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New to board- curious about mets
Hello. My mom was diagnosed with UPSC almost 3 years ago. She had a hysterectomy & removal F all pelvic lymph nodes. They did not recommend chemo or radiation. They have been monitoring with scans. Recently she had me feel a lump that appeared on her chest. I called her oncologist & asked that they move up her scans BC she…
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currently cancer free but Doctors still want traditional Chemo done
Hi Everyone, Happy Thanksgiving and I hate to bother those who are in worse situations than me but I am at a loss. My story is already stated but instead of continuing on the same thread, I am hoping for your patience with me and some advice and I do know the decision is mine. Quick note, Diagnoised with utetine cancer in…
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Radiation Thread
I'm starting radiation on Monday and I was trying to find the thread on dealing with radiation, but I'm not coming up with it? I had a PET scan on Friday and I'm stressing while waiting for the results. My insides are still not feeling great almost 4 weeks after chemo and I don't know if it's that or spreading cancer. I…
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Should I go to ER?
So I have not been to my doc in at least 4 years. I'm 35, healthy and active. Not overweight. I have HPV. About 1 1/2 years ago I started having bleeding, like spotting after sex. It started every once in a while. Now its everytime. The last two periods I've had I also had some bleeding, NOT spotting, right in between…
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Treatment After Effects ?
I have Stage III, Grage 3 undifferentiated uterine cancer. In May, my 'routine' post-chemo CT scan showed mets to my retroperitoneal lymph nodes. I was about to start radiation, so the range was enlarged to include both pelvic and abdominal areas, going all the way up to my breastbone. I had 25 rounds, plus a 3-round…
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MMRT new diagnosis. What can I expect when I see the oncologist this week?
MMRT. What can I expect from the oncologist when I see him this week?
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Positive margins
I am curious about treatments when left with positive margins after surgery? My doctor was able to remove all visible cancer during surgery and was surprised that my pathology came back with positive margins in the vaginal cuff. When I asked him what that meant for me he said that would be sterilized with the radiation.…
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Healthy runner- how did this happen?
I am so confused & so are my doctors. I have been a super healthy person all my life- runner, vegetarian, thin, always on time with my check-ups. I had my ovaries & tubes removed about 5 years ago because I was prone to cysts. Went through menopause with no issues & out of nowhere had one episode of Post -Meno bleeding. My…
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post op visit
Had my post op visit today. It has been 4 weeks since my hysterectomy. My doctor recommends chemo which is to start next Tuesday. Even though my cancer was microscopic and removed with my hysteroscopy, because it is uterine SC he wants me to have 3 to 4 rounds of chemo. I will be given Paclitaxel and Carboplatin. I was…
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Update on my Mom After Frontline Treatment (09/11/17)
Hi everyone, It's been a while yet again, but I just wanted to give an update on my mom's condition and make a few comments on her completed treatment journey (as of 08/21/17!). I can't believe it's been more than a year since my mom was first diagnosed with UPSC, initially staged at IIIC1 and then later upgraded to IIIC2.…
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CA125 went up all else is good, should I be worried?
I went to the MD Anderson today for my 3 year checkup. Pelvic exam and everything was good. They poked and prodded me for a while. Dr. Levenbach said see you in 6 months. Well just got the results of the CA125 and it went up to 61. Now mine has been running a steady 41 for a year and a half. So I am freaking out. I feel…
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Young & just diagnosed with uterine cancer
Hello everyone, I just found out last week that I have uterine cancer after a d&c/hysteroscopy to treat severe pain and heavy bleeding. (My doctor was "99% sure" it was nothing serious. Fail!) I am 38 years old, no history of ANY cancer in my family, other than minor skin cancer. I have a hysterectomy pre-op scheduled for…
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Cervical Cancer
Hello I am 32 years old and have been diagnosed with cervical cancer stage 1b1. The doctors initially advised me that I would be able to have a hysterectomy but when they went in they noticed that the cancer had spread to my lymph node and Fallopian tube I. They removed both. So they advisewoke that they wouldn't be able…
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Hello all
Hello all, This is my first time posting but I have been “stalking” the board the last couple of weeks reading some new and old treads to get an idea of what treatments and success rates others have had. It seems that I am having a little bit of a different treatment plan than others but wanted to share my story, concerns,…
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Hit the six year mark as of 22 Aug 2017
I just wanted to post and let everyone know that it is a doable thing. I just hit six years after last chemo treatment on Tuesday, 22 Aug 2017. I had stage 3c1 grade 3 carcinoma sarcoma uterine cancer. DX in April 2011, complete hysterectomy and then six rounds of carbo/Taxol chemo treatment. I was 54 when I found out but…
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Some answers
Tuesday was my day to spend visiting the m dichlorvos profession. Labs, doctor's visit with m oncologists PA and Keytruda infusion. My blood counts were all lower that they have been. She really questioned me if I was bleeding someplace. No, not that I now oF. We had to wait around for awhile as I had An appointment late…
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New here-Undifferentiated Endometrial Carcinoma
Hi, just joined today. I was diagnosed with cancer on May 30. Had an internal ultra sound, chest c-ray, CT scan and two biopsies. My biopsies had to be sent to multiple labs and the pathologists did not all agree on what type of cancer/tumor I had. My cancer team has decided on UEC. i started chemo on July 7. Taxol/carb…
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Home from Germany
I've now been back from Germany for just over 3 weeks. I completed 5 rounds of whole body hyperthermia and 6 rounds of chemo from March through the first part of August, though there was a bit of a glitch between treatments 4 & 5. I had trouble getting my WBC and platelets to recover after chemo/WBH #4. They never did come…
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Atypical report
Hi, I've had uterine cancer in 2014 had everything removed even the lymphnodes removed. Haven't had insurance so finally I was able to get a Pap smear and came back atypical cells. So I have to wait until September 13 to find out what this met! Any help would be greatly appreciated. Thanks Gale
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Insurance Ideas
Hi every one. I seem to have a harder time responding to posts these days. I still tend to read but cant find the time to respond as much. I wanted to give a little update I think one time I shared I was l looking for insurance. I was considering getting a full time job so I could get insurance with the company. I applyed…
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Living Alone - Diabetic about to have treatments.
Hello Everyone. I hope someone can share some experiences with me regarding my Mother's treatment and living alone. My Mother is 70 years old, Diabetic and lives alone in an "stand alone apartment" overtop a garage that belongs to a church that is open Wed/Sun. There are 17 stairs leading to the entrance. No neighbors.…
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New Here...Surgery in 2days...UPSC...SCARED
Hello to everyone, and thank you ALL for your contributions thus far. I have been lurking around for a couple of weeks, and I finally have the nerve to speak out...or maybe it's the strong desire to reach out. I am terrified about this journey that's just beginning. I am 43 years young and have 4 children: 20, 18, 9, and…
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Cancer Across the Pond.. Con't
Hi Ladies, Well like Edigirl (Chris) I am back from Germany and home for the fall. This last trip (the 8th in 8 months) was the most challenging. I didn't do as well with the whole body hyperthermia this time, so Dr. Herzog and I decided that whole body is probably off the table for me, but local hyperthermia and other…
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September is gynecologic cancer awareness month!
I think it is obvious to all of you how important it is to let people know September is Gynecologic Cancer Awareness month. Our cancers, uterine, ovarian, cervical, vulvar, vaginal, and primary peritoneal, are silent until it it too late and there is no tests for early diagnosis. We have lost too many beautiful sisters to…
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Texans
im sorry to be off topic, but I know we have members from Texas and I am wanting if they are safe, especially the one in Beaumont where flooding is increasing. My daughter lives there too and I haven't heard from her this morning yet. Please if you can Texans give a shout out to let us know you are safe. Prayers for all!
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Another update
Labs, Dr.'s visit, and infusion day. Got the results back from my last CTscan today. All of my tumors have remained stable. My oncologist says that the 3/4 in tumor in my neck feels like mush and that two others look like they have a bad case of necrosis. It has been a year now that I have been on the immunotherapy drug…
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Had to skip chemo again
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UPDATE: 6 1/2 yrs. since hysterectomy and worried....
UPDATE: I had the appointment with my Gyneologic Oncologist Monday afternoon. He said that all felt well. He took a vault smear and did an internal exam with two different speculums (he wanted to see up high) and then he did a pelvic exam and a rectal exam. He said he would know in about two weeks about the vault smear,…
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Grief and anxiety but why ?
I come here confused and just depressed , i was diagnosed with endometrial and ovarian cancer last July . July 2016, then like a flash i met my oncologist was scheduled for a total abdominal hysterectomy . I didnt have time to even think of what the surgery would mean to me . I mean I was already 44 years old , not…
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I Feel Like I Failed Chemo
My first chemo after surgery was carbo and taxotere. I had some spread to lymph nodes, but only in the pelvic region. The taxotere was a half dose because I have such bad perpherial neuropathy already from the antibiotic levoquin. I did okay, so they upped the dose to 3/4's on the taxotere and I did horrible. Lympodema in…