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Tumeric
I have heard much about it here. Apparently, it can inibit certain nasty cells, including cancer. I've been cleared to take it, but apparently, you can simply use the spice with with food as well. How much would you need if you go with food? I know some combine it with black pepper ... reportedly, it's more effective. That…
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Need some advice - encouragement
I have been doing Avastin as a single agent maintenance drug since I was taken off the Carbo/Taxotere/Avastin combination when it tried to take me out in early July (nearly zero blood counts and neutropenic infections every infusion). At this time, we discussed doing Avastin until I either had a recurrence or side effects…
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Those platelets!
Long time lurker, first time poster. My story: May 2017 laparoscopic surgery. Local tumor board could not reach consensus on stage and treatment so file was sent to Mayo Clinic for consult. Staged 3c, grade 1. Left sentinel lymph node and wash were negative but right sentinel node had micrometastatic cells. Mayo…
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Have You Read this article?
it's on a website titled: "Patient Modesty for Hysterectomy." It upset me, it sounds very degrading and humiliating. I am one of those women that MUST gave female staff. Female nurse, etc., with me. I do not let the men near me. With the exception of this doctor, I (really don't like it) but he has the expertise and has…
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Getting ready for the big show
My CA-125s are now 19.2 They went from 121.6 to 43.7 to this new number. Woot! My fibroids might STILL be mucking things up a little, but just a little, and not enough to prevent the CA-125 from going under the preferred 35 normal range. There will probably be one more CA-125 scan on the 5th. It's a little greedy of me,…
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Nausea after first radiation treatment
I have been so nauseous since my first treatment. My second is today and I’m so nervous. The past 48 hours have been tough. Doctor thinks it might be the latest virus rather than from the treatment which could be true but this feels different. About 2hours after treatment I got a migraine, diarrhea and nausea. The nausea…
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Laparotomy: Nerve damage
Hey folks. For those of you who had a laparotomy, have you had any lingering nerve damage? I actually lost the ability to move my left leg out to in for a long time. It still feels weak. I was also very numb on the left groin area and while I regained some feeling, I still can't feel hot/cold temperatures in certain spots…
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Mental Health is not an issue here
I have a hysterectomy scheduled for January 19 if I don't recover from the flu right now. Today, I got a letter from the doctor's nurse who is definitely not playing with a full deck. She writes that my pre op was days ago. Where has she been? The hospital was notified I am running a high fever. They don't want me in…
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A potential new treatment for Type II endometrial cancer
https://www.medicalnewstoday.com/articles/320254.php Paper in Nature (one of the top medical journals) https://www.nature.com/articles/s41565-017-0009-7 . Researchers then fueled the nanoparticles with two anti-cancer drugs: paclitaxel, a type of chemotherapy used to treat endometrial cancer, and nintedanib, or BIBF 1120,…
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A fascinating read
OK. This is my last post. Sorry for spamming the forum. I just came across this NY Times article by the author of "Emperor of All Maladies: A Biography of Cancer". I think I have heard others on this forum mentioning this book before. I now have to read the book. Learned so much about the work on cancer stem cells. I just…
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A way to block treatment-resistance in the stem cells of endometrioid tumors
Came across this paper: http://jem.rupress.org/content/214/9/2715 Basically, they prove that CD55 protein is necessary and sufficient for the self renewal and cisplatin resistance. Here is a summary of the paper, I find this version easier to consume: https://www.medicalnewstoday.com/articles/319148.php The researchers…
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Great news and THANK YOU!!
I got the pathology results from my hysterectomy today. Stage 1a, Grade 1. No lymph node involvement and the tumor was completely contained within the endometrium -- did not spread significantly into the wall of the uterus. No additional treatment needed, just follow-up. I continue to heal slowly from the surgery. I want…
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I’m new at this and have a question maybe someone could help me with.
I was diagnosed with uterine cancer just over a year ago. I had a radical hysterectomy and had radiation treatments. I have been back for check ups and everything appeared to be good. I have started spotting a small amount and I am wondering if this is something I should be concerned about or is this normal? Thank you…
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Is post radiation osteopenia reversible?
I just had a bone density scan today 13 months after I finished pelvic radiation therapy and it now shows I have osteopenia in both femoral necks. I had a baseline scan done in 2009 and I was normal. I don't get to talk with my gyno (not my oncologist) who ordered this until April, so I'm wondering if I could hear from…
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Symptom review and advice for next steps
Howdy all! I was recently on another site, and they seemed to provide zero feedback. Actually, they seemed to provide pat feedback, and it seemed that many in the "uterine cancer" forum were...absent? Missing? Non-participatory? I dunno. I have read through about 5 pages of stories, queries, information, and advice and…
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Good News!
Just saw my oncologist. The Megace is holding the beast off! Glory be to God! Now I just have some hydroureronephrosis of my right kidney. I was just at urologist a couple months ago! It’s always something. But for now, I’m happy. Just need to get rid of migraines.
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Another Relay for Life Speech-and thank you to this group
I spoke at a Relay for Life Kick Off in the town I graduated from, which is 20 miles from where I live now. Here is the link to it: https://www.facebook.com/sandy.rumseysmith/videos/10155789851525042/ (you will probably have to copy/paste) I mentioned how the people in this group helped me when I had to make decisions like…
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Relay for Life
Our local Relay for Life was last Saturday. The scheduled speaker had to cancel the week before, so they asked me to speak! I am NOT a public speaker, but I wanted to do whatever I could to show God how thankful I am for him bringing me through, so I said yes. Here is the link if you want to watch/listen. It is a Facebook…
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Laparoscopic vs abdominal
I will be meeting with my gyn onc surgeon on the 19th. I’ve been reading on pros and cons of surgical techniques. Some say that the laporosc approach can spread cancer cells. Anyone with further information?
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Nausea... Radiation... Nausea
Help... any suggestions for nausea. I’m one of the odd ones that got nauseous after my first radiation treatment. I tried Compazine and all the over the counter meds. I can’t imagine getting through the remainder of treatments if this gets worse as the weeks pass. I just finished week one. My new prescription is for…
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Experience with temsirolimus
I am interested in members' experience with temsirolimus to treat metastasis of uterine serous carcinoma--originally staged at IIIC but spread now throughout pelvis and abdoman. I am readying a decision on a fourth treatment since being diagnosed in April 2016 which have included two chemos--carbo/taxel, doxil--and two…
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Low Dose Naltroxone (LDN)
There are a few ladies who have used this- if you use the search you can find more info. My ND suggested that I start on this yesterday and gave me this link to watch the documentary which I watched this morning. It was very impressive and gives a lot of hope for several reasons. I then watched a few of the additional…
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Granulation Tissue vs Residual Ovary
Hello sisters, I should probably update my profile so that I don't have to give my full medical history before asking a question. Please bear with me while I give a brief history. I had a hysterectomy in late June. Pathology report revealed an endometrioid type, endometrial cancer grade 2 (later downgraded to grade 1 by a…
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Managing emotions
Hi, I am a new member. I got my diagnosis last week...and my husband got a Dx of prostate cancer one day later. My emotions are swinging wildly from hope and courage, to despair and unholy fear. I will have surgery on 1/11; he meets with a surgeon on 1/3 to determine his next step. His cancer is a moderately high grade so…
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Radiation treatment followed by migraine???
I got my first of 28 treatments yesterday. A couple of hours later I developed a migrain. It was so bad I felt nauseated. I’m not prone to headaches and they aren’t listed as possible side effects. Has anyone experienced the same thing?
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Post surgery expectations
I had a hysterectomy and lymph nodes removed 18 days ago. My surgery took 5 hours. I would like to know what others experienced post surgery. I don’t know what is “normal”. How long does it take before your guts settle down. I go from diarrhea to lots of gas to mild constipation. I’m getting odd shooting pains, twitches,…
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Starting radiation January 2nd recommendations?
I’ve heard about Vitamin E suppositories. Are they for vagina or rectum? Vaginal expander, when to begin using it and how often. Why are these things needed? How much will the vagina or rectum change with radiation? Will I get to a point where everything won’t scare me? Can’t imagine how I would get through this without…
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R there any survivors stage IV-B edometriod adenocarcinoma grade 3 out there?
Please help...looking for resent survivor stores... need some inspiration.
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Uterine Carcinosarcoma (MMMT) - CA Medical Professionals/Resources
Hello, My mother (54) was diagnosed with stage IV uterine carcinosarcoma in February and has since had a debulking surgery and is receiving ifos/taxol chemotherapy currently. I have recently been aware of how rare and aggressive this disease really is, and if possible, I'd like to contact as many experts as possible for…
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An article for thought.
Yes, this article concerns a breast cancer survivor. And it's an older article. God Willing, this woman is still alive and giving this thing !@#$. But some of the points make me think. Are we so focused on what doesn't work that we don't focus enough on what does? The bit about trials and five-year survival rates are…