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No vaginal symptoms during pelvic external beam radiation. Worried.
So I've only got 3 more treatments to go of 28 treatments. I had horrendous diarrhea begin about two weeks in. I've had mild cytitis the past week or so. But NO vaginal symptoms. Haven't had sex in a couple of weeks because of mild nausea, and severe diarrhea, but no itching, no real increase in discharge. I've always been…
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Stage 4B Uterine Cancer
My wife was recently diagnosed with Stage 4B Uterine cancer. I was wondering if there are any people who have beaten stage 4b or are currently undergoing treatment right now. Thank you and God Bless. Ted
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It Just Keeps Going
I had an aggressive form of Uterine cancer. I had a total hysterectomy, six rounds of chemo (Paxlitaxel and Carboplatin), and three rounds of brachytherapy, and I'm a little more than a year out from those things. It was the hardest thing I have ever endured---and I've been through some serious stuff, but I know my ordeal…
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Re: Sad news about Pinky's UPSC cancer
Dear Ladies: I have been a very close and personal friend of Pinky's for the past 6 years. I met her through this Board at least through e-mails although I never met her personally and we shared a lot of things in common. We both live in different states and I live in PA and she lives in NY. I know she has posted…
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Great story about decision making after dx.
https://whatsthefix.info/a-scientific-approach-to-being-a-patient-asking-questions-making-decisions-and-helping-others/#author She had a brain tumor but faced the same decisions we all do. Also makes a good point that most people don't know the questions to ask, don't get second opinions and don't have her expertise to…
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Stage IV Survivorship
This article nicely summarizes what some of us have been saying for awhile re: similarities w/ Stage IV and HIV (back in the old days). Given all the losses we've had recently, I figured some hope was in order. God knows you never see "IV" and "Survivor" used in the same sentence where I come from.…
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Fever
Any of you ladies experience fevers after chemo ? After both chemo treatment, I have developed a fever 5-7 days later. No source of infection found the first time. Treated with antibiotics and went away in a few days. Currently have fever again, after second treatment. Initial tests ok, waiting on blood cultures to come…
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More Insurance Mother May I
This is getting really old, really fast. My insurance company decided to reject the Vitrakvi, claiming they need proof I have the NTRK fusion and that there are no conflicting mutations. Errr .... isn't the Foundation One report proof of that? The ... blank? I am pretty darn sure the doctor is going to appeal the crud out…
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Study: Pelvic radiation vs. chemo + brachytherapy
I came across this new study and thought I'd post it here in case it helps someone down the road. "Superiority of VCB/C compared with pelvic RT was not demonstrated. Acute toxicity was greater with VCB/C; late toxicity was similar. Pelvic RT alone remains an effective, well-tolerated, and appropriate adjuvant treatment in…
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What and when- hormonal maintenance therapy?
Stage 4B. Scan after 3 carbo taxol NED. Scan after 6 carbo taxol NED. 6th cycle completed March. ER positive and PR positive. MSI stable. Grade 2. Type 1. Please advise per your experience: 1. Should hormone therapy begin now or later? When? 2. What medicines?
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Dilemma
I met my gyn oncologist on April 2. Although she was not the original one intended for me because my gyn wanted me to get help in a hurry, I like her a lot. I had CT cans ordered by my regular gynecologist right away, so that the oncologist could have them two days later. My gynecologist was freaking out. Oncologist…
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Sharing Hope
I am 9 years cancer free today! I had UPSC And Endometrial Adenocarcinoma when diagnosed. My CA 125 is holding steady at 7.1 I had 6 rounds of chemo and 3 rounds of vaginal brachytherapy. I am 68 years young and still enjoying an active sex life with my wonderful husband who has been with me through everything. Feeling…
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VISION ISSUES
Has anyone had trouble with their vision during chemo? My last treatment on the 15th was with Taxotere and Carbo. My vision has been fuzzy since a couple of days afterwards. I know vision issues are a possibilty. Any tips on how to deal with it ?? Thanks Ladies !!!!
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Mets to spleen (in UPSC)?
Hi all. First post here. In September I got diagnosed UPSC stage 4. Spread to distant lymph nodes. So, the doctors offered me 3 times chemo taxol/carboplatin. If this helped, they would offer me surgery, and finish of with 3 more chemo. Luckily it did. Have finished treatment now. CT Scan showed somethin in my spleen so…
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Pelvic lymph node
my mom Is on her second recurrence of Anal cancer, tumor In vagina. Starts chemo next week they are optimistic but the pesky pelvic lymph node is really the issue there not sure how to handle. Anyones input on tearment for a pelvic lymph node? I asked why they move it they said it’s in a tough area, like really today in…
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Rouleaux?
Anyone had a test for this? Apparently, it's a type of RBC disorder where at least some of the RBCs clump, looklng like coins. It can be seen in anything from infections to cancer. Well, we KNOW I have cancer. No question about that. It may not be the only thing going on in my body, but it IS in there. I looked in other…
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Biotene
i am not sure if i read about this on here or some place else. But i started using Biotene last night and it has made a difference already. It has helped with the dry mouth and weird food tastes. Maybe this will help someone else too.
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Herceptin alone - how did you feel?
Has anyone been on just Herceptin alone? I have my first Herceptin-only infusion today, expecting I won't feel sick at all, but I'd like to know if there's anyone out her who's had it just by itself yet?
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financial help
This is not really relevent right now, as the best time to apply for this is in Jan. But I felt like sharing. Don't know if anyone has heard of Healthwell Foundation? They are a non-profit group that helps pay for some things that insurance doesn't pay enough of. Neulasta is one of those things, for chemo induced…
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Interesting development; Metformin potentially credited
I am now 20 months post-chemo for the 2d recurrence of my endometrioid adenocarcinoma, orginally diagnosed in 2005 as Stage IC, Grade 2. Radical, open hysterectomy and pelvic radiation followed. First recurrence treated in 2012 with further radiation and high-dose progesterone. Second recurrence treated in 2017 with…
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Hypothyroidism
I recently just learned that the treatments used for cancer can cause hypothyroidism. I'm now on thyroid medication everyday so my mysterious weight gain had a reason and since taking the medication the weight is coming off. Might want your doc to test your TSH (Thyroid-Stimulating Hormone) if they haven't already.
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Pinky, how are you doing?
Just wanted to let you know we're still thinking about you and praying that you are managing ok.
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Sad news about linmk
linmk (Linda Kreuger) passed away earlier today. She'd been in hospice care at home for a couple of months and her nephew, Brad, was keeping her friends informed. Below is the email I received from Brad at 9:00 am. A few hours later she was gone. Godspeed, dear friend. p.s. thanks to cmb for finding Linda's photo and…
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Clinical Trial
Hi all, Ok spent the morning talking to doc about the recommendations from the tumor board regarding the next treatment plan and it is a clinical trial. It is a Phase 2 trial with an oral immunotherapy drug and taxol. The oral drug I take twice a day and the taxol is every week for 3 weeks then a week off. So good news I…
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It just keeps coming back
This is my first post. I am not exactly new here as I have "crept" around reading different threads I thought were relatable. I don't feel especially knowlegeable. For instance, it took me a bit to figure out NED is no evidence of disease, which doesn't seem to mean disease-free, but maybe remission? I was first diagnosed…
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I'm new here and looking for some feedback....
Hello there, Just looking for some feedback... I am 45 and was diagnosed in September 2018 with what was originally called Stage III Ovarian but eventually called Stage IV Uterine. My CA125 was over 3000 at that time. I had a full hysterectomy as well as my appendix and a few tumors on the lining of my abdomen area…
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I want to take the holiday weekend off as a holiday from cancer!
I'm taking a weekend off from cancer! Sure, I'm in radiation and the side effects suck. But it's the holiday, my daughter came home from college with a gang of friends for the Seder. I cannot believe I did it, but I made the entire seder meal, and we had a wonderful time. She came home sporting a buzz cut. I was so upset -…
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Another Study - April 2018
Clinical impact of endometrial cancer stratified by genetic mutational profiles, POLE mutation, and microsatellite instability https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0195655 I realize this is a year old, and someone may have posted it (or some of you astute ladies read it) but just wanted to post…
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Good news
Hi, I reached my 5 years clear for my MMMt Uterine cancer but the horrible breast cancer has spread again to the lining of the stomach and I have a clot in my arm.. I am a fighter so I will deal with it. I wish everyone a great Holiday for either Easter or Passover. I will check in again soon after my next Dr appt.
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This is just to make you laugh
We all know the feeling of waiting for the other shoe to drop in the first few years after our cancer diagnosis. The scans, the 3 mo. checks, the funny pain here and there. Well, my daughter was my rock for the last 2 years as I went through diagnosis, surgery, chemo, radiation; then a year later, recurrence; chemo and…