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No diagnosis, but very scared and confused.
In June 2015, after a bad pap, I had a LEEP procedure and diagnosed with CIN3/CIS. The lab report came back with clear margins and I was told I only need one follow-up pap and as long as that was normal, I would be ok. Fast forward to June 2017, I began having similar symptoms to what I had before the bad pap. I have…
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Lymphedema and other side effects
Ladies, if you've gotten lymphedema, how long after surgery/treatment did it develop? For other side effects of surgery/treatment, how long did it take for your symptoms to appear?
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Extreme pain with expander use
Hello ladies, I just started using the expander and the pain is excruciating. I got a prescription for lidocaine gel but can’t figure out how to get it deep enough to work. It didn’t come with any type of applicator. Any info on pain management and lidocaine usage would be really appreciated. I don’t know how I’ll continue…
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This neuropathy is driving me crazy!
Since I had chemo two and a half years ago I have suffered from neuropathy. The feeling in eight of my ten fingers is back and although my thumb and pointer finger on my right hand are numb, they don't hurt. BUT....my feet are just awful! Most nights I wake up in pain and have to walk to ease the pain. And, to make it…
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Estrogen receptors study of endometrial cancer
I came across this new research today and thought some of you might want to know about it. The study found that endometrial tumors with high estrogen receptor expression have a poor prognosis if they also have high amounts of glucocorticoid receptor, which is a stress hormone receptor.…
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A study I had so hoped for is taking place for UC
Some time back, I mentioned a researcher doing a study on long-term survivors of breast cancer. Are there any common factors behind long-term survivors? Diet? Immunotherapy? Current conventional treatment? Holistic support? A combo? Well, a doctor is doing a variation for uterine cancer as well. The study is in the very…
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I saw Armywife
and her husband at MD Anderson last week. She recognized me from my photo here. They were so nice. Such a lovely surprise. It was great to see someone in person from the forum.
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port removal
I am having my chemo port removed on Monday after two years. Anyone had this done? What can I expect? The nurse told me that it basically is "the reverse of when they put it in," which isn't very helpful.
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We got the call..
Last week we got the call we were dreading. My mom’s biopsy came back cancerous. I’m devastated and scared of losing my mom. She is my best friend and just a strong and wonderful woman. I need her in my life, this can’t be happening. In December of 2017 she started having post menopausal bleeding. She had a ultrasound…
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Sharing the Blessings...Excellent News!
Hello All! I'm lurking around the site daily still but haven't posted in a while. I finished the first round of chemo, which was 3 once a week infusions of carbo/taxol. I did 5 and a half weeks of full abdominal radiation, and 3 brachy treatments. I asked my doctor for a PET/CT Scan, because the cancer I have tends to be…
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Serous Uterine Cancer UPSC
Hello Everyone, I would like to reach to anyone with experience with Serous Uterine Cancer, treatment option , chemo and side effects, radiation ? thank you Joanna
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Any survivors with Nadir CA125 in two digits?
Hello all, Hope everyone is doing well. Happy Valentine's Day! Yesterday I had my last chemo treatment (Carbo/Taxol) with mixed feelings. On one hand I do feel accomplished. I am grateful that I was able to tolerate the treatment well. After the 3rd infusion CT Scan showed no evidence of the disease anywhere. The only…
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Toenail fungus? Or just nailbed changes from chemo
On another posting I noticed that SaltyCandy13 had to pay $1000 out of pocket for an antifungal prescription for her toenail fungus. A while back I went to a podiatrist because I thought I may have gotten a nail infection from pedicures. I expected to be told that I needed to take an oral antifungal medication which is…
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NED when will they tell you?
Hi, I am new here. I just finished chemo 3 weeks ago- yesterday was just labs instead of treatment- felt GREAT to know that!!! I see people saying they are NED- do they actually tell you that- if so, when? I see my gyn onc the 19th for my 1st physical exam after treatment. Will she tell me then? I have been waiting for the…
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My first chemo ... a room of LIFE?
From my chemo sister on another board, I expected there to be a sense of gloom at the infusion stations. But instead, there was a real spirit of "We're ALL going to beat this" in my area. Not at all what I expected. The nursing staff agreed that going for that five-year mark and beyond was NOT impossible. They have seen…
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Any UPSC 1a who did observation rather than chemo/radiation
There appear to be so few 1a UPSC that I have been able to find in the reserch or on this board. If you were a 1a and decided to skip treatment, please let me know. At 77, I am really wondering if I want to do this.
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Did you have EBRT more than a year ago?
I am interested in hearing from any of you who've had EBRT (external beam radiotherapy) and are at least a year out from that therapy. I am interested in hearing... * How would you describe your quality of life post-EBRT? * What side effects do you still experience? * Was it worth it? Thanks so much.
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Uterine Serous Papillary - Scared!
Last year at this time, I was 61 and diagnoised wth Uterine Serous Papillary Carcinoma - Grade III which was found during a D&C. I had a CT scan (PET scan not approved by Aetna for Uterine Cancer) but nothing showed up except the tumor in the Uterus (Lymph nodes appeared clear). I had a hysterectomy & they took everything…
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Genetic & Genomic Testing – Your Experience with One or Both?
These types of tests have been discussed in many posts, but I thought it might be helpful to bring together the experiences from different ladies in this single thread for the newer members. For those who are new to the subject, there is a nice explanation of the difference between genetics and genomics (and the related…
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Hormone sensitivity and immunotherapy questions
I saw a (potential) new oncologist yesterday, and he gave me lots to think about. Background: I have platinum resistant mets and completed CyberKnife for them in January. I also have Lynch syndrome. My current onc just goes from crisis w/o an overall treatment plan and it feels like the only person really in charge is ME,…
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Taxol / carboplatin and a late rash
Hi, I just recently joined, and chimed in a little bit. Now I have question and intro :) Very pleased to meet you all! I had my TLH & BSO in November after D&C for removal of a bleeding prolapsed polyp showed complex endometrial hyperplasia with atypia, and was diagnosed post op with endometrioid endometrial cancer, stage…
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Have my date
Funny how just seeing the doctor and discussing the surgery lowered my anxiety. Having laproscopic robotic surgery on March 15. Remove all the girl parts and will hopefully only need a couple of nodes for testing removed. He said he will have a good idea of the stage once he performs the surgery. He realizes that I have…
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I'm back with a question...
Hello all again, So I'm looking for a little bit of advice, I hope you all don't mind, because it looks like we've got a little bit of waiting ahead of us. After my mother got her test results back with the blessed negative results, etc, (cervical polyps, negative biopsy, negative ultrasound) - her gyno did an exam on her…
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Genetic Testing Medicare proposed new rule
WASHINGTON — Patient groups and drug manufacturers say a proposed rule from the Center for Medicare and Medicaid Services would dramatically restrict coverage of genetic tests for patients covered by those programs — a move which may specifically impact patients deciding between various cancer treatments. The rule,…
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Short review of surgery
Since I was out for most of it, hopefully there will be more info shortly. My husband didn't take notes. I may be changing info here, so please forgive me for that. The lady parts all came out laparospocially/vaginally (from my husband's description, I'm guessing an LAVH), as did part of the omentum. When my surgeon looked…
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Reoccurence Symptoms
Hello ladies, Just wondering if anyone on here has had a reoccurence of the cancer, and if so, how soon after initial dx and what were the symptoms? Appreciate any response...I think I might be experience something again...yet I just had the surgery in December, dx in Nov 2017. Hope everyone is staying strong and positive!…
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Gastro problems post-hysterectomy
Hello, everyone - I last posted just before my hysterectomy, but then I got the flu and surgery was delayed a week. I had a DaVinci total hysterectomy and lymphadenectomy 6 days ago and came home 18 hours later. Had only tylenol and advil after surgery, and 3 doses of senna (2 at hospital, 1 right after coming home). No…
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Long Time Listener, First Time Caller
Hi everyone. I've been reading these boards faithfully since my diagnosis in April of 2017, and have learned so much from all of you. I waited to join because I didn't think I had anything to offer, but I don't want to let any more time go by without saying a heartfelt "thank you" to everyone here. (I wish I had been in…
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Recent MMMT Diagnosis - Seeking Advice and Support
I made the following post this morning on the "Are There any MMMT Survivors....." thread, and received several lovely responses. One recommeded that I start a new thread altogether, so that I could better track feedback. So here goes! I am an 89 year old woman recently diagnosed with Stage 4 Mullerian cancer. I lead a busy…
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Biopsy results