-
Merry Christmas
Merry Christmas and a Happy new year. Hoping everyone has a wonderful And and that this next uear finds us all here. i have much to be thankful far and your friendship is one of the many things wishing you a new year filled with peace and love and without pain and suffering. Hugs and prayers, Lou Ann
-
A few questions
Hi Everyone. I apologise for way too much info I am about to blurt out. Sorry I'm 44 and have had extremely painful and relentless periods for the last couple of years. I've always had painful periods since I had my last child in 2003 but they got worse since about 2011.The last 6 months though I bleed like a tap has been…
-
HAPPY NEW YEAR
I just want to wish everyone here a Happy New Year. I hope and pray that each one of us gets the peace we deserve and the progress we deserve in fighting this horrible disease. God BE with all of you! xoxxo Karen aka Salty!
-
chemo burnout
Up until lately I have tolerated my therapy quite well, but things have been going south. I now have a blood clot and all that goes with that, and I am suddenly tired all the time and nauseous. I am not sure what to do, whether to ask about different treatments or ask for things that will alleviate symptoms. Anyone got…
-
New -- just discharged from hysterectomy
Hi Everyone, I stumbled on this board several weeks ago and have been so moved and inspired by everyone's story. I was DX'd 10/23 with "malignant neoplasm" in the endometrium. I am 10 years post menopausal and the only symptom I had was some spotting; not even enough to call a period. My PCP sent me to a gyno who did a…
-
Random questions re chemo after surgery
How soon after do you have to start it? I know it probably depends on your healing time, but I'm trying to get a rough timeline. I have to do three rounds of chemo after surgery, and I have one more session before. Right now, hopefully if things go OK, that would put me around May somewhere by the time I complete frontline…
-
The Biggest Cancer News Of 2017? 'CAR-T Cells, Hands Down'
I thought you might find this interesting. Hope more immunotherapies will become available for uterine cancer. We all need to stay alive until medicine catches up with our needs. Happy New Year! http://www.wbur.org/commonhealth/2017/12/28/2017-cancer-news? "This week, the U.S. Food and Drug Administration approved the…
-
BLEEDING AGAIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I am so upset right now, I told my husband I want to go to the ER but he is refusing seeing I have to see the gyno oncologist next Friday. I am crying buckets. Had to take the tranquilizers again. I am on the verge of going insane\] I had the D.C on November 17th. Bled for about one week after this. Gyno said it was…
-
Looking for stage IV survivors?
I was diagnosed in October with IVB high grade serous adenocarcinoma. Underwent radical hysterectomy I am facing chemo now. My surgeon believes that I can survive this. Statistics tell me differently. Indeed the medical oncologist I met with told me that I have a 20% chance of survival within 5 years. They are only…
-
Went off HRT Cold turkey and going nuts! help!
Seeing I have atypical/complex endometrial hyperplasia and have pre-cancer as the gyno explained, I ditched my HRT Vivelle transdermal patch. Took it off almost 2 weeks ago and night sweats, changing nightgown at least 3 times a night, sometimes 5 times, and went to gym today and actually blew up on the treadmill. I am so…
-
The Whole Lemon Drink
I wanted to try this for my neuropathy. I only use the lemon and water and put in some stevia for sweetness. I’m going to put in my fresh ginger tonight, which will prove to be interesting. I’ve been drinking it before I go to bed and I am not waking up like I have been. Believe it or not I have dropped 2 pounds already…
-
Merry, Merry, Happy, Happy to All!...one year ago today....
Wishing all the ladies here a calm, healing and easy holiday season. One year ago today, I had my first of 12 rounds of chemo for my second recurrence of endometrioid adenocarcinoma. I, for one, am happy to slam the door on 2017, and I look forward to improved health and more healing in 2018. My treatment succeeded in…
-
Lots of new ladies - let's have a roll call
We have a lot of new ladies on the board. I think it's time for a new roll call to introduce ourselves all in one place. Please tell us what type of uterine cancer you have and when you were diagnosed; where you are in treatment and what that treatment is; where you're from and your age (if you like) and anything else you…
-
Torisel
They recently switched me from 3 years of avastin to torisel 3 months ago. Since then i have not had one good day and i am about to tell them to stop. Any perspectivesto offer? Had a cat scan this week and no progression.. i feel constantly dizzy, lightheases, exhausted by doing smallest tbing, etc etc. Before this i was…
-
A Holiday update
It was one year ago today that I was told I had UPSC and was headed for surgery, chemo and radiation. They failed to mention the high risk for blood clots. So off I went into 2017 with a lot on my mind. Waited until after Christmas to break the news to family and friends. Had some bad times but as I reflect, it was not too…
-
So many questions
Boy, my thoughts are all over the place at this point! As many of you know I've recently been diagnosed with a recurrence. Trying to sort things through in my mind. Wondering about my initial diagnosis and treatment. Based on findings from surgery I was diagnosed with Stage 1A carcinosarcoma and papillary serous (5.5 cm…
-
Finally got the second neoadjuvant C-125 results
First one after the baseline, which was 121.6. It's now down to 43.7 after the first chemo treatment. Hopefully, the third treatment brings me even further down. So even if my fibroids are causing problems, I guess they're not causing THAT much of a problem. HOPEFULLY, between the third one and a hopefully-improved second…
-
Merry Christmas
Just wanted to wish everyone a Merry Christmas. I hope every one of you has a fabulous holiday and wish all the best for you in the New Year.
-
Rebuilding the myelin sheath to improve neuropathy issues.
Being that neuropathy seems to come in conjunction with chemo, and is reported to be a result of destruction of the Myelin sheath, being who I am, I had to do some investigating, and with googling, found that myelin sheath destruction is also the major component of ms. So, here's oodles of things on rebuilding the myelin…
-
Make sure they pay attention to your bones
Despite my bringing this issue up in the very beginning, my doctors pretty much, in their efforts to save my life, ignored the state of my bones ( which were not good before treatment) and now due to the radiation my bones are in dire straights. I’ve had an email nsufficiency fracture of my sacrum and a compression…
-
Thought the pathology report would clear things up, but ...
Now I'm more confused. Originally, I was textbook adenocarcinoma. Then a CT scan implied that I had pertioneal and omental spread. I was diagonsed UPSC, Stage IVB. From Stage 1 adenocarcinoma to Stage IVB UPSC in two weeks is pretty darn drastic! The CT radiologist's report is ... odd. Even my family doctor said that, so…
-
INSURANCE DENIALS
So let me start by saying - I am grateful to have insurance (Blue Cross Anthem). With that said, I'm dismayed that the nuelestra (sp)? patch and nuepagin (sp)? shots have been denied twice. I was supposed to have the patch last chemo treatment (Dec 6th); but no one had verified insurance would cover - so did not get it or…
-
Whole Pelvis Radiation
Hello All, Assuming no delays, I will be finishing R6 carboplatin/Taxol Jan 17th & beginning “whole pelvic“ radiation (sorry don’t know tech term) in February. My Oncology Surgeon had initially recommended vaginal cuff radiation; but my oncology radiologist wants to be more aggressive. I‘ll be scheduied for 5 weeks (M-F)…
-
I got good news today
Hi ladies... y'all have been such great support...thank you so much! I saw my radiology oncologist today and although he didn't say I am exactly dancing with NED lets say we are in the same ballroom and he has spotted me from across the floor and is heading my way... Quick background: I have Stage 4 UPSC....hysterectomy in…
-
Going for hysterectomy and hysterical! help
I hope the ladies on here can help and talk to me. I have had 3 d/c's in the past 5 years. Always have a thick uterus lining. Sometimes 9. Doctor said anything over 4 or 5 is concerning. I have had biopsies galore. Symptoms were: postmenopausal bleeding. I am 59 years old. I have been using HRT patch for years. I have had…
-
Thankful for time.
I don't come out hear often but felt the need today. 5 years ago this next week I had my first chemo treatment. I was terrified, of the treatment, of the prognosis and if or how I would live through it all. I did not even think I would be here today given what the Dr.s all said. But apparently God has more planned than…
-
Update on my weird journey
Well, in September I was told chemo wasn’t working well enough, I was inoperable and they would add a 3rd drug Avastin to “try and stay ahead of the tumors. As of November 6, I’d been admitted to the hospital once with an ER visit because they thought I might be having a heart attack (I wasnt). Around this time my hair…
-
Scheduled to begin radiation in January TERRIFIED any suggestions?
Before all the biopsy results from hysterectomy came in we thought I was dealing with a completely contained cancer. Now facing 28 radiation treatments. I‘m still in shock and very fearful. Suggestions as to how to prepare mentally, physically and emotionally. I’m usually strong but this has me shook. Thanks for any help.
-
Blippin' Chemo Rash
I should have realized that things were going a little too smoothly with my chemo. Looking via Dr. Google, it appears to be a garden-variety chemo rash on my arms and legs. Not itchy, and it looks like a nasty heat rash. It's not summer here. It does seem to be getting a little worse, though. I've been trying to reach the…
-
Umm, chemo body odor?
I am on carbo/taxol, and I have noticed an unpleasant body odor - it is especially strong about 5-7 days post-infusion. I can’t stand it - I sometimes shower twice a day to get rid of it. Does anyone else experience this?