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Driving myself crazy searching my pathology report results
First, thank you. So happy I found this site. I love Google but I can't stop researching and the more I look...the more I worry. Seeing the oncologist on March 2. Has anyone been treated for: Endometrial, large and polyps, curettings: High grade endometrial adenocarcinoma with serous and endometrioid features in a…
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Anyone have experience with OPDIVO?
My onc will be starting me on OPDIVO this coming week after approval from Bristol-Meyers. This is the same type of chemo that President Carter got and which was so successful for him. It has now been approved for several cancers including recently for colon cancer. It has not yet been approved for Uterine which I think is…
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Newbies, please read this
I've been thinking about this for some time now and anyone new to this board needs to read and understand this. This board is a wonderful thing but the biggest problem with it is that it is skewed to show the worst. Let me explain. Let's say someone like you, who has just been diagnosed with cancer comes to the board. We…
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Clinical trials
Dear all - got my uterine cancer dx a month ago. Had hysterectomy last week. Awaiting path results and treatment from the doctor. In the mean time I am researching on any clinical trials available currently that is suitable for uterine cancer patients. How does one go about finding this? Appreciate any information.
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Lymph node transplants for lymphedema
On Feb 19 or 20th, 2018 - National Public Radio in the morning had a brief segment about lymphedema and breast cancer. It said that there are currently 5 medical centers or hospitals in the USA that perform lymph node transplants to alleviate or improve lymphedema. The procedure entails taking a group of lymph nodes from…
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Pelvic radiation and Cisplatin for recurrance
I am starting a new link to get as much input as possible. I saw the radiologist today and he is very encouraging that the 2 spots on vaginal wall are very thin and tiny. He will start pelvic external radiation on March 5th and then do braky at the end of that. He is suggesting I try the Cisplatin chemo and know I can stop…
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A run a day keeps the tumour at bay
There is no shortage of articles indicating how exercise can help prevent cancer (and recurrence). Facebook (which I suspect knows I have cancer at this point. Big brother is watching you :) ) brought up this article from 2016 and I thought I would share it. Researchers are actually investigating what aspect of exercise…
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So Hard Not to Have A Broken Heart
In September I had a Pet Scan before I started my radiation treatment. There was no evidence of any disease and I was so relieved. As the six weeks of radiation progressed, I started feeling progressively worse, but convinced myself it was part of the side effects. I hurt where my gallbladder is and up into my shoulder. I…
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GREAT NEWS!
Hello everyone! We got some fantastic news today. My mom FINALLY got the results of her biopsy back and the tests that were done on the cervical polyps that the doctor removed and everything is NEGATIVE! We are so freaking relieved. The doctor is recommending a hysterectomy in the future so she never has to worry about…
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Neutrophils count
My neutrophil count is .6 on Friday and doing chemo on Monday. The doctor said previous it needed to be at 1. My WBC is 1.8 and Lynphocyes is .9 all are red flagged. Does anyone know if they did the treatment with numbers red flagged? I don’t want to delay my treatment with the radiation following. Any options I can…
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Victim of Tamoxifen
Hello Ladies, I am from a Breast Cancer Board and currently have been taking Tamoxifen. We are having non-stop discussion at our board about weather or not benefits of Tamoxifen overweight its risks. Claudia from your group suggested to ask direct question:are there any victims of Tamoxifen? Any thoughts will be…
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Valentine's Day? really?
I guess when you get cancer, nobody including husband has any use or feelings anymore. I have not received a rose or even a heart box of chocolates. Been crying all day today. I just went back to bed. I told him what I thought. He said I am "abusive." Really? I am in pain from my blood clots and they are not getting any…
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Editgrl (Chris) Update
I just spoke to Ron, Editgrl (Chris's) boyfriend. As some of you know, in August Chris came home from treatment in Germany with her cancer in check but not entirely eliminated, especially the lymph nodes in her neck. Her October PET scan showed new activity in her lymph nodes and lungs, resulting in severe pleural…
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Should I get a 2nd opinion?
Happy Friday everyone... I've been experiencing a lot of deep bone pain and tiredness, yesterday I went to see my family doctor who is aware of cancer dx. I explained how tired I have been and the pain I"ve been having this past week. When he looked into my recent blood work, it showed my hemoglobin and magnesium levels…
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working during radiation
I completed chemo on December 5, 2017 and am scheduled to begin radiation therapy later this month. I returned to work in January and hope to work full time during radiation treatments. Radiation therapy scares me more than chemo ever did. I have had issues with my bowels for years and chemo has further damaged them. I…
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Hope
i was diagnosed with Stage IVb about a year ago. I had a complete hysterectomy and a month later I started 18 weekly rounds of taxil/carbo. In August I was declared in remission, my CA-125 was 7.2. Three months later the cancer is back. Last week I started doxil and in a few weeks they’ll add avastin. I went to the…
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New to the Sisterhood
Hello, I have been lurking the forum for a few days and I deeply appreciate all the great info posted here. Although I have not received a final diagnosis yet, I'm pretty sure I have cancer based on the information I have so far (still waiting for the biopsy results) and I'm scared. Some background: I just turned 49. My…
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Gynecologist appointment
I had my appointment today to discuss my u/s results. I so did not want to go, but I am loathe to cancel an appt. last minute unless it's something extreme like I'm sick or can't stay off the throne. It's not fair to them or to patients who could have had that time slot. Anyway, it went pretty good. I consented to the…
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Hi, I'm new here. PLEASE HELP ME!!!
My mom has been in the hospital since late July. She had uterine cancer which was taken out in early August. She was in ICU for 4 1/2 weeks. Now, she's been back and forth beteween The Hospital and Rehab. Now, to make a long story short, my mom isn't in good shape. They said she's probably going to die. Here's my…
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What to expect
Hello, i have not been diagnosed with cancer. I am having a saline ultrasound and biopsy on the 13th. I would like to know what to expect, and is this the appropriate testor should I be requesting anything further. I have been having a couple of strange symptoms for months that I haven’t told my doctor yet. I plan on…
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Need some guidance - In a lot of pain
Hi Everyone.... I have not been sleeping very well. I am assuming it is due to my surgical menopause...insomnia part. Ugh! However, that being said I have a scheduled repeat CT Scan for my lungs and abdomen/pelvis in March, it's my 3 month check, since 2 soliditary nodules were found in both lungs a long with thickening.…
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Ultrasound results
I got my u/s results from my GP today. (I asked the hospital to send her a copy) Endometrium is only 8 mm, thankfully. I am so relieved. Bladder is normal so she said nothing further needs to be done regarding the 'full' feeling, "for now", whatever that means. Weirdly, they couldn't find my ovaries. Thank you so much for…
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Intestines are playing musical chairs now....
Dear Friends: In the past week, I've had some problems with the bathroom habit if you get my drift.... I am on stool softeners and maybe over doing it but in fear of that dreaded Rectocele the doctor warned me about. I am reduced to a very watery stool and lots of bloating and gas, which I am sure if all my doing. I told…
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Cheese Update
Hello Sisters: Well, today I had a renal stent inserted in my right kidney. I have a little blockage in my left but doesn’t warrant a stent. Surgery very easy but stent continues to be a little painful but not unbearable. They Narced me up after surgery but I am not currently on pain pills. The prescribed some of that…
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SaltyCandy's Pathology Report
Went for my post operative on Tuesday, January 30. Doctor gave me a copy right before I left. He said I should be okay with a small chance of recurrance and recommended another gyno to check up (vaginal cuff) Here is the report: FINAL DIAGNOSIS: Uterus, cervix, bilateral fallopian tubes and ovaries, hysterectomy and…
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Post Hysterectomy Hot flashes!
If anyone has any idea of what to take for horrendous night sweats and hot flashes that is not hormonal, let me know. I was on Vivelle Dot 0075 for years and now with my Adenocarcinoma and total hysterectomy, the doctors don't want me on HRT and I agree. Is there anything herbal at the health food stores? I am not looking…
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papillary serous carcinoma specialist
Can anyone make a suggestion on a Specialist Oncologist in Papillary Serous Carcinoma?
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vitamin c supplement to build immune system?
My sister suggested camu camu from amazon to build my immune system. It is a high potency vit C powder that she mixes into her morning smoothie. Has anybody heard of this? I will check w/ my oncologist first to see if this would cause problems during chemo. I am surrounded by sick people at work and, as most od you, am…
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Remember Sandrine04 who was French?
I just saw on Facebook that she died yesterday. I remember her asking for advice on her cancer. Sometimes she wrote in French. She was so scared. Rest in peace, Sandrine. Love, Eldri
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CT scans, ultrasounds, etc. ... any contradictions?
I'm sorry. No matter how I look at my CT scan, it seems ... odd. Off. I am no doctor (though my PCP is, and even she thought the results were unusual, though she did mention that my gyno onco is more the expert on them.) My hunch may be futile or incorrect, and I know this. I also understand, as my SECOND-opinion doctor…