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Full Body Scan & Thyogen Injections - Help me figure out this problem
Hi, everyone. Hoping someone can help. Was diagnosed with Papillary thyroid cancer with 10% tall Cell, spread to 4 lymph nodes. Did RAI May 8th and now I have to 6 month full body scan. Question is my doctor wants me to get the thyogen injections on December 6 and 7 and I heard it is better to do the low iodine diet while…
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Nexevar is not working. Starting intravenous chemo.
I've been taking Nexevar since July for a mets to lungs. We were hoping that the nexevar would at least stop the growth of new nodules. But I had a CT scan Wednesday and yesterday, the doctor said the nodules have increased in size and are still multiplying. He's starting me on intravenous chemo on the 13th. I'm scared.…
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Is the low iodine diet necessary for radioactive iodine treatment?????????? One Doctor says no.....
I am having my radioactive iodine treatment next week and the nuclear medicine doctor tells me to not worry about a low iodine diet, and to stop reading things on the internet. This makes me nervous because anywhere I have read about this treatment says to follow the low iodine diet.... Maybe there are different types of…
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Reoccurrence- second surgery for winter break =(
Hi Everyone, Tomorrow marks a year ago that I had my TT and lymph node removal for papillary cancer. I had my RAI treatment 175mci December 29th 2010. My scan after came back clean. In August I went back for my follow up scan before returning to college. After the scan the doctors made me drink lemon juice and do the scan…
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chemo for ca recurrance
Hi Anyone need to have chemo for a recurrance. I no longer take up iodine and have few options available to me. I was offered chemo. Anyone use chemo as a tx. Thanks
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Papillary cancer, post surgery question
Hey all, I'm sure this question has been asked about a million times but I will be redundant and ask it again. First, let me give you some history. In October I went to get a physical. The doctor felt a lump in my thyroid, after an ultrasound and biopsy which was abnormal I had my total thyroid removed, which happened 3…
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Thyroid ... another adventure! :-)
I never thought I would be adding a post to another discussion board. I had been Dx'ed with melanoma a couple few years ago, and the board was a tremendous help. Now, I've got surgery in a few weeks that will determine if I will be a member here or not. A month or so ago, I was getting some weakness and numbness in my left…
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no iodine diet how did you feel.
can any one offer insite on the two weeks prior to RAI treatment. Ive been having strange symptoms, like my hands swelling and an immediate weight gain of 10 lbs. any one else have any strange things happen. cant wait to hear from you..
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High Tg and negative scan
Hi All, I need some advice. This is my third go round with thy ca. first in 77, then in 95 with mets to nodes. Now I have rising tg and neg scan. I was told that I don't take up iodine. My Tg is now at 32.5. I was told to seek out other opinions at Mayo and MD Anderson. I live in Calif. How can I be treated if the dr…
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High blood pressure seems to be gone after surgery
I had my thyroidectomy 2 months ago, and since the surger have noticed that my blood pressure has returned to normal. I've been taking meds for 5 years. I've actually stopped taking the pills - my BP was dropping too low. I have just completed RAI treatment and will be starting my thyroxin soon. Just wondering if anyone…
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Easy Food list while on low iodine diet
Does anyone have a list of "convient" foods while on the iodine free diet? I looked on the Thyca website at the cookbook. I know about meat portions and fresh fruit and veggies. I am hunting more for "quick" foods - eg Kelloggs Frosted mini wheats have 0 sodium. Are Hebrew National beef franks ok to eat? I read they are…
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How long till I feel "normal" again?
I have my RAI treatment this coming up Friday-7/9/10. I was wondering how long does it normally take to feel "normal". I have been out of work since 1/7/10 and would like to have a rough esminute as to when I can start looking for a job again. I don't want to starting looking , finding one and then lose it cause I start to…
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Advice sought about alcohol ablation therapy
I have saw my endo in Denver (btw if anyone needs a good endo I am more than willing to share his name) and he was talking about alcohol ablation therapy as a possible course of treatment. Here is a quick history: 2001-TT with 7 lymphnodes cancerous (2.4cm cancer on thyroid) followed with RA-131 and WBS, in 2008/09 had…
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BRAF and lymph node removal
I had a TT two weeks ago (I have papillary cancer). My doctor told me he was having a BRAF test done. He said that if it comes back positive that it is a more aggressive type of papillary cancer. This, combined with my age (49, may mean that it has spread to my lymph nodes. He then spoke about a neck dissection. Has anyone…
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Worried about Dad's Thyroid Cancer
Hello, My dad (59 years old) was recently diagnosed with Thyroid cancer (we do not know which type). On Oct. 25, he had his largest nodule removed along with part of his thyroid (He has two other tiny nodules). During his operation, a pathologist dissected the thyroid nodule in 4 sections and was very confident that it was…
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What happens now? I-131 and small kids? How is this going to work?
Hi everyone! My name is Miranda. I just had a TT on Nov. 1, 2010. I am having some trouble with breathing, ended up in the local E.R. due to this and on 2 inhalers now. I am coughing up lovely phlegm and it seems skin maybe. It is rather nasty but also alarming. I am concerned because it was a freak thing found at my…
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EBR anyone?
I've started external beam radiation treatments and would like to hear from people who have under gone them. Today was my 8th treatment of 30. My throat is already getting sore and swallowing is quite uncomfortable. I know it is just going to get worse. I'm sure my oncologist will put me on meds when I see him on Monday.…
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Residual Thyroid Tissue
Hi, I am a young wife and mom going through my first round of thyrogen injections/body scans, etc. to check on how effective treatment was. I'm wondering if anyone has had residual thyroid tissue show up during a follow-up body scan? I panicked when I saw it on the screen but the Nuclear Med doctor didn't seem concerned by…
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facial paralisis
I'm schedualed for 3rd surgery novemeber 15th.This time they are going to cut me from behind the ear and bring it all the way down...I'm just wandering have any of you had facial paralisis...I know it's only like a 5% chance but just the way my lucks been lately i'll problably be the one who has it and also loses my sence…
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TG levels - Thyroid cancer... new member
Hello All, I have a TG level of 1 and TSH of .47 but a stimulated TG level of 5 and stimulated TSH of 160, my iodine uptake whole body scan was negative, I had RAI treatment for papilliary cancer in Febuary of this year, does this result mean that I still have thyroid cancer present? I am a 40 year old male and in good…
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radiation therapy
DID YOU HAVE RADIATION THERAPY--WEAR A FEEDING TUBE...I AM AFRAID THANKS
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Metastasis?
I am writing on behalf of my friend, female, age 31yrs, who was diagnosed with carcinoma of the left thyroid last November (2009). She had a small nodule that she was able to feel on her neck region since 2007 but left unattended. By November 2009, she had under gone left radial neck dissection for total thyroidectomy. The…
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Papillary thyroid cancer
I am 2 1/2 years post surgery and I had 2 RAI treatments 6 months a part. The last one was in January 2009. My cancer was a stage IV due to my age, size of tumor, and lymph node involvement. Does anybody know how bad that really is? My doctors are so vague. My endocrinologist just said don't worry about it. Does that sound…
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Just how bad
Can anyone share the symptoms they had when they prepared to get their RAI treatment? I had a full TT in September and I get off cytomel and begin my LID on Monday. I am scheduled to get my RAI treatment Nov 10th and intended to work until then. I am starting to think I may have to re-think my plan. Any insights would be…
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Loss of Saliva glands 7 months after RAI
HI all I had a total TT last October for Papillary CA and then RAI in February. My jaws hurt a bit after the RAI and I was completely exhausted for months. Then in June my mouth just dried up and my paratoid glands got really swollen. The swelling and pain in mostly down now - although after I eat the glands swell up…
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radiation therapy
DID YOU HAVE RADIATION THERAPY--WEAR A FEEDING TUBE...I AM AFRAID THANKS
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Contamination
oh no, i thought it was ok to be around my 11 year old and my spouse after 1 week in my room. the radiologist said it was ok. i've been hugging my daughter, cooking for everyone. all the normal stuff. my surgery was on the 30th of August and my radiation was done on the 12th of October. i stayed at the hospital for the…
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Surgery or "wait and see"
I went for my annual check up in June and was sent to an ENT doc due to my voice being hoarse. As my husband had passed away from head and neck cancer on 10-31-09, I thought the hoarseness was due to stress. Turns out my left vocal cord is paralysed. The ENT doc had a CT scan and an ultrasound done. He found a nodule in my…
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high tg levels
Hi, I would like to clarify on a point. I am a papillary thyroid carcinoma patient which was diagnosed in November 2009. Immediately I had a total thyroidectomy done and 1 month later I also had a high dose I131 ablation therapy done. The scan said I had a focus, which was previously undetected, on my left shoulder region.…
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No lymph nodes taken during TT
I find it weird that I don't know if my cancer was contained to the thyroid or not because no lymph nodes were taked during surgery. There was one thing that was labeled as a lymph node, but turns out it was an extra-thyroidal extension (or something like that) and no lymph node tissue was detected. I had 5 tumors in my…