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Uterine Chat Tonight Wednesday In The Uterine Chat Room 8:00 PM CST
Friends, Would like to invite everyone to chat in the chatroom TONIGHT at 8:00 pm CST, in our own new "uterine" chatroom. Yah!!!! We have our own room to chat now ladies. To get there, follow these steps.......... At the same spot you usually click on to get to the discussion boards under "Member Connect" click on…
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Leaking urine 17 days post hysterectomy
This may sound insignificant compared to everyone's situation & cancer but tonight I leaked enough urine into a sanitary pad that when I peeled it off my undies it was like I was wringing out a soaked sponge. I wear a pad every day & have since I was in my 30's. I started @ first because my periods were so erratic & I…
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Uterine Chat Tonight Wednesday In The Uterine Chat Room 8:00 PM CST
Friends, Would like to invite everyone to chat in the chatroom TONIGHT at 8:00 pm CST, in our own new "uterine" chatroom. Yah!!!! We have our own room to chat now ladies. To get there, follow these steps.......... At the same spot you usually click on to get to the discussion boards under "Member Connect" click on…
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Parp Inhibitor
Does anyone know about this new drug that is hopefully effective for serous uterine cancer. I've read a good report but I think it is just going to clinical trial. Has anyone taken this new drug? What was your experience with it? Diane
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Bizis@juno, Shirley4, Goatgirl and Susan Smiles-How are you guys? Please write
Please keep in touch. June
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Postmenopausal bleeding and need for D&C
Late on Thanksgiving Eve, my good friend and caregiver, Marie, experienced a one-time fairly heavy post-menopausal bleed. We were out of town, at a friend's house in Northampton, MA, and were a bit freaked out. Until the early morning hours, we were in the emergency room of the local hospital, where Marie had a pelvic exam…
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PET scans???
Hi All, I am a new member. I have (I assume) stage 4 UPSC - originally it was 3a but first PET after surgery showed distant mets in lymph system in the neck, thoracic cavity, and abdomen. Dr. never told me stage 4 but I assumed based on what I've read. I guess I should ask him to be sure - but I guess it didn't seem…
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NOPR- National oncologic pet registry
I think the site may give guidelines for Pet/ CT fusion scans which are used for surveillance in other cancers and are less radiation that straight ct scan. Maybe this google site can help with payment of scans?
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Serous Papillary carcinoma - Stage 4
My mom, age 76, underwent a hysterectomy on 1-6-11. She was diagnosed with stage 4 Serous papillary carinoma. She had 3 tumors, all cancerous, removed. One was not contained...2 spots removed from stomach fatty tissue. Surgeon who did surgery is an gyno-oncologist....Hope Center in Asheville, NC. Long story short, in…
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KKSTEF----Karen, question for you
Karen, Hi there. Can you please tell me about your diet and habits that you maintain to avoid recurrence. I would really appreciate it. Thanks for the tip about organic unsweetened almond milk at Whole Foods. I will look for it there. Cindy
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MD Anderson CC survey re follow-up care for those who have not had a recurrence
Hi Sisters I follow Gyn Onc Foundation on twitter and received info on survey that MD Anderson is doing to evaluate follow-up care gyn cancer patients receive following original treatment and have not had a recurrence. Here is link to info and survey if anyone would like to participate:…
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ACS Chatroom for uterine cancer Wednesday evenings at 8pm CST in the room called "Breast"
Everyone, This is an invite for all all to chat live in the American Cancer Society chatroom on Wednesday evenings at 8:00 p.m. The "Lobby" seems to be for all general cancer chat, and various topics. There are other rooms for other cancers but none for uterine cancer. Let's all click into the room called "Breast" and…
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MSKCC Clinical Trial with Avastin for Endometrial Cancer
A Three-Arm Randomized Phase II Study of Paclitaxel/Carboplatin/ Bevacizumab (NSC#704865, IND#7921), Paclitaxel/ Carboplatin/ Temsirolimus (NSC#683864, IND#61010) and Ixabepilone (NSC#710428,IND#59699)/Carboplatin/ Bevacizumab as Initial Therapy for Measurable Stage III or IVA, Stage IVB, or Recurrent Endometrial Cancer…
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Officially introducing myself: upbeat UPSC stage 4B here.
I went in for surgery with every expecting stage 3C ovarian cancer. Turns out, the origin was deemed "uterine", and the presence of cancer around bowels and some lymph nodes put my stage at 4B. I will post my progress here. I know UPSC stage 4B really scares the hell out of people. If I am doing well, all of you with UPSC…
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Radiation reply
Thank you all for the advice.
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LindaProcopio on Ovarian Board
I don't think I saw it here on the Uterine Board but Linda is going through a really tough week and I saw her post on the Ovarian board and thought I would mention. I go there regularly too as my doctor always refers to my UPSC as Ovarian as he feels it has far more in common with that than with typical endometrial…
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To EvertheOptimist
For some reason I cannot respond to your wonderful note on line. There may be a computer glitch. I agree more research is done for ovarian cancer and it is creating a block for those of us with serous uterine cancer. Not as much research is done on serous uterine cancer and when we need medications the oncologists use the…
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CINDY ARE YOU OK?
Hi Cindy, I know that you are waiting for the results of your thyroid biopsy. How are thins going? I am a little worried. I hope you are not buried in a snow bank and trying to dig your way out.All this snow in NYC is crazy!! Just know that you remain in my thoughts and prayers. SUE
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Thyroid Nodule Biopsy Results--Negative. YEAH!!!!!!!!!!!!
Friends, I received the results late afternoon from my thyroid nodule biopsy. It was benign-yeah!!!!!!!!!! I asked about the other nodule, which the radiologist did not test, and the surgeon's office was fine with that override-the radiologist determined the other nodule was too small and dangerous to biopsy due to…
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Chatrooms on American Cancer Society Website -Roomed Called: Extra Room For Other Chats
Friends, I was thinking it would be really nice if we all got online for a live chat in the chatrooms sometimes. There is a new category room listed now called "Extra Room for Other Chats"-we could use that one (since I don't see uterine cancer listed). I never seem names listed in other rooms-seems everyone uses the main…
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Endo cancer Stage1A-Grade 2
Whooowhee!! Went to gyno-onco today for first f/u since robotic laproscopic radical hysterectomy done on 1/12/11. Stage1A-Grade2, cancer contained in uterus, fallopian tubes clear, Ovaries clear, cervix clear, 7 lymph nodes clear. No chemo/no rad needed. Going bk to work this Monday.(desk job) Says pelvic washing found…
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How about starting a weekly Wednesday evening uterine chatroom at 8 pm CST
Friends, What does everyone think about staring a uterine chat room live chat, on the chatrooms on this website. We could use the room called "Extra Room for Extra Chats" on the website, rather than the lobby which is for general chatting. It might be fun. What do you guys think? Cindy
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I may need radiation after my chemo ends and I wanted to know how bad the side affects are.
I've been going for chemo and need radition as well afterwards, I work in a hosp as therapy tech, has anyone worked while on radition?
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MY TIME AT COMMMONWEAL CANCER HELP PROGRAM IN BOLINAS, CA
hi sisters, back from a week at commonweal, and it was truly amazing; too spiritual for my taste, but not offensive, and i could take what i wanted from it. no one was pushing anything, it's just their strong bent. i, for one, will never, ever experience cancer as a "gift", but maybe others have done, or do now. to give…
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has any one, especially with upsc, been treated with cisplatin and gemcitabine (gemser) for recurren
sisters, had an assay done of fresh tissue and there were at least 3 good combinations of chemo for me, should i need it in the future (probably.) the one most highly recommended which worked best for me, was the above. am interested in hearing from any of you that have tried this combination, how it was, and how it…
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Just diagnosed with EC on Jan. 7- have questions about next steps
age 57 Dx 1/7/2011 EC atypical hyperplasia/low grade histology Wow- do I ever feel fortunate to have landed on this site! I have been reading many posts trying to get educated so that I can ask the right questions of you. What a supportive, caring, intelligent, and truly helpful group you are. I can only imagine how lonely…
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Anyone get bad side effects that last too long?
Just feeling bad and want to know I am not alone in these ongoing negative symptoms....I had 1st chemo (carbo/taxol) Jan. 13th....and I am still not feeling well or "normal". I had every text book side effect...nausea that my pills didn't help, bone aches that were killer, bad headaches, fatigue that will not leave,…
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To Minniejan Regarding Flu Shot
The Centers for Disease control have an "Ask the Expert" center and they will answer any questions on line for you or you can call. Email: NIPINF0@cdc.GOV You can also go to Needletips, and sign up for their monthly bulletin, they have everything you need on vaccinations. It is very important to get the flu shot when your…
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Other support groups
I wanted to let everyone know that I find eyesontheprize.org to be a great international support group with active members and lots of answers. It has been around over a decade so you may want to join it. When you get to the primary page you can join the yahoo group. Thanks! Zarka
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Probable recurrance and questions
Dear friends, As a longtime lurker on this board, I have admired you all for the support you give to each other, for your great spirit, courage, and good humor, and for your smarts and incredible knowledge. I was diagnosed with endometrial adenocarcinoma stage 3c grade 2 in May 2008 (I was 48 years old). I had…