-
Awareness or lack thereof
Were you aware of signs/symptoms of endometrial cancer? I don't know why or how, but I always knew that post menopausal bleeding was a symptom and should be reported, but I don't think anyone with a white coat ever told me anything - ever. Today I was at a meeting and chatting with a woman about my health challenges this…
-
Coping with no expectation of NED
I can use any feedback on this expectation. brief history typical to many of your-surgery 12/08 followed by 6 carboplatin/taxol and external radiation 6 weeks and 3 treatments of brachytherapy, all jan-july 2009. First recurrence in para-aortic lymphn nodes 5 months after this treatment ended. CT/PET in July 2010 clear…
-
2nd treatment
Hello all, had my second treatment of just taxol this past Thursday. All in all, not terrible. I get one more treatment of just taxol, then a week off, and then start over for round two with carbo and taxol. Was told blood work would be done at the start of round two, and then we get to see if the CA125 can find its way…
-
Has anyone else had 4 rounds carbo/taxol followed by radiation daily and carbo weely during radiatio
Hi everyone, Just wanted to see if anyone else has had this treatment and can give any advice? My mother is currently in her third week and is finding it very difficult. Hair is falling out (again after the taxol was out of the system), some bowel issues, fatigue. Her platelet levels have droped almost double since…
-
Vacation's over *sigh*
It was fun while it lasted but my chemo 'vacation' is about over. Yesterday's ca125 was 599 up from a pretty little 12 at the beginning of January. Haven't seen PET/CT report (squeaky clean in January)but briefly reviewed on phone w/NP, multiple foci in L subclavicular lymph node, plus some questionable areas in abdomen. I…
-
Long term survivors of stage 3 uterine cancer.
Hi, are there any long term survivors of uterine cancer stage 3 out there? I guess I'm looking for something to shoot for and hope for. Some relatives, when they heard I was stage 3 have already begun to act like I was not long for this world. I had a davinci assisted total hysterectomy on 3-28, noting an unexpected spread…
-
Florescent bony mass found during D&C....could it be cancer?
Hi everyone, I've tried to find some information about this on a few different sites, and I'm hoping someone might have some encouragement or some advice or information. My mother, who is 64, had been experiencing some light postmenapausal bleeding in late February, that was the only time this happened. She immediately…
-
How did you decide which chemo to take??
I'm on this board for my sister, DD. She has had a round of radiation and then Chemo. The newest PET scan shows that the lymphnode that was enlarged is now back again and the doctor said it is from her uterine cancer. She is totally boggled at what to do. Even though I am a retired nurse, I did not work with the cancer…
-
has anyone with upsc been treated with immunotherapy??
sisters, i've read that a number of women with ovarian cancer have been treated with immunotherapy. has anyone with upsc been so treated? anyone at all on this uterine cancer site been treated with immunotherapy? also wondering about hormonal therapy for upsc, or any of the other uterine/endometrial cancers. thanx, maggie
-
Ask for CT scan for 3 month follow up?
Hi everyone, Just quickly as an update mum is just starting radiation treatment, with cispl each week. After 4 taxol/carbo her ca125 has now dropped to 27 so we are all happy that it is within normal range! We asked about what happens after treatment and they said they just do a ca125 test and physical examination every 3…
-
Plan is to pick up where I left off
Had a lengthy discussion with gyn-onc regarding new issues (spike in ca125 and positive PET/CT). Bottom line is I will restart Gemzar at previous dose/schedule. It worked before so we try that route first to see response. He considers me to have tried many chemo agents as he actually counts my '93 breast cancer chemo drugs…
-
First chemo session on Wednesday
Hello all, I take my next steps down this scary journey on Wednesday. First session of chemo, start with a full dose of carboplatin, reduced strength taxol, then go back the next 2 weeks for more taxol, take one week off, then start again... wish me luck. Been trying to get my ducks in a row, I got a hat to wear outside,…
-
PARP Inhibitors for Uterine Cancers
Some cell-based assay labs have explored the biology of PARP inhibitors, alone and in combination, in actual human tumor primary culture microspeheroids (microclusters), in breast, ovarian and other cancers. In these investigations, the lab applies the functional profiling platform to understand how PARP inhibitors enhance…
-
First chemo session
Hello all, I had my first session today. My Doc was in the infusion room and knowing how apprehensive I've been he said "You're going to be surprised at how well this is going to go." He was right, It did go well. The nurses were absolutely great. The only glitch was that by the time we got home, even with taking the…
-
Linda do you have a new battle plan yet
Linda have been wondering how you are doing. Have you had your CT/PET yet? Do you have a new battle plan yet. Hope you continue to feel good and continue to enjoy each day. You remain in my thoughts and prayers. In peace and caring.
-
a little hopeful news in the midst of the abyss
sisterhood
-
doctor's visit today
sisters: saw the doctor today and all she sees is a 6 week set back of rest and recovery from surgery, then back to the trenches. she doubts seriously that there should be anymore bowel obstruction given the removal of the adhesions and the tape put down to discourage its growth. she's still quite confident in…
-
Creams/Lotions/ Underwear/Wardrobe for Pelvic Radiation?
Due to start external pelvic radiation this week, I was advised by an integrative doctor that calendula cream, applied after each session and before bedtime, would help to diminish radiation burns. So I am off to find it. Online I see others extolling different products that soothed their burning skin. Yet the radiation…
-
Hysterectomy recovery and energy levels
my mother will be having her hysterectomy on Good Friday and will be in the hospital through Easter. I was looking for some feedback on energy levels just after the procedure while still in the hospital. will she likely want and need to rest most of the time, or is it a boring waiting time that you want family there? I…
-
Know I shouldn't complain but Ca 125 up to 21 from 6, thought NED would last longer!
Dear all, Two month since the end of Chemo, was Dancing with NED, went to Broadway shows, touring. Now still quite anemic, white count in toilet, but all that pales against rise in Ca 125. I know that some folks here have hundred point spikes, but I thought my NED would last longer than two months. Doc unimpressed, he says…
-
Help for student with sore mouth
Hi, an 18 year old student of mine just started carbo last friday and is having mouth pain. Has that happened to anyone here? If so, what did you find helpful for the pain. I'd appreciate any info - she's very upset. Thanks, Mia
-
Maggie, how are you doing?
Maggie, It's been a while since you've posted. How are you? Is the gemzar working or is it too soon to tell? Have your leg pains decreased at all? I miss seeing you here. bots
-
For Claudia & other tumeric devotees: new federal grant for food related cancer research!
For my work I have to check the Federal Register daily to see what new federal grants were announced that day. I saw this one yesterday and saved it because it is a federal grant for research related to FOOD and CANCER. It's long & boring, & none of us are eligible to apply, but you'll be interested in the cancer-fighting…
-
Is there anyone out there with a recurrance AFTER 2.5 years cancer free
Hello, I was wondering if anyone has had a recurrance of stage 3 uterine cancer AFTER 2 and half years post treatment being clean? I guess I want to hear that we are passed the point that it would most likely come back. The doctor said usually it is in the first 2 years after treatment but I wanted to see what "real…
-
ANYONE KNOW WHAT CAN HELP ACHING LEGS?
sisters, since i've been taking gemzar, my right leg from ankle to hip as been aching and keeping me up at night. i've tried ativan, which helps a little but i can't be constantly taking that. has anyone found something that reduce the ache? it' just this knawing pain that doesn't stop. i know others have complained about…
-
Recurrences for those that have Endometrial Adenocarcinoma
Hello Everyone. I was wondering for those of you with Endometrial Adenocarcinoma, how many of you have had recurrences? My mom was diagnosed with this in Nov. 2010. It was staged 3c grade 2. She just finished 6 cycles of Taxol/Carboplatin. It was recommended for her to receive 25 radiation treatments. At this point, I…
-
CA 125 level of 208 2 weeks post surgery (one week before due to start chemo)
Hi all, I had my pre chemo blood tests and all came back great except for 1 high CA 125 level. For some reason, there wasn't a level taken in the hospital prior to surgery. I was a little shook up to see the CA 125 was 208. The nurse manager at my Doc's office said that it was possible that pre surgery it could have been…
-
pathology report
Hello all, Got my pathology report on 4-7. Stage 3, one tumor in the uterus and one in the right ovary. Both were said to be "superficial". Negative lymph gland involvement and pelvic washings were negative. I get a chemo port put in the l4th and start chemo on the 20th. One week, I get both carbo and taxol, weeks 2 and 3…
-
Good news at two month post six month chem protocol checknup
Yippee The Ca 125 went down from 21 to 13 from two months ago post chemo 6. Still anemic 9 No restrictions free to dance with NED for another two months till next testing sessions. Happy Easter and Passover to all, Sara
-
CA 125 levels w/in normal range being studied for predicitng recurrence
A few articles are out there for UPSC uterine & ovarian @ different stages discussing CA 125 rising in a certain manner for demonstrating recurrence. Question: Some doctors using 3 or more progressively rising CA-125 values doubling from a nadir (certin comparison starting CA 125) as a precautioner for cancer returning…