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Uterine/Endometrial Cancer

Restarted Chemo after vaginal cuff revision
Hello all, Just started on round 2 of chemo yesterday, 2 weeks and 2 days after vaginal cuff revision. The Doc checked his stitches up in there and said they are holding, and the tissue is good and pink. No problems with nausea from the chemo, but I'm still worried about that CA-125 score. Its 202. They are still saying at…
Hoping for some treatment updates from Maggie, Connie, Diane, others.....
Seems like some of our favorite ladies here have been quiet about what's going on with them. I'm not trying to pry, but please know that I pop in here primarily to see how you ladies are getting on. Know that I am thinking of you and rooting for you and really am interested in what your oncologists are telling you and…
Hi Ladies!
It's been a bit since I've checked in. My heart breaks for all of the new participants, as well as for the ladies I recognize who are continuing the battle! I am uplifted at the high fighting spirits, and feel the warmth of a true hug from those with words of support. You are all amazing women! I just hit my 2 year post…
stick to your guns--advocate for yourself
When my sister was finally diagnosed with UPSC IVB (after almost a year of CT's, PET's, MRI's and general incompetency) I realized that although she was asymptomatic, I had a few of the symptoms. I decided to check in with my gyn and ask for a more thorough exam to address my concerns. First I had to speak to her nurse…
Trends-We could do our own study based on those of us on these boards
I was thinking perhaps we could start a study of our own based on all of us here. We could track some history. I would be willing to do a spreadsheet and report back the trends. Date diagnosed Stage and grade Surgery and treatment protocol Status: NED, recurrence or in treatment Food habits prior to diagnosis Food habits…
upsc stage III or IV--how many CT scans have you had
My sister, who is stage IVB, just finished her third carbo/taxol treatment. Originally her oncologist said she would follow up with a CT scan to see if the chemo was working. (I understand this is pretty much standard to do a scan and CA125 test midsteam). Yesterday however, the doctor said she thinks it would be best to…
Metastasis to the liver and lining of the lung
Dear Sisters: My PET scan came back with a 2.5 cm tumor in the liver and small fluid in an area in the lining of the lungs. I start with many Doctors appts again and they want me to do some type of radiological procedure that sounds like Linda's. I haven't talked to those specialists yet. After that I will wait two weeks…
Tonight
Please listen to me live on the Stupid Cancer Show tonight to talk about my surviving uterine cancer. www.stupidcancer.com.
diagnosed and treatment course set at MDA, being treated locally--how to liaise?
My sister, who was diagnosed with UPSC stage IVB in February 2011, went to MDA for her diagnosis and recommendation for the course of treatment. However, she lives in Florida and had to come back here for her treatment. Her local medical oncologist had a different opinion for the type of chemo to be delivered (we think it…
Help from a nurse, please
I have previously posted with my history under "I am feeling lost". I have come across some questions that maybe could be answered by some of the nurses on here. Can a D&C be performed after an endometrial ablation? What can a hysterosonogram show that a transvaginal ultrasound doesn't?
CT/PET scan results & the beginnings of a new plan: radioembolism
Well, I had one of those long deep heart-to-heart meetings with my chemo oncologist yesterday to review Monday's CT/PET scan results and try and come up with a new strategy. The GOOD news of the scan is that the cancer hasn't invaded any new organs. The bad news is that my liver mets have really taken off in the last 2…
6 weeks post Davinci Hysterectomy, needed vaginal cuff revision
Hello all, I wondered if this had happened to anyone else. 6 weeks post hysterectomy, woke up one morning with fluid leaking, went back to the emergency room and was found to have a centimeter sized hole in vaginal cuff. The next day I was taken back to the O. R. to have it sewn back up. It seems this is a sometimes…
High Enzyme Levels and Chemo
My alkaline phosphatase level is 228, and I am getting chemo, Taxol and Carboplatin. Also my ALT is 50 and AST is 40. All these enzymes were fine last week, before I had a shoot of Neulasta. My oncologist requested an ultrasound to make sure there are not gallbladder stones or anything else. Can Neulasta be causing the…
Pneumonia/ Abdominal Inflammation
My Mom is still in the hospital. I had posted in another thread that I have been reporting to Oncology nurse last week about her fever / cough. We ended up in the ER Saturday night for pneumonia. She hasn't been eating well at all, very nauseated for some reason which is very unusual - her last chemo was over 2 weeks ago.…
Radiation and Red Wine
I read a blurb in Newsweek (May 23 & 30, 2011) that I thought was encouraging. I hope it's all right if I quote it: "A compound in red wine helps prevent death from radiation, according to a new study from researchers at the University of Pittsburg. Resveratrol, already celebrated as an antioxidant, was shown to prevent…
anyone NOT finished the six chemos usually prescribed?
I've had three rounds of carbo/taxol, then 28 external radiation and now have had one chemo of the second round (4 total). Having a really hard time with fatigue, no energy, little appetite, etc. Diagnosed in Sept. 2010 with stage III-C with 3 of 21 lymph nodes showing cancer cells. Quality of life is getting to be very…
Long-term brachytherapy side effects?
I was wondering whether any of the women here who had vaginal brachytherapy as their only radiation treatment have suffered any long-term side effects? I finished treatment in December '08 and still have minor bowel problems: when I have to go, I have to go NOW; if I eat too many raw greens (large salads, kale; I eat…
Weakness - Uterine Cancer Chemo Treatment - Blood Transfusion
HI All, My Mom has Type II Uterine cancer - clear cell carcinoma with serous cells. She was diagnosed at stage 1B. Her treatment regiment is 6 treatments of carboplatin/taxol. She has finished 2 of 6. The 2nd one has taken it's toll on her. She has been really, really weak. She went in last week for fluids, and we went in…
x-rays, ct scans, radiation - the hidden dangers
Just came across this article via a twitter feed. We worry about how often and how much we're exposed, but invidual competencies, calibrations, etc., tend to be taken for granted. As if we don't have enough issues to worry about! But it does offer a heads-up of potential issues to be aware of.... nprnews Reporting On:…
WHY brachytherapy as WELL as external pelvic radiation?
Dear All, Diagnosed with stage IB uterine cancer six months ago, I was originally told I'd need "sandwich treatment: three rounds of carbo/taxol; 25 sessions of IMRT pelvic radiation sessions; three brachytherapy treatments three final rounds of carbo/taxol. Three weeks through the pelvic radiation (with no adverse…
Clnical Trial Question -- Lapatinib and MK-2206
Hi all, I was wondering if anyone on these boards has had experience with lapatinib combined with MK-2206. I started this trial two weeks ago and have had some very bad side effects: extreme fatigue and fevers that kept me in bed for four days, nauseau and loss of appetite resulting in rapid weight loss, stomach pain, and…
Stupid Cancer Show
Hi all: I am traveling to New York City to appear on the "Stupid Cancer Radio Show." I am being interviewed as a Uterine Cancer Survivor. It will be on internet radio on Monday, May 23rd @ 8:00 p.m. and it will also be live-streamed. I am very excited to get the word out and educate people about UPSC. If you can't listen…
CA125 is 2099! Time for a new CT/PET and a change in chemo drugs. :(
There's nothing I can even ask the Board here; it is what it is. But I wanted to share my news anyway, since my CA125 number will surely make the rest of you at least feel better about YOUR number if it's up there at all. My CA125 went up from a scary 1600 from my labs 2 weeks ago, to an even scarier 2099 on Tuesday's…
Uterine Stage 1B Clear Cell/Serous - Neuropathy
Hello Everyone, I am reaching out to for my Mom who was diagnosed with Stage 1B Uterine cancer. Her pathology showed clear cell and serous cells. She had a full hysterecotomy - lymph nodes, washings all were clear. This is the good news! Her Dr suggested a 6 treatment as a preventative of Taxol and Carboplatin. She just…
When discouraged, .....
Hi Ladies, As we deal with all that is sent our way, it's hard not to panic sometimes and think all is lost. I just received this email from a good friend. It resonates with me and I couldn't resist sharing. I've been there and it give some good food for thought". Blessings to all who are depressed that their hut has…
Pelvic lymphedema
Has anyone had the onset of pelvic lymphedema a year after hysterectomy?
CA 125 going up
CA 125 going up Well, My CA 125 has been slowly going up and I am scheduled for PET scan. I was just enjoying being off chemo so much and I've got plans for the wedding going great guns. I planted my flowers for two weekends and felt so good to finally get in the dirt. I reveled in spring and feeling well. I found out…
Tamoxifen
Diane and Annie and anyone else: Do you believe your cancer was a side effect of Tamoxifen? Were your docs doing routine ultrasounds to check the lining of your uterus? Since I got both breast and endometrial cancers at the same time, it certainly didn't play a role in my case. I have also been told by those white coated…
Chemo number 4 (10) -----Day 1
Today I got the Taxol. Another long day. Lab at 7:45. MY port would not not flush so I had to get a chest x-ray to make sure the port was still okay. It was fine so the put activase in it to open it up. It worked fine for chemo. I had to have a stick in the arm for lab, but she was very good and I did not even feel it. Met…
New here, just introducing myself
Hi everyone, This looks like it's still an active board, so I thought I would join and "meet" a few friends in similar circumstances. I haven't had any luck finding a local face-to-face group yet. I was diagnosed with grade 1 endometrial cancer on Monday of this week, spent Tuesday in our big teaching hospital's…

Uterine/Endometrial Cancer

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