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GIST and Neuroendocrine Carcinoid
Hello! I found out yesterday that I have a GIST (gastro intestinal stromal tumor) attached to my stomach and a neuroendocrine carcinoid on my duodenum, Both are very rare types of cancer and my doctor said it is “very unique” to have both of them. It took awhile to get the final diagnosis (my doctors got a second opinion…
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Appendix Stage IV Cancer
ok so I have this and I was supposed to love only 6 months. Now it is 2 years after I had surgery and I have to have the HIPEC again and I would like to find a support group for this. The procedures are new and making history and so now that 1500 surgiries are performed annual on these types of cancer a support group would…
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Going out of my mind....
Hi all, I need a little assistance, reassurance etc The story so far: 2016: April - Sweating, neck stiffness & throbbing, increasing lower back pain. May - Began feeling unwell - Dizziness and Nausea. June - Loss of balance, High BP, Persistent Migraines, loss of appetite, palpitations. July - MRI & CT of Brain - NED,…
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subtotal gastrectomies
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Olfactory neuroblastnoma
My son is 52. He was diagnosed with olfactory neuroblatnoma in May 2016 And had an operation to remove the tumor through the nasal cavity. We knew it was serious but when he came home afterward he was really well and confident about the future. He started radio therapy 3 weeks later and even after 4 of the 6 weeks of the…
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Cancer of the unknown primary (CUP) / omentum
Trying to find anyone that has been diagnosed with CUP? Any alternative treatments. My brother was just diagnosed with what is called cancer of the unknown primary. Basically means the doctors do not know where the cancer originated, however they know it is in his omentum. Doctors are stating his cancer is treatable, but…
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Dfsp
I would like to connect with anyone who has been diagnosed with DFSP. I was diagnosed and treated in 11/04. Anyone with any insight into this type of cancer would be helpful. Thank you.
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Mesothelioma
Hi everyone! I suffer pleural mesothelioma arising from past asbestos exposure. Is there anyone out there?
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HepatoSplenic Lymphoma
Hello I am new to this site. Just wondering if anyone else has this particular or similar kind of monkey on their back. Not trying to be funny but I suppose humour is good...or so I have been told. Anyway my liver is spiking along with the rest of my bloodwork except my hemoglobins, yay. I do not even know how to post tis…
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omentum cancer
My husband has been diagnosed with colorectal cancer and cancer of the omentum. Does any one else out there have this type of cancer? Very unusual cancer when in the omentum and there is no cure for it. Chemotherapy and as long as that works all will be fine. Would really like to hear from people who have this type of…
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cancer in the omentum
what to expect, meeting with oncologist on wednesday
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My friends mother is confirmed with Pancreatic cancer
Hello Everyone hope everyone is doing good and happy with your life. Here the case is my friends mother is confirmed with pancreatic cancer and its in advanced stage. Please let me know if there is any cure/treatment is available it would be of great help in saving a mother to a family. Thank you.
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Very Hot lymph node in abdomen ( retroperitoneal area )
Have now had three CT/PET scans ( 5/16,9/16, 2/17 ) showing an intensely fdg avid SMS axis lymph node 0.06 x 1.1 cm in size. First scan had SUV of 31.8 and second was 52.7 and third 33.Size has remained same and no other areas of active fog uptake. Too deep in abdomen area for biopsy and high risk surgery to remove. CT/Pet…
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Primary Peritoneal Mesothelioma
just received this result from the Kaiser oncologist regarding the PET Scan Results via email which does not explain anything in plain english such as the stage of the cancer. The oncologist said the only 2 options for treatment are either a clinical trial recruiting advanced peritioneal malignant mesothelioma or…
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Gist
Good day all, I was diagnosed with a GIST tumor in march of this year and have been on Gleevic for around 83 days to shrink the tumor because of placement and size, it was borderline removable. but on the sept.12. this month we did surgery and the suergeon could not find the tumor anywhere. last scan was on july 18th, and…
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Neuroblastoma
Is anyone familiar with neuroblastoma in young adults?
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Malignant Mixed Mullerian Tumor of the Ovary
I tried this several months ago, but they say never give up. This is the cell type of Ovarian Cancer that I have. I have read everything that I can find and I know that it is very rare. It is a combination of carcinoma and sarcoma and it is generally more progressive. I was diagnosed Stage 3B,12-3-04, and had 8 chemos of…
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appendix caner
My husband was just diagnosed with mucinous adenocarcinoma with appendix primary. After researching it we think the debulking surgery and HIPEC are his best option. Just wondering where some of you had it done and if you can give me any information. We live in Illinois but are willing to travel to find the best.
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Germ Cell Tumor
I HAVE GERM CELL TUMORS IN MY ABDOMEN. I AM ON MY SECOND ROUND OF CHEMO. THE TUMORS ARE NOT RESPONDING. HAS ANYONE HEARD OF THIS TYPE OF CANCER? I KNOW ITS VERY RARE. I HAVE SEARCHED MANY SITES AND HAVE FOUND NOTHING.
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Non Differential Carcinoma
My Sad story begins, February 2016, as my moms thought processing was played with, her primary doctor did a ct scan and found a baseball sized metasticized tumor in her brain, surgery came and went, but not only did she have a metasticized tumor in her brain, she also had 2 supraclavicular and 3 in her chest.... and no one…
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Oral Cancer
I don't see a listing for oral cancer; cancer of the hard or soft palate. There is not a listing in the discussion board as well.
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Cervical Cancer Survivor, if you call it that.
My name is Tina and I am 44 years old. I have been trying to get some information on what I am going through. I was diagnosised with cervical cancer back in 2013 but I had all the symptoms since 1990 and the first pap smear was obnormal. I was turned away by every doctor and E.R. would just leave me out in the waiting (was…
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Vaginal melanoma
I have just been diagnosed with Vaginal melanoma. Has anyone had any experience with this?
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Extragonadal Germ Cell Tumor - Chest
HELP NEED INFO I am caring for my fiance that was diagonsed with extragonadal germ cell tumor in his chest originally in Feb 2009. He went through 6 months of chemo and then a major surgery that affected his lungs and had to be partially removed. The surgery was im September 2009. By his first check up that following…
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extragonadal mediastinal germ cell tumor (yolk sac)
My fiance is 29 and was diagnosed with extragonadal mediastinal germ cell tumor (yolk sac) 4 weeks ago. He is on a vent because it has blocked his airway and collapsed his left lung. After 4 weeks of chemo it has not shrunk any. They said his tumor is the size of a grapefruit. If anyone has any experience with this?…
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Appendiceal Cancer
Hi, I'm new to this site and to discussion boards in general. But I am still recuperating for 10-hr surgery in Sept 2011 to remove tumors from my abdominal wall, to remove my spleen, gall bladder, sm intestine, and R colon, and a chemo bath in the same surgery. When the doctors said it would take 4-6 mos to recover, they…
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mucoepidermoid salivary gland
If there is anyone with this type of cancer, please contact me. My mom was just diagnosed stage II. Please reply.
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Neuroendricine Cancer
I was diagnosed late Feb this year and have had my 2 treatment by injection. Was looking for further formation and discussions with other Net sufferers.
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low platelets
Hi everyone. . .I've been on Temador (ONLY) now for 10 monthsfor pancreatic neuro endocrine and after experiencing the drop in platlet syndrome I did some research and found the power of Papaya Leaf Extract. I buy the tea bags from Amazon and 1 cup a day has lept my platelets in check!!!. When I travel I substitute payap…
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Gastrinoma
I have diagnosed with Gastrinoma last january in midgut and metastasis to liver on Octreotide LAR injection treatment, I was on PPI (Pantoprazole) for long time and I believe PPI caused the cancer, I would like to hear from other patients if they have same symptom and causes of the cancer.