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Any survivors with Nadir CA125 in two digits?
Hello all, Hope everyone is doing well. Happy Valentine's Day! Yesterday I had my last chemo treatment (Carbo/Taxol) with mixed feelings. On one hand I do feel accomplished. I am grateful that I was able to tolerate the treatment well. After the 3rd infusion CT Scan showed no evidence of the disease anywhere. The only…
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Toenail fungus? Or just nailbed changes from chemo
On another posting I noticed that SaltyCandy13 had to pay $1000 out of pocket for an antifungal prescription for her toenail fungus. A while back I went to a podiatrist because I thought I may have gotten a nail infection from pedicures. I expected to be told that I needed to take an oral antifungal medication which is…
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NED when will they tell you?
Hi, I am new here. I just finished chemo 3 weeks ago- yesterday was just labs instead of treatment- felt GREAT to know that!!! I see people saying they are NED- do they actually tell you that- if so, when? I see my gyn onc the 19th for my 1st physical exam after treatment. Will she tell me then? I have been waiting for the…
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My first chemo ... a room of LIFE?
From my chemo sister on another board, I expected there to be a sense of gloom at the infusion stations. But instead, there was a real spirit of "We're ALL going to beat this" in my area. Not at all what I expected. The nursing staff agreed that going for that five-year mark and beyond was NOT impossible. They have seen…
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Any UPSC 1a who did observation rather than chemo/radiation
There appear to be so few 1a UPSC that I have been able to find in the reserch or on this board. If you were a 1a and decided to skip treatment, please let me know. At 77, I am really wondering if I want to do this.
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Did you have EBRT more than a year ago?
I am interested in hearing from any of you who've had EBRT (external beam radiotherapy) and are at least a year out from that therapy. I am interested in hearing... * How would you describe your quality of life post-EBRT? * What side effects do you still experience? * Was it worth it? Thanks so much.
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Uterine Serous Papillary - Scared!
Last year at this time, I was 61 and diagnoised wth Uterine Serous Papillary Carcinoma - Grade III which was found during a D&C. I had a CT scan (PET scan not approved by Aetna for Uterine Cancer) but nothing showed up except the tumor in the Uterus (Lymph nodes appeared clear). I had a hysterectomy & they took everything…
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Genetic & Genomic Testing – Your Experience with One or Both?
These types of tests have been discussed in many posts, but I thought it might be helpful to bring together the experiences from different ladies in this single thread for the newer members. For those who are new to the subject, there is a nice explanation of the difference between genetics and genomics (and the related…
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Hormone sensitivity and immunotherapy questions
I saw a (potential) new oncologist yesterday, and he gave me lots to think about. Background: I have platinum resistant mets and completed CyberKnife for them in January. I also have Lynch syndrome. My current onc just goes from crisis w/o an overall treatment plan and it feels like the only person really in charge is ME,…
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Taxol / carboplatin and a late rash
Hi, I just recently joined, and chimed in a little bit. Now I have question and intro :) Very pleased to meet you all! I had my TLH & BSO in November after D&C for removal of a bleeding prolapsed polyp showed complex endometrial hyperplasia with atypia, and was diagnosed post op with endometrioid endometrial cancer, stage…
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Have my date
Funny how just seeing the doctor and discussing the surgery lowered my anxiety. Having laproscopic robotic surgery on March 15. Remove all the girl parts and will hopefully only need a couple of nodes for testing removed. He said he will have a good idea of the stage once he performs the surgery. He realizes that I have…
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I'm back with a question...
Hello all again, So I'm looking for a little bit of advice, I hope you all don't mind, because it looks like we've got a little bit of waiting ahead of us. After my mother got her test results back with the blessed negative results, etc, (cervical polyps, negative biopsy, negative ultrasound) - her gyno did an exam on her…
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Genetic Testing Medicare proposed new rule
WASHINGTON — Patient groups and drug manufacturers say a proposed rule from the Center for Medicare and Medicaid Services would dramatically restrict coverage of genetic tests for patients covered by those programs — a move which may specifically impact patients deciding between various cancer treatments. The rule,…
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Short review of surgery
Since I was out for most of it, hopefully there will be more info shortly. My husband didn't take notes. I may be changing info here, so please forgive me for that. The lady parts all came out laparospocially/vaginally (from my husband's description, I'm guessing an LAVH), as did part of the omentum. When my surgeon looked…
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Reoccurence Symptoms
Hello ladies, Just wondering if anyone on here has had a reoccurence of the cancer, and if so, how soon after initial dx and what were the symptoms? Appreciate any response...I think I might be experience something again...yet I just had the surgery in December, dx in Nov 2017. Hope everyone is staying strong and positive!…
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Gastro problems post-hysterectomy
Hello, everyone - I last posted just before my hysterectomy, but then I got the flu and surgery was delayed a week. I had a DaVinci total hysterectomy and lymphadenectomy 6 days ago and came home 18 hours later. Had only tylenol and advil after surgery, and 3 doses of senna (2 at hospital, 1 right after coming home). No…
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Long Time Listener, First Time Caller
Hi everyone. I've been reading these boards faithfully since my diagnosis in April of 2017, and have learned so much from all of you. I waited to join because I didn't think I had anything to offer, but I don't want to let any more time go by without saying a heartfelt "thank you" to everyone here. (I wish I had been in…
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Recent MMMT Diagnosis - Seeking Advice and Support
I made the following post this morning on the "Are There any MMMT Survivors....." thread, and received several lovely responses. One recommeded that I start a new thread altogether, so that I could better track feedback. So here goes! I am an 89 year old woman recently diagnosed with Stage 4 Mullerian cancer. I lead a busy…
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Biopsy results
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Driving myself crazy searching my pathology report results
First, thank you. So happy I found this site. I love Google but I can't stop researching and the more I look...the more I worry. Seeing the oncologist on March 2. Has anyone been treated for: Endometrial, large and polyps, curettings: High grade endometrial adenocarcinoma with serous and endometrioid features in a…
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Anyone have experience with OPDIVO?
My onc will be starting me on OPDIVO this coming week after approval from Bristol-Meyers. This is the same type of chemo that President Carter got and which was so successful for him. It has now been approved for several cancers including recently for colon cancer. It has not yet been approved for Uterine which I think is…
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Newbies, please read this
I've been thinking about this for some time now and anyone new to this board needs to read and understand this. This board is a wonderful thing but the biggest problem with it is that it is skewed to show the worst. Let me explain. Let's say someone like you, who has just been diagnosed with cancer comes to the board. We…
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Clinical trials
Dear all - got my uterine cancer dx a month ago. Had hysterectomy last week. Awaiting path results and treatment from the doctor. In the mean time I am researching on any clinical trials available currently that is suitable for uterine cancer patients. How does one go about finding this? Appreciate any information.
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Lymph node transplants for lymphedema
On Feb 19 or 20th, 2018 - National Public Radio in the morning had a brief segment about lymphedema and breast cancer. It said that there are currently 5 medical centers or hospitals in the USA that perform lymph node transplants to alleviate or improve lymphedema. The procedure entails taking a group of lymph nodes from…
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Pelvic radiation and Cisplatin for recurrance
I am starting a new link to get as much input as possible. I saw the radiologist today and he is very encouraging that the 2 spots on vaginal wall are very thin and tiny. He will start pelvic external radiation on March 5th and then do braky at the end of that. He is suggesting I try the Cisplatin chemo and know I can stop…
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A run a day keeps the tumour at bay
There is no shortage of articles indicating how exercise can help prevent cancer (and recurrence). Facebook (which I suspect knows I have cancer at this point. Big brother is watching you :) ) brought up this article from 2016 and I thought I would share it. Researchers are actually investigating what aspect of exercise…
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So Hard Not to Have A Broken Heart
In September I had a Pet Scan before I started my radiation treatment. There was no evidence of any disease and I was so relieved. As the six weeks of radiation progressed, I started feeling progressively worse, but convinced myself it was part of the side effects. I hurt where my gallbladder is and up into my shoulder. I…
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GREAT NEWS!
Hello everyone! We got some fantastic news today. My mom FINALLY got the results of her biopsy back and the tests that were done on the cervical polyps that the doctor removed and everything is NEGATIVE! We are so freaking relieved. The doctor is recommending a hysterectomy in the future so she never has to worry about…
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Neutrophils count
My neutrophil count is .6 on Friday and doing chemo on Monday. The doctor said previous it needed to be at 1. My WBC is 1.8 and Lynphocyes is .9 all are red flagged. Does anyone know if they did the treatment with numbers red flagged? I don’t want to delay my treatment with the radiation following. Any options I can…
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Victim of Tamoxifen
Hello Ladies, I am from a Breast Cancer Board and currently have been taking Tamoxifen. We are having non-stop discussion at our board about weather or not benefits of Tamoxifen overweight its risks. Claudia from your group suggested to ask direct question:are there any victims of Tamoxifen? Any thoughts will be…