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AM I BEING TOO UNASSERTIVE ON NOT INSISTING UPON SEEING THE TOP DOCTOR?
My thyroid cancer has doctors scratching their heads and disagreeing and unsure what to do. I had a goiter for many yrs--it was benign, Then I found out in Feb of this year on the other--left side--I had a new nodule which a fine needle biopsy showed to be malignant--and a poorly differiated type--very aggressive. It was…
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legal help
I am a 46 yr old mother of a 5 yr old lil girl. I had my thyroid removed in Dec 2009 was not told that I had cancer until mid January 2010. I left my husband in November ARGH!!!! Now my parents and husband are tyring to take my baby from me. I have been on the LID diet for a couple weeks and scheduled for RAI on Aug 11th.…
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was anybody's RAI like thisI
I HAVE AN INOPERABLE THYROID TUMOR--THO THEY TRIED FOR HRS TO REMOVE IT IN APRIL. MY ENDIN. SENT ME TO THE HEAD OF NUCLEAR MED FOR RAI--AFTER I STAYED ON THE LOW IODINE DIET FOR TWO WEEKS==THIS WAS JUST ABOUT SIX WEEKS AGO. FOR MONTHS THE DRS. COULDN'T MAKE UP THEIR MINDS WHAT TO DO WITH ME. WHEN I ARRIVED FOR THE RAI THE…
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does anyone have poorly differiented thyroid cancer? Has anyone been told iodine treatment won't he
My tumor is diagnosed as poorly differentiated thyroid cancer and they don't think it would respond to iodine treatment. It is inoperable and considered aggressive. Does anyone else have this type or been told iodine treatment might not help at all? thanks. I am disappointed--as I don't know what is left. They said…
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Hashimoto's & thyroid cancer followup testing
I have Hashimoto's (autoimmune thyroiditis) and was just recently diagnosed with papillary thyroid cancer. I am going to have a thyroidectomy very soon, and I'm concerned about the followup testing that is necessary to check for recurrence. I know that testing thyroglobulin is kind of the primary marker for recurrence, but…
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did you have a salt craving after your low iodine diet
i went on a very strict low iodine, low sodium diet for two weeks prior to iodine treatment . when i showed up the head of nuclear medicine decided not to give me the treatment. he said he wanted to see more records, slides, etc. also he felt the treatment would not help me that much. i have an inoperable poorly…
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T4 Level what does it mean.
Last year in May 2009 I had my thyroid removed. Papillary Carcinoma with 2 lymph nodes metastisis. They gave me radioactive iodine but never removed Lymph Nodes. I have had blook work done every six month. Until, this week I went for my blood work, because I see my Endo next week. One of the test takes about a week to be…
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Newly diagnosed Papillary cancer
Hello, I am very new to this and very scared, nervous and hopeful all at the same time. 7 months ago when I was 7 months pregnant I found a few swollen lymph nodes on the left side of my neck. After 4 doctors, having a baby, amoxicillan, penicillin, etc. Finally I was given a biopsy last Tuesday and the pathologist…
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possible 2nd reoccurance after 2 years
I wrote some posts a few months ago writing about my Tg being nondetectable for almost 2 years post TT and lymph node removal. Tg came back in March at 14, with body scan negative. Had bloodwork of Tg done a few months after that and it came back at 1.1. (Mistake in the lab? No one knows.) Went to new dr who ordered a…
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hypothyroid
what does going totally hypothroid mean thanx
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urinary tract infections after being cathried long time in hospital
i already suffered from incontinence after i had a total hysterectomy for an ovarian tumor when my daughter was four. i felt lucky to be alive though.then i just had very lengthy thyroid surgery--many hours--as surgeons attempted to removed a tumor that was ultimately inoperable on the left side as it was too close to the…
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Just got this link
http://www.thelydiaproject.org/ The above link goes to the Lydia project. Lydia provides free services to women facing any type of cancer anywhere in the world. This support includes ongoing correspondence and encouragment every month for at least twelve months. Every woman receives a handmade tote made by the loving hands…
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Parotid Gland Swelling (Saliva Gland)
Hi everyone I am new to CSN. I was diagnose with Papillary Thyroid Cancer in May 2009 and in June 2009 had a TT. I was informed by my doctors that the cancer that I had was an agressive one so they had to give me a high dose (150) of the RAI 131. The RAI was done in August 2009 and I was in the hospital for 2 days. For the…
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Not a bad cancer, so husband left me
Well, all through my treatment my husband was about 4 hours from me because he got a new job and we couldn't afford to move. He heard so many times "it's the cancer you want" and "it's not a bad cancer" that I feel he started to think I wasn't really sick. He also didn't see me during the treatments. So I found out he…
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Parathyroid nodule
I have hypothyroidism and currently taking .137 MCG. I have noticed that I was sore on the front of my throat so since I was due to have my levels done I had my doctor check it. Next day had a thyroid sono and this morning got the call that I have a 1/2" nodule on my parathyroid. Well I have looked for a message board on…
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Numbness & Heavy Feeling in Legs & Arms
Hi! After the Thyroidectomy in November 09 I was having issues with my calcium levels so I have been taking 6000 mg of Tums everyday plus 50,000 IU's of Vitamin D once a week(they had to take out a crap load of Parathyroids also since the cancer had spread) My Doc thought at that time that my body would start producing…
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Nervous about being hypothyroid... Any advice?
Hi, I got my papillary diagnosis in early April and had my thyroidectomy in mid-May. My first scan is scheduled for the end of this month, so I will stop taking my Cytomel next week. I'm nervous about the symptoms of being very hypothyroid, and the only information that I can seem to find on the subject just discusses how…
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nausea
Hello. I just joined the network. I had a TT with lymph node dissection on June 1st and am now on the LID since June 28, no thyrogen, off synthroid since June 14th. My doc wants me to go hypothyroid before RAI on July 16th. In the last week, I have been nauseous and had an upset stomach alot. All I can think of is that the…
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anybody get a gigantic swollon neck way out past their chin from a needle biopsy on thy thyroid
I had two needle different needle biopsies on my thyroid--one on the right side (seven yrs ago) and then one on the left side when a nodule appeared there. The first biopsy was normal looking--just a little trouble breathing as it was close to the windpipe.It was also benign. But the second biopsy done in Feb, 2009 looked…
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Rose Medical Center
Hello everyone I wanted to post this to see if anyone knows anything about or has been to Rose Medical Center in Denver CO? A friend has recommended them for treatement and I am leaning to go there for my 3rd go round with thryoid cancer as my options here in Wyo are basically limited to 1 endo in the whole state or going…
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neck and ear pain
I was diagnosed with thyroid cancer in February 02. I had surgery in February 02 to remove my left thyroid lobe and again in April 02 to remove the right lobe. I then had radioactive iodine therapy in June 02. Beginning in June 02, I began experiencing a mild sore throat on the left side only. The pain then began to…
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thyroidglobulin
What is thyroidglobulin--thanks
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WHAT SHOULD TSH LEVEL BE WHEN YOU GET YOUR BLOOD TEST DONE IF YOUR THYROID IS NOT OUT-BUT YOU HAVE C
MY TUMOR ON MY LEFT SIDE CAME BACK AS MALIGNANT--POORLY DIFFERENITATED--WHEN I HAD MY NEEDLE BIOPSY DONE IN FEB.. WHEN THEY TRIED TO REMOVE IT, THEY COULDN'T BECAUSE OF ITS POSITION. IT WOULD HAVE BEEN TOO CLOSE TO MY AORTA, ETC. NOW THEY REALLY DON;T KNOW WHAT TO DO. THEY SAY IT IS A CONFUSING CASE. I GOT THE CANCER…
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IODINE FREE DIET
I have to start a low iodine diet--and I eat in restaurants alot as it is hard for me to shop and cook as i have a muscle disease. I downloaded the diet from thyca--but cud use all the advice I can get. Did you give up soy products? How many calories did you eat? Any input would be so appreciated. My thyroid tumor was…
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Bilateral Neck Dissection Anyone?
I met with the head and neck surgeon and he says I need a bilateral neck dissection. This will be my 4th neck surgery. I have a metastic HCC on the left side of my neck which may involve a major blood vessel. I will have another CT scan to determine the location of the tumor relative to the artery. I also had an HCC mass…
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Temporary SSI
Has anyone tried to get tempary SSI with Thyroid Cancer? I don't want disability cause I know I WILL go back to work but with what I used to do before I lost my job, that it will take a while to build back up. I was walking 10 miles a day in a warehouse(warehouse work is all I've ever done.) My unemployment will run out…
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Going total hypothyroid
My RAI treatment is set for July 9th. Here's my question I had my surgery on May 6th took everything out as it did come back cancer so I have been off my thyroid meds for a while now. My back feels like it is seizing up in my muscle areas. Anyone else have this and is there any relief? Sometimes it feels like its going to…
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Possible 3rd recurrence
Hi, I am posting here as this seems like my best place to go for advice. I had my first go round with thyroid cancer (pappillary) in 2001, at that time 2.2cm of the thyroid was cancerous and also all 7 lymphnodes they took out of my neck were too. Then in 2008 I went thru alot of crap to get diagnosed. I live in Wyo where…
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LOW IODINE DIET
i AM CONFUSED ABOUT HOW LONG YOU ARE ON THE LOW IODINE DIET. MY DR'S OFFICE GAVE ME NO REAL INSTRUCTIONS. I WENT ON THE THYCA LOW IODINE COOKBOOK FOR TWO WEEKS I GO TO THE HOSPITAL MONDAY THREE DAYS IN A ROW--MONDAY, TUESDAY, WEDNESDAY. I WAS TOLD ON WEDNESDAY I BELIEVE I SHOULD STAY AWAY FROM PETS AND SMALL CHILDREN WHEN…
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Has anyone been diagnosed with two different thyroid cancers?
Hello. I am new to CSN. My FNA in February 2010 showed that I had a Hurthle Cell neoplasm, sadly, so did the second opinion FNA in April. My lobectomy was on May 3, results showed I had Hurthle cell carcinoma (3.2 cm). My second surgery to remove the rest of my thyroid was May 17. I saw my Endo on May 20 who told me they…