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Uterine/Endometrial Cancer

anyone NOT finished the six chemos usually prescribed?
I've had three rounds of carbo/taxol, then 28 external radiation and now have had one chemo of the second round (4 total). Having a really hard time with fatigue, no energy, little appetite, etc. Diagnosed in Sept. 2010 with stage III-C with 3 of 21 lymph nodes showing cancer cells. Quality of life is getting to be very…
Long-term brachytherapy side effects?
I was wondering whether any of the women here who had vaginal brachytherapy as their only radiation treatment have suffered any long-term side effects? I finished treatment in December '08 and still have minor bowel problems: when I have to go, I have to go NOW; if I eat too many raw greens (large salads, kale; I eat…
Weakness - Uterine Cancer Chemo Treatment - Blood Transfusion
HI All, My Mom has Type II Uterine cancer - clear cell carcinoma with serous cells. She was diagnosed at stage 1B. Her treatment regiment is 6 treatments of carboplatin/taxol. She has finished 2 of 6. The 2nd one has taken it's toll on her. She has been really, really weak. She went in last week for fluids, and we went in…
x-rays, ct scans, radiation - the hidden dangers
Just came across this article via a twitter feed. We worry about how often and how much we're exposed, but invidual competencies, calibrations, etc., tend to be taken for granted. As if we don't have enough issues to worry about! But it does offer a heads-up of potential issues to be aware of.... nprnews Reporting On:…
WHY brachytherapy as WELL as external pelvic radiation?
Dear All, Diagnosed with stage IB uterine cancer six months ago, I was originally told I'd need "sandwich treatment: three rounds of carbo/taxol; 25 sessions of IMRT pelvic radiation sessions; three brachytherapy treatments three final rounds of carbo/taxol. Three weeks through the pelvic radiation (with no adverse…
Clnical Trial Question -- Lapatinib and MK-2206
Hi all, I was wondering if anyone on these boards has had experience with lapatinib combined with MK-2206. I started this trial two weeks ago and have had some very bad side effects: extreme fatigue and fevers that kept me in bed for four days, nauseau and loss of appetite resulting in rapid weight loss, stomach pain, and…
Stupid Cancer Show
Hi all: I am traveling to New York City to appear on the "Stupid Cancer Radio Show." I am being interviewed as a Uterine Cancer Survivor. It will be on internet radio on Monday, May 23rd @ 8:00 p.m. and it will also be live-streamed. I am very excited to get the word out and educate people about UPSC. If you can't listen…
CA125 is 2099! Time for a new CT/PET and a change in chemo drugs. :(
There's nothing I can even ask the Board here; it is what it is. But I wanted to share my news anyway, since my CA125 number will surely make the rest of you at least feel better about YOUR number if it's up there at all. My CA125 went up from a scary 1600 from my labs 2 weeks ago, to an even scarier 2099 on Tuesday's…
Uterine Stage 1B Clear Cell/Serous - Neuropathy
Hello Everyone, I am reaching out to for my Mom who was diagnosed with Stage 1B Uterine cancer. Her pathology showed clear cell and serous cells. She had a full hysterecotomy - lymph nodes, washings all were clear. This is the good news! Her Dr suggested a 6 treatment as a preventative of Taxol and Carboplatin. She just…
When discouraged, .....
Hi Ladies, As we deal with all that is sent our way, it's hard not to panic sometimes and think all is lost. I just received this email from a good friend. It resonates with me and I couldn't resist sharing. I've been there and it give some good food for thought". Blessings to all who are depressed that their hut has…
Pelvic lymphedema
Has anyone had the onset of pelvic lymphedema a year after hysterectomy?
CA 125 going up
CA 125 going up Well, My CA 125 has been slowly going up and I am scheduled for PET scan. I was just enjoying being off chemo so much and I've got plans for the wedding going great guns. I planted my flowers for two weekends and felt so good to finally get in the dirt. I reveled in spring and feeling well. I found out…
Tamoxifen
Diane and Annie and anyone else: Do you believe your cancer was a side effect of Tamoxifen? Were your docs doing routine ultrasounds to check the lining of your uterus? Since I got both breast and endometrial cancers at the same time, it certainly didn't play a role in my case. I have also been told by those white coated…
Chemo number 4 (10) -----Day 1
Today I got the Taxol. Another long day. Lab at 7:45. MY port would not not flush so I had to get a chest x-ray to make sure the port was still okay. It was fine so the put activase in it to open it up. It worked fine for chemo. I had to have a stick in the arm for lab, but she was very good and I did not even feel it. Met…
New here, just introducing myself
Hi everyone, This looks like it's still an active board, so I thought I would join and "meet" a few friends in similar circumstances. I haven't had any luck finding a local face-to-face group yet. I was diagnosed with grade 1 endometrial cancer on Monday of this week, spent Tuesday in our big teaching hospital's…
Awareness or lack thereof
Were you aware of signs/symptoms of endometrial cancer? I don't know why or how, but I always knew that post menopausal bleeding was a symptom and should be reported, but I don't think anyone with a white coat ever told me anything - ever. Today I was at a meeting and chatting with a woman about my health challenges this…
Coping with no expectation of NED
I can use any feedback on this expectation. brief history typical to many of your-surgery 12/08 followed by 6 carboplatin/taxol and external radiation 6 weeks and 3 treatments of brachytherapy, all jan-july 2009. First recurrence in para-aortic lymphn nodes 5 months after this treatment ended. CT/PET in July 2010 clear…
2nd treatment
Hello all, had my second treatment of just taxol this past Thursday. All in all, not terrible. I get one more treatment of just taxol, then a week off, and then start over for round two with carbo and taxol. Was told blood work would be done at the start of round two, and then we get to see if the CA125 can find its way…
Has anyone else had 4 rounds carbo/taxol followed by radiation daily and carbo weely during radiatio
Hi everyone, Just wanted to see if anyone else has had this treatment and can give any advice? My mother is currently in her third week and is finding it very difficult. Hair is falling out (again after the taxol was out of the system), some bowel issues, fatigue. Her platelet levels have droped almost double since…
Vacation's over *sigh*
It was fun while it lasted but my chemo 'vacation' is about over. Yesterday's ca125 was 599 up from a pretty little 12 at the beginning of January. Haven't seen PET/CT report (squeaky clean in January)but briefly reviewed on phone w/NP, multiple foci in L subclavicular lymph node, plus some questionable areas in abdomen. I…
Long term survivors of stage 3 uterine cancer.
Hi, are there any long term survivors of uterine cancer stage 3 out there? I guess I'm looking for something to shoot for and hope for. Some relatives, when they heard I was stage 3 have already begun to act like I was not long for this world. I had a davinci assisted total hysterectomy on 3-28, noting an unexpected spread…
Florescent bony mass found during D&C....could it be cancer?
Hi everyone, I've tried to find some information about this on a few different sites, and I'm hoping someone might have some encouragement or some advice or information. My mother, who is 64, had been experiencing some light postmenapausal bleeding in late February, that was the only time this happened. She immediately…
How did you decide which chemo to take??
I'm on this board for my sister, DD. She has had a round of radiation and then Chemo. The newest PET scan shows that the lymphnode that was enlarged is now back again and the doctor said it is from her uterine cancer. She is totally boggled at what to do. Even though I am a retired nurse, I did not work with the cancer…
has anyone with upsc been treated with immunotherapy??
sisters, i've read that a number of women with ovarian cancer have been treated with immunotherapy. has anyone with upsc been so treated? anyone at all on this uterine cancer site been treated with immunotherapy? also wondering about hormonal therapy for upsc, or any of the other uterine/endometrial cancers. thanx, maggie
Ask for CT scan for 3 month follow up?
Hi everyone, Just quickly as an update mum is just starting radiation treatment, with cispl each week. After 4 taxol/carbo her ca125 has now dropped to 27 so we are all happy that it is within normal range! We asked about what happens after treatment and they said they just do a ca125 test and physical examination every 3…
Plan is to pick up where I left off
Had a lengthy discussion with gyn-onc regarding new issues (spike in ca125 and positive PET/CT). Bottom line is I will restart Gemzar at previous dose/schedule. It worked before so we try that route first to see response. He considers me to have tried many chemo agents as he actually counts my '93 breast cancer chemo drugs…
First chemo session on Wednesday
Hello all, I take my next steps down this scary journey on Wednesday. First session of chemo, start with a full dose of carboplatin, reduced strength taxol, then go back the next 2 weeks for more taxol, take one week off, then start again... wish me luck. Been trying to get my ducks in a row, I got a hat to wear outside,…
PARP Inhibitors for Uterine Cancers
Some cell-based assay labs have explored the biology of PARP inhibitors, alone and in combination, in actual human tumor primary culture microspeheroids (microclusters), in breast, ovarian and other cancers. In these investigations, the lab applies the functional profiling platform to understand how PARP inhibitors enhance…
First chemo session
Hello all, I had my first session today. My Doc was in the infusion room and knowing how apprehensive I've been he said "You're going to be surprised at how well this is going to go." He was right, It did go well. The nurses were absolutely great. The only glitch was that by the time we got home, even with taking the…
Linda do you have a new battle plan yet
Linda have been wondering how you are doing. Have you had your CT/PET yet? Do you have a new battle plan yet. Hope you continue to feel good and continue to enjoy each day. You remain in my thoughts and prayers. In peace and caring.

Uterine/Endometrial Cancer

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