-
Louise aka Bigman43
Louise, Have you found out why you are having such stomach pain? I think of you often. Bots
-
Newbie with recurrence
Hi all. It seems like most members on here have UPSC. I do not, I have endometrial adenocarcinoma, stage 4B. Currently receiving Taxol/Carbo chemotherapy, which is working for now. I read someone's post on here and she said she was lonely & I started crying. (I can't find the post now). In spite of having a great support…
-
I'm dancing with NED
Ladies I had to share some good news with you all. Yesterday I had a meeting with my onc. and got the results of my post surgery/chemo CT Scan. The result - NED - is the best we could have hoped for. Who knows how long this will last - onc. says chances of tumour returning are "moderate" but hard to give stats as my case…
-
Abnormal Pap
Everyone I am new here to this board, myself am 16 months post for head & neck. Yesterday my oldest daughter got her results and they were abnormal. Her gyn is going to do biopsies this week, he seems to think that it just might be an infection and wont know until he gets a closoer look. He mentioned something about…
-
Obesity in Relation to Endometrial Cancer Risk and Disease Characteristics in the Women's Health Ini
Obesity in Relation to Endometrial Cancer Risk and Disease Characteristics in the Women's Health Initiative Gynecol Oncol. 2011 Feb 15;[Epub Ahead of Print], KW Reeves, GC Carter, RJ Rodabough, D Lane, SG McNeeley, ML Stefanick, ED Paskett Abstract Although this study confirmed the relationship between obesity and…
-
What's next if chemo/radiation isn't working??
Hi Everyone, This is my first post. I've been on and off reading all of your posts and stories and wonderful words of encouragement/advice. Thank you and God bless you all. I am on this board because my mom is battling this ugly disease. Some brief background -- in Aug 2010 my mom has had a recurrence of Endometrioid…
-
LINDA--what about your treatment and latest tests results?
Dear Linda: I have been thinking about you. How is your treatment going? Did you have recent tests, scans, blood work? What are the latest results? I hope you are in NED. Best wishes. June
-
Welcome to our new discussion group!
We hope that you find this new group engaging and helpful!
-
Bowls
I am having trouble about every 3 weeks with my stomach hurting (to the point of wanting to die) and sick at stomach while empyting my colon. Has anyone had this after having 36 treatments of radiation along with chemo. My last radiation treatment was last March and this started about 3 months after my treatments. Thanks…
-
thank you all for your recommendations for aching legs
sisters, i'm going to begin taking l glutamine again, took a hot bath with epson salts and that helped, now use a heating pad, which also helps, and when all else fails i take some vicadin before i go to bed, that usually does the trick. i don't think it's restless legs or neuropathy, but who knows? aching bones is a known…
-
Colloidal silver
While we are on the 'alternative' subject has anyone used the above?
-
Did you need to permanently change diet after IMRT pelvic radiation?
One of my concerns about IMRT pelvic radiation is the possible need to stop eating healthy foods--whole grains and vegetables in particular. These are the very foods that, according to many books on nutrition and cancer, help us to fight the disease. So could I hear from any of you who did--or did not--have to permanently…
-
had my first chemo (gemzar and carbo) for first recurrence today
sisters, just returned from my first chemo for first recurrence today--at the doctor's for 6 hours. regimen is first friday both gemzar and carbo, second friday just gemzar, third friday off, then starts all over following friday. so far i'm feeling pretty good--they sent me home with a fanny-type pack with a bag in it of…
-
Encouraging results from first session of Taxol/Carbo
My CA 125 dropped from 1740 to 1510. The doctor thought it would take at least two sessions to see a drop. So I am very encouraged by this drop already. I had already seen the doctor in the morning, and did not get the results until the afternoon, so I don't know what his thoughts are. My other labs continue to look very…
-
RO--HYDRATION BAG CONTENTS
hi ro, just returned from my second chemo--10 more to go; this is what they put in my hydration bag this time: bag 150 ml with saline, 4 mg ativan, 4 mg decadron, 50 mg benadryl. seems to do the trick. no chemo now for almost two weeks. i was so hoping to be able to go back to work after the 3rd week, but now i'm not so…
-
Radiation Treatment YES or NO
Hello everyone, I’m waiting for the radiation, and I’m still not sure if I should do it? I’m so against consciously harming my body (this is how I perceive this treatment) and I don’t really believe that radiation can do any good. It is so hard to make this decision. But I’m too scared not to do it. One day I say no,…
-
intermediate grade 1C cancer--what treatment is best?
no lymph node involvement --radical surgery 1 month ago invaded 3/5 of the uterine wall- but did not get out what treatment is best? would it not be best just to watch and only have radiation - if there were signs or symptoms later
-
AFTER 6 MONTHS POST OP FOUND OUT THAT IS WAS "MMMT" CANCER.
Hi: Guys, Can you believe this, its only now I have found out from my Chemo Doc that this was the cancer I had. I initially thought that endo cancer was endo cancer I did not know that there were serious other types. i am not good at speaking up with the Doctors. Any way, my recent blood work is still very good. (ca125 is…
-
WENT FOR ONE YEAR C-UP. DOC NO SCAN EVEN THOUGH I AM STILL HAVING ROVING PAINS IN STOMACH
Pap and pelvic exam no results one week ago. So I guess everything is okay. I mentioned to him that I have some belly pains and he said he would prefer not to do scan now. He examined me, my neck, abdomen and under arm. He said only if I find the pains most uncomfortable I should come and see him. So I am scheduled for…
-
constant nausea/weight loss
My mother was diagnosed approx 14 mos agow/ endometrial cancer. Feb 2010 she had a radical hyster w/ removal of omentum. Cancer Stage 3A... confined to uterus & left fallop tube. Surgeon felt optimistic cancer gone.She failed to recover properly. Within approx 3 weeks postop ended up back in hospital & found malnutrition,…
-
CA-125 Marker, Changes to FIGO staging & color of Endometrial Cancer Ribbon ETC.
Does anyone have an opinion on why CA-125 tumor marker is used for gauging Ovarian & UPSC recurrences & not so much endometrial cancer? When did the FIGO staging change, what year? It seems like at first FIGO was staged very aggressively & recently the stages are lower grade. Does that mean cancers today are staged/graded…
-
Laughing at myself
I've been photographing the return of my hair and decided the other day that I looked like a dandeion, so while out walking, I picked a dandelion, and had my husband take a picture of the two of us. The picture is on my expressions page. I think there is a definite resemblance. Enjoy. Suzanne
-
Baking Soda (Bicarbonate) & Maple Syrup Cancer Treatment
Has anyone tried this or read about any adverse effects? Thanks Tali
-
ro: addendum to hydration bad
it occurred to me that your doctor's office probably doesn't have a hydration bag, with a pump that feeds all the liquid into your port. i'm wondering if you can ask them to order one for you, with two bags filled with solution and the pump, and attachments, plus fanny pack. i can imagine your insurance might pay for it.…
-
Can we join our joint demographics?
There are posted commonalities for ladies like us for likely hood of risk factors... Are there others not yet known or seemingly not important to us at this time? Perhaps we have other factors that will pop up by us comparing? Don't know if this is an interest to anyone. My status currently: UPSC Stage 1 Grade 3 comfined…
-
vaginal discharge
Hi All, I need opinions on vaginal discharge. I am beginning to have a sticky slightly discolored odorless discharge and I was wondering if this is normal. I am approximately 2 years from my hysterectomy and a little more than 1 and 1/2 years from the end of my adjuvant chemo/xrt treatment. This discharge is similar to…
-
Proctalgia Fugex or Levator Syndrome
Ladies, a number of months ago I posted a question about any of us who might have experienced what I described as severe rectal spasms, infrequent but extremely painful lasting 30 minutes to an hour. When I say extremely painful think calling 911 type pain, take your breath away pain. I thought this might be a side effect…
-
I Don't Know What To Think Of My Oncology Appointment-Need Opinions
I was recently diagnosed with UPSC. I had a total hysterectomy and surgical staging done on Feb. 18 and received the results a week ago. I was staged at Stage 1B(by the old staging chart) and Stage 1A (by the newer staging chart)I was not told what grade tumor but think it is probably grade 3. Before surgery I had a meet…
-
Has Anyone Done Well with just Chemo and Brachytherapy?
Have just finished three rounds of taxol/carboplatin with few side effects; I feel great. But must now decide how MUCH radiation to have before my final three rounds of chemo. Second opinions in Philadelphia clash: some advocate full pelvic radiation followed by brachytherapy; two others say just brachytherapy; and even…
-
Mom NED but I have questions
Well, it has been about two months since Mom's last chemo and she had her CT and it came back clear - we were all relieved. A few weeks back she developed pain behind her left knee and had an ultrasound to check for DVT and the ultrasound was clear. She was hitting a pain scale of 8/9 out of 10 a lot. She is still in pain…