The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Rhabdomyosarcoma alveolar head and neck

Zo12
Zo12 CSN Member Posts: 1 Member
edited May 2023 in Sarcoma #1

Hello this year I got diagnosed with stage 3 RMS in my sinuse cavity and right nostril. I’m 30 years old is there any one else here having the same. I need someone that can understand me when I talk I need hope

Like Care

Comments

  • lollipop2000
    lollipop2000 CSN Member Posts: 4 Member
    #2

    This is very late! I had embryonal rhabdo (stage 1) diagnosed in 2018 at 18 years old. I think we may have very different experiences but maybe I can help you <3

    Like Care
  • copilox
    copilox CSN Member Posts: 5 Member
    #3

    Hello, i'm french - Paris, 28, i have a rhabdomyosarcome alveolaire, i would like to talk with other people on same situation

    Like Care
  • CinnamonScone
    CinnamonScone CSN Member Posts: 14 Member
    #4

    Hello Osteosarcoma Survivors,

    From 1997-2006, I took care of my then partner who was diagnosed with osteosarcoma of the right maxillary sinus. I am happy to say, she survived her cancer and has not had any recurrence. She wants to share her story with all osteosarcoma survivors, their families and their caregivers.

    Like Care
  • rdininger19
    rdininger19 CSN Member Posts: 1 *
    #5

    I hope everything is going well with you! My sister , who is 28, was diagnosed with alveolar rhabdomyosarcoma recently. It also developed in her right sinonasal cavity and was stage 3 before she started chemo. If you don’t mind me asking, how are things going now?

    Like Care

Discussion Boards