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Abbycat2 checking in
Thank you all from the bottom of my heart for your e-mails to me regarding your concern for my welfare. I want you to know how much that means to me! Though I may not come here often, all of you precious women are never far from my thoughts and my heart. I just got back from a cruise with family and had a wonderful time. I…
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Has anybody heard from Don'sWife (Nancy)?
I see she was logged in this past September but I don't think she's posted for awhile. She had UPSC like me and went through h*ll during chemo too. I was just wondering how she's doing. Love, Eldri
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Low platelets/hemoglobin/white blood cells
Hi ladies, Has anyone experienced very low platelets/hemoglobin/white blood cells after treatement? My platelets strarted to dive after my 4th week of Cisplatin/radiation so they stopped the cisplatin but I continued radiation for 10 more treatments. During my last week of treatment my radiology oncologist started having…
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asking doctor's questions, Cancer Treatment Center of America?
Is it unrealistic to want to ask a question of the radiololgist oncologist before the appt 1-2 weeks away? My gyn said the side effects of radiation may be worse for smaller people (could include permanent diarrhea or urinary issues), which made me wonder if the radiation does more damage because it's too strong for that…
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New therapies
This is a link for an article that appeared in a newsletter from Dana Farber's Susan F. Smith Center for Women's Cancers: http://blog.dana-farber.org/insight/2017/10/human-touch-surgeries-new-therapies-brighten-picture-endometrial-cancer/?utm_source=newsletter&utm_medium=email&utm_content=>> READ…
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Very Good Pet Scan Results
Hi Ladies: I have some very good news regarding the recurrent UPSC cancer I was diagnosed with in October of 2016. I had a pet scan done this past Tuesday the (17th of October) and there is NO evidence of cancer or even a trace of it. My CA number came way down to a normal range in May of this year and has stayed at a…
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ncg007 Checking in
Haven't been active on this board for awhile and just checking in. Heartbreaking to read of all the new members and those that continue to fight, and happy to read of the successes. For those that don't know me, I was diagnosed in June 2015 with Stage IIIC1, Grade 3, Mixed 50% Endometrioid Adenocarcinoma(EAC) and 50%…
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Hey Jairoldi, how are you doing?
Hey Jairoldi, have you started your radiation yet? How are you feeling? Love, Eldri
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Surprising CA125.
Hi Ladies! I am bummed. I had a new CA125 test done and it came back at 325, so my new oncologist is sending me to San Jose for a Pet Scan next Friday. NOT what I wanted to hear just 8 weeks after returning from Germany, especially since there are no symptoms that I can point to. I have been really wracking my brain to…
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Cheese Update
Seeing oncologist tomorrow but just read my CT scan online: PELVIS free fluid: Increase in now moderate volumeascites. There has been progression of peritoneal nodularity. The findings are consistent with carcinomatosis. Progression of peritoneal carcinomatosis. Let the games begin!
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NFL is not all pink
This makes me happy and is applicable to the thread on "ALL Cancers month". Progress. I will be paying attention this year to not seeing only Pink on the field. "Crucial Catch" is a good theme, as many cancers can be caught by early detectiion, it's just that early detection of breast cancer can and should be done and…
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My whine for the day
I am the kiss of death for doctors!! Every time I find a doctor I like, they leave. About two months ago my oncologist/gynecologist sent me a letter that he and his PA are no longer seeing patients who are not in active treatment after his other PA died. Today I received a letter from my beloved Dr. Roth that as of the end…
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Immunotherapy
It's not OUR cancer - in fact it's targeted to those under age 25 with lymphoblastic leukemia - but I rejoyce every time I see more treatments coming online. All cancer patients been stuck with the same ole chemo crap way too long, time for a change - and a cure.…
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J&J's Award Overturned re: Baby Powder
https://www.google.com/amp/s/www.nbcnews.com/health/health-news/amp/judge-tosses-417m-award-against-johnson-johnson-cancer-case-n812886#ampshare=https://www.nbcnews.com/health/health-news/judge-tosses-417m-award-against-johnson-johnson-cancer-case-n812886
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Team Susan-Facing Forward: Support her AND the Foundation for Women's Cancer
Ok, Team Susan - Facing Forward, I'll be running a virtual/shadow 5K with you here in Central Penna. I donated to your team on the Foundation for Womens Cancer website. <Content removed by CSN Support Team> This is how Nancy Brinker built the Susan Komen Foundation to better inform all of us about the types of breast…
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Ding! Ding!
I never felt like ringing the bell when I finished chemo because I still had radiation to get through and then I lost my dad without getting to see him when we were originally supposed to have gone for a visit the week I ended up having having my surgery. That will haunt me forever. My one year anniversary was Aug. 31, but…
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How about "ALL Cancers October"
Alright, I just have to vent. I HATE pink October. I just want to scream - HEY! WHAT ABOUT OUR CANCER?! I know how many wonderful ladies we have lost and there just doesn't seem to be the money or the research for us - and it is WORSE for the true orphan cancers. Vulvar cancer? These women - were do they go? Who wants to…
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Need a name for my team for the National Race to End Women's Cancer
So my son, his girlfriend and I are ready to sign up for the walk but we just need a catchy name for our team. I know you all are a bunch of very creative ladies! Any suggestions?
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New diagnosis UPSC - Please help
Dear all, I am writing on behalf of my mother Belinda. She was recently diagnosed with Level 3C UPSC. She is in her early 50's, presented NO symptoms and was diagnosed just a month ago with this terrible decease. We are from the Dominican Republic, and we've been in Miami for this whole procedure. She is just one week…
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Daylady from the fire zone...
Hi Ladies! I have not been checking in too much lately but it is a little crazy here! I live in Sonoma County so for the last week it has felt a little like living through Armagedon. We have been safe, but my daughter's inlaws were evacuated and are living with her and her husband right now. We all feel like last night…
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WooHoo 1 year today!
Today 1 year ago I ran the bell!!! Each 3 month check has resulted in, "everything looks good". I continue to visit my Naturopath and do all kinds of self care. I had a small setback when I had my heart procedure in June but I am slowly recovering from that as well. I don't have the kind of energy and stamina that many of…
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Update on 9/8/17 PET-CT Scan
Good news! I was able to see the radiology report of my PET-CT scan from Friday, 9/8/17 and it shows that the mass in my chest remains stable so all indications are still pointing to it being a benign thymic-rebound. My appointment with the gyn-onc is in a week so I'll learn if my port can be removed at that time. I'll…
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New to board and need support
Hi everyone out there, I am new to the board and have been so scared and stressed- I have my first scan on Friday to see if my chemo treatments are working. On July 3 I found out I have cancer. From then on it's beem a whirlwind. I have uterine cancer with mets in my lungs, While looking at my first scan, there were over…
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Two years ago today I had my hysterectomy
It's two years ago today that I had my hysterectomy. My oncologists/gynecologist thought he got it all so I consider myself to have No Evidence of Disease from that day forward. He did not remove any lymph nodes since he did not see any that looked suspicious. I had chemo as a preventative since I had UPSC but he did not…
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Need guidance on adjuvant therapy
Hello everyone, I am 44 years old. Always had very regular periods. One natural childbirth. Always knew that I had two fibroids but thought they would resolve themselves once I am in menopause. In May, when I visited my gynecologist due to abnormal bleeding, I had a hysteroscopy where some polyps were found and removed.…
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Possible bladder cancer now?
I was successfully treated August 14 for Stage 1, Grade 1 uterine cancer. I had felt pretty great after the surgery and was ready to move on with life. The only thing that slightly bothered me was that no lymph nodes were taken because I am quite obese, and the doctor couldn't visualize the nodes. Before my surgery I was…
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There is always hope
Today I saw my Medical oncologist to discuss and make plans. The only tumor that is growing is the one in my chest, so,that can be treated with radiation, and since Keytruda is keeping the other two stable, we can go back to using that again when radiation is finished. My oncologist was able to get me in to,see the…
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If I have a recurrence within first year - will it continue to recur?
I appear to finally have an answer to the vaginal bleeding I have been experiencing for the past 7 or 8 months. Just 6 months after a TAH/BSO I started to spot/bleed and the oncologist has been unable to find what is causing the bleeding. Finally they have identified 2 masses at the vaginal cuff - believed to be a…
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2 month update on my mom
Hello - It has been a while since my last update about...about 2 months ago. In this time, my mom's new oncologist performed many tests to determine the right course of treatment for her. About a month ago, she began doxorubicin and has been tolerating the chemo pretty well. She is now 2 cycles in, and she will have a scan…
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From IVb UPSC to NED (Hey, that rhymes!)
I had very good news today. I've gone from stage IVb UPSC to NED again (my second time over the course of 7 years). Nothing was found wrong with me in my PET scan from last Friday. I haven't gotten my CA-125 results yet because the labs were drawn just before my appointment and they take a little longer than my other labs.…