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Food Study at M D Anderson Cancer Center
I just got a questionnare from U T MD Anderson in Houston where I am being treated. It looks like they are studying my entire food history. My experience there is they take alternative medicine seriously. This study is being done by their Department of Epidemiology. I am so glad they are focusing on this important aspect…
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Half way thru my chemo and will begin radiation after the last treatment - Uterine Carcinosarcoma
My third chemo treatment is Wednesday Jan 5th, my 4th treatment is Jan 26 and my 5th is February 16 and the last one is March 16th. I learned today though that I am to undergo radiation after my last chemo treatment. Radiation will be 5 days a week (weekends off) for 5 to 6 weeks. My rare uterine Carcinosarcoma is an…
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How to handle summertime sunshine/tanning/vacations and self tanners after cancer treatment
Ladies, Just wondering. Once we have completed treatments, chemo and radiation,etc., how much sun is safe? Do we need to avoid sun, or wear high sunblock? What about vacations to tropical places? I know Linda has gone on a couple of vacations, do you lay in the sun, or seek cover, and wear sunscreen? Also the pelvic…
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waiting for final diagnosis on UPSC--preliminary diagnosis stage IVB
My sister, 64, was recently given a "drive-by" diagnosis of UPSC stage IVB by the nurse of the gyn/onc who did her LAVH. This came as quite a shock not only because of the cavalier delivery, again, by his nurse and over the phone, but also because before the operation the doctor thought it might be early stage as she had…
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Ro This is for You
Dear Ro, I could tell from your words that this chemo session is harder on you. If the ativan did not help you sleep there are other sleep aids. I took ambien and it worked well for me; I never had side effects. I took an antidepressant for a while and my daughters thought I did so much better on this. Now I take cymbalta…
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Survivor are up in USA NY Times today
New York Times Cancer Survivors increase in US. http://www.nytimes.com/2011/03/11/health/11cancer.html?_r=1&hp Sara
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Where do recurrences come from in early stage CA?
I never really thought about this until recently when my little mind wandered into that dark place. There have been several women here who have had recurrences when their initial dx was early stage, low grade cancer. Helen's was "only" hyperplasia! My gyn onc explained that the reason I have the smears is to check for…
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iv vitamin c 40-60grams
sisters, i've been perusing the ovarian cancer site and came across some very interesting information re: high dose iv vitamin c. of course, no studies on it, but there does seem to be renewed interest. apparently, they say taking oral vitamin c doesn't do it, has to be iv. a couple of the women have had good success with…
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radical hysterectomy voiding problems
hi everyone i was diagnose cervical cancer feb 9 . i had radical hysterectomy feb 28.. after 1week my catheter pull out coz im recovery stage.. but my problem is after pull out the catheter i cant feel the sensation of my bladder i cant voiding urination.. the dr said im waiting after 1 month 0r 2 month to recovery to my…
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Just diagnosed with recurrent endometrial adenocarcinoma
Maybe I should wait to write, but I feel a need to connect. Two years ago I had a complete hysterectomy due to endometrial cancer. Was told it was found in early stage, no invasion of cervix, clean lymph nodes. Now, doctoring because of leg pain from a fall last spring, a spinal MRI shows enlarged lymph nodes in my abdomen…
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Lifestyle changes to change "the terrain" as a cancer preventative
As per the book Anti Cancer as mentioned in the other posts the most important things we can do for ourselves in addition to conventional treatment is: Eat a healthy diet. Exercise everyday. Find ways to find emotional peace and serenity-(meditation, yoga, or doing things you enjoy).
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has anyone had carbo/gemzar for their first recurrence, and if so, how hav you fared?
sisters, i expect to be having chemo either on the 11th march or 18th, and will be on one cycle of carbo/gemzar together for first infusion, then gemzar alone for second the following week, then third week off. and so on for 6 cycles. my doctor said it was fine to take vitamins during chemo, plus this great, organic…
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FIGO rating system
Thanks to all who posted about the FIGO system. I go to the oncologist on the eleventh. I go from feeling I'm gonna die sooner than I would think I would to I'm gonna kick cancers A--. Hopefully before it kicks mine. Hang in there Sisters! Debbie
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Vaginal Radiation (high dose brachytx) for grade 3 , stage 1 endometrial adenocarcinoma-am anxious
Hi I'm new to the site...referred by a friend. I had hysterectomy in Dec for grade 3, endometrial adenocarcinoma, with 40%invasion into uterine wall and positive for lymphatic space invasion. Due to errors in initial path reports I had a second surgery in January to do lymph node dissection which was negative. Although…
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Linda how was your trip to Dominican Republic with your son?
Hi, I just arrived in NY (from Israel) now that I am 'dancing with NED', also my Hemoglob made 10, I am on Megace so Hemotologist said I should give myself premeasured shot of Clexane to mitigate possible thrombosis from long flight-9-10 hours. All fine and weather not so cold and snow all melted. Have tickets to two…
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causes of CA 125 going up, a little frightened
I'm new here and a little scared but was diagnosed in 11/09, had the hysterectomy and radiation. I have been out of chemo since April 2010, had a rise of the CA 125 from my level of 13 to 22, I also now have some lymphedema in my right leg. which was first thought to be left over neuropathy after chemo. I was due for a cat…
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Multiple types of cancer and radical hysterectomy side effects
I was diagnosed with endometrial, cervical and uterine cancer. I was told post op that the endometrial spread to my cervix but that the uterine cancer was not connected to that cancer. I was told I had 2 different types of cancer and the uterine cancer was completely separate from the endometrial, is this normal? Also…
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FIGO 1/111
Hi Kathy, thanks for posting. I had a biopsy in the Doctors office because of bleeding and some pain in the right side. He sent me for a transvaginal ultrasound. I see the oncologist on 3-11. The FIGO 1/111 was a term on the biopsy report. Thanks, Debbie
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MAGGIE: had to let you know that Avastin/Cytoxin is almost like a chemo break!
Maggie: I know how much you DREAD being on chemo. So I wanted to let you know that the Avastin/Cytoxin I've been on the last 2 weeks has been almost like being on a chemo break. I feel GREAT! I can't even tell I'm getting chemo. I've only had 2 Avastin infusions and take a 50 mg Cytoxin pill daily and so far NO side…
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GCF has new name, website, etc
Picked this up on Twitter this morning.... Gynecologic Cancer Foundation Effective on Tuesday, March 1, 2011, the Gynecologic Cancer Foundation (GCF) has changed its name to the Foundation for Women's Cancer. A new Facebook page has been created (https://www.facebook.com/pages/Foundation-for-Womens-Cancer/190565747650540)…
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Dr. Weil & Dr. Oz
I don't know if anyone watched Dr. Oz last night but he had Dr. Weil on his show. Dr. Weil talked about Astragalus and that it could be used during chemo to limit damage to bone marrow and increase immunity. Just thought I would share this. It would be something you would want to check with your doctor before trying. Check…
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Had number 1 chemo for recurrence on Tuesday
Had my first Taxol/Carbo for my recurrence. Really chemo number 7 which I will receive every 3 weeks. My CA 125 went from 1510 two weeks ago to 1740, so I am confident it was time to start the treatment again. I remain asymptomatic. My HGB and WBC look very good, so I should do well again with the treatment. It was a very…
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High dose chemo with bone marrow (stem cell) transplant
Hello, Has anyone had experience or read anything about treating UPSC with high dose chemo and bone marrow (stem cell) transplant? A friend was telling me that somebody she knows had this for recurrent, metatastic, resistant Ovarian and it worked. I think it's a harsh and horrible treatment but she got through it. I can'…
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Gyno-Onco realeased me to Gyn & Primary
Saw my gyno-onco yesterday for my 6 wk f/u after 1/12/11 surgery & was released into the care of my gyn & primary. Said vaginal cuff healing fine. I lost 42 lbs. already (yippee), 10 of those were lost the week leading up to surgery. I really feel great, you can hardly see the 5 laproscopic holes. My sugar levels are…
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who has worked outside home while on chemo--your experience??
hi sisters, i'm wondering how many of us have been able to work outside the home during chemo, and what that experience was like? were you able to work through the entire chemo, one week a cycle? two weeks? etc. please let me know how you fared/are faring? sisterhood, maggie
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Anyone heard from Bea-Mil?
It's as if she dropped off the earth. Know some of us have contact with others off our message board, and wondering if anyone has news? Just wanted to post as thought of her today.... Jan
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Iron levels on low acidity diet and mum's upsc update
Hi all, Just wondering how you ladies go about getting enough iron when you are on the low acidity diet (i.e. no meat etc)? My mum and I are both doing the alkaline diet and I was told by a previous cancer patient that their levels dropped so low they had to start eating red meat again - which is very acidic!!! Also as an…
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Linda, how are you doing?
It's been a week since you started on your new protocol and we haven't heard a peep from you. Please let us know how you are. Suzanne
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Very upset about doctor's comments, would welcome input
I'm going a little nuts this week and welcome any input about my mom's situation. I'll try to be brief: My 78 yr old mother was diagnosed with UPSC in 2008 and over next 2 years: * had total hysterectomy, received 6 wks radiation, carbo/taxol and brachytherapy. * Had small metastatic liver tumor removed * 6 more weeks of…
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CA125 and fresh raw juices during chemo
Hi, I was just wondering whether people could tell me what their CA125 was after each chemo round (particularly those with UPSC)? Mums has gone from 10 (pre surgery), 100 (post surgery), 70 (after first chemo), and now 53 (after second chemo). The doctor said it wasn't dropping as fast as he would have liked so I would…