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Uterine/Endometrial Cancer

Bladder mass removed today
I had the mass in my bladder removed today and everything went well. Right before the procedure the doctor said I might have to have go home with a catheter. That caught me off guard! He said if a cath was needed and the tumor wasn't too deep I could get the cath removed tomorrow. If the tumor was deep then I'd have to…
Ladies Entering Chemo, Get Your Vitamin B-12 Level Checked
Just returned from visit with endocrinologist who evaluated my post-chemo neuropathy. She lamented that I did not have my Vitamin B-12 level checked before chemo because it was found to be low after chemo and it likely was low before I started. Low B-12 is a cause of neuropathy on its own and chemo certainly didn't help.…
Bowel obstruction
My mother in law just experienced a bowel obstruction due to a UPSC tumor (recurrence) that has grown and is pressing on the colon from the outside. They placed 2 stents in bowel to help but the tumor is not be operable. Also fear that this means the current treatment (Avastin chemo) is not working. I know I should not…
Colour of Blood
I'm new here and need Advice - done with treatments - now no Intimacy
Hi All, I'm 42 years old, never had children, married for 4 years and I was diagnosed last October 2016 of Uterine Cancer Stage IIIC1 - Grade 3. I went through all the treatments just fine. Now it's been 5 months since my last Radiation treatment, still I don't feel any intimacy at all. My husband and I talked last night…
Just diagnosed
withhI have just been diagnosed with endometrial adenocarcinoma grade 1 or 2. I will start from the beginning. I have 25 year old twin daughters that were just married last year to their high school sweethearts. When my girls were only 3 years old, I was diagnosed with Hodgkins Lymphoma stage 2b. I went through 6 months…
Takingcontrol58: Metformin & restoring Progesterone Receptor Status?
I am gearing up for appointments with my endocrinologist, my PCP and my gyn oncologist in December. Takingcontrol58, I have bookmarked several of your posts and, in my head, I am crediting you with pointing out studies that show Metformin is/may be effective in re-booting a depleted Progesterone Receptor Status. But I…
When did you have your first PET scan.
i had only a ct scan and a vaginal ultrasound in The emergency room prior to being referred to another hospital for treatment. I then had total AH and was diagnosed as stage IIIc grade 3 Uterine carcinosarcoma with metatastic para aortic lymph node involvement. I then went straight to chemo and have just completed round 3.…
Just diagnosed endometrial adenocarcinoma stage 3a
Late September I had a biopsy and was diagnosed with stage 1, grade a or b endometrial cancer. On September 10, I had a total hysterectomy, and feel very good. Unfortunately, when we met with the oncologist yesterday, the pathology report shows stage 3a, grade 2 endometrial adenocarcinoma with cancer that spread to the…
taxol /carbo
I just had my 3rd round last Tuesday. I met with the dr before chemo. He told me at my stage 1a miscroscopic SC with no evidence from my hysterectomy biopsy, I am in my own class. He had recommended 3/4 chemo treatents. If I had symptoms of neuropathy, he would stop at treatment 3. My last treatments I have had muscle,…
Great article from pioneer of DNA structure
Great article from James Watson, one of the pioneers of DNA structure. If you look at the end of the article, he himself takes metformin and aspirin, doesn't eat too much sugar and exercises. He estimates this reduces his risk of cancer by 50%. He mentions the STAT3 gene, which apparently turns on other genes and is found…
Advised to start chemo before complete diagnosis
Hi Everyone I am happy to find a place such as this to ask qurations and get answers from others going through a similar situation. I had a total hysterectomy on 3 Oct after they found adenocarcinoma from my D&C two weeks prior. I was scared but my GYN ONC was confident I would not need any further treatment after my…
Hair Loss Day 16 +
I started chemo 10/2 and my scalp started hurting on Day 16. Today (10/20) I’m noticing ALOT of hair coming out and on my pillow in the AM. My hair has been thinning for a long time anyway - so I’m ready. I do need to get some chemo caps ASAP though. What have your experiences been? Ethel - endometrial cancer stage 1A…
UPSC recurrence help
Hello all. I am hoping someone here may have some advice. My mother in law (70ish) was diagosed with UPSC almost 1.5 years ago (stage III something I believe). She had a complete hysterectomy, 6 rounds of chemo every 3 weeks (2 types carboplatin and something else that made her hair fall out), and internal (vaginal cuff?)…
Mass found in bladder
I had Grade 1, Stage 1 endometrial cancer and total hysterectomy with ovaries and Fallopian tubes removal in August after which I was told I was cured, and there was no need for chemo. Before my hysterectomy I was diagnosed with a urinary tract infection and treated with antibiotics. Since my surgery in August I've been…
Hi friends, old and new
I've not been active on the board for a while, but I'm baaaaaack! I lurk here now and then, but only recently decided to become "present" again, mostly because of my old friends that have departed. Not to bring up sadness, but damn, there's too many wonderful ladies that have left since I joined a few short years ago. I've…
UPSC Recurrence
Test results: CA125 jumped from 63 to 91. PET/CT showed 2 supraclavicular nodes with high uptake of SUV (17- suggest malignant) with a small (about 1/4 inch) splenic node (3.3 uptake) likely false positive. My lymph system was highly lit up by PET on initial scan (In retrospect, I was probably stage 4 from beginning rather…
A happy topic
Happy Thanksgiving to you and your family. I hope you have a wonderful day. Hugs and prayers, Lou Ann❤️❤️❤️❤️❤️
Good article for newly diagnosed or recurrent EC
Ladies, For those of you who have recently been diagnosed with endometrial cancer or are experiencing a recurrence, below is a great article that summarizes the risks, types, some gene mutations, treatments for initially diagnosed and those with a recurrence, emerging treatments, prognosis and follow-up. It may answer some…
Reacurrance of vaginal cuff cancer
i just wanted to know if anyone has had reacurrance of their uterus cancer in their cuff? i had a biopsy done, positive same stage 1. Dr wants me to have radiation, I got a second opinion at Stanford same info. has anyone had surgery? I am concer about my existing lymphadem? thanks, jean
A difficult post
This is the most difficult news I've had to share on this board. With tears in my eyes and deep sadness in my heart, I have to tell you all that Helen, daylady, passed away on Monday. I last heard from her last week. The fatigue she described in her last post had not improved nor had her appetite. In addition, what seemed…
Recovery after UPSC
I am starting a new strand to ask some questions about recovery after all we go through during treatment. Surgery, 1/25/17; 1A:3 rounds carbo/toxol, April/May; 5 bracky June/July; DVT/PE clots June; Lovenox until 12/13/17. (age 77) I wonder if I am expecting to bounce back faster than I should expect. 20 years ago had…
Just Checking In
Hi. It has been a few months since I wrote last but I was thinking about all of you since tomorrow is Thanksgiving and I am thankful to have found this group when I felt like my life was falling apart when I was first diagnosed with uterine cancer. I remember feeling depressed and filled with high anxiety, but many of you…
anyone take dilaudid after surgery???
sisters, i'm wondering how many of us were prescribed dilaudid for pain after surgery, and how long people were on before they stopped. did anyone become dependent, and have to go through withdrawal symptoms, as did i? if so, how long were you on, and how long did it take for the withdrawal symptoms to subside? what were…
Doxil/cisplatin
Has anyone had this combo? The doctors are concerned at the way I reacted to the Taxol and don't want to move forward with it again. They will do both a hearing test and heart echo before beginning but all the potential side effects scare me.
Desensitization vs different chemo drug
I had two strong reactions during my first taxol/carbo treatment this week. I ended up just finishing the carbo. The doctor did a blood test to see if I'm actually allergic to the Taxol itself or the additive they use. The oncologists are saying they are considering desensitization vs. trying a different drug. The other…
Introduction - Endometrial IIIA
Hello, I was diagnosed with stage IIIA endometrial cancer on October 5 after a full debulking surgery. I started my chemo on November 8 - I am scheduled for 6 cycles of Taxol and Carboplatin, but my doctor did not order any radiation therapy. I was wondering if this isunusual? After reading many of the posts, it seems that…
PET Scan Update
I had my much-dreaded PET scan on November 6th. I was a nervous wreck since my last scan was a CT in May, done at the end of chemo and before starting radiation. I got a nasty surprise when that found mets in my retroperitoneal lymph nodes. Since I'd actually managed to grow *new* cancer while on carboplatin and taxol,…
Question about infusions of taxol/carbo
i recently had my 3rd of 6 rounds of chemo for IIIc uterine carcinosarcoma. I had no side effects with the first two. I was concerned during the 3rd because my iv seemed to drip faster and run shorter than the normal 3 hrs. When I asked the nurse if she speeded up the taxol, she said no...but later lied about the start…
No one tells you this
Great article about a topic that’s rarely discussed. https://www.self.com/story/this-is-what-sex-after-gynecological-cancer-is-really-like

Uterine/Endometrial Cancer

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