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There is hope beyond cancer
Just got back from my yearly exam with the oncologist. I am not officially 8 years cancer free from USPC. They said I am one of the longest survivors there office has ever had with this kind of aggressive cancer. I have done nothing special besides doing the chemo & interanal radiation that they advised me to have. Just…
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Anybody heard from Amatullah?
Has anybody heard from Amatullah? I sent her a PM back at the beginning of the month but haven't heard back. It looks like she hasn't been online since February 28th, I hope she's okay...
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Let’s talk about Cannibas
So, I got my medical marijuana card and visited the dispensar. I’ve tried a few products (tictured, joints, gummies) and they have had absolutely no effect on me. It’s amazing how these things operate without giving a you any direction. I’ve resorted to taking advice from a few pot heads I know. I didn’t do this when I was…
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UTI’s
Thank you de Maus for the tip about using a spray bottle for these infections. I have just finished my 4th round and since I started using one I have had no signs. I used to get them regularly and it has been at least three weeks. I think you are on to something.
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The "new normal"
Do you ever get accustomed to this "new normal?" It's like I'm on the Wheel of Fortune every day. Each morning I get up and spin the wheel. Will it be a good day, a not-so-good day or a horrible day? Tuesday was a not-so-good day but I was at least functional. Yesterday was a horrible day - so dizzy I could hardly walk,…
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If you were me
Hi. I really need to rely on all of you and the immense knowledge you possess. My body just can’t handle cancer treatments. Hysterectomy last May, diagnosed stage 3c, grade 1. Began chemo early July. Total of 6 weeks delays due to significant neutropenia and low platelet counts which resulted in 3 hospitalizations. Dosage…
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POLE ultra-mutated endometrial cancer and immunotherapy
This is the third time I am trying to post this message. It seems if I add a hyperlink the post is deleted. In addition to tumours that have Micro Satellite Instability, it seems tumours that have the POLE exonuclease domain mutations are also good candidates for immunotherapy. If the genomic profiling of your tumour…
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POLE ultra-mutated endometrial cancer and immunotherapy
Hello, In addition to tumours that have Micro Satellite Instability, it seems tumours that have the POLE exonuclease domain mutations are also good candidates for immunotherapy. If the genomic profiling of your tumour indicated the POLE mutation and you are experiencing a recurrence please check with your doctor to see if…
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POLE ultra-mutated endometrial cancer and immunotherapy
It is my understanding that if a cancer has high mutation burden (like lung, melanoma) they are better candidates for immunotherapies. As far as I know ovarian cancer is a low mutation burden type of cancer and hence typically may have limitations in targeted therapies. Here is an article discussing that. Up until now I…
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Final chemo 3 weeks ago - still feel like a wet noodle...
Hi all, it has been a while since I posted - something to celebrate is that I finished my 6th and final taxol/carbo treatment! However, it has been a rough road since: I landed in the hospital with a fever and borderline neutropenia last week, and the weakness is incredible and does not go away. It has been 3 weeks, and I…
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How has Cancer changed you?
I have to ask. Many of you warriors know that I was and still am traumatized to think I had uterine cancer. What the hell? I never smoked, don't drink, didn't do anything except put a little transdermal patch on my body for hot flashes which are sooo bad. And according to my gyno oncologist, my tumor was estrogen driven.…
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Update Janae
Hey guys. There is so many new people and im glad this forum is still full of love and support. What a bleesing to not be alone. Im not on here as much as befor but was thinking about cancer and wanted to write. About two weeks ago i had another cancer update. My CA 125 was in normal range. Cant remember the number for…
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NED from Stage IV metastatic endometrial cancer
Hi, This is my first posting to this site. After reading many of the entries on this site, I felt I had to join. August 2014 - experienced post-menopausal bleeding - had ultrasound- endometrial lining was .8-.9cm-double what it should be(normal is .4cm) Sept 2014 - endometrial biopsy was not totally conclusive but…
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Stage IV Endometrial Cancer Treatment
I was diagnosed in 2017 (age 58) with Stage IV endometrial ovarian cancer metastasized to liver and lungs. I was told I was not a candidate for surgery or radiation so was put on 6 rounds of Paclitaxel and Carboplatin. Currently I am nearing the end of 6 rounds of Avastin and Doxil. Long story short, nothing is really…
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Lou Ann Needs Extra Prayers
I learned from Facebook that Lou Ann has had a very rough couple of weeks and needs our extra prayers.
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MediCare Coverage for Geonomic Testing
This should make it easier for those of us who need it. Finally. https://www.reuters.com/article/us-usa-health-testing/u-s-to-cover-advanced-genomic-testing-for-medicare-cancer-patients-idUSKCN1GS2VG
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Cheese update
So it’s St. Patrrick’s Day. Thirty-three years ago, I met my husband while he was trying to convince me he was Irish at the Green Dolphin in Tucson. Two years ago I was undergoing surgery for Stage 3 uterine cancer. Each time my life changed in ways that they would never be the same. The first year of my illness there was…
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Expander after radiation
I finished radiation two weeks ago. I was given an expander but told not to use it until I see the radiologist in two weeks. I’m wondering how long is normal to wait before beginng use of the expander. Also any suggestions?
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Uterine Stage IV B Reoccurence Vagina
Hello, This is my first post here. I'm 69 years old. In May, I had a complete hysterectomy which was preceded by six rounds of chemo,(Carboplatin & Taxol) which I tolerated well and was successful in shrinking the tumors. Surgery went well, and I was placed in surveillance, no additional treatment. This past week in early…
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Recurrence - be your own advocate
First of all, I want to thank all of you for all of the wishes that were posted about my recent recurrence. Just want to let you all know that I am ok and will be taking steps to see what will be next. I don't know if this would be considered my 2nd or 3rd recurrence. Diagnosed Sept 2005 after a routine hysterectomy (Stage…
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I got a Rx for Metformin!!
After seeking a prescription from any of the doctors whom I see, my PCP agreed yesterday to analyze the data and consider it. I just got a call saying after reviewing my records and articles relative to Metformin and endometrial cancer, she said it was reasonable to conclude I showed sufficient evidence of "metabolic…
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No diagnosis, but very scared and confused.
In June 2015, after a bad pap, I had a LEEP procedure and diagnosed with CIN3/CIS. The lab report came back with clear margins and I was told I only need one follow-up pap and as long as that was normal, I would be ok. Fast forward to June 2017, I began having similar symptoms to what I had before the bad pap. I have…
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Lymphedema and other side effects
Ladies, if you've gotten lymphedema, how long after surgery/treatment did it develop? For other side effects of surgery/treatment, how long did it take for your symptoms to appear?
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Extreme pain with expander use
Hello ladies, I just started using the expander and the pain is excruciating. I got a prescription for lidocaine gel but can’t figure out how to get it deep enough to work. It didn’t come with any type of applicator. Any info on pain management and lidocaine usage would be really appreciated. I don’t know how I’ll continue…
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This neuropathy is driving me crazy!
Since I had chemo two and a half years ago I have suffered from neuropathy. The feeling in eight of my ten fingers is back and although my thumb and pointer finger on my right hand are numb, they don't hurt. BUT....my feet are just awful! Most nights I wake up in pain and have to walk to ease the pain. And, to make it…
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Estrogen receptors study of endometrial cancer
I came across this new research today and thought some of you might want to know about it. The study found that endometrial tumors with high estrogen receptor expression have a poor prognosis if they also have high amounts of glucocorticoid receptor, which is a stress hormone receptor.…
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A study I had so hoped for is taking place for UC
Some time back, I mentioned a researcher doing a study on long-term survivors of breast cancer. Are there any common factors behind long-term survivors? Diet? Immunotherapy? Current conventional treatment? Holistic support? A combo? Well, a doctor is doing a variation for uterine cancer as well. The study is in the very…
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I saw Armywife
and her husband at MD Anderson last week. She recognized me from my photo here. They were so nice. Such a lovely surprise. It was great to see someone in person from the forum.
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port removal
I am having my chemo port removed on Monday after two years. Anyone had this done? What can I expect? The nurse told me that it basically is "the reverse of when they put it in," which isn't very helpful.
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We got the call..
Last week we got the call we were dreading. My mom’s biopsy came back cancerous. I’m devastated and scared of losing my mom. She is my best friend and just a strong and wonderful woman. I need her in my life, this can’t be happening. In December of 2017 she started having post menopausal bleeding. She had a ultrasound…