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Uterine/Endometrial Cancer

Sandwich Treatment
I had debulking surgery on April 19 for my recurrence. My surgeons removed the vaginal lesion along with a lesion that was initially thought to be on the liver but instead was on the membrane that covered the diaphragm. The PET scan that I had on 2/14 detected these two lit up areas and the CT scan only saw the one on the…
Will my eyebrows grow back? (Recap of Lost Posts, Topic Created by zsazsa1 on Jan 26, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Jan 26, 2019 - 7:24 pm I know it's a little thing, and kind of silly when I'm looking at the big picture of trying to survive UPSC/clear cell cancer. But now, after 4 rounds of chemo, my previously heavy eyebrows are finally…
Anyone with advice on travel insurance when you have cancer?
I am hoping to travel (a lot!) outside the US after I recover from treatment, which is almost done! In the past, I have often bought travel insurance. But now, I'm not sure that I would qualify, what with the recent cancer, and still receiving Herceptin. I have often gotten AXA travel insurance plans in the past. Anyone…
Sometimes, life is not only about cancer
I can remember when Uterine cancer was all that I could attend to. After all, my gyn onc thought I would have a life-threatening recurrence. Well, by God’s grace, I never did and I am still alive and healthy after being diagnosed with stage 3a Serous Uterine carcinoma 5.5 years ago. The last two months of my life have…
Normal CA125 and recurrence
Hi all. Okay, so in September 2018 I got the lovely diagnosis UPSC stage 4. Did 3 taxol/carboplatine, it luckily worked, so surgery on dec 27th and finished of with 3 times chemo. Ended chemo on feb 27th Then on the day of my cat scan, march 20th. I got this excruciating pain in my abdomen . I went ahead with the scan, as…
Hyperbarics oxygen
hello ladies, just wondering have any of you been referred to or heard of Hyperbarics oxygen treatment for after effects of radiation? I have been dx with radiation cystitis and pelvic radiation disease. I know nothing about this intervention. My quality of life has suffered greatly since radiation and it only gets worse.…
Information on the Uterine Board Content Lost in CSN Outage - Updated 5/2/2019
Updated 5/2/2019 Members' Personal Information: Please be aware that CSN lost all the content that had been submitted by site members after October 29, 2018 to January 30, 2019. You may also find that some of your personal information, such as email address, has been changed or is missing. CSN recommends that you check…
Admitted vs. Observation on Medicare
I had no idea the ramifications of being put under "Observation" rather than actually "Admitted" to the hospital. This is timely and crucial, and horrible for a family and cancer patient to be put through, made even worse by the fact that the father is an MD as is his son.…
Mental attitude? and some humor about the weather (Recap of Lost Posts, Topic Created by Ribbons on
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Jan 13, 2019 - 12:00 pm I'm not sure what the explanation is, but now after my 4th treatment, I felt better quicker. I posted on here about how I didn't know if I could do all 6 treatments and how this 4th one was harder,…
Just wanted to share, CA-125 (Recap of Lost Posts, Topic Created by Ribbons on Jan 05, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Jan 05, 2019 - 6:49 pm Had my 4th round of chemo yesterday, scheduled for 6 of carbo/taxol. So far I have not had too hard of a time, mostly weak and tired feeling. Today is what I call my Dex/steroid day. I get a high dose…
How many did less chemo than scheduled? (Recap of Lost Posts, Topic Created by Ribbons on Jan 09, 20
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Jan 09, 2019 - 2:50 pm Just finished round 4 of 6 scheduled Carbo/taxol, I was stage 1A but clear cell. I am considering doing only one more round of chemo, for a total of 5. Just wondered about opinions on this. I am also…
Recurrence Symptoms
Hello fellow members...hoping everyone is staying strong, and well. It has been sometime since my last posting. I have a question and hoping to get some insight. I was wondering what are the recurrence symptoms of endometrial cancer. I have been experiencing pain and burning sensations up in my vaginal canal area, same…
No vaginal symptoms during pelvic external beam radiation. Worried.
So I've only got 3 more treatments to go of 28 treatments. I had horrendous diarrhea begin about two weeks in. I've had mild cytitis the past week or so. But NO vaginal symptoms. Haven't had sex in a couple of weeks because of mild nausea, and severe diarrhea, but no itching, no real increase in discharge. I've always been…
Stage 4B Uterine Cancer
My wife was recently diagnosed with Stage 4B Uterine cancer. I was wondering if there are any people who have beaten stage 4b or are currently undergoing treatment right now. Thank you and God Bless. Ted
It Just Keeps Going
I had an aggressive form of Uterine cancer. I had a total hysterectomy, six rounds of chemo (Paxlitaxel and Carboplatin), and three rounds of brachytherapy, and I'm a little more than a year out from those things. It was the hardest thing I have ever endured---and I've been through some serious stuff, but I know my ordeal…
Re: Sad news about Pinky's UPSC cancer
Dear Ladies: I have been a very close and personal friend of Pinky's for the past 6 years. I met her through this Board at least through e-mails although I never met her personally and we shared a lot of things in common. We both live in different states and I live in PA and she lives in NY. I know she has posted…
Great story about decision making after dx.
https://whatsthefix.info/a-scientific-approach-to-being-a-patient-asking-questions-making-decisions-and-helping-others/#author She had a brain tumor but faced the same decisions we all do. Also makes a good point that most people don't know the questions to ask, don't get second opinions and don't have her expertise to…
Stage IV Survivorship
This article nicely summarizes what some of us have been saying for awhile re: similarities w/ Stage IV and HIV (back in the old days). Given all the losses we've had recently, I figured some hope was in order. God knows you never see "IV" and "Survivor" used in the same sentence where I come from.…
Fever
Any of you ladies experience fevers after chemo ? After both chemo treatment, I have developed a fever 5-7 days later. No source of infection found the first time. Treated with antibiotics and went away in a few days. Currently have fever again, after second treatment. Initial tests ok, waiting on blood cultures to come…
More Insurance Mother May I
This is getting really old, really fast. My insurance company decided to reject the Vitrakvi, claiming they need proof I have the NTRK fusion and that there are no conflicting mutations. Errr .... isn't the Foundation One report proof of that? The ... blank? I am pretty darn sure the doctor is going to appeal the crud out…
Study: Pelvic radiation vs. chemo + brachytherapy
I came across this new study and thought I'd post it here in case it helps someone down the road. "Superiority of VCB/C compared with pelvic RT was not demonstrated. Acute toxicity was greater with VCB/C; late toxicity was similar. Pelvic RT alone remains an effective, well-tolerated, and appropriate adjuvant treatment in…
What and when- hormonal maintenance therapy?
Stage 4B. Scan after 3 carbo taxol NED. Scan after 6 carbo taxol NED. 6th cycle completed March. ER positive and PR positive. MSI stable. Grade 2. Type 1. Please advise per your experience: 1. Should hormone therapy begin now or later? When? 2. What medicines?
Dilemma
I met my gyn oncologist on April 2. Although she was not the original one intended for me because my gyn wanted me to get help in a hurry, I like her a lot. I had CT cans ordered by my regular gynecologist right away, so that the oncologist could have them two days later. My gynecologist was freaking out. Oncologist…
Sharing Hope
I am 9 years cancer free today! I had UPSC And Endometrial Adenocarcinoma when diagnosed. My CA 125 is holding steady at 7.1 I had 6 rounds of chemo and 3 rounds of vaginal brachytherapy. I am 68 years young and still enjoying an active sex life with my wonderful husband who has been with me through everything. Feeling…
VISION ISSUES
Has anyone had trouble with their vision during chemo? My last treatment on the 15th was with Taxotere and Carbo. My vision has been fuzzy since a couple of days afterwards. I know vision issues are a possibilty. Any tips on how to deal with it ?? Thanks Ladies !!!!
Mets to spleen (in UPSC)?
Hi all. First post here. In September I got diagnosed UPSC stage 4. Spread to distant lymph nodes. So, the doctors offered me 3 times chemo taxol/carboplatin. If this helped, they would offer me surgery, and finish of with 3 more chemo. Luckily it did. Have finished treatment now. CT Scan showed somethin in my spleen so…
Pelvic lymph node
my mom Is on her second recurrence of Anal cancer, tumor In vagina. Starts chemo next week they are optimistic but the pesky pelvic lymph node is really the issue there not sure how to handle. Anyones input on tearment for a pelvic lymph node? I asked why they move it they said it’s in a tough area, like really today in…
Rouleaux?
Anyone had a test for this? Apparently, it's a type of RBC disorder where at least some of the RBCs clump, looklng like coins. It can be seen in anything from infections to cancer. Well, we KNOW I have cancer. No question about that. It may not be the only thing going on in my body, but it IS in there. I looked in other…
Biotene
i am not sure if i read about this on here or some place else. But i started using Biotene last night and it has made a difference already. It has helped with the dry mouth and weird food tastes. Maybe this will help someone else too.
Herceptin alone - how did you feel?
Has anyone been on just Herceptin alone? I have my first Herceptin-only infusion today, expecting I won't feel sick at all, but I'd like to know if there's anyone out her who's had it just by itself yet?

Uterine/Endometrial Cancer

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