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Merry, Merry, Happy, Happy to All!...one year ago today....
Wishing all the ladies here a calm, healing and easy holiday season. One year ago today, I had my first of 12 rounds of chemo for my second recurrence of endometrioid adenocarcinoma. I, for one, am happy to slam the door on 2017, and I look forward to improved health and more healing in 2018. My treatment succeeded in…
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Lots of new ladies - let's have a roll call
We have a lot of new ladies on the board. I think it's time for a new roll call to introduce ourselves all in one place. Please tell us what type of uterine cancer you have and when you were diagnosed; where you are in treatment and what that treatment is; where you're from and your age (if you like) and anything else you…
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Torisel
They recently switched me from 3 years of avastin to torisel 3 months ago. Since then i have not had one good day and i am about to tell them to stop. Any perspectivesto offer? Had a cat scan this week and no progression.. i feel constantly dizzy, lightheases, exhausted by doing smallest tbing, etc etc. Before this i was…
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A Holiday update
It was one year ago today that I was told I had UPSC and was headed for surgery, chemo and radiation. They failed to mention the high risk for blood clots. So off I went into 2017 with a lot on my mind. Waited until after Christmas to break the news to family and friends. Had some bad times but as I reflect, it was not too…
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So many questions
Boy, my thoughts are all over the place at this point! As many of you know I've recently been diagnosed with a recurrence. Trying to sort things through in my mind. Wondering about my initial diagnosis and treatment. Based on findings from surgery I was diagnosed with Stage 1A carcinosarcoma and papillary serous (5.5 cm…
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Finally got the second neoadjuvant C-125 results
First one after the baseline, which was 121.6. It's now down to 43.7 after the first chemo treatment. Hopefully, the third treatment brings me even further down. So even if my fibroids are causing problems, I guess they're not causing THAT much of a problem. HOPEFULLY, between the third one and a hopefully-improved second…
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Merry Christmas
Just wanted to wish everyone a Merry Christmas. I hope every one of you has a fabulous holiday and wish all the best for you in the New Year.
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Rebuilding the myelin sheath to improve neuropathy issues.
Being that neuropathy seems to come in conjunction with chemo, and is reported to be a result of destruction of the Myelin sheath, being who I am, I had to do some investigating, and with googling, found that myelin sheath destruction is also the major component of ms. So, here's oodles of things on rebuilding the myelin…
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Make sure they pay attention to your bones
Despite my bringing this issue up in the very beginning, my doctors pretty much, in their efforts to save my life, ignored the state of my bones ( which were not good before treatment) and now due to the radiation my bones are in dire straights. I’ve had an email nsufficiency fracture of my sacrum and a compression…
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Thought the pathology report would clear things up, but ...
Now I'm more confused. Originally, I was textbook adenocarcinoma. Then a CT scan implied that I had pertioneal and omental spread. I was diagonsed UPSC, Stage IVB. From Stage 1 adenocarcinoma to Stage IVB UPSC in two weeks is pretty darn drastic! The CT radiologist's report is ... odd. Even my family doctor said that, so…
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INSURANCE DENIALS
So let me start by saying - I am grateful to have insurance (Blue Cross Anthem). With that said, I'm dismayed that the nuelestra (sp)? patch and nuepagin (sp)? shots have been denied twice. I was supposed to have the patch last chemo treatment (Dec 6th); but no one had verified insurance would cover - so did not get it or…
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Whole Pelvis Radiation
Hello All, Assuming no delays, I will be finishing R6 carboplatin/Taxol Jan 17th & beginning “whole pelvic“ radiation (sorry don’t know tech term) in February. My Oncology Surgeon had initially recommended vaginal cuff radiation; but my oncology radiologist wants to be more aggressive. I‘ll be scheduied for 5 weeks (M-F)…
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I got good news today
Hi ladies... y'all have been such great support...thank you so much! I saw my radiology oncologist today and although he didn't say I am exactly dancing with NED lets say we are in the same ballroom and he has spotted me from across the floor and is heading my way... Quick background: I have Stage 4 UPSC....hysterectomy in…
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Going for hysterectomy and hysterical! help
I hope the ladies on here can help and talk to me. I have had 3 d/c's in the past 5 years. Always have a thick uterus lining. Sometimes 9. Doctor said anything over 4 or 5 is concerning. I have had biopsies galore. Symptoms were: postmenopausal bleeding. I am 59 years old. I have been using HRT patch for years. I have had…
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Thankful for time.
I don't come out hear often but felt the need today. 5 years ago this next week I had my first chemo treatment. I was terrified, of the treatment, of the prognosis and if or how I would live through it all. I did not even think I would be here today given what the Dr.s all said. But apparently God has more planned than…
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Update on my weird journey
Well, in September I was told chemo wasn’t working well enough, I was inoperable and they would add a 3rd drug Avastin to “try and stay ahead of the tumors. As of November 6, I’d been admitted to the hospital once with an ER visit because they thought I might be having a heart attack (I wasnt). Around this time my hair…
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Scheduled to begin radiation in January TERRIFIED any suggestions?
Before all the biopsy results from hysterectomy came in we thought I was dealing with a completely contained cancer. Now facing 28 radiation treatments. I‘m still in shock and very fearful. Suggestions as to how to prepare mentally, physically and emotionally. I’m usually strong but this has me shook. Thanks for any help.
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Blippin' Chemo Rash
I should have realized that things were going a little too smoothly with my chemo. Looking via Dr. Google, it appears to be a garden-variety chemo rash on my arms and legs. Not itchy, and it looks like a nasty heat rash. It's not summer here. It does seem to be getting a little worse, though. I've been trying to reach the…
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Umm, chemo body odor?
I am on carbo/taxol, and I have noticed an unpleasant body odor - it is especially strong about 5-7 days post-infusion. I can’t stand it - I sometimes shower twice a day to get rid of it. Does anyone else experience this?
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Lvsi
New to the site. I was diagnosed with UPSC early Oct and had a full hysterectomy late Nov. They removed 11 nodes uterus tubes ovaries cervix and omentum. I was staged 1a which was great but they also said I had extensive LVSI (Lympho vascular space invasion) I will be doing chemo and radiation in the new year. Was just…
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Reoccurrence of UPSC
Hi Ladies: I have some bad news to mention. I was diagnosed with a reoccurrence of UPSC (I initially had stage 1 in February of 2011 so it is over 5 years). My CA level has been 134 since mid August so I had a Cat Scan done the end of August and I had a Pet Scan done on October 12th and that is where the cancer has shown…
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still kicking stage 4 b endometrial cancer
well I have been peeking around reading posts but not posting much at all, heres an update, for those looking for survivors of stage 4 b endometrial cancer , as I could not find many at all when i started out looking I dont concider myself a survivor yet, till i get to 5 years, then I think I can breath again I am now at 5…
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Question about Symptoms
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Concerned I may be looking at cancer
Hi ladies, I'm glad I found this board! With so many fears and concerns it's good to have outside ears and advice from others who've gone thru the same things. A quick guided tour of me... I have been dealing with crazy fatigue, low back and tailbone pain for 2 years. One dr diagnosed with fibro, another thinks I have…
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Serum HE4 marker for recurrent endometrial cancer
I know many people on this board are not being measured for serum HE4 or their doctors may not be familiar with it. Both HE4 and CA125 are blood markers for endometrial cancer. I am tested for both markers as part of my ongoing follow-up treatment. Below is an article published by the NIH that explains what this marker is…
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So confused about what to eat during chemotherapy
I had my first chemotherapy on 10/31 (Carbo/Taxol for now and Avastin will be added starting next session). I did not experience any major side effects so far so I am grateful. Even before the chemotherapy has started, I put myself on a pseudo-ketogenic diet, very little carbs, no sugar, no fruit, lots of vegetables, some…
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My uncle has cancer. I want to suupot him
Ho dont get on here very often any more. But still do at times. My dad has been telling me the last few monthes that they think his younger brother has cancer. I just found out today my uncle (dads brother) had surgery this last week to remove the cancer. He has to do chemo This uncle has been talking to my dad about how…
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Concerns about radiotherapy - abdominal & pelvic
I was diagnosied with stage III endometrial cancer in july. I have had a full hysterectomy with ovaries & fallopian tubes removed. i am currently undergoing chemotherapy, and will be having the last cycle next week. The consultant has recommended radiotherapy to the abdomen and pelvis for 5 weeks to prevent re-occurance. i…
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Probiotics
I know this subject has been bought up before, but most of the threads are older. Which ones would be the best to use for chemo patients? Amazon has a whole bunch, but I have no idea which ones are better. What should I be looking for? Or should I go more with kefir, yogurts, etc.? Go the natural route? So far, diarrhea…
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Re: Alternative treatments
I was diagnosed with stage 111 endometrial cancer in July 2017. i have had surgery and have nearly completed chemotherapy cycle. i am considering going for alternative treatment as follow up to strenghten my immune system. I was wondering if anyone of you have had experience of alternative treatment and how successful were…