Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

Count Down Has Come
Well, ladies, Friday, January 19th, my hysterectomy is scheduled. I got over my flu so my pre op is on Wednesday 1-17 and I think I should pass their approval. Don't know what time surgery is yet. I called my Priest. My mother and of course, husband will be there. I am afraid even though everyone tells me to chill out. If…
Metformin all on one page
I need your feedback if you are taking Metformin whether it be for diabetes and your a cancer patient or a cancer patient with no diabetes but taking it to help mets caused by cancer. What I would like to know is 1. Why you are taking it, 2. Strength of dosage, 3. How many times a day, 4. Results of taking it, and 5. Any…
Adenomyosis link to Endometrial Adenocarcinoma - anybody else shares this experience?
Hello Ladies, I don't post too often, but have been looking at risk factors for type 2 endometrial carcinoma in the hopes of raising awareness among my friends and family about this terrible disease. I developed a condition called Adenomyosis about 5 years ago, it causes extremely heavy periods, my family doctor ordered…
AARP E-mail
For those of you who are AARP members, be sure to see the e-mail AARP sent last night. The title of it is about 12 must-read books for 2018, but within it, there is an article about how "the FDA has approved the first gene-profiling test for this disease," which when I looked into it, turned out to be cancer. Foundation…
five years
Whiile, unfortunately, I did not find this site until a year or so after my diagnosis, I celebrated my 5 years from my last treatment on Dec 19. Two of my sisters and I went to New York to see the Rocketts and dinner at the bar at the Rainbow Room. While we toasted to my luck, we also lamented the loss of my mother. I do…
Avastin - Updated Treatment
Recurring Uterine Cancer here. This has been going on for two years now. Never have been NED, have been told no cure. Did the chemo carbo/taxil, radiation (second time), hormone therapy and then started Doxil in Sept. of 17. Doxil after the third treatment burned my upper body, blisters, etc. Feet began to peel but not…
Doing the Tango
Ladies, thank you for all the support and advice... I saw my doctor today...my latest PET was last Thursday and praise God it appears my treatments have worked and I am dancing with NED... it's still early and will continue to be watched but for now my doctor was beyond happy and said that the scans looked even better than…
The case of electronic records and war of the hospitals
ok I’ve been awake since 3:00 am and this feel the need to vent. Yesterday I went to my gynechological oncologist at a new hospital for the first time. Since this was my first time at a new hospital I wasn’t given a CA 125 blood test. At the time I didn’t think much of it, but then after getting home I thought oh yes I…
Tumeric
I have heard much about it here. Apparently, it can inibit certain nasty cells, including cancer. I've been cleared to take it, but apparently, you can simply use the spice with with food as well. How much would you need if you go with food? I know some combine it with black pepper ... reportedly, it's more effective. That…
Need some advice - encouragement
I have been doing Avastin as a single agent maintenance drug since I was taken off the Carbo/Taxotere/Avastin combination when it tried to take me out in early July (nearly zero blood counts and neutropenic infections every infusion). At this time, we discussed doing Avastin until I either had a recurrence or side effects…
Those platelets!
Long time lurker, first time poster. My story: May 2017 laparoscopic surgery. Local tumor board could not reach consensus on stage and treatment so file was sent to Mayo Clinic for consult. Staged 3c, grade 1. Left sentinel lymph node and wash were negative but right sentinel node had micrometastatic cells. Mayo…
Have You Read this article?
it's on a website titled: "Patient Modesty for Hysterectomy." It upset me, it sounds very degrading and humiliating. I am one of those women that MUST gave female staff. Female nurse, etc., with me. I do not let the men near me. With the exception of this doctor, I (really don't like it) but he has the expertise and has…
Getting ready for the big show
My CA-125s are now 19.2 They went from 121.6 to 43.7 to this new number. Woot! My fibroids might STILL be mucking things up a little, but just a little, and not enough to prevent the CA-125 from going under the preferred 35 normal range. There will probably be one more CA-125 scan on the 5th. It's a little greedy of me,…
Nausea after first radiation treatment
I have been so nauseous since my first treatment. My second is today and I’m so nervous. The past 48 hours have been tough. Doctor thinks it might be the latest virus rather than from the treatment which could be true but this feels different. About 2hours after treatment I got a migraine, diarrhea and nausea. The nausea…
Laparotomy: Nerve damage
Hey folks. For those of you who had a laparotomy, have you had any lingering nerve damage? I actually lost the ability to move my left leg out to in for a long time. It still feels weak. I was also very numb on the left groin area and while I regained some feeling, I still can't feel hot/cold temperatures in certain spots…
Mental Health is not an issue here
I have a hysterectomy scheduled for January 19 if I don't recover from the flu right now. Today, I got a letter from the doctor's nurse who is definitely not playing with a full deck. She writes that my pre op was days ago. Where has she been? The hospital was notified I am running a high fever. They don't want me in…
A potential new treatment for Type II endometrial cancer
https://www.medicalnewstoday.com/articles/320254.php Paper in Nature (one of the top medical journals) https://www.nature.com/articles/s41565-017-0009-7 . Researchers then fueled the nanoparticles with two anti-cancer drugs: paclitaxel, a type of chemotherapy used to treat endometrial cancer, and nintedanib, or BIBF 1120,…
A fascinating read
OK. This is my last post. Sorry for spamming the forum. I just came across this NY Times article by the author of "Emperor of All Maladies: A Biography of Cancer". I think I have heard others on this forum mentioning this book before. I now have to read the book. Learned so much about the work on cancer stem cells. I just…
A way to block treatment-resistance in the stem cells of endometrioid tumors
Came across this paper: http://jem.rupress.org/content/214/9/2715 Basically, they prove that CD55 protein is necessary and sufficient for the self renewal and cisplatin resistance. Here is a summary of the paper, I find this version easier to consume: https://www.medicalnewstoday.com/articles/319148.php The researchers…
Great news and THANK YOU!!
I got the pathology results from my hysterectomy today. Stage 1a, Grade 1. No lymph node involvement and the tumor was completely contained within the endometrium -- did not spread significantly into the wall of the uterus. No additional treatment needed, just follow-up. I continue to heal slowly from the surgery. I want…
I’m new at this and have a question maybe someone could help me with.
I was diagnosed with uterine cancer just over a year ago. I had a radical hysterectomy and had radiation treatments. I have been back for check ups and everything appeared to be good. I have started spotting a small amount and I am wondering if this is something I should be concerned about or is this normal? Thank you…
Is post radiation osteopenia reversible?
I just had a bone density scan today 13 months after I finished pelvic radiation therapy and it now shows I have osteopenia in both femoral necks. I had a baseline scan done in 2009 and I was normal. I don't get to talk with my gyno (not my oncologist) who ordered this until April, so I'm wondering if I could hear from…
Symptom review and advice for next steps
Howdy all! I was recently on another site, and they seemed to provide zero feedback. Actually, they seemed to provide pat feedback, and it seemed that many in the "uterine cancer" forum were...absent? Missing? Non-participatory? I dunno. I have read through about 5 pages of stories, queries, information, and advice and…
Good News!
Just saw my oncologist. The Megace is holding the beast off! Glory be to God! Now I just have some hydroureronephrosis of my right kidney. I was just at urologist a couple months ago! It’s always something. But for now, I’m happy. Just need to get rid of migraines.
Another Relay for Life Speech-and thank you to this group
I spoke at a Relay for Life Kick Off in the town I graduated from, which is 20 miles from where I live now. Here is the link to it: https://www.facebook.com/sandy.rumseysmith/videos/10155789851525042/ (you will probably have to copy/paste) I mentioned how the people in this group helped me when I had to make decisions like…
Relay for Life
Our local Relay for Life was last Saturday. The scheduled speaker had to cancel the week before, so they asked me to speak! I am NOT a public speaker, but I wanted to do whatever I could to show God how thankful I am for him bringing me through, so I said yes. Here is the link if you want to watch/listen. It is a Facebook…
Laparoscopic vs abdominal
I will be meeting with my gyn onc surgeon on the 19th. I’ve been reading on pros and cons of surgical techniques. Some say that the laporosc approach can spread cancer cells. Anyone with further information?
Nausea... Radiation... Nausea
Help... any suggestions for nausea. I’m one of the odd ones that got nauseous after my first radiation treatment. I tried Compazine and all the over the counter meds. I can’t imagine getting through the remainder of treatments if this gets worse as the weeks pass. I just finished week one. My new prescription is for…
Experience with temsirolimus
I am interested in members' experience with temsirolimus to treat metastasis of uterine serous carcinoma--originally staged at IIIC but spread now throughout pelvis and abdoman. I am readying a decision on a fourth treatment since being diagnosed in April 2016 which have included two chemos--carbo/taxel, doxil--and two…
Low Dose Naltroxone (LDN)
There are a few ladies who have used this- if you use the search you can find more info. My ND suggested that I start on this yesterday and gave me this link to watch the documentary which I watched this morning. It was very impressive and gives a lot of hope for several reasons. I then watched a few of the additional…

Uterine/Endometrial Cancer

Discussion List

Discussion Boards