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International travel
I am looking for information about flying internationally while i still have my chemo port in my chest. Can anyone give me information or advice on how TSA deals with this? Thanks.
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Steroids
I’m pre-treating today with steroids in hopes of not having another allergic reaction tomorrow during treatment. I hate steroids. They jack me up and raise my heart rate. Ughhhhhhh
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After chemo
How long do muscle and bone aches and pains usually last after finishing chemo? 2 months from Carbo/Taxol and Neulasta. sometime in the near future I think I will have to have ankle surgery. I get get little stabbing pains in my foot and don’t know how long that might last.
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New here, any help?
Hello all, I have been on the anal cancee blog since 2015 in regards to my mom. Stage 2 diagnosed first time in 2015, treated with standard chemo and radiation. 2017 recurrence treated with apt colostomy removal of rectum and anus. Last week she had a pet scan for some issues with her urine (she just had a CLEAR PET scan…
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CT after chemo shows no mets, no changes in lung nodules or sclerotic lesions bone - no evidence of
I discussed the scan with the reading radiologist. I was Ia at diagnosis in September, with isolated tumor cells in one sentinel node, only 2 nodes sampled. Interestingly, my spleen was only slightly over the upper limit of normal (14 cm vs 13 cm), with slight enlargement of the venous drainage from spleen. He says he…
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How long can NED be expected?
Hi, I am writing this for someone. PET (Dec 2018) showed complete response to carbo taxol after 3 cycles (stage 4B grade 2). Continued 3 more cycles. Second PET (April 2019) done after the total 6 cycles also showed Complete response. Can you ladies please tell how long NED can be expected? Thanks.
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Treatment Day
I want to thank you all for your responses to my Taxol and Taxotere posts. While my nerves are shot and I’m concerned about a repeat of an allergic reaction today, your words are comforting. God bless all of us on this journey.
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I think I might be addicted to Nyquil
I've been taking Nyquil for awhile now to relieve my neuropathy in my feet and help me sleep. Yesterday I ran out of it and just figured I'd run to Walgreens today or tomorrow when I had time. OMG, I was up all night!! I can't sleep without the stuff! My husband woke up at his usual time of 6:30 and I was still awake. I…
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A newbie with a question on ending chemo after 3 treatments
Hello All! This is my first post. My diagnosis was Uterine Serous Cell, Stage 1a, Grade 3, which was determined after surgery. Guess I was in denial before surgery but thought I was done since Stage 1a. I was shocked when they came back with the treatment plan of 3 brachy radiations, 6 chemo consisting of Paclitaxel &…
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What Cancer Takes Away
I removed the link to the article. You are right, it is pretty dark. I enjoyed reading it because I recognized some of the thinking. It spoke to me because I am a naturally melancholic person. It is probably not helpful to share it here.
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Let's talk about radiation
I see a lot of great questions, concerns, information on it buried in other threads and thought it would be good to start a conversation on it. I was diagnosed originally with Stage IIIC UPSC in April 2013. My cancer continues to be active and progressive with mets found shortly after I finished frontline chemo and…
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Second thoughts
Went to see radiologist for brachy therapy yesterday found out I'm not healed all the way from my surgery which was January 16th. Had to get rechecked by the surgeon to verify this to be true. She said no brachy until your healed. I'm having second thoughts about the pelvic radiation as well. What are the radiating if…
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Couldn't have radiation today due to technical difficulties!
I went for radiation today. Every time, they do a CT scan (they say it's limited and low energy) to make sure that my bladder is at the right point of fullness, and that everything is lined up correctly. Then they do the treatment. Today, after they did the CT scan, when they went to do the treatment, they couldn't,…
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Taxol reaction
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LadyMox – Possible Update
Like others, I've been worried that we hadn't heard from LadyMox for some time, even though she had logged onto the board in February, So I did a search this evening and sadly learned that a young woman name Tammy Mink (Tammy was LadyMox's first name) just passed away last week. From the location (Buffalo), her age (42)…
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Colonoscapy questions
Hey every one, Just need to give a little update. I went and saw my radiation doctor today for my check up. For those that dont know its been a few months past two years since i finished treatment. Ive been NED since. He says everything looks good. He gave me a pelvic exam and looked over my cat scan i had last november.…
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mucusy rectal discharge during whole pelvic radiation
Well, now I'm really worried. Today I had my 9th whole pelvic IMRT treatment. My radiation oncologist said that he could administer a vaginal cuff boost via external beam, even though I asked if he could do the pelvic cuff via brachytherapy. So I'm not having any vaginal irritation, but I am having small amounts of clear…
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Bladder bulking
hi all, has anyone had bladder bulking due to nerve damage to bladder & urethra? My Dr. Is recommending Botox to bladder & collagen to urethra which will mean I will need to self catheterize 5/6 times a day. Looking for any input. Thank you in advance. All the best to all of you along this journeY.
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Radiation
I saw the radiologist today and I'm getting the full treatment of radiation external and brachy. Even though I'm just stage ll serous he is recommending both because serous is aggressive. I will be have 25 external and 3 brachy which is standard procedure for the more aggressive cancers I understand. Hopefully this will…
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Rash after hair loss
Has anyone experienced a rash on your head after hair loss. Any solutions to help with the itching.
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Introduction/Mother's UPSC Recurrence
Hello everyone, I have found so much comfort and inspiration in your stories, I feel it’s time to reach out. It’s been hard to get the courage to put it all in writing because it makes it feel so much more real. My mother is currently experiencing a recurrence from her stage 1a UPSC. She has been diagnosed with widespread…
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Waiting for diagnosis...
Hi Everyone. My life has been recently turned upside down and I am honestly not really too sure which way is up these days. I found out last week that I have a 10 cm mass in my uterus that was discovered by an ultrasound I had done for constant urination and heavy periods/discharge. I am 41 years old and now that I look…
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Mixed response success stories?
I admit to being a little blue today. I made the mistake of Googling "mixed response chemo" I shouldn't have done that. I should have known better. The results reminded me of what I first encountered when I Googled "UPSC Stage 4B". So, of you ladies here, have you any success stories post mixed-response chemos?…
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Probiotics
This is a very small study but questions the impact of probiotics on immunity.…
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Brachytherapy ???
I just had the first of 3 brachytherapies, (after 6 rounds of chemo.) I am feeling no side affects at all from the brachy, so of course my mind is wondering if it really does anything? Seems like if I don't feel anything then it must not be working LOL. It gets very confusing with too much reading, should I have IMRT, is…
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New to board
Carcinosarcoma I was diagnosed with Carcinosarcoma 7/2018, had surgery 2 days later, was Stage 3A, proceeded with 3 treatments of Carboplatin and Taxol, 25 external radiation treatments, followed by 3 more treatments of the Carbo/ Taxol . I tolerated the treatments well, just really zapped my energy and strength toward the…
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Skipped chemo today
I'm behind on filling you all in on how things have been going with me. I finished my 10 high dose radiation treatments two weeks ago tomorrow, then had my first chemo for this recurrence last Monday. I found that the plans the PA for my oncologist had explained to my husband and me were not at all what we had understood…
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In the Process of Ruling Out Uterine Cancer Going Crazy
I'm not sure if I should even be posting as I haven't been diagnosed with cancer and this whole whirlwind has come about in a matter of a few days. I don't know who to talk to about this. I'm terrified of whats coming and then I wish that it was just over and I had an answer. This started this past Friday with some…
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undifferentiated cancer, any surviers out there that have had this level of cancer?
My daughter has cancer of the uterius 3c, undifferentiated. Any survivers out there? I desparetly need to hear from you. Linda
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CA-125 has stopped going down. It's risen slightly
Ugh. My CA-125 years before diagnosis, before I had cancer, was in the low single digits. When I was diagnosed with UPSC/clear cell, in the uterus and isolated tumor cells in one sentinel node, it was about 35. It went up after surgery, and has slowly drifted down. After round 5 of chemo, it was about 12. Now, after round…