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Brachytherapy
I had a complete hysterectomy two weeks ago for endometrial cancer it was a grade one stage to it was more than halfway through the lining and started to get to the top of the cervix The recommendation from the oncologist and from the tumor board is 25 external beam radiation treatments followed by three Brachtherapy.…
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Recently Diagnosed
I am new to this site and really gratefully that I found it. All you ladies have given me strength and courage for the road I have ahead. I had one day of spotting and the next day was in my dctor's office for a pap test and my doctor advised I would have to have a pelvic and internal ultrasound before seeing the GYN. Had…
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Six years cancer free but still worried
HI all, I have been uterine cancer free for six years (and thyroid cancer free for three years). I still have the pain I originally had in the beginning that alerted me that something was wrong and led to them finding the cancer. The pain is worse and focuses in my frontal genital area, like the fatty area above the actual…
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Allergic Reaction to Carboplatin, Question on Length of Time for Genomic Testing
I had UPSC stage IVb in 2010. After surgery, I had 6 rounds of Carboplatin and Taxol, which I handled fairly well. I did have a blood transfusion of packed red blood cells halfway through for shortness of breath and I had peripheral neuropathy. I never had any nausea and vomiting because of the Emend I was given. My cancer…
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Article on Clinical Trials
I'd be very interested in hearing your reactions to this article. I have my own, but I'll share it later. I know sometimes there are problems with accessing links, so I've provided two. I'm guessing the second one might work better for most.…
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Done with treatments and just want to help others!
After my hysterectomy, 6 rounds of chemo, and 3 brachytheraphy, I just want to help others now as they go through this journey (in person or online!) My follow up after treatments went well. My CA125 was 3.6, my exam was normal. I will have a CT scan, mammogram, skin cancer screening, survivorship meeting in a month, and…
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Informative Mushroom Supplement Article
Anyone taking or thinking about taking mushroom supplements might find this article about their bioavailability interesting. http://supplement-facts.org/2012-6.php#.WZcROT6GPal Also, Mushroom Wisdom was given as a source for these supplements in an earlier post. I was googling about them and it seems they have some issues…
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Cat Safety
I just had my second chemo. The side effects are worse this time, but mostly just the aches, especially my arms and the nausea, so I feel lucky. They upped the taxotere so I was braced for this. I just wanted to double check and make sure it's okay for my cat to lay on me and knead me with her paws. Will she absorb…
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Chemo Resistant - Help!
I concluded six rounds of chemo three weeks ago and had a CT scan on Tuesday, prior to starting radiation. Today I got some devastating news: the chemo (carboplatin and taxol) didn't work. I had a radical hysterectomy in late November, followed by 6 rounds chemo, for Stage III Grade 3 undifferentited endometrial carcinoma.…
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post menopausal endometrial lining 7mm
I just had a edometrial biopsy yesterday for a thicken endometrial lining of 7.2. I was having pelvic cramping but no bleeding. I have always had back problems so I didn't think much of telling the OBGYn of my recent leg pain radiating from my right buttock to my knee and sometimes to my calf as I went to the chiropractor…
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Progress Report and Recommendation to Be On Aranesp
I'm finally getting around to letting everyone know about the progress I'm making with my UPSC. I was diagnosed in 2010 with stage IVb and had a reoccurrence this year with surgery in April where I had two bowel resections, one due to cancer which wrapped itself around my ascending colon, and one due to the fact that my…
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Recurrence in my lungs
i just joined this group, looking for some experience/advice. I was diagnosed with uterine cancer just about two years ago, my treatment was hysterectomy, cisplatin and radiation, then caboplatin/taxol six rounds. It was rough, but I have been feeling good since my treatment ended about 17 months ago. My ct scans have…
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Gastroenteritis after radiation.
I know this is a generic term, but did anyone else here experience long-term gastroenteritis after radiation? I had a serious problem during the treatment and have had issues on and off for the whole year and a half since. At first it was loose bowels but afterwards it became strictures and inflammation for months at a…
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In the recurrence club now
My CT scan this week (done in response to a spike in my CA-125) showed multiple nodules in both lungs and a mass on the outside of my colon. My medical oncologist is calling it a systemic recurrence and says that there's now no chance of a cure or long-term NED. I'm having a biopsy this week for genomic testing; that…
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New Here-tough decision brachytherapy or full pelvic
I was diagnosed with Grade 2 endometrial cancer and had a complete hysterectomy in Dec. After the surgery they staged it as IIIC1. I had 1 lymph node out of 8 positive (they removed the one during surgery) they said the tumor invades to the connective tissue of the cervix but does not extend beyond uterus. I have had 2…
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Breast Issue
I went for a screening mammo early July and they called me back for 3D imaging. This happened once before in 2015 and then they did u/s also. In 2015, the radiologist felt that nodules, cysts and calcifications seen were not concerning. Today's imaging and u/s different story. Many more calcifications grouped in right…
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Possible Screening Test for Endometrial Cancer
This could be a game changer. http://www.huffingtonpost.com/entry/mayo-investigator-is-developing-a-screening-test-for_us_59528e4fe4b0c85b96c65d0f?ncid=engmodushpmg00000003
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Improved UPSC Outcome with Treatment of Mast Cell Activation Syndrome
I want to share this case study - Improved Metastatic Uterine Papillary Serous Cancer Outcome with Treatment of Mast Cell Activation Syndrome. You can read the study at this link - http://imaging.ubmmedica.com/all/editorial/cancernetwork/pdfs/2014-02-afrin.pdf My mother was diagnosed with stage IIIC2 UPSC in June of 2014.…
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New to site-Possible Uterine Cancer Questions for Members
Hi everyone, I am happy I found this site. I am still in the diagnostic stages to determine if I have any cancer of the uterus, but it has been a long few months and would love your advice! I am 46, I think still premenopausal, though could be fully (was always bad at keeping track), and though my last pap smear was…
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discouraging appointment
Feeling very discouraged. Went to 6 weeks post chemo appt. The point, as I understand it, is for the oncologist to see how we are doing. So a friend went along. I said I was feeling well but had questions. In the course of conversation he said WHEN it comes back. . . not if. Granted I have stage 4B. Also I have to take…
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Continuing Good news from update from reoccurrence from Oct. of 2016
Hi Ladies: I wanted to update everyone from my reoccurrence of UPSC from last October of 2016. I had a CA 125 blood test done on Monday, July 31st which showed my level to be 19 which is in the normal range. In May it was 26. This is very good news for me and I am very happy about this. I had a 3 month visit with my…
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Sick Of Being Sick, Tired Of The New Normal
This is my first time posting on the boards but I have been here for about 6 months, getting encouragement and strength from all of you. I finally had to post though, I was diagnosed in March with stage 4 grade 3 Uterine Carcinosarcoma (MMMT). I have been dealing pretty well until recently. I just finished my 4th Chemo…
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work problems
There is not much I can do about this to really change my situation. At least not as soon as I would want to. There is something I just wanted to get out there, So as most of you know, when I was going through chemo treatments last Augast I took 3 months off work and then went back to work. I wasnt in the best spot to…
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Brachytherapy
I had a complete hysterectomy two weeks ago for endometrial cancer it was a grade one stage to it was more than halfway through the lining and started to get to the top of the cervix The recommendation from the oncologist and from the tumor board is 25 external beam radiation treatments followed by three Brachtherapy.…
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feeling extremely anxious
Hi. I have been diagnosed with stage III grade 3 endometrial cancer. Luckily it did not get into the lymph nodes. there was another tiny tumor outside on the lining from one of the fallopian tubes that was bent down. It was removed entirely. I need to have radiation and chemo. I go this Friday to set it all up. It is all I…
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Tests between treatments
Hi , my mom just finished 3 rounds of chemo her first week of radiation and dr want her do the investigation test on next week , I wonder what will include in this test ( blood test , pap , ct...ect) ? I hope I can receive your feedback as soon as possible . Thank you.
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Hey everybody
A week ago last Friday, just after my docs determined that I'd had some small strokes, probably caused by the cancer, I was checked into the hospital, where I proceeded to have a larger (still not massive one). Left hand and left side of mouth were partially paralyzed. I'm in a great rehab unit and have got back much of…
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Bowel obstruction
Hello Ladies: Has anyone had or know of someone with bowel obstruction due too tumor pressing on small bowel. Any options lefT. Currently receiving nutrients intraveneosly. If able to eat after a few days surgery and/ or chemo might be an option Your feedback is greatly appreciated
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Fun cancer camp my kids went to
Last year while I was doing chemo treatments I found a camp for kids that have parents who have cancer. It was too late for my kids to go last year but my two kiddos just got back from a 6 day camp called camp kesam. This camp is run by college students all over the country. Most states are included. There is two in utah…
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Constant Annoying Odor/Smell - Is It Just Me?
I was diagnosed with USPC the end of April, 2010. I was scheduled for the hysterectory & removal of everything, including the malignant lymph nodes. When I woke up out of surgery, I realized there was this nauseating sweet odor, I just couldn't get rid of. I told my doctor about it but he had never heard of such a thing.…