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Uterine/Endometrial Cancer

Re: Good news regarding my tests
Hi Ladies: I just wanted to post some Good news. I had a second reoccurence of UPSC in the fall of 2016. I was originally diagnosed with stage 1 of UPSC in February of 2011. I only had an 18% chance of it reoccurring on me which is very very low odds of a reoccurrence with stage 1. My oncologist has been sending me for…
Minimally Invasive versus Abdominal Radical Hysterectomy for Cervical Cancer
I posted this on the Gyn Cancer board for cervical cancer, but I thought you woud all find it interesting as well. The below study was known as the LACC Trial, Laparoscopic Approach to Cervical Cancer. As scary as it is finding that you have cancer, be sure to ask your gynecologic oncologist (and that is the specialist you…
How to manage radiation-induced diarrhea?
Well, it's begun, and I can only assume it's going to get worse. I'm trying to eat white rice, white potato without the skin, and meat/eggs. Any other recommendations for what I can/cannot eat? I already know that I should avoid fiber.
MD Anderson
Hello All, My mother is experiencing a recurrence of her UPSC (originally stage 1a with no adjuvant therapy recommended after radical hysterectomy). Fourteen months after surgery, her CA125 jumped to 240 and the resulting pet scan showed widespread metastasis to multiple lymph nodes, mostly around her lungs, and nodules to…
Pten gene mutation article-really interesting
As you can see i've been reading the NYtimes this am and came across another really thought provoking article to share. https://www.nytimes.com/2019/05/17/health/gene-mutation-cancer.html?action=click&module=Well&pgtype=Homepage&section=Health What caught my attention is how impossible it may be to eat enough of our…
How low did your CBC go with external radiation?
I finished 6 rounds of chemo March 1st. I finished external radiation (IMRT to the pelvis) June 6th. I'm still on Herceptin. Three weeks ago, my white count was low, at 4.0, my hemoglobin was low, at 10.2, and my platelets were in the low 80s. But today, three weeks later, everything was lower! My white count was 2.6,…
Carboplatin only for chemo for 1a grade 3 undifferentiated cancer
Hi I was recently diagnosed with a State 1a and Grade 3 undifferentiated endometrial carcinoma. I had a total hysterectomy and will soon begin chemo. Because I already have some very mild neuropathy and balance/gait issues associated with cervical stenosis, my onc felt the risk of falls/gait problems wasn't worth the…
Hysterscopy
After I had this procedure done which was to remove polyp and get biopsy.The doctor told me there wasn’t a polyp but other test showed polyp or endometrial mass. So I was confused. Has this happen to anyone else?
D&C and hysterscopy
I am going to have my procedure done on Thursday and I just started my cycle today will they still do it?I hope I don’t have to reschedule I waited long time.
3 years
I was in getting a mamagram on Friday. The technistion asked me about when was my last period. Accually she just wanted to know what decade. It made me think. It was 3 years ago just before mothers day that i was having my hysterectomy. I was in the hospital for mothers day. Sometimes 3 years ago seems so far a way and yet…
Test results. What does "not identified" mean?
I had a radical hysterectomy on April 15. I got some test results, although I'm supposed to wait for final results to discuss with my gyno oncol. I'm just trying to make sense of some of the reults and a lot of the lines have "not identified." Tumor site: endometrium, less than 1cm in diameter, on posterior wall, close to…
I bought some CBD oil
A few of the ladies here at our 55+ community here in Florida are using the CBD oil or cream for everything from sciatica, arthritis, insomnia, and shoulder pain AND, they all report it's working! So, I got the name of the place they bought theirs at and went there this afternoon. The lady behind the counter at the…
How long after your Hysterectomy did you have your 1st Brachytherapy
For the women who only had Brachytherapy, how long was it from your surgery to your first Brachy? I had my Brachy exactly 11 weeks post surgery I’m wondering if I had waited to long for it be effective
Frustrated
Just want to vent! It’s always something, isn’t it? Although my cancer is currently in remission due to Megace, I’ve suffered varying amount but constant pain due to the need for a renal stent because of a blockage of my right ureter probably due to radiation damage. My urologist had finally agreed to do a surgery to fix…
How do you get help from the “site administrator”
Hello Ladies, Wishing you all the best. I have tried repeatedly to send a message via CSN e-mail and each time it “fails to go through”. The message I repeatedly receive is to contact the site administrator, yet there is no instruction on how to do that. Can anyone here help me? Thanks, Cathy
Uterine lining
Is 11.2 mm considered thick for 45 year old premenopausal?
Update on my mother´s mmmt - Recurrence, spread and bad perspective
Dear ladies, I have to say that even if I don´t write in a while I keep on reading many of your posts and I´ve noticed that many of you keep active on writing just to support others. I can just say thank you all for that involvement and commttment with us. I cannot speak for others but for me it has been one of the major…
Endometrial Cancer and Breast Cancer - Is there a link?
Hello Ladies... Happy Tuesday... I'm off to the gyno this afternoon to discuss symptoms I have been having for the last 6 weeks, only in my left breast, and now it is consistent on a daily basis. Burning, stabbing pain and sometimes itchy. My last mamo, was August 2018, and was negative, however I was encouraged to get a…
Very low blood platelets
I joined in April and posted as a "newbie" in mid-May. Diagnosed stage 1a, Grade 3 Serous in Nov 2018, hysterectomy Christmas eve, followed by 3 brachy radiation treatments, then scheduled for 6 treats of Carboplatin and Taxol. Completed 3 and had some neuropathy and louder tinnitus, small amout of hearing loss. Guess we…
Recurrence of Post menopausal bleeding
So beginning Thanksgiving weekend I had a several week bout of PMB. Saw my primary care doc right away. She sent me off after an exam for a transvaginal ultrasound and a referral for an ob/gun. Ultrasound showed thick uterine lining and enlarged uterus. Saw the ob/gyn doc in December and she suggested a hysteroscopy, polyp…
Cancer and Sleep Article
Read this in the NYTimes today and thought others might find it interesting. https://www.nytimes.com/2019/05/16/well/live/cancer-sleep-ambien.html?action=click&module=Discovery&pgtype=Homepage
Promising Article for Those with Lynch
https://www.cancer.gov/news-events/cancer-currents-blog/2019/vaccine-prevents-colorectal-lynch-syndrome Who knows? We may get to see even more huge forward steps in the cancer fight in our lifetime! We can certainly hope!
Another bit of promising drugs news for recurrent/advanced
It was a small study, but the results are pretty exciting: 30% response rate in recurrent/advanced disease, 49% in MSI-H tumors. Even better, the rates of adverse side effects were lower than other good-news research reported on recently. The drug is Dostarlimab, a checkpoint inhibitor. Here are the details: Potential Game…
Blood counts suppressed by pelvic external beam radiation tx?
I'm almost done with pelvic external beam IMRT, just one more treatment to go. Today I was in for Herceptin, and they did a CBC, Chem 20, and Ca-125 before my infusion. All that came back before I left was the CBC. I was very surprised to see that my platelet count, which had been low from chemo, but had always bounced…
Can uterine biopsy detect cancer from 2 samples?
Possible DES Daughter (dr didn't have records to validate or not) with recent uterine symptoms. Annual is 6 weeks out. Last uterine biopsy was over five years ago. Can a biopsy of two pieces of uterine tissue be enough to find cancer cells?
UPSC survivors
Hi all. Secons post ;) 7 months ago, I got diagnoses with UPSC stage 4.... didn’t realize how serious serous cancer was, for quite some time. It dawnes on my, as i made the connection between serous and UPSC.... Stage 4 because it spread to distant lymph nodes.. I could be facing a reccurance already now, before first line…
weight loss during and after pelvic external beam radiation
I've lost about ten pounds in 5 and a half weeks, with radiation treatment. I've had bad GI symptoms (diarrhea and no appetite) since about two weeks into radiation treatment, although a probiotic has helped. And I most definitely DO eat less - probably two meals a day, instead of three, and much less in the way of…
Laparascopic hysterectomy NOT associated with increased risk of recurrence
Just in case anyone was worrying about this, I happened to speak with my gyn-onc surgeon today, and she told me that there definitely is NOT evidence of increased risk of recurrence of endometrial cancer with laparascopic hysterectomy. I had contacted her about sending her a cervical cancer patient, but I wanted to know…
Carol Werner's Passing "Pinky"
Dear Ladies: I just wanted to let you know that Pinky a/k/a Carol Werner passed away on Saturday, April 27th. You can see her obituary under Google as Carol Werner obituary under Schenectady, NY. I will always remember her as a good friend on the Uterine Board website. Cheerful a/k/a Jane
Thinking of you KatnHat
It has been almost two months from when we heard from you dear! I hope you are doing ok.

Uterine/Endometrial Cancer

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