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Uterine/Endometrial Cancer

What Cancer Takes Away
I removed the link to the article. You are right, it is pretty dark. I enjoyed reading it because I recognized some of the thinking. It spoke to me because I am a naturally melancholic person. It is probably not helpful to share it here.
Let's talk about radiation
I see a lot of great questions, concerns, information on it buried in other threads and thought it would be good to start a conversation on it. I was diagnosed originally with Stage IIIC UPSC in April 2013. My cancer continues to be active and progressive with mets found shortly after I finished frontline chemo and…
Second thoughts
Went to see radiologist for brachy therapy yesterday found out I'm not healed all the way from my surgery which was January 16th. Had to get rechecked by the surgeon to verify this to be true. She said no brachy until your healed. I'm having second thoughts about the pelvic radiation as well. What are the radiating if…
Couldn't have radiation today due to technical difficulties!
I went for radiation today. Every time, they do a CT scan (they say it's limited and low energy) to make sure that my bladder is at the right point of fullness, and that everything is lined up correctly. Then they do the treatment. Today, after they did the CT scan, when they went to do the treatment, they couldn't,…
Taxol reaction
LadyMox – Possible Update
Like others, I've been worried that we hadn't heard from LadyMox for some time, even though she had logged onto the board in February, So I did a search this evening and sadly learned that a young woman name Tammy Mink (Tammy was LadyMox's first name) just passed away last week. From the location (Buffalo), her age (42)…
Colonoscapy questions
Hey every one, Just need to give a little update. I went and saw my radiation doctor today for my check up. For those that dont know its been a few months past two years since i finished treatment. Ive been NED since. He says everything looks good. He gave me a pelvic exam and looked over my cat scan i had last november.…
mucusy rectal discharge during whole pelvic radiation
Well, now I'm really worried. Today I had my 9th whole pelvic IMRT treatment. My radiation oncologist said that he could administer a vaginal cuff boost via external beam, even though I asked if he could do the pelvic cuff via brachytherapy. So I'm not having any vaginal irritation, but I am having small amounts of clear…
Bladder bulking
hi all, has anyone had bladder bulking due to nerve damage to bladder & urethra? My Dr. Is recommending Botox to bladder & collagen to urethra which will mean I will need to self catheterize 5/6 times a day. Looking for any input. Thank you in advance. All the best to all of you along this journeY.
Radiation
I saw the radiologist today and I'm getting the full treatment of radiation external and brachy. Even though I'm just stage ll serous he is recommending both because serous is aggressive. I will be have 25 external and 3 brachy which is standard procedure for the more aggressive cancers I understand. Hopefully this will…
Rash after hair loss
Has anyone experienced a rash on your head after hair loss. Any solutions to help with the itching.
Introduction/Mother's UPSC Recurrence
Hello everyone, I have found so much comfort and inspiration in your stories, I feel it’s time to reach out. It’s been hard to get the courage to put it all in writing because it makes it feel so much more real. My mother is currently experiencing a recurrence from her stage 1a UPSC. She has been diagnosed with widespread…
Waiting for diagnosis...
Hi Everyone. My life has been recently turned upside down and I am honestly not really too sure which way is up these days. I found out last week that I have a 10 cm mass in my uterus that was discovered by an ultrasound I had done for constant urination and heavy periods/discharge. I am 41 years old and now that I look…
Mixed response success stories?
I admit to being a little blue today. I made the mistake of Googling "mixed response chemo" I shouldn't have done that. I should have known better. The results reminded me of what I first encountered when I Googled "UPSC Stage 4B". So, of you ladies here, have you any success stories post mixed-response chemos?…
Probiotics
This is a very small study but questions the impact of probiotics on immunity.…
Brachytherapy ???
I just had the first of 3 brachytherapies, (after 6 rounds of chemo.) I am feeling no side affects at all from the brachy, so of course my mind is wondering if it really does anything? Seems like if I don't feel anything then it must not be working LOL. It gets very confusing with too much reading, should I have IMRT, is…
New to board
Carcinosarcoma I was diagnosed with Carcinosarcoma 7/2018, had surgery 2 days later, was Stage 3A, proceeded with 3 treatments of Carboplatin and Taxol, 25 external radiation treatments, followed by 3 more treatments of the Carbo/ Taxol . I tolerated the treatments well, just really zapped my energy and strength toward the…
Skipped chemo today
I'm behind on filling you all in on how things have been going with me. I finished my 10 high dose radiation treatments two weeks ago tomorrow, then had my first chemo for this recurrence last Monday. I found that the plans the PA for my oncologist had explained to my husband and me were not at all what we had understood…
In the Process of Ruling Out Uterine Cancer Going Crazy
I'm not sure if I should even be posting as I haven't been diagnosed with cancer and this whole whirlwind has come about in a matter of a few days. I don't know who to talk to about this. I'm terrified of whats coming and then I wish that it was just over and I had an answer. This started this past Friday with some…
undifferentiated cancer, any surviers out there that have had this level of cancer?
My daughter has cancer of the uterius 3c, undifferentiated. Any survivers out there? I desparetly need to hear from you. Linda
CA-125 has stopped going down. It's risen slightly
Ugh. My CA-125 years before diagnosis, before I had cancer, was in the low single digits. When I was diagnosed with UPSC/clear cell, in the uterus and isolated tumor cells in one sentinel node, it was about 35. It went up after surgery, and has slowly drifted down. After round 5 of chemo, it was about 12. Now, after round…
Could I be tired this soon from external pelvic radiation?
I finished carbo/taxol almost 4 weeks ago, had Herceptin alone a week ago, which was a breeze. I just had my second dose of external pelvic today. Since about two weeks after finishing cheo, I've felt fantastic - energy was great, just no appetite. But all of a sudden now, this afternoon, I am suddenly absolutely…
Spoke with PA today about Pink spotting 7 months post surgery/ 4 months post Brachy
I had my surgery for stage 1b, grade 2 endo cancer in August 2018. I had 3 rounds of Brachy which finished in Nov. Since December I’ve been having a light yellow discharge. Doctor said nothing to worry about. It’s inflammatoon from the Brachy. Ok, I wore a panty liner today ( which I do most days bc of the light yellow…
In favor of chemo vacations
Eradicate cancer or live with a little bit cancer? The underlying theory here is very elegant. Not sure if uterine cancer is the type that can benefit from the adaptive treatment described in this article but I enjoyed reading it and thought I would share. https://www.wired.com/story/cancer-treatment-darwin-evolution/
Wow! Platelets were 41K today.
Good thing I had stopped my blood thinner a couple of weeks ago, in anticipation of a low platelet count. My hemoglobin was only 9.1, too, but I felt great before the Herceptin - now just a little tired and shaky. I had been warned that Carboplatin alone was more bone marrow toxic than when it's administered with Taxol.…
Diagnosed today. Questions.
Hi everyone, I found this forum yesterday, before having my discussion of D&C results with my gynecologist today. The diagnosis was: endometrial adenocarcinoma, endometrioid type (FIGO grade 3). I'm confused about "grade 3" and stage. I'm trying to figure out if stage hasn't been determined yet? I have an appointment for…
Can I share this?
I see some new people on here and I would like to share my cancer treatment center website. They have a lot of good information and you don't have to be a patient to access some of it. For example, if you type "foods to eat" in the search bar, it gives you a lot of helpful things to read. It is Compass Oncology, out of…
First chemo treatment
Tuesday the 19th will be my first treatment. Does anyone have any tips or tricks to make my treatments and days after as smooth as possible? Thanks in advance.
Fribromyalgia and chemo
I am 5 weeks from my last chemo treatment and just had the second brachytherapy yesterday. I have had mild figromyalgia for years, I'm not bothered by it too much unless I get really stressed out, then it can get pretty bad, mostly in my legs and shoulders. I'm just wondering if any one else has that and did it flare up…
Olaparib and Cediranib Maleate
These two drugs are typically used to treat ovarian cancers, but with my endometrial serous cancer recurrence, these two drugs are possibilities for next treatment. Has anyone had first hand experience with side effects with either drug? The published side effects sound like torture. Any actual information would be…

Uterine/Endometrial Cancer

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