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Catching up from Diane (new plan)
So much has happened since I last wrote. Health wise the tumor board decided to put me on weekly topotekan before doing cyber knife on the tumor in my liver. It makes me very tired and there is alot of running; I have to have rehydration two days after chemo. My poor husband works so hard to care for me. Our wedding was…
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Yumm-o
We have a thread on recipes and there's been a lot of discussion about turmeric. This isn't a recipe and isn't really about turmeric - it's just something easy and absolutely delicious that I found at Trader Joe's that fits the criteria. It does contain some sugar, but it does not contain soy (I avoid soy having had…
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Recurrence to Lungs
Hello, If anyone has had mets to their lungs please could you share the treatment option you went for? And, of course, how it worked for you. I had my first recurrence in a lymph node under my right arm in January. I had total axillary clearance surgery and cancer was found in just one node and all other tissue clear.…
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Minor Setback - Chemo. Session Postponed
I was supposed to get my 6th chemo. treatment tomorrow; however, due to my low Neutrophils auto count of .9, I had to reschedule the tx to next Wednesday, by which hopefully it will have gone up to a minimum of 1.1. Chemo can significantly decrease your WBC, and there is a risk for infection (sepsis) with low wbc. I…
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My mom is suffering with USPC
Aloha all My mom is suffering with uterine serous papillary carcinoma. She is currently undergoing chemotherapy afer her first recurrence. She had over 2 years in remission following a somewhat convoluted course of diagnosis and treatment. I am looking for any and all women currently living with this diesase in hopes of…
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18 miles celebrating 18 years surviving!
Yesterday heading out I had little expectation of doing more that 18 laps, but surprised myself and found the energy to do my 72 laps @ .25 mi each = 18 miles! An empowering experience whichgives me strength to believe I can keep on giving this enemy the ol' smackdown ;-) In june '93 I was diagnosed with stage 2B breast…
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stereotactic radiotherapy for supraclavicular lymph node mets
Had consult today with radiation oncologist to evaluate targeted treatment of upsc recurrence in supraclavicular lymph nodes. Treatment is basically palliative in that we are not going for cure. After lengthy discussion and extensive review of detailed disease history, followed by review of possible radiotherapy options,…
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Ugh! Should never have changed insurance
I really hate insurance companies. It's like they are the doctors treating us. I changed insurances in April. It was so hard paying out $2,600 a month for a family plan and they were going to raise it. We went on a group plan through work (we are self-employed) with another company and the premium dropped to $1,400 a…
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A Final Consensus on Curcumin?
Dear All, Have been following the curcumin threads and need to relate some new information. While I tend to agree with Claudia that a "natural" source of curcumin (turmeric) may offer some biochemical synergy that we don't get from capsules, we are getting relatively LITTLE curcumin from a half teaspoon of turmeric a day.…
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RO: thinking of you on 'scan' day, sending positive vibes & prayers your way!
I know this is your scan day, always anxiety-ridden. ((((Ro)))). Try to be at peace; it is what it is; and sometimes a scan can produce WONDERFUL news. And if not, at least it provides information to make a plan. But know that I am thinking of you and holding you in prayer today.
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minniejan update
Hello, I have been lurking here since I finished all my treatments in late March for UPSC. I did not want to post while I was waiting. Call me superstitious! After my treatments I had a needed blood transfusion prior to plans to do some needed traveling. I took two wonderful trips, one to Arizona to visit my son, and did…
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Dr. Servan-Schreiber
Hello ladies. Perhaps you already know this, but I just read on Inspire.com (ovarian cancer board) that Dr. Servan-Schreiber has had a recurrence of his cancer . I only mention this because I know many of you are avid followers , and I thought you'd want to know so you can keep him in your thoughts and prayers as I will.…
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Tomoxifen
Hello everyone, I am updating on my latest ct scan. It came back good and nothing new showing, except my power port needs the catheter to be repositioned. I was doing the Taxol alone every 3 weeks with one week off. I stopped doing it on my 9th round because the neuropathy was getting really bad and other issues. The Taxol…
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Products for Vaginal Dryness & Increase Elasticity
What do others use for vaginal dryness and to help keep that area flexible? I've had the hysterectomy and pelvic radiation which put lots of havoc on this area and find I'm so tight and dry. Intercourse is always challenging and can be painful. I am a bit smaller and my husband is large, so I'm looking for guidance as know…
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brachytherapy
Looking for a little advice....those of you who have had brachytherapy, without pelvic radiation.....I have a tropical vacation planned one week after completion of radiation. Do you think it's feasible that I will be able to swim in the ocean?
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nempark I saw the doctor today
Hi June I am also Stage 1 grade 3 but have USPC. Had my last scan in October 2010 right after I finished chemo. He also said last week when I went for my check up that unless there is a problem he doesn't like to run CT scans to often. SO i go back today with the cramping/bloating/pressure issue and they think it might be…
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slightly humorous story
I usually am on the Breast Cancer boards but I thought you ladies would better appreciate this story. The drug Tamoxifen promotes endometrial cancer. I had to have a second hysteroscopic polypectomy in less than 2 years. During the procedure, while I was under a light 'sleeping' anesthetic, the scissor finger of the…
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Increase public profile of uterine cancer
Ladies, I watch a certain shopping network program. There is a clothes line called Quacker Factory which has fun clothing. The woman who started the clothing line is named Jeanne Bice. She announced on TV this past Saturday (via Skype from Boco Ratan) that she was just diagnosed with Uterine Cancer! Jeanne is a fabulous…
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vacation 3 weeks after 1st chemo is it wise?
Hello everyone, I hope this does not sound trivial.I have stage 4 uterine cancer-had complete hysterectomy-that is healing fine (had it on 5/27/11) - but doc found tiny spot on bowel and path showed one sample no cancer the other yes. Getting carbo-tax starting July 6th. Nurse said worst symptoms a few days later. Alread…
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Claudia!
How are you, and where are you? I am really missing your posts, and I have so many questions for you. Are you painting, or maybe you're on a road trip. Perfecting my anticancer diet is a priority right now, and I wanted to run a few things by you. Is there a way to reach you other than through this site? Of course, I hope…
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18 MONTHS AFTER HYST. CAN WE BE PRONE TO INFECTIONS IN THE BELLY AREA?
I am constantly bloated and feeling cramps in my belly.. Last visit with Doc, he had a look in side and said that "I am good to go" No scans. What do you think? I had a scan in March of 2010 immediately after my last chemo and he said he doesen't want to do more scans unless it is absolutely necessary. Every three months I…
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Modern medicine
To all the courageous women on this board. I know that there are some on this board who have chosen to forgo modern medicine for alternative treatments. Some even going so far as to imply that modern treatment is not effective and in some instances harmful. The tone of some of these posts sounds a little sanctimonious to…
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foods and supplements I eat/take
everybody is different, but this is what I do after reading several books and doing hours of web research. I am sharing this with my fellow cancer patients. ***************************************************** Food groups for Cancer Patients: they fall in one of the five categories: (1) induces cancer cell death (2) makes…
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Finished Chemo Nov 2nd-had thyroid ultrasound test today for nodules and two were solid--multiple no
Friends, I am so disappointed. I had a thyroid ultrasound test today, because in the summer months thyroid nodules were seen as an "indidental" on a ct. My oncologist had said he was not very concerned many people have them and we would take a look at it after chemo. I had an ultrasound today and it showed multiple thyroid…
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Society of Gynecologic Oncologists Conference this week: any abstracts on UPSC?
Society of Gynecologic Oncologists are having their annual conference in FL. I got a link to OVCA (ovarian) related research abstracts. I have yet to see a link to the uterine cancers. and specifically UPSC. Since UPSC behaves just like Ovarian cancer, a lot from the OVCA can shed lifht on UPSC. But, I am still looking for…
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What is the BEST cancer center out there??
I was diagnosed with endometrial cancer in 2002 and had a total hysterectomy. I almost made it to the 5 year mark but found it had spread to my pelvis. When I asked the doctor why he hadn't done any kind of scans to keep a check on it he said "94.6% of the time when the hysterectomy is done, the cancer doesn't return."…
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Some Answers for Mercury in fish questions
This info is from womansday jan ‘8. It’s about a woman who ate fish pretty much daily and over the years developed mercury poisoning. Her symptoms were: Fatique, lack of concentration, memory loss, coordination problems, depression, hair loss, insomnia, irritability, headaches, tremore, and vomiting. She also mentions a…
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Oh Culka?
Haven,t heard from you in a while friend. Hope you are enjoying good health. June
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I want answers Im scared to death
My mom has been recently just 2 weks ago with cervical cancer and then recently just a few days ago she was told it has spread to her lungs and liver , and back bone, and kidneys,and considered a stage 4B cervical cncer, i am really really scared i dont know what to do. but i dont want to show her how scared i am, she…
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changed my profile photo to show you my latest crop of chemo curls.
Three different times chemo has made me completely bald, and each time my hair has come back completely different. This time it is not as curly but still wavy, and is still very thin. One of my girlfrinds took this photo of me at a Victorian Tea we went to today. I've been trying to let the tops grow out and it's at that…