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Rare and Other Cancers

Recurring Gall bladder cancer
Hi! My finace had his gall bladder removed in 2011.It was full of cancer and they took part of his liver at that time as there were lesions on it. He went through 6 months of chemo and was told there were no signs of cancer after that time. About 6 weeks ago, he developed a cough,went to the Dr who diagnosed bronchitis and…
Possible Signet Cell cancer
Helllo, I don't know if anyone else has this cancer or has CUP. I am very frustrated and find it hard to find the positive in anything. Let me explain. Last November otherwise pretty healthy went to doctor for what i thought was a bladder infection. By january 2013 I was told cancer but not bladder cancer. Ihave spent the…
Side affects of Whipple Procedure
A year and a half ago my friend was diagnosed with pancreatic cancer. Soon after that she was underwent the Whipple procedure. During the past year she has lost a total of 50 pounds. She has been able to gain 12 pounds of it back. However, the more time that passes the harder it is for her to keep down food, or to even…
VIN
VIN cancer of the vulva Information on treatment options
adenocarcinoma
my mom was just diagnosed with adenocarcinoma in the small intestine. she had done by pass operation. her tumor remained in the duodenum. it cannot be removed because of its location. the tumor lies tha root of the blood vessels. so what is the next procedure we are going to do?
Radiation Failure
A 15 year old girl just passed away in March 2013 three months after treatment using Cyberknife. The girl was told to have 80% success rate of treatment. The treatment failed terribly exploding the tumor on the neck from half size of a plum to half size of a large cantalupe. The tumor became so stiff that it choked off the…
?? Calcified nodule turning into Adrenocortical carcinoma ??
I'm new to the site and finally managed to answer the questions for the "about me" page. Some of it took some thinking. Anyway, I have a question and I suppose I will have to actually wait for final pathology to find the answer, assuming anyone has an answer. :) One of my surgeons discovered an adrenal nodule during the…
Need Advice: Whipple Surgery - Distal common Bile Duct Stricture
I came across this site after numerous searches over the Internet for Whipple Procedure and Bile Duct. My Mom started with this and we are 7/8 months into this still with no real clear answers. In short this is what has/is going on. My Mom had a ERCP performed and she had a lot of sludge in her Bile Duct so, they performed…
pnet of the spine
My fiance has just been diagnosed with pnet of the spine. He is 27 years old. The tumor was seen in a contrast MRI 2 weeks ago between L2 and L3. The doctors suspected it to be a neurofibroma. It was surgically removed 2 days later. The biopsy report came in and the doctors now say it is a pnet. PET scan has been done of…
Metestatic Melanoma in the pluera
Has anyone been using Zelboraf as their only option? Side effects?
Invasive Sqamous Cell Carcinoma
Hi everyone, I was misdiagnosed 7 times last year with 6 different dr's who said I had MRSA. It turned out to be Squamous cell carcinoma. It was in my nose and eating my septum. I underwent25 radiation treatments and then had to have surgery that removed my nose, pallet, teeth and some lymph nodes.I have searched…
When your will to live lessens every day
Anyone out there with cancer of the ampula?
I had a cancer lumped in with pancreatic cancer by docs because it is so rare. It is cancer of the ampulla of vader (I think of it as Darth Vader and just want to blurt out "I had Darth Vader". The treatment was just the same as for adenocarcinoma of the pancreas. I had the Whipple Proceedure followed by 4 mos. of chemo…
Neuroendocrine carcinoma: liver, maybe pancreas, one of my lower vertebrae
I was diagnosed with neuroendocrine carcinoma last August (2012) when a scan revealed a large mass in one side of my liver. The first recommended treatment was to insert radioactive isotopes into this mass to try and shrink it, which we did, in preparation for a later surgery to remove it. Surgery was scheduled, but three…
myxopapillary ependymoma
I am 18 years old and have myxopapillary ependymoma its a mouth full trust me I know. I was origanally diagnosed when I was 12 years old and had surgery to remove the majority of tumor after I had surgery then I had Proton beam radiation. The tumors in my lower spine where I had the majority of the radiation have not…
pancreatic cancer
Hi.. My dad had a whipple surgery for pancreatic ca .It was in the head of the pancreas... this was in July of 2012.. He is doing ok now..He is back working.. He just turned 75 years old.. He just cant seem to gain any weight.. Anyone else with the same situation? Thanks
SEEKING INFORMATION FROM AN ELDERLY PERSON WITH A RARE TYPE OF PALATAL CANCER
My mom is a healthy,active and strong woman of 80 years old,who never used alcohol or tabacco.She was recently diagnosed with Squamous Cell Carcinoma involving the upper ALVEOLAR RIDGE (upper gum) and her two front teeth are loose due to the carcinoma which is invading the bone and ANTERIOR PALATE. A CAT Scan measured the…
pancreatic lymphoma
I have pancreatic lymphoma, which apparently is very rare, although potentially a better prognosis than the usual pancratic adenocarcinoma. However, I can't find much information asbout this. Anyone out there with any experience with this?
Choroidal Melanoma
I want to hear from others who have had eye cancer.
eye cancer
i would really like to meet some survivors of this cancer i need information it must be rare because i cant seem to find any one in my area with the same cancer as me please help me out
eye cancer
i would really like to meet some survivors of this cancer i need information it must be rare because i cant seem to find any one in my area with the same cancer as me please help me out
choroidal melanoma
I was diagnosed with Choroidal Melanoma on my right eye in January 2010, by a Retina Specialist here in Birmingham, AL. It is a rare cancer, only effects 6 in one million people in the US. I was evaluated at the UT Hamilton Eye Care specialist in Memphis, TN, and returned 2 weeks later to have plaque radiation surgery. I…
I am new here
Hello Everyone: As the subject line says I am new here. Just found this site this morning. I am a 69 year old diagnosed with a medium Choroidial Melanoma in my right eye in June of 2012. I had plaque radiation therapy in September 2012. The disk was in place for 7 days. I had my first check up January 3rd of this year. I…
Lower extremity edema with duodenal cancer?
My hubby has a diagnosis thus far of duodenal cancer. He has lower leg edema that has been getting worse. He hasn't had any treatment thus far for his cancer. Anyone else know anything about this? I would appreciate any information. Seems odd that he has this when his labs are so low, ie, sodium, potassium, calcium, iron…
Anybody out there choose no treatment?
My husband has been recently diagnosed with duodenal cancer with liver mets. In short, the surgeries, chemos and radiations prescribed seem to offer a 4 to 36 month survival rate. We are seriously considering doing nothing more than a blood transfusion and taking our chances with mother nature. He feels fine right now and…
looking for anyone surviving Mucinus Adenocarcinoma with unknown Primaries.
Was diagnose in 2010. Went with Duke, had total hysterectomy with a 2lb. mass on ovary, tumor markers shown unkown primaries..via mosty CEA's. Did 6 treatments with Taxol/Carbo. finished in April 2011. It really has taken me this long to really over the chemo., It took it's toll on my body, mind and soul. I had to step…
My mom has cancer, don't know what to do...
February 1st, my mom was diagnosed with abdominal carcinoma, which at that point had spread to her esophagus, stomach, and colon. She had been sick for 5 months before the diagnosis, not being able to keep down any food and ended up losing about 35 lbs. Her cancer is tumorless (probably microscopic) and the original…
Pancreatic Cancer
My brother at age 44 was diagnosed with Stage 2 Pancreatic Cancer last Dec, 2011. He was out hunting and actually thought he was having a heart attack, went to the hospital only to find out a month later his heart was fine but they had found a tumor in his pancreas. He had PET scans and every other test known I think, told…
Cholangiocarcinoma Stage 4 battle - Taking a chance
It's already 4 weeks since the malignant tumor was discovered inside my husband's liver and lungs, and still, we couldn't start treatment. I'm screaming out for help from doctors: they all look at us with this 'I'm sorry' look that leaves nothing but a miserable lump in the throat and my husband in pain. Even his close…
NET's
Was diagnosed with neuroendocrine carcinoma, the same kind that is usually found in the lungs, but my tumor was on the vulva which the docs can't figure out why. Surgery removed the tumor, only 1 cm, and now started on chemo for the next 5 months. They are treating me as though I had lung CA due to the type of cells in the…

Rare and Other Cancers

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