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Uterine/Endometrial Cancer

How long after your Hysterectomy did you have your 1st Brachytherapy
For the women who only had Brachytherapy, how long was it from your surgery to your first Brachy? I had my Brachy exactly 11 weeks post surgery I’m wondering if I had waited to long for it be effective
Frustrated
Just want to vent! It’s always something, isn’t it? Although my cancer is currently in remission due to Megace, I’ve suffered varying amount but constant pain due to the need for a renal stent because of a blockage of my right ureter probably due to radiation damage. My urologist had finally agreed to do a surgery to fix…
How do you get help from the “site administrator”
Hello Ladies, Wishing you all the best. I have tried repeatedly to send a message via CSN e-mail and each time it “fails to go through”. The message I repeatedly receive is to contact the site administrator, yet there is no instruction on how to do that. Can anyone here help me? Thanks, Cathy
Uterine lining
Is 11.2 mm considered thick for 45 year old premenopausal?
Update on my mother´s mmmt - Recurrence, spread and bad perspective
Dear ladies, I have to say that even if I don´t write in a while I keep on reading many of your posts and I´ve noticed that many of you keep active on writing just to support others. I can just say thank you all for that involvement and commttment with us. I cannot speak for others but for me it has been one of the major…
Endometrial Cancer and Breast Cancer - Is there a link?
Hello Ladies... Happy Tuesday... I'm off to the gyno this afternoon to discuss symptoms I have been having for the last 6 weeks, only in my left breast, and now it is consistent on a daily basis. Burning, stabbing pain and sometimes itchy. My last mamo, was August 2018, and was negative, however I was encouraged to get a…
Very low blood platelets
I joined in April and posted as a "newbie" in mid-May. Diagnosed stage 1a, Grade 3 Serous in Nov 2018, hysterectomy Christmas eve, followed by 3 brachy radiation treatments, then scheduled for 6 treats of Carboplatin and Taxol. Completed 3 and had some neuropathy and louder tinnitus, small amout of hearing loss. Guess we…
Recurrence of Post menopausal bleeding
So beginning Thanksgiving weekend I had a several week bout of PMB. Saw my primary care doc right away. She sent me off after an exam for a transvaginal ultrasound and a referral for an ob/gun. Ultrasound showed thick uterine lining and enlarged uterus. Saw the ob/gyn doc in December and she suggested a hysteroscopy, polyp…
Cancer and Sleep Article
Read this in the NYTimes today and thought others might find it interesting. https://www.nytimes.com/2019/05/16/well/live/cancer-sleep-ambien.html?action=click&module=Discovery&pgtype=Homepage
Promising Article for Those with Lynch
https://www.cancer.gov/news-events/cancer-currents-blog/2019/vaccine-prevents-colorectal-lynch-syndrome Who knows? We may get to see even more huge forward steps in the cancer fight in our lifetime! We can certainly hope!
Another bit of promising drugs news for recurrent/advanced
It was a small study, but the results are pretty exciting: 30% response rate in recurrent/advanced disease, 49% in MSI-H tumors. Even better, the rates of adverse side effects were lower than other good-news research reported on recently. The drug is Dostarlimab, a checkpoint inhibitor. Here are the details: Potential Game…
Blood counts suppressed by pelvic external beam radiation tx?
I'm almost done with pelvic external beam IMRT, just one more treatment to go. Today I was in for Herceptin, and they did a CBC, Chem 20, and Ca-125 before my infusion. All that came back before I left was the CBC. I was very surprised to see that my platelet count, which had been low from chemo, but had always bounced…
Can uterine biopsy detect cancer from 2 samples?
Possible DES Daughter (dr didn't have records to validate or not) with recent uterine symptoms. Annual is 6 weeks out. Last uterine biopsy was over five years ago. Can a biopsy of two pieces of uterine tissue be enough to find cancer cells?
UPSC survivors
Hi all. Secons post ;) 7 months ago, I got diagnoses with UPSC stage 4.... didn’t realize how serious serous cancer was, for quite some time. It dawnes on my, as i made the connection between serous and UPSC.... Stage 4 because it spread to distant lymph nodes.. I could be facing a reccurance already now, before first line…
weight loss during and after pelvic external beam radiation
I've lost about ten pounds in 5 and a half weeks, with radiation treatment. I've had bad GI symptoms (diarrhea and no appetite) since about two weeks into radiation treatment, although a probiotic has helped. And I most definitely DO eat less - probably two meals a day, instead of three, and much less in the way of…
Laparascopic hysterectomy NOT associated with increased risk of recurrence
Just in case anyone was worrying about this, I happened to speak with my gyn-onc surgeon today, and she told me that there definitely is NOT evidence of increased risk of recurrence of endometrial cancer with laparascopic hysterectomy. I had contacted her about sending her a cervical cancer patient, but I wanted to know…
Carol Werner's Passing "Pinky"
Dear Ladies: I just wanted to let you know that Pinky a/k/a Carol Werner passed away on Saturday, April 27th. You can see her obituary under Google as Carol Werner obituary under Schenectady, NY. I will always remember her as a good friend on the Uterine Board website. Cheerful a/k/a Jane
Thinking of you KatnHat
It has been almost two months from when we heard from you dear! I hope you are doing ok.
Sandwich Treatment
I had debulking surgery on April 19 for my recurrence. My surgeons removed the vaginal lesion along with a lesion that was initially thought to be on the liver but instead was on the membrane that covered the diaphragm. The PET scan that I had on 2/14 detected these two lit up areas and the CT scan only saw the one on the…
Will my eyebrows grow back? (Recap of Lost Posts, Topic Created by zsazsa1 on Jan 26, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Jan 26, 2019 - 7:24 pm I know it's a little thing, and kind of silly when I'm looking at the big picture of trying to survive UPSC/clear cell cancer. But now, after 4 rounds of chemo, my previously heavy eyebrows are finally…
Anyone with advice on travel insurance when you have cancer?
I am hoping to travel (a lot!) outside the US after I recover from treatment, which is almost done! In the past, I have often bought travel insurance. But now, I'm not sure that I would qualify, what with the recent cancer, and still receiving Herceptin. I have often gotten AXA travel insurance plans in the past. Anyone…
Sometimes, life is not only about cancer
I can remember when Uterine cancer was all that I could attend to. After all, my gyn onc thought I would have a life-threatening recurrence. Well, by God’s grace, I never did and I am still alive and healthy after being diagnosed with stage 3a Serous Uterine carcinoma 5.5 years ago. The last two months of my life have…
Normal CA125 and recurrence
Hi all. Okay, so in September 2018 I got the lovely diagnosis UPSC stage 4. Did 3 taxol/carboplatine, it luckily worked, so surgery on dec 27th and finished of with 3 times chemo. Ended chemo on feb 27th Then on the day of my cat scan, march 20th. I got this excruciating pain in my abdomen . I went ahead with the scan, as…
Hyperbarics oxygen
hello ladies, just wondering have any of you been referred to or heard of Hyperbarics oxygen treatment for after effects of radiation? I have been dx with radiation cystitis and pelvic radiation disease. I know nothing about this intervention. My quality of life has suffered greatly since radiation and it only gets worse.…
Information on the Uterine Board Content Lost in CSN Outage - Updated 5/2/2019
Updated 5/2/2019 Members' Personal Information: Please be aware that CSN lost all the content that had been submitted by site members after October 29, 2018 to January 30, 2019. You may also find that some of your personal information, such as email address, has been changed or is missing. CSN recommends that you check…
Admitted vs. Observation on Medicare
I had no idea the ramifications of being put under "Observation" rather than actually "Admitted" to the hospital. This is timely and crucial, and horrible for a family and cancer patient to be put through, made even worse by the fact that the father is an MD as is his son.…
Mental attitude? and some humor about the weather (Recap of Lost Posts, Topic Created by Ribbons on
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Jan 13, 2019 - 12:00 pm I'm not sure what the explanation is, but now after my 4th treatment, I felt better quicker. I posted on here about how I didn't know if I could do all 6 treatments and how this 4th one was harder,…
Just wanted to share, CA-125 (Recap of Lost Posts, Topic Created by Ribbons on Jan 05, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Jan 05, 2019 - 6:49 pm Had my 4th round of chemo yesterday, scheduled for 6 of carbo/taxol. So far I have not had too hard of a time, mostly weak and tired feeling. Today is what I call my Dex/steroid day. I get a high dose…
How many did less chemo than scheduled? (Recap of Lost Posts, Topic Created by Ribbons on Jan 09, 20
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Jan 09, 2019 - 2:50 pm Just finished round 4 of 6 scheduled Carbo/taxol, I was stage 1A but clear cell. I am considering doing only one more round of chemo, for a total of 5. Just wondered about opinions on this. I am also…
Recurrence Symptoms
Hello fellow members...hoping everyone is staying strong, and well. It has been sometime since my last posting. I have a question and hoping to get some insight. I was wondering what are the recurrence symptoms of endometrial cancer. I have been experiencing pain and burning sensations up in my vaginal canal area, same…

Uterine/Endometrial Cancer

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