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Primary Peritoneal Mesothelioma
just received this result from the Kaiser oncologist regarding the PET Scan Results via email which does not explain anything in plain english such as the stage of the cancer. The oncologist said the only 2 options for treatment are either a clinical trial recruiting advanced peritioneal malignant mesothelioma or…
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Gist
Good day all, I was diagnosed with a GIST tumor in march of this year and have been on Gleevic for around 83 days to shrink the tumor because of placement and size, it was borderline removable. but on the sept.12. this month we did surgery and the suergeon could not find the tumor anywhere. last scan was on july 18th, and…
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Neuroblastoma
Is anyone familiar with neuroblastoma in young adults?
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Malignant Mixed Mullerian Tumor of the Ovary
I tried this several months ago, but they say never give up. This is the cell type of Ovarian Cancer that I have. I have read everything that I can find and I know that it is very rare. It is a combination of carcinoma and sarcoma and it is generally more progressive. I was diagnosed Stage 3B,12-3-04, and had 8 chemos of…
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appendix caner
My husband was just diagnosed with mucinous adenocarcinoma with appendix primary. After researching it we think the debulking surgery and HIPEC are his best option. Just wondering where some of you had it done and if you can give me any information. We live in Illinois but are willing to travel to find the best.
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Germ Cell Tumor
I HAVE GERM CELL TUMORS IN MY ABDOMEN. I AM ON MY SECOND ROUND OF CHEMO. THE TUMORS ARE NOT RESPONDING. HAS ANYONE HEARD OF THIS TYPE OF CANCER? I KNOW ITS VERY RARE. I HAVE SEARCHED MANY SITES AND HAVE FOUND NOTHING.
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Non Differential Carcinoma
My Sad story begins, February 2016, as my moms thought processing was played with, her primary doctor did a ct scan and found a baseball sized metasticized tumor in her brain, surgery came and went, but not only did she have a metasticized tumor in her brain, she also had 2 supraclavicular and 3 in her chest.... and no one…
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Oral Cancer
I don't see a listing for oral cancer; cancer of the hard or soft palate. There is not a listing in the discussion board as well.
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Cervical Cancer Survivor, if you call it that.
My name is Tina and I am 44 years old. I have been trying to get some information on what I am going through. I was diagnosised with cervical cancer back in 2013 but I had all the symptoms since 1990 and the first pap smear was obnormal. I was turned away by every doctor and E.R. would just leave me out in the waiting (was…
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Vaginal melanoma
I have just been diagnosed with Vaginal melanoma. Has anyone had any experience with this?
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Extragonadal Germ Cell Tumor - Chest
HELP NEED INFO I am caring for my fiance that was diagonsed with extragonadal germ cell tumor in his chest originally in Feb 2009. He went through 6 months of chemo and then a major surgery that affected his lungs and had to be partially removed. The surgery was im September 2009. By his first check up that following…
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extragonadal mediastinal germ cell tumor (yolk sac)
My fiance is 29 and was diagnosed with extragonadal mediastinal germ cell tumor (yolk sac) 4 weeks ago. He is on a vent because it has blocked his airway and collapsed his left lung. After 4 weeks of chemo it has not shrunk any. They said his tumor is the size of a grapefruit. If anyone has any experience with this?…
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Appendiceal Cancer
Hi, I'm new to this site and to discussion boards in general. But I am still recuperating for 10-hr surgery in Sept 2011 to remove tumors from my abdominal wall, to remove my spleen, gall bladder, sm intestine, and R colon, and a chemo bath in the same surgery. When the doctors said it would take 4-6 mos to recover, they…
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mucoepidermoid salivary gland
If there is anyone with this type of cancer, please contact me. My mom was just diagnosed stage II. Please reply.
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Neuroendricine Cancer
I was diagnosed late Feb this year and have had my 2 treatment by injection. Was looking for further formation and discussions with other Net sufferers.
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low platelets
Hi everyone. . .I've been on Temador (ONLY) now for 10 monthsfor pancreatic neuro endocrine and after experiencing the drop in platlet syndrome I did some research and found the power of Papaya Leaf Extract. I buy the tea bags from Amazon and 1 cup a day has lept my platelets in check!!!. When I travel I substitute payap…
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Gastrinoma
I have diagnosed with Gastrinoma last january in midgut and metastasis to liver on Octreotide LAR injection treatment, I was on PPI (Pantoprazole) for long time and I believe PPI caused the cancer, I would like to hear from other patients if they have same symptom and causes of the cancer.
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Gallbladder Cancer - 2012 (Any Stage)
Hi everybody! I'm starting a new discussion thread after having some frustrations posting today. When the threads get too large we seem to have problems. Double posting, no posting, disconnect, etc. I don't know if you have experienced this or not, but it just drives me crazy. Of course I will still check the other threads…
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Gallbladder Cancer - 2014 (Any Stage)
Here is a new forum topic for all stages of gallbladder cancer for 2014. Lily50’s great idea to consolidate GBC discussions should continue. GBC is, sadly, just one of countless “Rare and Other Cancers” on this discussion board. It is tough to keep up with the posts when there are different threads going on. By way of…
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Zollinger Ellison Syndrome
Anyone has ZES, MEN-1 or Gastrinoma.
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New here and wondering if anyone else had choriocarcinoma??
I was diagnosed last February with ovarian choriocarcinoma after a miscarriage. Very rare cancer. It's been one year since my treatment and I feel pretty good physically. I haven't really talked much about what I went thru last year. People just don't understand. They try..but they just can't. So was just hoping someone…
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Myelofibrosis
I would like to make contact with other patients with Myelofibrosis. I was diagnosed in Aug 2001 and have enjoyed 4 years of "stable" blood counts (hemaglobin around 11) until this fall when they began to drop. HGB 9.9 end of Sept and 9.2 beginning of Nov 2005.
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Vipoma
Does anyone have any information on VIPoma. I was diagnosed in 1996 after about six years of misdiagnosis. I had a liver transplant in June of 2001. I would really like to correspond with anyone who has this disease or know someone who does. Thank You very much
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Stage 4 GBC
Hi, I was recently diagnosed with Stage 4 Gallbladder Cancer. My oncologist didn't really give me a very high survivor rate, however I am only 33 and I have yet to see anyone else my age with S4 GBC. Anyone out there have any experience with my situation? I am staying positive and I know that I can beat this, but it would…
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Spindle Cell Sarcoma of the Kidney
At the end of 2015 my dad who is only 54 years old was diagnosed with a rare form of kidney cancer called Spindle Cell Sarcoma. In October of 2015 he went for a check up and was told there was a mass on his kidney over the next few months he was going back and forth to the hospital for different checks. In February 2016 he…
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neuroendocrine small cell carcenoma
I am just looking for any survivors of this cancer out there or anyone else dealing with this cancer. Mine presented with a tumor on my cervix. We removed it along with a full hysterectomy and 50 lymph nodes, two of which had cancer. I am now undergoing 6 rounds of chemo (3 days on, 18 days off, 6 times) then I will do…
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high grade neuroendocrine carcinoma of the stomach
My 33 old husband has been diagnosed with NEC in stomach with mets to liver. As per the biopsy, ki67 index of stomach is less than 10% while the index for the liver is up to 40% (high grade). He cannot have a surgery because it's too invasive. The oncologist said its not curable and the goal of the treatment is to control…
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PanCan Spouse Diagnosed 10/2015
Please go to Rare and other Cancers and look at my thread that I have posted. Please help me out with what I am going through with my spouse. How can I relate to him.
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Polymorphous adenocarcinoma
I am aware that this is a cancer "survivor" forum. And that I will certainly be. There is not a lot of information available for the tumor I was told I had. Dreading the aftermath of my surgery, I applaud every single person on here for their strength, encouragement, and confidence. I hope to be able to do the same.
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More than a little dazed and confused, not to mention scared!
About 2 years ago, I was diagnosed with vulvar cancer ending in a radical vulvectomy. I haven't been able to keep up with all my check ups due to financial hardship, but just recently I have found 4 lumps in my pelvic area and a 5th one in my groin between my thigh and pelvis. I'm stunned into not moving, has anyone ever…