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Uterine/Endometrial Cancer

New to board
Carcinosarcoma I was diagnosed with Carcinosarcoma 7/2018, had surgery 2 days later, was Stage 3A, proceeded with 3 treatments of Carboplatin and Taxol, 25 external radiation treatments, followed by 3 more treatments of the Carbo/ Taxol . I tolerated the treatments well, just really zapped my energy and strength toward the…
Skipped chemo today
I'm behind on filling you all in on how things have been going with me. I finished my 10 high dose radiation treatments two weeks ago tomorrow, then had my first chemo for this recurrence last Monday. I found that the plans the PA for my oncologist had explained to my husband and me were not at all what we had understood…
In the Process of Ruling Out Uterine Cancer Going Crazy
I'm not sure if I should even be posting as I haven't been diagnosed with cancer and this whole whirlwind has come about in a matter of a few days. I don't know who to talk to about this. I'm terrified of whats coming and then I wish that it was just over and I had an answer. This started this past Friday with some…
undifferentiated cancer, any surviers out there that have had this level of cancer?
My daughter has cancer of the uterius 3c, undifferentiated. Any survivers out there? I desparetly need to hear from you. Linda
CA-125 has stopped going down. It's risen slightly
Ugh. My CA-125 years before diagnosis, before I had cancer, was in the low single digits. When I was diagnosed with UPSC/clear cell, in the uterus and isolated tumor cells in one sentinel node, it was about 35. It went up after surgery, and has slowly drifted down. After round 5 of chemo, it was about 12. Now, after round…
Could I be tired this soon from external pelvic radiation?
I finished carbo/taxol almost 4 weeks ago, had Herceptin alone a week ago, which was a breeze. I just had my second dose of external pelvic today. Since about two weeks after finishing cheo, I've felt fantastic - energy was great, just no appetite. But all of a sudden now, this afternoon, I am suddenly absolutely…
Spoke with PA today about Pink spotting 7 months post surgery/ 4 months post Brachy
I had my surgery for stage 1b, grade 2 endo cancer in August 2018. I had 3 rounds of Brachy which finished in Nov. Since December I’ve been having a light yellow discharge. Doctor said nothing to worry about. It’s inflammatoon from the Brachy. Ok, I wore a panty liner today ( which I do most days bc of the light yellow…
In favor of chemo vacations
Eradicate cancer or live with a little bit cancer? The underlying theory here is very elegant. Not sure if uterine cancer is the type that can benefit from the adaptive treatment described in this article but I enjoyed reading it and thought I would share. https://www.wired.com/story/cancer-treatment-darwin-evolution/
Wow! Platelets were 41K today.
Good thing I had stopped my blood thinner a couple of weeks ago, in anticipation of a low platelet count. My hemoglobin was only 9.1, too, but I felt great before the Herceptin - now just a little tired and shaky. I had been warned that Carboplatin alone was more bone marrow toxic than when it's administered with Taxol.…
Diagnosed today. Questions.
Hi everyone, I found this forum yesterday, before having my discussion of D&C results with my gynecologist today. The diagnosis was: endometrial adenocarcinoma, endometrioid type (FIGO grade 3). I'm confused about "grade 3" and stage. I'm trying to figure out if stage hasn't been determined yet? I have an appointment for…
Can I share this?
I see some new people on here and I would like to share my cancer treatment center website. They have a lot of good information and you don't have to be a patient to access some of it. For example, if you type "foods to eat" in the search bar, it gives you a lot of helpful things to read. It is Compass Oncology, out of…
First chemo treatment
Tuesday the 19th will be my first treatment. Does anyone have any tips or tricks to make my treatments and days after as smooth as possible? Thanks in advance.
Fribromyalgia and chemo
I am 5 weeks from my last chemo treatment and just had the second brachytherapy yesterday. I have had mild figromyalgia for years, I'm not bothered by it too much unless I get really stressed out, then it can get pretty bad, mostly in my legs and shoulders. I'm just wondering if any one else has that and did it flare up…
Olaparib and Cediranib Maleate
These two drugs are typically used to treat ovarian cancers, but with my endometrial serous cancer recurrence, these two drugs are possibilities for next treatment. Has anyone had first hand experience with side effects with either drug? The published side effects sound like torture. Any actual information would be…
Anyone willing to talk about sex?
Well, I've gotten answers about so many other things, I figured I might get some advice and hopefully reassurance. I am 2.5 weeks out from what's hopefully my last chemo. Surgeon's NP said I was completely healed, placed markers (wow did that hurt) about two weeks ago, I think? I'm starting pelvic IMRT in a week. So I…
Carcino Sarcoma or MMM Tumor
I was diagnosed on Oct 10, 2018 with Carcino Sarcoma, also known as MMM Tumor ... very rare and vary deadly. Had a hysterectomy (keep vagina only) on Oct 15, 2018. Started 4 rounds of 3 days a week of Taxol and Ifossimide chemotherapy every three weeks. Had a scan and learned on Feb 13, 2019 that the chemo did exactly…
Brachytherapy vs whole pelvic irradiation for Ia UPSC/clear cell with isolated tumor cells in node
So I went for a consult with radiation oncologist at the other major hospital in my city. Recap - FIGO Ia, 20% myometrial invasion, +LVSI, only two sentinel nodes taken, one had isolated tumor cells. Visual inspection was grossly normal, pelvic wash negative, omental biopsy negative. I'm struggling with whether or not to…
MRIs and UTIs
So I really haven't posted for awhile. Anyway, after my major surgeries in April and June of 2018, I am still in the scan every 3 months phase. However, my MRI at the end of July I had a reaction to the "breeza" (Not the IV contrast) but the stuff you drink. Right after I was done with my MRI, I had immediately diarrhea.…
I was approved for disability on the first try.
I cannot find the old thread, but I was approved for disability. My old profile was deleted in the recent website crash, and I cannot figure out how to load a new one. I have UPSC/clear cell, initially staged as Ia, but I also had isolated tumor cells in one of the two sentinel nodes that they sampled, and was restaged as…
That didn't last long
I thought I would have longer than a couple of months to celebrate my last CT scan being clear and my CA 125 at 9. Not long after getting the good news back in December, I started having abdominal swelling and discomfort. I had a CT scan which showed fluid indicating my cancer is back, my CA 125 also went up to 356. My gyn…
just sad
Im having a down day and I am sad that no one on here has responded to my last post. I am done with chemo and I know I should be happy about that, and I am. But I am just so weak. I can't walk very well. We are dealing with a lot of deep icy snow and I have an ankle injury so those things don't help, but i wish I had some…
Daily Light yellow discharge
I’m still having light yellow discharge everyday. My cuff reopened in December and the discharge was tanish and enough to fill a panty liner. Well, it’s a lot better now since the cuff closed. However, after intercourse I get a lot of fluid come out of me for several hours. once it was mixed with a bit of blood. I took a…
Thank you
I read today of the passing of LadyMoxx. She was diagnosed around the same time I was and similar in age (a few years older). It certainly made me pause and take stock in how lucky I am. Thank you to all of you. There‘s no way to express how much your support has meant to me. It truly got me through some very dark moments.
Don't hate me but insurance companies aren't to blame.
Fighting any disease is expensive, with the new drugs costing $25,000 per treatment, it's simply not going to happen for most of us. I hate to say that we are denied treatment simply because it's too expensive, but that fact is, how best to spend insurance dollars? Do we help a few with whatever it costs, regardless of…
CT scan ... up and down.
I'm getting a little tired of the down part of this journey. It seems my results are great one month, concerning the next. This is a cut and paste from the other group I frequent ... sorry. A few edits, though. I'm also getting tired of radiologists. It really makes sense to have just one or two looking at patient scans…
Tan discharge 5 months post hysterectomy (Recap of Lost Posts, Topic Created by Denise66 on Dec 27,
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Denise66 Dec 27, 2018 - 6:03 pm I’m 5 months post hysterectomy. I was put in surgical menopause. I had 3 rounds of Brachy which finished early November. After the Brachy, I felt really sore. I had my follow up with the oncologist NP…
Poor balance
I have just finished chemo, very happy about that. My problem now is my lack of balance. It doesn't help that I have an ankle injury, but I can't hardly walk a straight line, and I could fall over at any time! I am wondering how long it might take to kind of get back to normal? Also, I was in the grocery sore the other day…
New to this board - Uterine polyps found
Hello, I am new to this board, but not this site. My husband passed away from head and neck cancer two years ago and I have thyroid cancer. Doing tests a year after my thyroid had been removed and I had undergone radiation, my tumor marker bloodwork was elevated. I then underwent several tests, one being a PET scan. My…
Seams in clothing are bothering abdominal skin
Ever since my hysterectomy (a year ago) and chemo (ended 6 months ago), the skin on my abdomen has been hypersensitive to the rubbing from seams in underpants, the back of the metal button in the waist of my jeans, and spots the seams on pant waists touch my skin directly. It's so annoying I actually started wearing…
survivingsu
speaking of one of the lovely ladies I am worried about, it would be survivngsu. She hasn't been on since August 2018 and I hope she is doing ok.

Uterine/Endometrial Cancer

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