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Uterine/Endometrial Cancer

POLE ultra-mutated endometrial cancer and immunotherapy
It is my understanding that if a cancer has high mutation burden (like lung, melanoma) they are better candidates for immunotherapies. As far as I know ovarian cancer is a low mutation burden type of cancer and hence typically may have limitations in targeted therapies. Here is an article discussing that. Up until now I…
Final chemo 3 weeks ago - still feel like a wet noodle...
Hi all, it has been a while since I posted - something to celebrate is that I finished my 6th and final taxol/carbo treatment! However, it has been a rough road since: I landed in the hospital with a fever and borderline neutropenia last week, and the weakness is incredible and does not go away. It has been 3 weeks, and I…
How has Cancer changed you?
I have to ask. Many of you warriors know that I was and still am traumatized to think I had uterine cancer. What the hell? I never smoked, don't drink, didn't do anything except put a little transdermal patch on my body for hot flashes which are sooo bad. And according to my gyno oncologist, my tumor was estrogen driven.…
Update Janae
Hey guys. There is so many new people and im glad this forum is still full of love and support. What a bleesing to not be alone. Im not on here as much as befor but was thinking about cancer and wanted to write. About two weeks ago i had another cancer update. My CA 125 was in normal range. Cant remember the number for…
NED from Stage IV metastatic endometrial cancer
Hi, This is my first posting to this site. After reading many of the entries on this site, I felt I had to join. August 2014 - experienced post-menopausal bleeding - had ultrasound- endometrial lining was .8-.9cm-double what it should be(normal is .4cm) Sept 2014 - endometrial biopsy was not totally conclusive but…
Stage IV Endometrial Cancer Treatment
I was diagnosed in 2017 (age 58) with Stage IV endometrial ovarian cancer metastasized to liver and lungs. I was told I was not a candidate for surgery or radiation so was put on 6 rounds of Paclitaxel and Carboplatin. Currently I am nearing the end of 6 rounds of Avastin and Doxil. Long story short, nothing is really…
Lou Ann Needs Extra Prayers
I learned from Facebook that Lou Ann has had a very rough couple of weeks and needs our extra prayers.
MediCare Coverage for Geonomic Testing
This should make it easier for those of us who need it. Finally. https://www.reuters.com/article/us-usa-health-testing/u-s-to-cover-advanced-genomic-testing-for-medicare-cancer-patients-idUSKCN1GS2VG
Cheese update
So it’s St. Patrrick’s Day. Thirty-three years ago, I met my husband while he was trying to convince me he was Irish at the Green Dolphin in Tucson. Two years ago I was undergoing surgery for Stage 3 uterine cancer. Each time my life changed in ways that they would never be the same. The first year of my illness there was…
Expander after radiation
I finished radiation two weeks ago. I was given an expander but told not to use it until I see the radiologist in two weeks. I’m wondering how long is normal to wait before beginng use of the expander. Also any suggestions?
Uterine Stage IV B Reoccurence Vagina
Hello, This is my first post here. I'm 69 years old. In May, I had a complete hysterectomy which was preceded by six rounds of chemo,(Carboplatin & Taxol) which I tolerated well and was successful in shrinking the tumors. Surgery went well, and I was placed in surveillance, no additional treatment. This past week in early…
Recurrence - be your own advocate
First of all, I want to thank all of you for all of the wishes that were posted about my recent recurrence. Just want to let you all know that I am ok and will be taking steps to see what will be next. I don't know if this would be considered my 2nd or 3rd recurrence. Diagnosed Sept 2005 after a routine hysterectomy (Stage…
I got a Rx for Metformin!!
After seeking a prescription from any of the doctors whom I see, my PCP agreed yesterday to analyze the data and consider it. I just got a call saying after reviewing my records and articles relative to Metformin and endometrial cancer, she said it was reasonable to conclude I showed sufficient evidence of "metabolic…
No diagnosis, but very scared and confused.
In June 2015, after a bad pap, I had a LEEP procedure and diagnosed with CIN3/CIS. The lab report came back with clear margins and I was told I only need one follow-up pap and as long as that was normal, I would be ok. Fast forward to June 2017, I began having similar symptoms to what I had before the bad pap. I have…
Lymphedema and other side effects
Ladies, if you've gotten lymphedema, how long after surgery/treatment did it develop? For other side effects of surgery/treatment, how long did it take for your symptoms to appear?
Extreme pain with expander use
Hello ladies, I just started using the expander and the pain is excruciating. I got a prescription for lidocaine gel but can’t figure out how to get it deep enough to work. It didn’t come with any type of applicator. Any info on pain management and lidocaine usage would be really appreciated. I don’t know how I’ll continue…
This neuropathy is driving me crazy!
Since I had chemo two and a half years ago I have suffered from neuropathy. The feeling in eight of my ten fingers is back and although my thumb and pointer finger on my right hand are numb, they don't hurt. BUT....my feet are just awful! Most nights I wake up in pain and have to walk to ease the pain. And, to make it…
Estrogen receptors study of endometrial cancer
I came across this new research today and thought some of you might want to know about it. The study found that endometrial tumors with high estrogen receptor expression have a poor prognosis if they also have high amounts of glucocorticoid receptor, which is a stress hormone receptor.…
A study I had so hoped for is taking place for UC
Some time back, I mentioned a researcher doing a study on long-term survivors of breast cancer. Are there any common factors behind long-term survivors? Diet? Immunotherapy? Current conventional treatment? Holistic support? A combo? Well, a doctor is doing a variation for uterine cancer as well. The study is in the very…
I saw Armywife
and her husband at MD Anderson last week. She recognized me from my photo here. They were so nice. Such a lovely surprise. It was great to see someone in person from the forum.
port removal
I am having my chemo port removed on Monday after two years. Anyone had this done? What can I expect? The nurse told me that it basically is "the reverse of when they put it in," which isn't very helpful.
We got the call..
Last week we got the call we were dreading. My mom’s biopsy came back cancerous. I’m devastated and scared of losing my mom. She is my best friend and just a strong and wonderful woman. I need her in my life, this can’t be happening. In December of 2017 she started having post menopausal bleeding. She had a ultrasound…
Sharing the Blessings...Excellent News!
Hello All! I'm lurking around the site daily still but haven't posted in a while. I finished the first round of chemo, which was 3 once a week infusions of carbo/taxol. I did 5 and a half weeks of full abdominal radiation, and 3 brachy treatments. I asked my doctor for a PET/CT Scan, because the cancer I have tends to be…
Serous Uterine Cancer UPSC
Hello Everyone, I would like to reach to anyone with experience with Serous Uterine Cancer, treatment option , chemo and side effects, radiation ? thank you Joanna
Any survivors with Nadir CA125 in two digits?
Hello all, Hope everyone is doing well. Happy Valentine's Day! Yesterday I had my last chemo treatment (Carbo/Taxol) with mixed feelings. On one hand I do feel accomplished. I am grateful that I was able to tolerate the treatment well. After the 3rd infusion CT Scan showed no evidence of the disease anywhere. The only…
Toenail fungus? Or just nailbed changes from chemo
On another posting I noticed that SaltyCandy13 had to pay $1000 out of pocket for an antifungal prescription for her toenail fungus. A while back I went to a podiatrist because I thought I may have gotten a nail infection from pedicures. I expected to be told that I needed to take an oral antifungal medication which is…
NED when will they tell you?
Hi, I am new here. I just finished chemo 3 weeks ago- yesterday was just labs instead of treatment- felt GREAT to know that!!! I see people saying they are NED- do they actually tell you that- if so, when? I see my gyn onc the 19th for my 1st physical exam after treatment. Will she tell me then? I have been waiting for the…
My first chemo ... a room of LIFE?
From my chemo sister on another board, I expected there to be a sense of gloom at the infusion stations. But instead, there was a real spirit of "We're ALL going to beat this" in my area. Not at all what I expected. The nursing staff agreed that going for that five-year mark and beyond was NOT impossible. They have seen…
Any UPSC 1a who did observation rather than chemo/radiation
There appear to be so few 1a UPSC that I have been able to find in the reserch or on this board. If you were a 1a and decided to skip treatment, please let me know. At 77, I am really wondering if I want to do this.
Did you have EBRT more than a year ago?
I am interested in hearing from any of you who've had EBRT (external beam radiotherapy) and are at least a year out from that therapy. I am interested in hearing... * How would you describe your quality of life post-EBRT? * What side effects do you still experience? * Was it worth it? Thanks so much.

Uterine/Endometrial Cancer

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