt with this?
Braf in genes in cancer cells
i had a total thyroidectomy may 2020, with 50plus nodules removed, i complained to my endo that i feel something rough behind my throat when swallowing he just brished it iff and told me thats not thenproper way to swallow, had RA131 after 3 months from surgery in hope to dissolve 2 nodules, i was so confused as to why…
Throat Cancer Survivor (Radiation and Chemo Treatment)
Am available as a resource for emotional and/or mental health support for cancer patients and families in general and specifically for throat cancer patients and survivors. We are not alone.
PTC with a +BRAF V600E mutation
I'm currently 21 and will be 22 next month. Was diagnosed with PTC a little over a month ago after waiting nearly a year for a biopsy to be scheduled (issues with department shut down and people not wanting to do their job.) Ultrasounded in February and didn't get in for a biopsy until August. I came back positive for…
Loss of taste after RAI
I had RAI of 100 mCi on 10/28/09. As of last week, I have slowly been losing the ability to taste things. Has anyone else experienced this? How bad does your lack of taste get? How long did it last? I can't taste sour things anymore. It's kind of freakin' me out.
+BRAF V600E with PTC and kidney lesion
I want to start with I don't know if my kidney lesion is cancerous or not yet. I was diagnosed a little over a month ago with PTC of the thyroid and my ENT finally told me when I first got in about my BRAF gene mutation. I read somewhere on here that someones doctor told them it was like stepping on the gas petal and not…

Thyroid Cancer

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