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Waiting on Results
I have been diagnosed with having three thyroid nodules-this was found after an ultrasound so my doctor sent me to have a thyroid scan which I had yesterday...I am wondering because the nurse who did the scan said to me that she would see if the doctor on duty wanted to talk to me afterwards-he didn't so would I be right…
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Pazopanib Clinical Trial--very good results so far
I just returned from the Mayo Clinic where I got some very good news re: lab and scan results. My Tg level is down to 125, from a high of 1225, then 333, now 125. That's quite an improvement for seven weeks of therapy, including one week off recovering from the side effects of the drug. Scan reports were all positive, too.…
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Tips for low iodine diet
I just had my 2nd surgery to remove the rest of my thyroid. I am getting ready to start the low iodine diet for the 3 wks before the RAI treatment. Does anyone have tips. I want to be careful and follow the diet closely since hurthle cell does not always absorb the iodine, I want to give myself the best results. Any advice…
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Iodine free diet
I'm new to this and have tried to find a list of iodine free foods, so far I have had no luck. I need to do an iodine free diet for two weeks before taking the I-131 RAI treatment. does anyone know where I can go to find a list of what is ok to eat and what to avoid?
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Thyroid Nodule Results
Friends, Had my thyroid nodule biopsy one week ago. I finally called today and left message for results as I had not heard yet. I received call back and the test was benign. What a relief. I will be monitored with ultrasound again in 6 months. The second solid nodule that radiologist did not biopsy is ok with the surgeon,…
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44 hrs after RAI and I have a red face
This didn't happen with my 83 mCi's. I feel like a strawberry. Has anyone had this happen to them? It's my face and neck that are bright red. It doesn't burn or anything just really red. Julie
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Children after thyroid cancer
Has anyone gone on to have children after a thyroid cancer diagnoses? I know it is possible, most of the time. But there is not a lot of info out there and I kind of want to hear from someone who has, please.
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High Tg count
I'm 37 year old female, who was recently diagonised with pappillary thyroid carcinoma in July 2010. I also had the same dialogue that it was one of the best cancer to be had.(yeah right) I was mis-diagonised with pneumonia twice before being reffered to to a pulmonary specialist, who suspected lung cancer, and when I opted…
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OMG NYC 2011 - Cancer Summit
I, along with you, have had to deal with this nasty thing we call thyroid cancer. I found the stupid cancer.com website which lead me to the OMG Cancer Summit. The OMG! Cancer Summit for Young Adults is a major international oncology conference and social networking event for young adults (15-39) affected by all cancers,…
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whole body scan - other cancers found?
When a whole body scan is done to find if thyroid cancer has spread, would it show other cancers also?
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Back to normal??
I am not having my problem thyroid removed until the end of this month. The dr says i will feel worse before i will feel better.oh yay! It gets worse? I feel pretty bad now. I am on no hormone replacement. Have not been on the thyroid replacement. The surgeon does surgery and has nothing to do with the hormones. That is…
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What do I do for thrash?
I'm having a lot of thrash on my tongue and yuckie build up in my mouth. I guess this is a side effect from chemo. Does anyone have any advice about getting rid of it? Veronica
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Kristilynn and everyone--how long does neck feel uncomfortable after needle biopsy test
My necks still feels uncomfortable from needle biopsy. How long does discomfort last. I have been taking tylenol. It's not terrible, but sometimes it will start to feel alittle more bothersome then at other times. When I woke up and got up today it seemed more bothered. Thank you for your feedback.
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Super bummed out lateral nodes now involved.
I had my thyroid papillary cancer 1.5cm and a 4mm and 1 central lymph node surgery in Dec and had RAI about 10 days ago 153 millicurie. I just had my whole body scan today and it showed 4 lymph nodes in the lateral neck, 2 on each side. I am so bummed out. Why didn't I get this scan beforehand so I could have the info for…
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Had my thyroid nodule biopsy
Hi all, The biopsy for me was not fun. I had lidocaine, but I still felt some of it, the nodule they were doing biopsy for was on back side of thyroid I guess. Also, I had a scare because radiologist said she would ask me if I was numb and test me by poking me with needle and seeing if I felt it. She forgot and just…
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Had my evaluation with thyroid surgeon today
Hi friends. Had my evaluation with thyroid surgeon today-he was super nice. Was pretty encouraging. Blood work looked good, and there were no calcifications or oddities on the ultrasound. He did his exam feeling my neck and nodules etc and there were no swollen lymph nodes (good) and the nodules were soft and moveable…
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Doing Well After Surgery
I wanted to let you guys know my surgery went very well. It only my surgeon an 1 ½ to complete my TT. When they woke me in recovery my blood pressure shot up sky high and they had to give me 3 different kinds of medz to bring it back down, however they said this was normal after surgery. My Calcium levels were fine, which…
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FVPTC-RAI or not? Would love to hear your story!
I had the right side of my thyroid removed on Nov. 17, 2010 and the left side removed on Nov. 30, 2010. The pathology report showed a 2cm encapsulated nodule on the right side - follicular variant of papillary thyroid carcinoma. THe surgeon also removed two neighboring swollen lymph nodes....these did not test positive for…
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Good news!
I was dignosed in March 2010 with Hurthle cell Cancer of the thyroid with minimal invasion of 1 lymph node. My tumor was small 1.5 cm in size. I had 125 mci's of RAI at the end of April into the first part of May. I had a sonogram and my thyroglobulin levels checked. With the exception of one enlarged lymph node which is…
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post-surgery thyroglobulin level
Hi, I had a TT in November 2010 completed in two surgeries. The pathology report showed a 2cm nodule, encapsulated, papillary carcinoma-follicular variant. I just received my thyroglobulin test results and it was .2 - the doctor is not recommending RAI. I don't want the cancer to come back....I want to do all I can to make…
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sex after RAI
My husband has been so worried about when we can have sex after the RAI treatment. I have read anywhere from 5 days to 30. Does anyone have an accurate number? As I have researched what is available to read, I've read so many conflicting reports on numbers of days for everything. As though they are scared of the RAI and…
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cystic lesion
Hi everyone, I'm normally over on the "Head and neck Board" posted this question there and then realized we had a separate forumn for thyroid cancer. So if you don't mind the visit and can offer any comments I would welcome them. thanks (refers to my base of the tongue cancer) I underwent my fifth CT scan post treatment…
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Abnormal/anomalous lymph nodes anyone?
Hey Folks! Just wondering what the do if they find abnormal lymph nodes. Is this another surgery? Another low iodione diet and a dose of RAI? I had a TT in August and RAI in Sept. They found an abnormal lymph node last week in a CT scan and now they are going to do a PET. Is it a pretty sure thing that by them ordering a…
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New to the boards...my story...plus a few questions :)
Hello everyone. I want to share my story and ask a few questions about my next steps. First of all I was diagnosed with Papillary Carcinoma of the Thyroid on November 10, 2010. The nodule was found on August 2, 2010 by a very thorough ER doctor who would not stop until he found the reason for my symptoms. The nodule was so…
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abnormal lymph nodes after RAI treatment
I have thyroid cancer and have had a total thyroidectomy and ten lymph nodes removed. I had the RAI treatment and then had the whole body scan done. The radiologist findings was lymphadenopathy, (abnormal lymph nodes), due to functioning thyroid neoplasm (tumor). There was intense uptake in the neck area. My endo said that…
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I have an appointment to see thyroid surgeon for evaluation
Friends, I have made a couple of posts on this board recently. I have completed treatment for my uterine cancer on Nov 2nd-which was my last chemo. I had the treatment program of 6 chemos and 25 radiations, in addition the the surgery. Now I have the issue of thryoid nodules to check on, that were found as an incidental on…
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i have read some articles saying we T3 /T4 mix is better than just T4
I am curious I have read a few web articles stating that adding T3 along with T4 can help with symptoms of depression and needing to take antidepressants. I was wondering if any of you have heard any doctors arguments for Synthroid only (t4) or T3/T4 combo. right now i am on synthroid and welbrutrin(antidepressant) and…
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TT Jan. 3rd
I am going in for my total thyroidectomy Monday Jan 3rd, right around the corner and I am scared crapless! Well I had a quick question to ask. Sorry I haven't been on here in a while, been very busy with the holidays and all. I have read that some people have a tube or catheter after surgery??? Did anyone on here…
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Neck Dissection and bilateral paratrachael
I am 15 days post-op from a Neck dissection and bilateral paratracheal where they removed cancerous lymph nodes. I feel like I've been in a horrific accident and my shoulder and neck feel like they are constricting and becoming so tight. Just scared me. Wanted to see what I could expect in this long process/recovery. I…
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New Blood Test for Cancer
There is a new blood test for cancer under development and in use in a few places. Someday, we might not have to have I131 scans anymore (wheeeeee!)... http://www.npr.org/templates/story/story.php?storyId=132608325