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Relay for Life
Our local Relay for Life was last Saturday. The scheduled speaker had to cancel the week before, so they asked me to speak! I am NOT a public speaker, but I wanted to do whatever I could to show God how thankful I am for him bringing me through, so I said yes. Here is the link if you want to watch/listen. It is a Facebook…
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Laparoscopic vs abdominal
I will be meeting with my gyn onc surgeon on the 19th. I’ve been reading on pros and cons of surgical techniques. Some say that the laporosc approach can spread cancer cells. Anyone with further information?
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Nausea... Radiation... Nausea
Help... any suggestions for nausea. I’m one of the odd ones that got nauseous after my first radiation treatment. I tried Compazine and all the over the counter meds. I can’t imagine getting through the remainder of treatments if this gets worse as the weeks pass. I just finished week one. My new prescription is for…
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Experience with temsirolimus
I am interested in members' experience with temsirolimus to treat metastasis of uterine serous carcinoma--originally staged at IIIC but spread now throughout pelvis and abdoman. I am readying a decision on a fourth treatment since being diagnosed in April 2016 which have included two chemos--carbo/taxel, doxil--and two…
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Low Dose Naltroxone (LDN)
There are a few ladies who have used this- if you use the search you can find more info. My ND suggested that I start on this yesterday and gave me this link to watch the documentary which I watched this morning. It was very impressive and gives a lot of hope for several reasons. I then watched a few of the additional…
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Granulation Tissue vs Residual Ovary
Hello sisters, I should probably update my profile so that I don't have to give my full medical history before asking a question. Please bear with me while I give a brief history. I had a hysterectomy in late June. Pathology report revealed an endometrioid type, endometrial cancer grade 2 (later downgraded to grade 1 by a…
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Managing emotions
Hi, I am a new member. I got my diagnosis last week...and my husband got a Dx of prostate cancer one day later. My emotions are swinging wildly from hope and courage, to despair and unholy fear. I will have surgery on 1/11; he meets with a surgeon on 1/3 to determine his next step. His cancer is a moderately high grade so…
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Radiation treatment followed by migraine???
I got my first of 28 treatments yesterday. A couple of hours later I developed a migrain. It was so bad I felt nauseated. I’m not prone to headaches and they aren’t listed as possible side effects. Has anyone experienced the same thing?
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Post surgery expectations
I had a hysterectomy and lymph nodes removed 18 days ago. My surgery took 5 hours. I would like to know what others experienced post surgery. I don’t know what is “normal”. How long does it take before your guts settle down. I go from diarrhea to lots of gas to mild constipation. I’m getting odd shooting pains, twitches,…
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Starting radiation January 2nd recommendations?
I’ve heard about Vitamin E suppositories. Are they for vagina or rectum? Vaginal expander, when to begin using it and how often. Why are these things needed? How much will the vagina or rectum change with radiation? Will I get to a point where everything won’t scare me? Can’t imagine how I would get through this without…
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R there any survivors stage IV-B edometriod adenocarcinoma grade 3 out there?
Please help...looking for resent survivor stores... need some inspiration.
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Uterine Carcinosarcoma (MMMT) - CA Medical Professionals/Resources
Hello, My mother (54) was diagnosed with stage IV uterine carcinosarcoma in February and has since had a debulking surgery and is receiving ifos/taxol chemotherapy currently. I have recently been aware of how rare and aggressive this disease really is, and if possible, I'd like to contact as many experts as possible for…
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An article for thought.
Yes, this article concerns a breast cancer survivor. And it's an older article. God Willing, this woman is still alive and giving this thing !@#$. But some of the points make me think. Are we so focused on what doesn't work that we don't focus enough on what does? The bit about trials and five-year survival rates are…
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Merry Christmas
Merry Christmas and a Happy new year. Hoping everyone has a wonderful And and that this next uear finds us all here. i have much to be thankful far and your friendship is one of the many things wishing you a new year filled with peace and love and without pain and suffering. Hugs and prayers, Lou Ann
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A few questions
Hi Everyone. I apologise for way too much info I am about to blurt out. Sorry I'm 44 and have had extremely painful and relentless periods for the last couple of years. I've always had painful periods since I had my last child in 2003 but they got worse since about 2011.The last 6 months though I bleed like a tap has been…
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HAPPY NEW YEAR
I just want to wish everyone here a Happy New Year. I hope and pray that each one of us gets the peace we deserve and the progress we deserve in fighting this horrible disease. God BE with all of you! xoxxo Karen aka Salty!
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chemo burnout
Up until lately I have tolerated my therapy quite well, but things have been going south. I now have a blood clot and all that goes with that, and I am suddenly tired all the time and nauseous. I am not sure what to do, whether to ask about different treatments or ask for things that will alleviate symptoms. Anyone got…
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New -- just discharged from hysterectomy
Hi Everyone, I stumbled on this board several weeks ago and have been so moved and inspired by everyone's story. I was DX'd 10/23 with "malignant neoplasm" in the endometrium. I am 10 years post menopausal and the only symptom I had was some spotting; not even enough to call a period. My PCP sent me to a gyno who did a…
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Random questions re chemo after surgery
How soon after do you have to start it? I know it probably depends on your healing time, but I'm trying to get a rough timeline. I have to do three rounds of chemo after surgery, and I have one more session before. Right now, hopefully if things go OK, that would put me around May somewhere by the time I complete frontline…
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The Biggest Cancer News Of 2017? 'CAR-T Cells, Hands Down'
I thought you might find this interesting. Hope more immunotherapies will become available for uterine cancer. We all need to stay alive until medicine catches up with our needs. Happy New Year! http://www.wbur.org/commonhealth/2017/12/28/2017-cancer-news? "This week, the U.S. Food and Drug Administration approved the…
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BLEEDING AGAIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I am so upset right now, I told my husband I want to go to the ER but he is refusing seeing I have to see the gyno oncologist next Friday. I am crying buckets. Had to take the tranquilizers again. I am on the verge of going insane\] I had the D.C on November 17th. Bled for about one week after this. Gyno said it was…
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Looking for stage IV survivors?
I was diagnosed in October with IVB high grade serous adenocarcinoma. Underwent radical hysterectomy I am facing chemo now. My surgeon believes that I can survive this. Statistics tell me differently. Indeed the medical oncologist I met with told me that I have a 20% chance of survival within 5 years. They are only…
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Went off HRT Cold turkey and going nuts! help!
Seeing I have atypical/complex endometrial hyperplasia and have pre-cancer as the gyno explained, I ditched my HRT Vivelle transdermal patch. Took it off almost 2 weeks ago and night sweats, changing nightgown at least 3 times a night, sometimes 5 times, and went to gym today and actually blew up on the treadmill. I am so…
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The Whole Lemon Drink
I wanted to try this for my neuropathy. I only use the lemon and water and put in some stevia for sweetness. I’m going to put in my fresh ginger tonight, which will prove to be interesting. I’ve been drinking it before I go to bed and I am not waking up like I have been. Believe it or not I have dropped 2 pounds already…
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Merry, Merry, Happy, Happy to All!...one year ago today....
Wishing all the ladies here a calm, healing and easy holiday season. One year ago today, I had my first of 12 rounds of chemo for my second recurrence of endometrioid adenocarcinoma. I, for one, am happy to slam the door on 2017, and I look forward to improved health and more healing in 2018. My treatment succeeded in…
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Lots of new ladies - let's have a roll call
We have a lot of new ladies on the board. I think it's time for a new roll call to introduce ourselves all in one place. Please tell us what type of uterine cancer you have and when you were diagnosed; where you are in treatment and what that treatment is; where you're from and your age (if you like) and anything else you…
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Torisel
They recently switched me from 3 years of avastin to torisel 3 months ago. Since then i have not had one good day and i am about to tell them to stop. Any perspectivesto offer? Had a cat scan this week and no progression.. i feel constantly dizzy, lightheases, exhausted by doing smallest tbing, etc etc. Before this i was…
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A Holiday update
It was one year ago today that I was told I had UPSC and was headed for surgery, chemo and radiation. They failed to mention the high risk for blood clots. So off I went into 2017 with a lot on my mind. Waited until after Christmas to break the news to family and friends. Had some bad times but as I reflect, it was not too…
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So many questions
Boy, my thoughts are all over the place at this point! As many of you know I've recently been diagnosed with a recurrence. Trying to sort things through in my mind. Wondering about my initial diagnosis and treatment. Based on findings from surgery I was diagnosed with Stage 1A carcinosarcoma and papillary serous (5.5 cm…
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Finally got the second neoadjuvant C-125 results
First one after the baseline, which was 121.6. It's now down to 43.7 after the first chemo treatment. Hopefully, the third treatment brings me even further down. So even if my fibroids are causing problems, I guess they're not causing THAT much of a problem. HOPEFULLY, between the third one and a hopefully-improved second…