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Whole Pelvis Radiation
Hello All, Assuming no delays, I will be finishing R6 carboplatin/Taxol Jan 17th & beginning “whole pelvic“ radiation (sorry don’t know tech term) in February. My Oncology Surgeon had initially recommended vaginal cuff radiation; but my oncology radiologist wants to be more aggressive. I‘ll be scheduied for 5 weeks (M-F)…
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I got good news today
Hi ladies... y'all have been such great support...thank you so much! I saw my radiology oncologist today and although he didn't say I am exactly dancing with NED lets say we are in the same ballroom and he has spotted me from across the floor and is heading my way... Quick background: I have Stage 4 UPSC....hysterectomy in…
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Going for hysterectomy and hysterical! help
I hope the ladies on here can help and talk to me. I have had 3 d/c's in the past 5 years. Always have a thick uterus lining. Sometimes 9. Doctor said anything over 4 or 5 is concerning. I have had biopsies galore. Symptoms were: postmenopausal bleeding. I am 59 years old. I have been using HRT patch for years. I have had…
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Thankful for time.
I don't come out hear often but felt the need today. 5 years ago this next week I had my first chemo treatment. I was terrified, of the treatment, of the prognosis and if or how I would live through it all. I did not even think I would be here today given what the Dr.s all said. But apparently God has more planned than…
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Update on my weird journey
Well, in September I was told chemo wasn’t working well enough, I was inoperable and they would add a 3rd drug Avastin to “try and stay ahead of the tumors. As of November 6, I’d been admitted to the hospital once with an ER visit because they thought I might be having a heart attack (I wasnt). Around this time my hair…
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Scheduled to begin radiation in January TERRIFIED any suggestions?
Before all the biopsy results from hysterectomy came in we thought I was dealing with a completely contained cancer. Now facing 28 radiation treatments. I‘m still in shock and very fearful. Suggestions as to how to prepare mentally, physically and emotionally. I’m usually strong but this has me shook. Thanks for any help.
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Blippin' Chemo Rash
I should have realized that things were going a little too smoothly with my chemo. Looking via Dr. Google, it appears to be a garden-variety chemo rash on my arms and legs. Not itchy, and it looks like a nasty heat rash. It's not summer here. It does seem to be getting a little worse, though. I've been trying to reach the…
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Umm, chemo body odor?
I am on carbo/taxol, and I have noticed an unpleasant body odor - it is especially strong about 5-7 days post-infusion. I can’t stand it - I sometimes shower twice a day to get rid of it. Does anyone else experience this?
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Lvsi
New to the site. I was diagnosed with UPSC early Oct and had a full hysterectomy late Nov. They removed 11 nodes uterus tubes ovaries cervix and omentum. I was staged 1a which was great but they also said I had extensive LVSI (Lympho vascular space invasion) I will be doing chemo and radiation in the new year. Was just…
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Reoccurrence of UPSC
Hi Ladies: I have some bad news to mention. I was diagnosed with a reoccurrence of UPSC (I initially had stage 1 in February of 2011 so it is over 5 years). My CA level has been 134 since mid August so I had a Cat Scan done the end of August and I had a Pet Scan done on October 12th and that is where the cancer has shown…
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still kicking stage 4 b endometrial cancer
well I have been peeking around reading posts but not posting much at all, heres an update, for those looking for survivors of stage 4 b endometrial cancer , as I could not find many at all when i started out looking I dont concider myself a survivor yet, till i get to 5 years, then I think I can breath again I am now at 5…
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Question about Symptoms
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Concerned I may be looking at cancer
Hi ladies, I'm glad I found this board! With so many fears and concerns it's good to have outside ears and advice from others who've gone thru the same things. A quick guided tour of me... I have been dealing with crazy fatigue, low back and tailbone pain for 2 years. One dr diagnosed with fibro, another thinks I have…
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Serum HE4 marker for recurrent endometrial cancer
I know many people on this board are not being measured for serum HE4 or their doctors may not be familiar with it. Both HE4 and CA125 are blood markers for endometrial cancer. I am tested for both markers as part of my ongoing follow-up treatment. Below is an article published by the NIH that explains what this marker is…
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So confused about what to eat during chemotherapy
I had my first chemotherapy on 10/31 (Carbo/Taxol for now and Avastin will be added starting next session). I did not experience any major side effects so far so I am grateful. Even before the chemotherapy has started, I put myself on a pseudo-ketogenic diet, very little carbs, no sugar, no fruit, lots of vegetables, some…
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My uncle has cancer. I want to suupot him
Ho dont get on here very often any more. But still do at times. My dad has been telling me the last few monthes that they think his younger brother has cancer. I just found out today my uncle (dads brother) had surgery this last week to remove the cancer. He has to do chemo This uncle has been talking to my dad about how…
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Concerns about radiotherapy - abdominal & pelvic
I was diagnosied with stage III endometrial cancer in july. I have had a full hysterectomy with ovaries & fallopian tubes removed. i am currently undergoing chemotherapy, and will be having the last cycle next week. The consultant has recommended radiotherapy to the abdomen and pelvis for 5 weeks to prevent re-occurance. i…
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Probiotics
I know this subject has been bought up before, but most of the threads are older. Which ones would be the best to use for chemo patients? Amazon has a whole bunch, but I have no idea which ones are better. What should I be looking for? Or should I go more with kefir, yogurts, etc.? Go the natural route? So far, diarrhea…
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Re: Alternative treatments
I was diagnosed with stage 111 endometrial cancer in July 2017. i have had surgery and have nearly completed chemotherapy cycle. i am considering going for alternative treatment as follow up to strenghten my immune system. I was wondering if anyone of you have had experience of alternative treatment and how successful were…
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Uterine Papillary Serous Carcinoma (UPSC): any others here???
I was diagnosed with UPSC, and had a total hysterectomy and 25 lymph nodes removed for staging 2 weeks ago. The cancer had penetrated into the 2nd half of the uterine wall and into 1 fallopian tube, but my cervix and ovaries (all cut out now) were clear. One of the 25 nodes removed showed microscopic traces of the cancer,…
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Bladder mass NOT CANCER!!
Went to urology yesterday and had cath removed. Didn't see doc, but nurse said path report stated no cancer! I go back in two weeks for follow up. Now saying that, I have to admit I'm absolutely mentally exhausted. The waiting and the unknown can really mess with you. I want to thank y'all for the kind words and support.…
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MMMT / Return to work
to anyone that may have uterine carcinosarcoma I find it so hard to seek others as this is so incredibly rare. I had major surgery in February. Completed carbo/taxol in June and brachytherapy in August. Have been home for ten months. I'm attempting to work for 4hours a day eother in the office but mostly from home. I'm…
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Thankful to be ALIVE and keep FIGHTING
Living a positive life is for free! I’ve lost a lot of friends with different form of cancer. They died young 30-45 years of age. I feel bad because they don’t deserve to die at an early age. Now that I’m one of the people that belongs in C group. I want to tell my late friends that I now understand how they felt or feel.…
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How to date?
So I am single and I have cancer from which I will most certainly die, probably sooner rather than later. Nevertheless I am still not ready to hang up the spurs where love and sex and dating are concerned. I'm just not really sure how to go about it. I would love to hear what you ladies have to say and what your…
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New here, and confused as anything.
My story started mildly ... post-menopausal pink stuff after strenuous exercise. I have a prolapsed bladder AND fibroids, plus I didn't hydrate properly. Bad, bad idea. At first, since I'm prone to kidney stones, my family doctor thought I had those. My kidney function was indeed impaired. She suggested Poise Impressa for…
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Bladder mass removed today
I had the mass in my bladder removed today and everything went well. Right before the procedure the doctor said I might have to have go home with a catheter. That caught me off guard! He said if a cath was needed and the tumor wasn't too deep I could get the cath removed tomorrow. If the tumor was deep then I'd have to…
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Ladies Entering Chemo, Get Your Vitamin B-12 Level Checked
Just returned from visit with endocrinologist who evaluated my post-chemo neuropathy. She lamented that I did not have my Vitamin B-12 level checked before chemo because it was found to be low after chemo and it likely was low before I started. Low B-12 is a cause of neuropathy on its own and chemo certainly didn't help.…
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Bowel obstruction
My mother in law just experienced a bowel obstruction due to a UPSC tumor (recurrence) that has grown and is pressing on the colon from the outside. They placed 2 stents in bowel to help but the tumor is not be operable. Also fear that this means the current treatment (Avastin chemo) is not working. I know I should not…
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Colour of Blood
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I'm new here and need Advice - done with treatments - now no Intimacy
Hi All, I'm 42 years old, never had children, married for 4 years and I was diagnosed last October 2016 of Uterine Cancer Stage IIIC1 - Grade 3. I went through all the treatments just fine. Now it's been 5 months since my last Radiation treatment, still I don't feel any intimacy at all. My husband and I talked last night…