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What and when- hormonal maintenance therapy?
Stage 4B. Scan after 3 carbo taxol NED. Scan after 6 carbo taxol NED. 6th cycle completed March. ER positive and PR positive. MSI stable. Grade 2. Type 1. Please advise per your experience: 1. Should hormone therapy begin now or later? When? 2. What medicines?
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Dilemma
I met my gyn oncologist on April 2. Although she was not the original one intended for me because my gyn wanted me to get help in a hurry, I like her a lot. I had CT cans ordered by my regular gynecologist right away, so that the oncologist could have them two days later. My gynecologist was freaking out. Oncologist…
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Sharing Hope
I am 9 years cancer free today! I had UPSC And Endometrial Adenocarcinoma when diagnosed. My CA 125 is holding steady at 7.1 I had 6 rounds of chemo and 3 rounds of vaginal brachytherapy. I am 68 years young and still enjoying an active sex life with my wonderful husband who has been with me through everything. Feeling…
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VISION ISSUES
Has anyone had trouble with their vision during chemo? My last treatment on the 15th was with Taxotere and Carbo. My vision has been fuzzy since a couple of days afterwards. I know vision issues are a possibilty. Any tips on how to deal with it ?? Thanks Ladies !!!!
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Mets to spleen (in UPSC)?
Hi all. First post here. In September I got diagnosed UPSC stage 4. Spread to distant lymph nodes. So, the doctors offered me 3 times chemo taxol/carboplatin. If this helped, they would offer me surgery, and finish of with 3 more chemo. Luckily it did. Have finished treatment now. CT Scan showed somethin in my spleen so…
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Pelvic lymph node
my mom Is on her second recurrence of Anal cancer, tumor In vagina. Starts chemo next week they are optimistic but the pesky pelvic lymph node is really the issue there not sure how to handle. Anyones input on tearment for a pelvic lymph node? I asked why they move it they said it’s in a tough area, like really today in…
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Rouleaux?
Anyone had a test for this? Apparently, it's a type of RBC disorder where at least some of the RBCs clump, looklng like coins. It can be seen in anything from infections to cancer. Well, we KNOW I have cancer. No question about that. It may not be the only thing going on in my body, but it IS in there. I looked in other…
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Biotene
i am not sure if i read about this on here or some place else. But i started using Biotene last night and it has made a difference already. It has helped with the dry mouth and weird food tastes. Maybe this will help someone else too.
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Herceptin alone - how did you feel?
Has anyone been on just Herceptin alone? I have my first Herceptin-only infusion today, expecting I won't feel sick at all, but I'd like to know if there's anyone out her who's had it just by itself yet?
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financial help
This is not really relevent right now, as the best time to apply for this is in Jan. But I felt like sharing. Don't know if anyone has heard of Healthwell Foundation? They are a non-profit group that helps pay for some things that insurance doesn't pay enough of. Neulasta is one of those things, for chemo induced…
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Interesting development; Metformin potentially credited
I am now 20 months post-chemo for the 2d recurrence of my endometrioid adenocarcinoma, orginally diagnosed in 2005 as Stage IC, Grade 2. Radical, open hysterectomy and pelvic radiation followed. First recurrence treated in 2012 with further radiation and high-dose progesterone. Second recurrence treated in 2017 with…
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Hypothyroidism
I recently just learned that the treatments used for cancer can cause hypothyroidism. I'm now on thyroid medication everyday so my mysterious weight gain had a reason and since taking the medication the weight is coming off. Might want your doc to test your TSH (Thyroid-Stimulating Hormone) if they haven't already.
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Pinky, how are you doing?
Just wanted to let you know we're still thinking about you and praying that you are managing ok.
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Sad news about linmk
linmk (Linda Kreuger) passed away earlier today. She'd been in hospice care at home for a couple of months and her nephew, Brad, was keeping her friends informed. Below is the email I received from Brad at 9:00 am. A few hours later she was gone. Godspeed, dear friend. p.s. thanks to cmb for finding Linda's photo and…
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Clinical Trial
Hi all, Ok spent the morning talking to doc about the recommendations from the tumor board regarding the next treatment plan and it is a clinical trial. It is a Phase 2 trial with an oral immunotherapy drug and taxol. The oral drug I take twice a day and the taxol is every week for 3 weeks then a week off. So good news I…
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It just keeps coming back
This is my first post. I am not exactly new here as I have "crept" around reading different threads I thought were relatable. I don't feel especially knowlegeable. For instance, it took me a bit to figure out NED is no evidence of disease, which doesn't seem to mean disease-free, but maybe remission? I was first diagnosed…
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I'm new here and looking for some feedback....
Hello there, Just looking for some feedback... I am 45 and was diagnosed in September 2018 with what was originally called Stage III Ovarian but eventually called Stage IV Uterine. My CA125 was over 3000 at that time. I had a full hysterectomy as well as my appendix and a few tumors on the lining of my abdomen area…
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I want to take the holiday weekend off as a holiday from cancer!
I'm taking a weekend off from cancer! Sure, I'm in radiation and the side effects suck. But it's the holiday, my daughter came home from college with a gang of friends for the Seder. I cannot believe I did it, but I made the entire seder meal, and we had a wonderful time. She came home sporting a buzz cut. I was so upset -…
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Another Study - April 2018
Clinical impact of endometrial cancer stratified by genetic mutational profiles, POLE mutation, and microsatellite instability https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0195655 I realize this is a year old, and someone may have posted it (or some of you astute ladies read it) but just wanted to post…
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Good news
Hi, I reached my 5 years clear for my MMMt Uterine cancer but the horrible breast cancer has spread again to the lining of the stomach and I have a clot in my arm.. I am a fighter so I will deal with it. I wish everyone a great Holiday for either Easter or Passover. I will check in again soon after my next Dr appt.
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This is just to make you laugh
We all know the feeling of waiting for the other shoe to drop in the first few years after our cancer diagnosis. The scans, the 3 mo. checks, the funny pain here and there. Well, my daughter was my rock for the last 2 years as I went through diagnosis, surgery, chemo, radiation; then a year later, recurrence; chemo and…
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International travel
I am looking for information about flying internationally while i still have my chemo port in my chest. Can anyone give me information or advice on how TSA deals with this? Thanks.
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Steroids
I’m pre-treating today with steroids in hopes of not having another allergic reaction tomorrow during treatment. I hate steroids. They jack me up and raise my heart rate. Ughhhhhhh
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After chemo
How long do muscle and bone aches and pains usually last after finishing chemo? 2 months from Carbo/Taxol and Neulasta. sometime in the near future I think I will have to have ankle surgery. I get get little stabbing pains in my foot and don’t know how long that might last.
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New here, any help?
Hello all, I have been on the anal cancee blog since 2015 in regards to my mom. Stage 2 diagnosed first time in 2015, treated with standard chemo and radiation. 2017 recurrence treated with apt colostomy removal of rectum and anus. Last week she had a pet scan for some issues with her urine (she just had a CLEAR PET scan…
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CT after chemo shows no mets, no changes in lung nodules or sclerotic lesions bone - no evidence of
I discussed the scan with the reading radiologist. I was Ia at diagnosis in September, with isolated tumor cells in one sentinel node, only 2 nodes sampled. Interestingly, my spleen was only slightly over the upper limit of normal (14 cm vs 13 cm), with slight enlargement of the venous drainage from spleen. He says he…
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How long can NED be expected?
Hi, I am writing this for someone. PET (Dec 2018) showed complete response to carbo taxol after 3 cycles (stage 4B grade 2). Continued 3 more cycles. Second PET (April 2019) done after the total 6 cycles also showed Complete response. Can you ladies please tell how long NED can be expected? Thanks.
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Treatment Day
I want to thank you all for your responses to my Taxol and Taxotere posts. While my nerves are shot and I’m concerned about a repeat of an allergic reaction today, your words are comforting. God bless all of us on this journey.
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I think I might be addicted to Nyquil
I've been taking Nyquil for awhile now to relieve my neuropathy in my feet and help me sleep. Yesterday I ran out of it and just figured I'd run to Walgreens today or tomorrow when I had time. OMG, I was up all night!! I can't sleep without the stuff! My husband woke up at his usual time of 6:30 and I was still awake. I…
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A newbie with a question on ending chemo after 3 treatments
Hello All! This is my first post. My diagnosis was Uterine Serous Cell, Stage 1a, Grade 3, which was determined after surgery. Guess I was in denial before surgery but thought I was done since Stage 1a. I was shocked when they came back with the treatment plan of 3 brachy radiations, 6 chemo consisting of Paclitaxel &…