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Next phase .... RA Treatment
Well it has been awhile since I have posted anything. I had my TT on 2/7/11 and doing okay (anxiety, fatigue, emotional brakdowns).... Currently about 1 month into taking Levothroxine (125mcg). I had my consult today with the Radiologist and will be having the RA treatment soon....... LI Diet start 3/21 4/11 Thyrogen shot…
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Breathing Problems & Sutent
My wife (34 yrs old) was diagnosed with Thyroid Cancer in June 2010. Had a TT and removed 60ish lymph nodes from neck with 50% being cancerous. During the pre-treatment for RAI they found micro-nodules are throughout her lungs. Were told not to worry because there were a lot of small particles and that a high dose of RAI…
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Thyroglobulin level
If your thyroglobulin level is not at zero, doesn't this mean that you still have microscopic cancer cells somewhere in your body? My husband has had 5 re-occurances in the past 13 years, he has never been at zero. Our 16 yr old daughter, also with papillary carcinoma, had TT last June, and I-131 in July 2010. Recently, at…
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Another Reccurence
I just found out that the surgeon missed a large lymph node from my last surgery in June. Changing surgeons this time. This will be my third surgery. Just not sure how I will get through this again. RAI was two months ago and now another surgery.
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Can anyone share experience with papillary carcinoma in "hot" nodule
Hi, I am newly diagnosed, and so scared that this cancer has spread through my body. And it seems like it will be FOREVER before I have any answers. One question that I have is because the hot nodule is functioning in some way, it is more likely to have blood flowing through it and thus moving cancer cells? I know that is…
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RAI for the 2nd time
Looks like I will be having a 2nd dose based on my bloodwork. My doc said my cancer marker after surgery was 911.3 after the RAI it is now 68.4. Based on that he said I either still have cancerous Thyroid tissue or it has spread. So going hypo again, body scan in mid Feb. and dose after. We found this out on Dec. 22nd and…
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Need Help!
I have been hypo for 10 weeks now so I will try not to ramble: Had total thyroid removed 5/7/10, Bloodwork cancer marker# 911.4 100 mc RAI 7/9/10, Bloodwork after Cancermarker# 68.4 So found out on Dec. 22 that my cancer marker number was 68.4 doc said it should be like.5 so the knew the cancer had spread so had to go off…
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Radical Neck Dissection--harumph
OK--I feel as I am all alone. I look over the forum and everything posted is dated years ago. IS THERE ANYONE OUT THERE??? I was diagnosed w/ thyroid cancer in 07. In May 09, I had a radical neck dissection. 80 lymph nodes removed along with 8 tumors. The incision starts behind my left ear (top) down the left side of my…
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After TT - Symptoms - What did you have?
Hello Y'all. I had my TT on 2/7/11 so it is going on my 3rd week. I am having an issue with swallowing... I find myself at the tail end of swalling food, liquid or just the everyday deal... trying to hard to complete the motion. Even a wide "yawn" hurts. It appears that the I have a permnant "frog" in my throat. This…
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early on in the process...
Hi, I am a 22 yo female recently diagnosed with metastatic papillary carcinoma. I has a TT and lymph node dissection at the beginning of january (two incisions), and 17 of the 20 lymph nodes they removed tested positive for tumor. The tumor on my thyroid was pretty small and not really palpable. My PCP discovered this…
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Hurthle Cell side effects
I have noticed frequent panic attacks, brain fog, lethargy (when I'm not having a panic attack) weight gain and my menstrual cycles have been heavier and pms symptoms have worsened terribly.....has anyone else noticed this? I find it hard to work an eight hour day, when I get home I collapse. I care for my parents who are…
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Going to snap!
I had my TT done Nov 1, 2010. My RAI done in Jan 2011 and now they are decreasing my synthroid from 250 mcg to 225 mcg. I am finding out that I am super sensitive to the thyroid drugs. I had a reaction to the generic med- skin peeling off in sheets, hives everywhere, hair falling out in clumps.... started taking the brand…
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Papillary TC: Unchanged fT4 even after several T4 dose increase
I had a TT in May 2010 and was treated with RAI in the end of July 2010 after about 5 weeks without thyroxine (T4). After I started taking T4 again (125 mcg/day) I had my fT4 measured after 4, 5 and 11 weeks. The results showed fT4 14-14,5 (lab ref area 9-22 pmol/l), fT3 3,4-3,6 (ref 3,5-7,8) and TSH 19-27 (ref 0,2-4). The…
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side effects
Hi, I am having panic attacks at times, other times I am very lethargic, I find it hard to work a full time job. I have also had issues with my menstruat cycle that are different than when I had my thyroid. I have gained alot of weight and found the only diet to work is the Atkins diet. I tried eating better and…
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Thyrogen injections vs going hypo
I need help! I'm scheduled to have my second round of RAI treatment in March. My doctor wants me to go off my meds next week. I had my first round in November and only then started on thyroxine. I'm just feeling normal again and am dreading the thought of having to go hypo again. I'm also afraid I won't be able to keep…
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More than 1 surgery?
Hello I am wondering if anybody has heard of a similar scenario or can comment on the below: basically after undergoing the surgery, the patient has recieved 2 rounds of radioactive iodine treatment, there are still some cells in the neck area, and the doctor has advised that the area where they are located does not…
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Hurthle Cell Thyroid
I have recently been diagnosed with Hurthle Cell thyroid. I have a consultation tomorrow and hope to get some answers to my questions. My doctor told me I could wait to have my surgery until May or after my daughters wedding. Does anyone have any thoughts on this matter as I am concerned about waiting that long?
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I-131 A little scared now....
Okay, I've been on the low iodine diet for 2 weeks yesterday (thanks with all the advice on that)and I'm supposed to take the I-131 tomorrow or Friday and now my brain is racing. I'm scared...how will it make me feel? are there bad side affects? will it kill all remaining cancer? how will I know if it doesn't? I have…
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vent & question about specialists
Hi, all. I don't post often, but I've learned a lot from reading this board. Anyway, I need to communicate with people in the same boat as I am in. I had a total thyroidectomy in November 2010, RAI in December 2010, and yesterday my endo called and said that the last biopsy shows that I have 2 cancerous lymph nodes that…
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Total Thyroidectomy
Hi, I had both of my thyroid removed on Feb 7 and is doing very well. I am back to work and now having this stiffness on my neck and now i am becoming hoarse. Is this common. My job entail lots of speaking. Thanks
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New to posting on the boards and need to vent.
I’ve been a member for awhile but have not posted until recently. I joined right after I was diagnosed with papillary carcinoma in April of 2010. Had a TT May 10, 2010, and radioactive iodine treatment (150) at the end of June. They did find a lymph node with cancer during the surgery. They also found that the original…
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what is rai like
I GOT THE HEAD OF NUCLEAR MED AT A GOOD HOSPITAL TO DO RAI ON MY TUMOR--AFTER BEING TURNED DOWN BY ANOTHER DOC. I GO TOMORROW FOR AN INJECTION AND THEN FIVE MORE INJECTIONS. IS THAT THYROGEN--DOES ANYONE KNOW THEN I HAVE A DAY OFF AND TWO MORE DAYS OF INJECTIONS AND THEN RAI--COULD YOU TELL ME HOW CAREFUL YOU HAD TO BE…
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Hoarseness of voice
My friend has been diagnosed to have thyroid cancer and histopath findings shows micropapilary cancer with colloid goiter and one node involvement. She's still young with 3 children and is depressed because her voice is very hoarse. The capsule of the cancer has been very adherent to her laryngeal nerves and has to be…
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Thyroid Cancer and Hashimotos
This board is not where I spend my time, so I apologize if this information is common knowledge here. I just learned that EVERYONE who has thyroid cancer has Hashimoto's. There is a very comprehensive book out there about this condition and how to address the autoimmunity instead of just treating the symptoms with thyroid…
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Recent TT and Upcoming RA-131 Treatment
I was diagnosed on 12/28/10 with Papillary Carnicoma by my Endocrinologist via an FNA a week before. The nodule/tumor was 1.57 cm in size. He had some referals to Surgeons but they weren't amoung those "in-network" through my healthcare provider. Researching for a Surgeon was tough, but eventually found one. I had a TT on…
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New to thyroid cancer.. freaked out
I'm 25 years old and few days ago I got diagnosed with thyroid cancer (papillary carcinoma). The doctor say that I have nothing to worry about. but I'm freaked out. I will see a surgeon in 3 weeks to talk about my surgery. I'm not sure how all this works... I'm scared. Am I gonna be ok??? On top of everything today I went…
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178.3 mCi's of I-131 today
Well, it's done. I took my dose about an hour and a half ago. Of course traffic was heavy getting home and I really had to pee. I think just knowing that I couldn't stop to pee made me want to go even more. The good news is that I can eat anything I want in about forty-six and a half hours (but who's counting). Yeah! Julie
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WBS- on endos desk now -- OY!
Is the waiting the worst or what. Waiting on WBs following RAI I guess I am lucky- as only waiting about a week to hear- so keep calling the office who finally chceked. On desk- waiting for endo look at then nurse will call me ...
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Good Scan
Had my scan today after my RAI. I took up the RAI and the doctor did not see any signs of metastasis. It was very strange looking at the uptake scan. I was shocked at how much my liver absorbed. Seems that it took the majority of the I-131 along with the Thyroid cells. My throat is killing me however and I feel like I've…
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1st post- Hashimotos, TT, RAI and scan ...vent ... fiance' left me and baby ...
Well- 16 yrs ago diagnosed with hashimotos- scan/biopsy- etc. Unfortunatley could not put me on meds- as swing from hypo/hyper- HELL! fast forward- had baby- OB noticed lumps- which knew I had but was told less chance cancer with HASHIMOTOS (not true I now find out)- have U/s and then see endo who sends me to surgeon-…