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Proposed Legislation for Oncology Drug shortages-
Please weigh in with your senators ! Amy Klobuchar and Bob Casey have proposed legislation to address oncology drug shoratges. If you research, you will find that there are serious ongoing oncology drug shorastges (If you are curious, there is full picture on FDA Drug Shortage website). This legislation will give early…
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Herceptin
I know this has been brought up before, but wanted to share another research article that talks about the effectiveness of Herceptin on UPSC. Pretty interesting stuff- planning on bringing it to my mom's doctor's visit tomorrow.. Overexpression of HER-2/Neu in Uterine Serous Papillary Cancer Abstract Purpose: Uterine…
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Good and Bad News: Finished 6 rounds Chemo, Onc says c u in two months, feel Adrift! Start Megace?
Dear Warriorettes, Thank God CT clear,, Ca 125=4.6 down from 84 post surgery pre Chemo,, and Bloods Good-ish, very anaemic and low white count, but ok. Now what??!!?? I'm in warrior mode after six months post Hyst and four rounds Carbo/taxol and two rounds carbo/Doxil, from Dx July 2010. Prior to that no symptoms xcept…
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Tonight at 8:00 pm CST, uterine chat room ---please join us-click on chatrooms instead of discussion
Ladies, Please join us tonight for uterine chat, in the uterine chat room on this website, tonight at 8 pm CST. Instead of clicking on discussion boards, click on chat rooms. Sign in. Click on rooms, (as the Lobby is for general chat all cancers) and choose uterine. It's as easy as that!! Last week we had an enjoyable time…
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Battle commences
Good Morning Ladies, Just throught I would share as I wait for my daughter to take me to HUP. Today I start my first round of chemo, carboplatin and taxil for UPSC. I am scared but determined to fight the best fight I know how! As Jan seems to be popular name on these boards, I am going to end my posts from now on with my…
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Please join in the Uterine Chatroom here at American Cancer Society Website Wednesday evening 8 pm C
Ladies, Just a reminder.....please join us to chat in the uterine chatroom here on the American Cancer Society website. Instead of clicking on discussion boards, click on chatrooms, sign-in, and click on rooms-uterine. You will know you are in the room when you see your screen name on the right side of screen. We had a…
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New Here; anyone just feel so alone?
Hi! Lots to share but for now: I was diagnosed with Uterine Cancer on December 17th. I actually got the call from my gyno, as my family and I were traveling for Christmas. I had my total abdominal hysterectomy on January 12th, found to be Stage IB, Grade 2. I am to undergo brachytherapy radiation at the end of this…
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Replens for moisture
Friends, I was reading on the boards here that some had the product Replens recommended to them to counteract dryness. I read the ingredients and this product has an ingredient in it which ends in "paraben." I read that any chemicals that end in paraben are potentially bad for or can lead to cancer. This chemical is also…
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My mother has Uterine Cancer
I'm sorry I can't relate to most of you who have cancer but I have already lost my Uncle to cancer and now my mom has it. She's 73 and has had a hard life. She starts Chemo on Friday and she doesn't know how bad it is. I'm 22 the youngest of 5 and I'm scared to death of losing her and don't know who to turn to. Any advice…
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My mother has Uterine Cancer
I'm sorry I can't relate to most of you who have cancer but I have already lost my Uncle to cancer and now my mom has it. She's 73 and has had a hard life. She starts Chemo on Friday and she doesn't know how bad it is. I'm 22 the youngest of 5 and I'm scared to death of losing her and don't know who to turn to. Any advice…
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My mother has Uterine Cancer
I'm sorry I can't relate to most of you who have cancer but I have already lost my Uncle to cancer and now my mom has it. She's 73 and has had a hard life. She starts Chemo on Friday and she doesn't know how bad it is. I'm 22 the youngest of 5 and I'm scared to death of losing her and don't know who to turn to. Any advice…
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My mother has Uterine Cancer
I'm sorry I can't relate to most of you who have cancer but I have already lost my Uncle to cancer and now my mom has it. She's 73 and has had a hard life. She starts Chemo on Friday and she doesn't know how bad it is. I'm 22 the youngest of 5 and I'm scared to death of losing her and don't know who to turn to. Any advice…
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My mother has Uterine Cancer
I'm sorry I can't relate to most of you who have cancer but I have already lost my Uncle to cancer and now my mom has it. She's 73 and has had a hard life. She starts Chemo on Friday and she doesn't know how bad it is. I'm 22 the youngest of 5 and I'm scared to death of losing her and don't know who to turn to. Any advice…
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We now have our own UTERINE CHAT ROOM under the American Cancer Society Chatrooms-chat Wednesday eve
Friends, Good news. We now have our own Uterine Chat Room, under the Chat Rooms on this American Cancer Society website. Some of us had posted about chatting on Wednesday evenings at 8:00 pm CST. Of course now that we have our own room, we can chat anytime of day as well. Hope to see you all there Wednesday at 8:00 pm CST…
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Mom's UPSC just a day for venting
I have described my 78 year old mom's medical history in previous posts....since March 2008 she has had a hysterectomy, 2 operations to remove small metastatic spots of cancer in lung and liver, radiation, two series of chemo (Taxol, etc) then another round of Doxil, a quadruple bypass...and is watering her lawn and…
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PET Scan vs CT scan and some other questions
I posted last week about my mom who was recently diagnosed with endometrial carcinoma grade 1, had a hysterectomy and doctor thought it was stage 1A (he is obgyn/oncologist), but when pathology report came back the following week he was in shock that they found some cancer cells in the cervix (which was removed as well) In…
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Results from biopsy good!
Dear all, Thank you all so much for your supportive and informative responses to my PET/CT scan scare a couple weeks ago. I had a mediastinoscopy on Monday to biopsy my mediastinal lymph nodes that lit up on the scan, and I got the final report yesterday: non-necrotizing granuloma, sarcoidosis, and NO EVIDENCE OF…
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UPSC (uterine pappilary serous carcinoma): once in remission, how does you doctor monitor your statu
I have a question to UPSC patients who are currently in remission. I just finished my first round of chemo (3 weekly sessions - dose dense regimen), and I am realistically optimistic that I will go into remission after the 6 rounds of chemo is over, because the test results (CA125) already show that the chemo is working…
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Old Man Winter Is Here~~
On a lighter note, is anyone in the zone where the weather is horrendous! I'm in St Louis and right now been watching the sleet coming down consistently since 6am this morning. When this slows down, the snow will start and we're expecting 12 to 24 inches of snow...yikes! Not expected to end until late Wednesday, then temps…
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how to have inadvertent multiple posts of same message deleted
sisters, i emailed the staff at csn asking about a delete button when we inadvertently send the same post multiple times. greta at csn responded saying we could email her and she'll delete the extra posts, just give her the url. so, that's good, not as good as being able to delete extraneous messages ourselves, but…
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Uterine Chat Tonight Wednesday In The Uterine Chat Room 8:00 PM CST
Friends, Would like to invite everyone to chat in the chatroom TONIGHT at 8:00 pm CST, in our own new "uterine" chatroom. Yah!!!! We have our own room to chat now ladies. To get there, follow these steps.......... At the same spot you usually click on to get to the discussion boards under "Member Connect" click on…
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Leaking urine 17 days post hysterectomy
This may sound insignificant compared to everyone's situation & cancer but tonight I leaked enough urine into a sanitary pad that when I peeled it off my undies it was like I was wringing out a soaked sponge. I wear a pad every day & have since I was in my 30's. I started @ first because my periods were so erratic & I…
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Uterine Chat Tonight Wednesday In The Uterine Chat Room 8:00 PM CST
Friends, Would like to invite everyone to chat in the chatroom TONIGHT at 8:00 pm CST, in our own new "uterine" chatroom. Yah!!!! We have our own room to chat now ladies. To get there, follow these steps.......... At the same spot you usually click on to get to the discussion boards under "Member Connect" click on…
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Parp Inhibitor
Does anyone know about this new drug that is hopefully effective for serous uterine cancer. I've read a good report but I think it is just going to clinical trial. Has anyone taken this new drug? What was your experience with it? Diane
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Bizis@juno, Shirley4, Goatgirl and Susan Smiles-How are you guys? Please write
Please keep in touch. June
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Postmenopausal bleeding and need for D&C
Late on Thanksgiving Eve, my good friend and caregiver, Marie, experienced a one-time fairly heavy post-menopausal bleed. We were out of town, at a friend's house in Northampton, MA, and were a bit freaked out. Until the early morning hours, we were in the emergency room of the local hospital, where Marie had a pelvic exam…
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PET scans???
Hi All, I am a new member. I have (I assume) stage 4 UPSC - originally it was 3a but first PET after surgery showed distant mets in lymph system in the neck, thoracic cavity, and abdomen. Dr. never told me stage 4 but I assumed based on what I've read. I guess I should ask him to be sure - but I guess it didn't seem…
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NOPR- National oncologic pet registry
I think the site may give guidelines for Pet/ CT fusion scans which are used for surveillance in other cancers and are less radiation that straight ct scan. Maybe this google site can help with payment of scans?
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Serous Papillary carcinoma - Stage 4
My mom, age 76, underwent a hysterectomy on 1-6-11. She was diagnosed with stage 4 Serous papillary carinoma. She had 3 tumors, all cancerous, removed. One was not contained...2 spots removed from stomach fatty tissue. Surgeon who did surgery is an gyno-oncologist....Hope Center in Asheville, NC. Long story short, in…
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KKSTEF----Karen, question for you
Karen, Hi there. Can you please tell me about your diet and habits that you maintain to avoid recurrence. I would really appreciate it. Thanks for the tip about organic unsweetened almond milk at Whole Foods. I will look for it there. Cindy