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Uterine/Endometrial Cancer

financial help
This is not really relevent right now, as the best time to apply for this is in Jan. But I felt like sharing. Don't know if anyone has heard of Healthwell Foundation? They are a non-profit group that helps pay for some things that insurance doesn't pay enough of. Neulasta is one of those things, for chemo induced…
Interesting development; Metformin potentially credited
I am now 20 months post-chemo for the 2d recurrence of my endometrioid adenocarcinoma, orginally diagnosed in 2005 as Stage IC, Grade 2. Radical, open hysterectomy and pelvic radiation followed. First recurrence treated in 2012 with further radiation and high-dose progesterone. Second recurrence treated in 2017 with…
Hypothyroidism
I recently just learned that the treatments used for cancer can cause hypothyroidism. I'm now on thyroid medication everyday so my mysterious weight gain had a reason and since taking the medication the weight is coming off. Might want your doc to test your TSH (Thyroid-Stimulating Hormone) if they haven't already.
Pinky, how are you doing?
Just wanted to let you know we're still thinking about you and praying that you are managing ok.
Sad news about linmk
linmk (Linda Kreuger) passed away earlier today. She'd been in hospice care at home for a couple of months and her nephew, Brad, was keeping her friends informed. Below is the email I received from Brad at 9:00 am. A few hours later she was gone. Godspeed, dear friend. p.s. thanks to cmb for finding Linda's photo and…
Clinical Trial
Hi all, Ok spent the morning talking to doc about the recommendations from the tumor board regarding the next treatment plan and it is a clinical trial. It is a Phase 2 trial with an oral immunotherapy drug and taxol. The oral drug I take twice a day and the taxol is every week for 3 weeks then a week off. So good news I…
It just keeps coming back
This is my first post. I am not exactly new here as I have "crept" around reading different threads I thought were relatable. I don't feel especially knowlegeable. For instance, it took me a bit to figure out NED is no evidence of disease, which doesn't seem to mean disease-free, but maybe remission? I was first diagnosed…
I'm new here and looking for some feedback....
Hello there, Just looking for some feedback... I am 45 and was diagnosed in September 2018 with what was originally called Stage III Ovarian but eventually called Stage IV Uterine. My CA125 was over 3000 at that time. I had a full hysterectomy as well as my appendix and a few tumors on the lining of my abdomen area…
I want to take the holiday weekend off as a holiday from cancer!
I'm taking a weekend off from cancer! Sure, I'm in radiation and the side effects suck. But it's the holiday, my daughter came home from college with a gang of friends for the Seder. I cannot believe I did it, but I made the entire seder meal, and we had a wonderful time. She came home sporting a buzz cut. I was so upset -…
Another Study - April 2018
Clinical impact of endometrial cancer stratified by genetic mutational profiles, POLE mutation, and microsatellite instability https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0195655 I realize this is a year old, and someone may have posted it (or some of you astute ladies read it) but just wanted to post…
Good news
Hi, I reached my 5 years clear for my MMMt Uterine cancer but the horrible breast cancer has spread again to the lining of the stomach and I have a clot in my arm.. I am a fighter so I will deal with it. I wish everyone a great Holiday for either Easter or Passover. I will check in again soon after my next Dr appt.
This is just to make you laugh
We all know the feeling of waiting for the other shoe to drop in the first few years after our cancer diagnosis. The scans, the 3 mo. checks, the funny pain here and there. Well, my daughter was my rock for the last 2 years as I went through diagnosis, surgery, chemo, radiation; then a year later, recurrence; chemo and…
International travel
I am looking for information about flying internationally while i still have my chemo port in my chest. Can anyone give me information or advice on how TSA deals with this? Thanks.
Steroids
I’m pre-treating today with steroids in hopes of not having another allergic reaction tomorrow during treatment. I hate steroids. They jack me up and raise my heart rate. Ughhhhhhh
After chemo
How long do muscle and bone aches and pains usually last after finishing chemo? 2 months from Carbo/Taxol and Neulasta. sometime in the near future I think I will have to have ankle surgery. I get get little stabbing pains in my foot and don’t know how long that might last.
New here, any help?
Hello all, I have been on the anal cancee blog since 2015 in regards to my mom. Stage 2 diagnosed first time in 2015, treated with standard chemo and radiation. 2017 recurrence treated with apt colostomy removal of rectum and anus. Last week she had a pet scan for some issues with her urine (she just had a CLEAR PET scan…
CT after chemo shows no mets, no changes in lung nodules or sclerotic lesions bone - no evidence of
I discussed the scan with the reading radiologist. I was Ia at diagnosis in September, with isolated tumor cells in one sentinel node, only 2 nodes sampled. Interestingly, my spleen was only slightly over the upper limit of normal (14 cm vs 13 cm), with slight enlargement of the venous drainage from spleen. He says he…
How long can NED be expected?
Hi, I am writing this for someone. PET (Dec 2018) showed complete response to carbo taxol after 3 cycles (stage 4B grade 2). Continued 3 more cycles. Second PET (April 2019) done after the total 6 cycles also showed Complete response. Can you ladies please tell how long NED can be expected? Thanks.
Treatment Day
I want to thank you all for your responses to my Taxol and Taxotere posts. While my nerves are shot and I’m concerned about a repeat of an allergic reaction today, your words are comforting. God bless all of us on this journey.
I think I might be addicted to Nyquil
I've been taking Nyquil for awhile now to relieve my neuropathy in my feet and help me sleep. Yesterday I ran out of it and just figured I'd run to Walgreens today or tomorrow when I had time. OMG, I was up all night!! I can't sleep without the stuff! My husband woke up at his usual time of 6:30 and I was still awake. I…
A newbie with a question on ending chemo after 3 treatments
Hello All! This is my first post. My diagnosis was Uterine Serous Cell, Stage 1a, Grade 3, which was determined after surgery. Guess I was in denial before surgery but thought I was done since Stage 1a. I was shocked when they came back with the treatment plan of 3 brachy radiations, 6 chemo consisting of Paclitaxel &…
What Cancer Takes Away
I removed the link to the article. You are right, it is pretty dark. I enjoyed reading it because I recognized some of the thinking. It spoke to me because I am a naturally melancholic person. It is probably not helpful to share it here.
Let's talk about radiation
I see a lot of great questions, concerns, information on it buried in other threads and thought it would be good to start a conversation on it. I was diagnosed originally with Stage IIIC UPSC in April 2013. My cancer continues to be active and progressive with mets found shortly after I finished frontline chemo and…
Second thoughts
Went to see radiologist for brachy therapy yesterday found out I'm not healed all the way from my surgery which was January 16th. Had to get rechecked by the surgeon to verify this to be true. She said no brachy until your healed. I'm having second thoughts about the pelvic radiation as well. What are the radiating if…
Couldn't have radiation today due to technical difficulties!
I went for radiation today. Every time, they do a CT scan (they say it's limited and low energy) to make sure that my bladder is at the right point of fullness, and that everything is lined up correctly. Then they do the treatment. Today, after they did the CT scan, when they went to do the treatment, they couldn't,…
Taxol reaction
LadyMox – Possible Update
Like others, I've been worried that we hadn't heard from LadyMox for some time, even though she had logged onto the board in February, So I did a search this evening and sadly learned that a young woman name Tammy Mink (Tammy was LadyMox's first name) just passed away last week. From the location (Buffalo), her age (42)…
Colonoscapy questions
Hey every one, Just need to give a little update. I went and saw my radiation doctor today for my check up. For those that dont know its been a few months past two years since i finished treatment. Ive been NED since. He says everything looks good. He gave me a pelvic exam and looked over my cat scan i had last november.…
mucusy rectal discharge during whole pelvic radiation
Well, now I'm really worried. Today I had my 9th whole pelvic IMRT treatment. My radiation oncologist said that he could administer a vaginal cuff boost via external beam, even though I asked if he could do the pelvic cuff via brachytherapy. So I'm not having any vaginal irritation, but I am having small amounts of clear…
Bladder bulking
hi all, has anyone had bladder bulking due to nerve damage to bladder & urethra? My Dr. Is recommending Botox to bladder & collagen to urethra which will mean I will need to self catheterize 5/6 times a day. Looking for any input. Thank you in advance. All the best to all of you along this journeY.

Uterine/Endometrial Cancer

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