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Uterine Serous Papillary - Scared!
Last year at this time, I was 61 and diagnoised wth Uterine Serous Papillary Carcinoma - Grade III which was found during a D&C. I had a CT scan (PET scan not approved by Aetna for Uterine Cancer) but nothing showed up except the tumor in the Uterus (Lymph nodes appeared clear). I had a hysterectomy & they took everything…
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Genetic & Genomic Testing – Your Experience with One or Both?
These types of tests have been discussed in many posts, but I thought it might be helpful to bring together the experiences from different ladies in this single thread for the newer members. For those who are new to the subject, there is a nice explanation of the difference between genetics and genomics (and the related…
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Hormone sensitivity and immunotherapy questions
I saw a (potential) new oncologist yesterday, and he gave me lots to think about. Background: I have platinum resistant mets and completed CyberKnife for them in January. I also have Lynch syndrome. My current onc just goes from crisis w/o an overall treatment plan and it feels like the only person really in charge is ME,…
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Taxol / carboplatin and a late rash
Hi, I just recently joined, and chimed in a little bit. Now I have question and intro :) Very pleased to meet you all! I had my TLH & BSO in November after D&C for removal of a bleeding prolapsed polyp showed complex endometrial hyperplasia with atypia, and was diagnosed post op with endometrioid endometrial cancer, stage…
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Have my date
Funny how just seeing the doctor and discussing the surgery lowered my anxiety. Having laproscopic robotic surgery on March 15. Remove all the girl parts and will hopefully only need a couple of nodes for testing removed. He said he will have a good idea of the stage once he performs the surgery. He realizes that I have…
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I'm back with a question...
Hello all again, So I'm looking for a little bit of advice, I hope you all don't mind, because it looks like we've got a little bit of waiting ahead of us. After my mother got her test results back with the blessed negative results, etc, (cervical polyps, negative biopsy, negative ultrasound) - her gyno did an exam on her…
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Genetic Testing Medicare proposed new rule
WASHINGTON — Patient groups and drug manufacturers say a proposed rule from the Center for Medicare and Medicaid Services would dramatically restrict coverage of genetic tests for patients covered by those programs — a move which may specifically impact patients deciding between various cancer treatments. The rule,…
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Short review of surgery
Since I was out for most of it, hopefully there will be more info shortly. My husband didn't take notes. I may be changing info here, so please forgive me for that. The lady parts all came out laparospocially/vaginally (from my husband's description, I'm guessing an LAVH), as did part of the omentum. When my surgeon looked…
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Reoccurence Symptoms
Hello ladies, Just wondering if anyone on here has had a reoccurence of the cancer, and if so, how soon after initial dx and what were the symptoms? Appreciate any response...I think I might be experience something again...yet I just had the surgery in December, dx in Nov 2017. Hope everyone is staying strong and positive!…
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Gastro problems post-hysterectomy
Hello, everyone - I last posted just before my hysterectomy, but then I got the flu and surgery was delayed a week. I had a DaVinci total hysterectomy and lymphadenectomy 6 days ago and came home 18 hours later. Had only tylenol and advil after surgery, and 3 doses of senna (2 at hospital, 1 right after coming home). No…
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Long Time Listener, First Time Caller
Hi everyone. I've been reading these boards faithfully since my diagnosis in April of 2017, and have learned so much from all of you. I waited to join because I didn't think I had anything to offer, but I don't want to let any more time go by without saying a heartfelt "thank you" to everyone here. (I wish I had been in…
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Recent MMMT Diagnosis - Seeking Advice and Support
I made the following post this morning on the "Are There any MMMT Survivors....." thread, and received several lovely responses. One recommeded that I start a new thread altogether, so that I could better track feedback. So here goes! I am an 89 year old woman recently diagnosed with Stage 4 Mullerian cancer. I lead a busy…
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Biopsy results
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Driving myself crazy searching my pathology report results
First, thank you. So happy I found this site. I love Google but I can't stop researching and the more I look...the more I worry. Seeing the oncologist on March 2. Has anyone been treated for: Endometrial, large and polyps, curettings: High grade endometrial adenocarcinoma with serous and endometrioid features in a…
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Anyone have experience with OPDIVO?
My onc will be starting me on OPDIVO this coming week after approval from Bristol-Meyers. This is the same type of chemo that President Carter got and which was so successful for him. It has now been approved for several cancers including recently for colon cancer. It has not yet been approved for Uterine which I think is…
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Newbies, please read this
I've been thinking about this for some time now and anyone new to this board needs to read and understand this. This board is a wonderful thing but the biggest problem with it is that it is skewed to show the worst. Let me explain. Let's say someone like you, who has just been diagnosed with cancer comes to the board. We…
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Clinical trials
Dear all - got my uterine cancer dx a month ago. Had hysterectomy last week. Awaiting path results and treatment from the doctor. In the mean time I am researching on any clinical trials available currently that is suitable for uterine cancer patients. How does one go about finding this? Appreciate any information.
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Lymph node transplants for lymphedema
On Feb 19 or 20th, 2018 - National Public Radio in the morning had a brief segment about lymphedema and breast cancer. It said that there are currently 5 medical centers or hospitals in the USA that perform lymph node transplants to alleviate or improve lymphedema. The procedure entails taking a group of lymph nodes from…
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Pelvic radiation and Cisplatin for recurrance
I am starting a new link to get as much input as possible. I saw the radiologist today and he is very encouraging that the 2 spots on vaginal wall are very thin and tiny. He will start pelvic external radiation on March 5th and then do braky at the end of that. He is suggesting I try the Cisplatin chemo and know I can stop…
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A run a day keeps the tumour at bay
There is no shortage of articles indicating how exercise can help prevent cancer (and recurrence). Facebook (which I suspect knows I have cancer at this point. Big brother is watching you :) ) brought up this article from 2016 and I thought I would share it. Researchers are actually investigating what aspect of exercise…
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So Hard Not to Have A Broken Heart
In September I had a Pet Scan before I started my radiation treatment. There was no evidence of any disease and I was so relieved. As the six weeks of radiation progressed, I started feeling progressively worse, but convinced myself it was part of the side effects. I hurt where my gallbladder is and up into my shoulder. I…
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GREAT NEWS!
Hello everyone! We got some fantastic news today. My mom FINALLY got the results of her biopsy back and the tests that were done on the cervical polyps that the doctor removed and everything is NEGATIVE! We are so freaking relieved. The doctor is recommending a hysterectomy in the future so she never has to worry about…
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Neutrophils count
My neutrophil count is .6 on Friday and doing chemo on Monday. The doctor said previous it needed to be at 1. My WBC is 1.8 and Lynphocyes is .9 all are red flagged. Does anyone know if they did the treatment with numbers red flagged? I don’t want to delay my treatment with the radiation following. Any options I can…
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Victim of Tamoxifen
Hello Ladies, I am from a Breast Cancer Board and currently have been taking Tamoxifen. We are having non-stop discussion at our board about weather or not benefits of Tamoxifen overweight its risks. Claudia from your group suggested to ask direct question:are there any victims of Tamoxifen? Any thoughts will be…
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Valentine's Day? really?
I guess when you get cancer, nobody including husband has any use or feelings anymore. I have not received a rose or even a heart box of chocolates. Been crying all day today. I just went back to bed. I told him what I thought. He said I am "abusive." Really? I am in pain from my blood clots and they are not getting any…
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Editgrl (Chris) Update
I just spoke to Ron, Editgrl (Chris's) boyfriend. As some of you know, in August Chris came home from treatment in Germany with her cancer in check but not entirely eliminated, especially the lymph nodes in her neck. Her October PET scan showed new activity in her lymph nodes and lungs, resulting in severe pleural…
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Should I get a 2nd opinion?
Happy Friday everyone... I've been experiencing a lot of deep bone pain and tiredness, yesterday I went to see my family doctor who is aware of cancer dx. I explained how tired I have been and the pain I"ve been having this past week. When he looked into my recent blood work, it showed my hemoglobin and magnesium levels…
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working during radiation
I completed chemo on December 5, 2017 and am scheduled to begin radiation therapy later this month. I returned to work in January and hope to work full time during radiation treatments. Radiation therapy scares me more than chemo ever did. I have had issues with my bowels for years and chemo has further damaged them. I…
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Hope
i was diagnosed with Stage IVb about a year ago. I had a complete hysterectomy and a month later I started 18 weekly rounds of taxil/carbo. In August I was declared in remission, my CA-125 was 7.2. Three months later the cancer is back. Last week I started doxil and in a few weeks they’ll add avastin. I went to the…
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New to the Sisterhood
Hello, I have been lurking the forum for a few days and I deeply appreciate all the great info posted here. Although I have not received a final diagnosis yet, I'm pretty sure I have cancer based on the information I have so far (still waiting for the biopsy results) and I'm scared. Some background: I just turned 49. My…