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Cervical Cancer Survivor, if you call it that.
My name is Tina and I am 44 years old. I have been trying to get some information on what I am going through. I was diagnosised with cervical cancer back in 2013 but I had all the symptoms since 1990 and the first pap smear was obnormal. I was turned away by every doctor and E.R. would just leave me out in the waiting (was…
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Vaginal melanoma
I have just been diagnosed with Vaginal melanoma. Has anyone had any experience with this?
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Extragonadal Germ Cell Tumor - Chest
HELP NEED INFO I am caring for my fiance that was diagonsed with extragonadal germ cell tumor in his chest originally in Feb 2009. He went through 6 months of chemo and then a major surgery that affected his lungs and had to be partially removed. The surgery was im September 2009. By his first check up that following…
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extragonadal mediastinal germ cell tumor (yolk sac)
My fiance is 29 and was diagnosed with extragonadal mediastinal germ cell tumor (yolk sac) 4 weeks ago. He is on a vent because it has blocked his airway and collapsed his left lung. After 4 weeks of chemo it has not shrunk any. They said his tumor is the size of a grapefruit. If anyone has any experience with this?…
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Appendiceal Cancer
Hi, I'm new to this site and to discussion boards in general. But I am still recuperating for 10-hr surgery in Sept 2011 to remove tumors from my abdominal wall, to remove my spleen, gall bladder, sm intestine, and R colon, and a chemo bath in the same surgery. When the doctors said it would take 4-6 mos to recover, they…
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mucoepidermoid salivary gland
If there is anyone with this type of cancer, please contact me. My mom was just diagnosed stage II. Please reply.
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Neuroendricine Cancer
I was diagnosed late Feb this year and have had my 2 treatment by injection. Was looking for further formation and discussions with other Net sufferers.
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low platelets
Hi everyone. . .I've been on Temador (ONLY) now for 10 monthsfor pancreatic neuro endocrine and after experiencing the drop in platlet syndrome I did some research and found the power of Papaya Leaf Extract. I buy the tea bags from Amazon and 1 cup a day has lept my platelets in check!!!. When I travel I substitute payap…
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Gastrinoma
I have diagnosed with Gastrinoma last january in midgut and metastasis to liver on Octreotide LAR injection treatment, I was on PPI (Pantoprazole) for long time and I believe PPI caused the cancer, I would like to hear from other patients if they have same symptom and causes of the cancer.
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Gallbladder Cancer - 2012 (Any Stage)
Hi everybody! I'm starting a new discussion thread after having some frustrations posting today. When the threads get too large we seem to have problems. Double posting, no posting, disconnect, etc. I don't know if you have experienced this or not, but it just drives me crazy. Of course I will still check the other threads…
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Gallbladder Cancer - 2014 (Any Stage)
Here is a new forum topic for all stages of gallbladder cancer for 2014. Lily50’s great idea to consolidate GBC discussions should continue. GBC is, sadly, just one of countless “Rare and Other Cancers” on this discussion board. It is tough to keep up with the posts when there are different threads going on. By way of…
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Zollinger Ellison Syndrome
Anyone has ZES, MEN-1 or Gastrinoma.
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New here and wondering if anyone else had choriocarcinoma??
I was diagnosed last February with ovarian choriocarcinoma after a miscarriage. Very rare cancer. It's been one year since my treatment and I feel pretty good physically. I haven't really talked much about what I went thru last year. People just don't understand. They try..but they just can't. So was just hoping someone…
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Myelofibrosis
I would like to make contact with other patients with Myelofibrosis. I was diagnosed in Aug 2001 and have enjoyed 4 years of "stable" blood counts (hemaglobin around 11) until this fall when they began to drop. HGB 9.9 end of Sept and 9.2 beginning of Nov 2005.
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Vipoma
Does anyone have any information on VIPoma. I was diagnosed in 1996 after about six years of misdiagnosis. I had a liver transplant in June of 2001. I would really like to correspond with anyone who has this disease or know someone who does. Thank You very much
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Stage 4 GBC
Hi, I was recently diagnosed with Stage 4 Gallbladder Cancer. My oncologist didn't really give me a very high survivor rate, however I am only 33 and I have yet to see anyone else my age with S4 GBC. Anyone out there have any experience with my situation? I am staying positive and I know that I can beat this, but it would…
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Spindle Cell Sarcoma of the Kidney
At the end of 2015 my dad who is only 54 years old was diagnosed with a rare form of kidney cancer called Spindle Cell Sarcoma. In October of 2015 he went for a check up and was told there was a mass on his kidney over the next few months he was going back and forth to the hospital for different checks. In February 2016 he…
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neuroendocrine small cell carcenoma
I am just looking for any survivors of this cancer out there or anyone else dealing with this cancer. Mine presented with a tumor on my cervix. We removed it along with a full hysterectomy and 50 lymph nodes, two of which had cancer. I am now undergoing 6 rounds of chemo (3 days on, 18 days off, 6 times) then I will do…
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high grade neuroendocrine carcinoma of the stomach
My 33 old husband has been diagnosed with NEC in stomach with mets to liver. As per the biopsy, ki67 index of stomach is less than 10% while the index for the liver is up to 40% (high grade). He cannot have a surgery because it's too invasive. The oncologist said its not curable and the goal of the treatment is to control…
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PanCan Spouse Diagnosed 10/2015
Please go to Rare and other Cancers and look at my thread that I have posted. Please help me out with what I am going through with my spouse. How can I relate to him.
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Polymorphous adenocarcinoma
I am aware that this is a cancer "survivor" forum. And that I will certainly be. There is not a lot of information available for the tumor I was told I had. Dreading the aftermath of my surgery, I applaud every single person on here for their strength, encouragement, and confidence. I hope to be able to do the same.
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More than a little dazed and confused, not to mention scared!
About 2 years ago, I was diagnosed with vulvar cancer ending in a radical vulvectomy. I haven't been able to keep up with all my check ups due to financial hardship, but just recently I have found 4 lumps in my pelvic area and a 5th one in my groin between my thigh and pelvis. I'm stunned into not moving, has anyone ever…
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Gastrinoma
I just diagnosed with rare cancer Gastrinoma Multiple Endocrine Neoplasia 1 (MEN-1) and would like to meet someone with same. I am so scared and I misdiagnosed for 4 years by a few doctors for simple fasting Gastrin blood test.
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Surgical Recommendations for Advanced Gallbladder (GBC) Stage IV
Hi, everyone. I am helping to find a surgeon for a dear friend diagnosed with Stage IV GBC (Gallbladder cancer) in November, 2014. She did well on Gemzar/Cisplatin but when it quit working, opted for genetic testing through Perthera (using Caris and FoundationOne labs) to see if she had HER2 expression, which has recently…
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Looking for anyone with Trachea Cancer
I am looking for anyone that may have trachea cancer as I do.. I have had one week of radiation now and wondering what I have in my future as far as treatment, They don't seem to have much info on this type of cancer. Would just like to have someone to communicate with on this subject. Thanks, looking forward to hearing…
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pheochromocytoma and adrenal cancer
hi everyone my question is about inherited risk,my mother had this in 2000 she passed away very young at 44,.i am 35 now. also is adrenal cancer anything to do with thyroid conditons? she had congential hypothyroidism,i was diagnosed 2 years ago with it. i am complicated in all his by being adopoted and having no rights to…
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Gallbladder cancer stage IV with liver metastasis
My mom, who is 66, was diagnosed with stage IV GBC. Two oncologists stated that an operation is not feasible at this time. She is on Gemzar and Cisplatin (2 weeks on and 1 week off). A few questions for the board... At what point during treatment was a follow up CT scan done? How long did treatment last? Was surgery ever…
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Immune System Isulins
In 2015 I went through chemo treatment but had to temporary stop my treatment due to my immune system becoming very low at would place me in a life threaten status if I had continue with my chemo. I knew that I would have to complete my chemo treatment at some point so now that 2016 has arrived, the cancer remains but has…
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Appendix cancer/ovarian cancer?
I was diagnosed with appendix cancer in June 2011. Had surgery only. The thought was that it was caught early and hadn't spread. Been getting tumor markers and CT scans every 6 months. Last one was early Feb. 2012 - everything clear. I'm 52, had been having regular periods until the surgery in June when they all stopped…
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mediastinal Germ Cell Tumors
hi everyone..i'm a ewbee here and also a cancer survivor of 20 some years.. now our oldest son has mediastinal Germ Cell Tumors, a rare version of cancer and he has it in the chest cavity as well as in his lymph glands..he is in a cancer treatment centre ..he had devoloped some fluid around his heart .they think that it(…