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Strange things happening - Wondering if anyone has ever had this problem Duodenal Polyps
At age 33 5 years ago, I was diagnosed with Colon Cancer, and extremely lucky enough to be able to have them do a partial collectomy with no further treatment but a regular colonoscopy. After I got out of the hospital my oncologist recommended I go for a Upper GI where they found that I have thousands of polyps throughout…
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Sandostatin Question
My husband had been doing well with the short acting Sandostatin injectable for the initial two week period. He started the long acting version three days ago and the diarrhea has resumed. How long before the long acting takes effect? I have one vial of the short acting that I can give him but it is only good for five…
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anal to bone/inner ear?
Okay, maybe I don't belong here. I am two years tx this august 15th from stage 3 anal cancer at 6:00 (picture an analog clock). So I had lots of pain before my diagnosis. I was taking Lyrica for fibromyalgia and the pain was just getting worse and worse. I was getting better and exercising, doing lymphedema treatments…
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Carcinoid Cancer
My husband was recently diagnosed with carcinoid cancer. During endoscopy and colonoscopy two polyps were removed. They were biopsied and a carcinoid was in the ileum. He has mets to the liver. A liver biopsy was done and it was shown to be low grade highly differentiated carcinoid. I don't have the pathology with me. He…
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Advanced Bile Duct Cancer- Few Symptoms?
am writing this in the hope that someone can help guide me. It is August 25 2012. Back in the early part of June, my mom was taken to the ER. She started the week as an amazing active 83 year old woman with type II diabetes that had been managed with diet for over 10 years. She also had survived a run in with endometrial…
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Adrenal cancer
My beloved friend has just been diagnosed with adrenal cancer. I am looking for a survivor who might be able to provide insight and support. Thank you so much.
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My mom was diagnosed with pancreatic cancer
I just finished my sophomore year of college and a week after I came home from school for the beginning of summer, my mom was diagnosed with pancreatic cancer. She is currently elligible for surgery in August. My question is, I have three younger sisters, ages 18, 16, and 12. The 18-year-old is supposed to start college…
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Adrenal cancer
Hello all, I was diagnosed on June 29th 2012 with ACC. I had a 24cm tumor on my adrenal gland,it had spread to my liver where a 12cm tumor had formed and to my right lung where a 1.4cm tumor had formed. Chemo did not work, I went from Maine med. to Sloan Kettering in NYC. The greatest docs in the world! I had an…
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Malignant Glomus Tumors
is there anyone out there that has this rare tumor that I may share my story with?! I know that I am number 29 so there are 28 of you out there and I would like to know what happened in your cases. Contact me.
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K20/CK20 staining on inguinal lymph nodes
Hello Does anyone know the reason why K20/CK20 staining would be done to a lymph node biopsy? I went into the Dr office to get my results and the nurse came in and told me that they were sent out for staining and would not be ready for another few days. It has already been a week. I just want to know if this type of…
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Metastatic Paraganglioma
My daughter has Metastatic paraganglioma of both lungs, I have just been told that I have a Paraganglioma tumor in my neck. Can you tell me if there is any research being done anywhere. All because of a bad gene SDHD
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Vulvar Cancer: squamous cell carcinoma
Hi I am new to this discussion board. Feeling very isolated with my type of cancer. Have not found too many people I can talk to about it. Dx in March 2012 Stage 11 Squamous Cell Carcinoma of vulva. Had chemo ( 2 cycles of 5 days continuous, 5FU, Cisplatinum) with 25 radiation treatments, plus 3 brachytherapies. Finished…
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Mucoepidermoid Cancer
Hi, My name is Janice. I was recently dianosed with Mucoepidermoid cancer on the base of my tongue. From what the doctors tell me this a rare. They meaning Oakwood, U of M, and Mayo clinic doctors have never seen a case like mine. Mocoepidermoid cancers are rare in them selves and mine being on the base of the tongue is…
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Pancreatic Cancer Question
My husband has been having loose stools after eating fatty foods for about one year. Two weeks ago he had an abdominal ultrasound that showed a slightlly enlarged liver with several lesions concerning metastases, the largest measuring 4 cm. He had a CT of abdomen and pelvis which showed rectal thickening. I fully expected…
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neuroendocrine carcinoma high grade
Our daughter age 34 just had her 3rd baby 4 weeks ago, at the routine c section, her ovary was the size of a grapefruit. Turns out after 3 weeks of pathology she is diagnosed with neuroendocrine carcinoma high grade. PET scan revealed thymus, lung, hip bone, 2 spots on her brain. She had no symptoms, of any problems, other…
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Recurring Gall bladder cancer
Hi! My finace had his gall bladder removed in 2011.It was full of cancer and they took part of his liver at that time as there were lesions on it. He went through 6 months of chemo and was told there were no signs of cancer after that time. About 6 weeks ago, he developed a cough,went to the Dr who diagnosed bronchitis and…
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Possible Signet Cell cancer
Helllo, I don't know if anyone else has this cancer or has CUP. I am very frustrated and find it hard to find the positive in anything. Let me explain. Last November otherwise pretty healthy went to doctor for what i thought was a bladder infection. By january 2013 I was told cancer but not bladder cancer. Ihave spent the…
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Side affects of Whipple Procedure
A year and a half ago my friend was diagnosed with pancreatic cancer. Soon after that she was underwent the Whipple procedure. During the past year she has lost a total of 50 pounds. She has been able to gain 12 pounds of it back. However, the more time that passes the harder it is for her to keep down food, or to even…
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VIN
VIN cancer of the vulva Information on treatment options
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adenocarcinoma
my mom was just diagnosed with adenocarcinoma in the small intestine. she had done by pass operation. her tumor remained in the duodenum. it cannot be removed because of its location. the tumor lies tha root of the blood vessels. so what is the next procedure we are going to do?
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Radiation Failure
A 15 year old girl just passed away in March 2013 three months after treatment using Cyberknife. The girl was told to have 80% success rate of treatment. The treatment failed terribly exploding the tumor on the neck from half size of a plum to half size of a large cantalupe. The tumor became so stiff that it choked off the…
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?? Calcified nodule turning into Adrenocortical carcinoma ??
I'm new to the site and finally managed to answer the questions for the "about me" page. Some of it took some thinking. Anyway, I have a question and I suppose I will have to actually wait for final pathology to find the answer, assuming anyone has an answer. :) One of my surgeons discovered an adrenal nodule during the…
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Need Advice: Whipple Surgery - Distal common Bile Duct Stricture
I came across this site after numerous searches over the Internet for Whipple Procedure and Bile Duct. My Mom started with this and we are 7/8 months into this still with no real clear answers. In short this is what has/is going on. My Mom had a ERCP performed and she had a lot of sludge in her Bile Duct so, they performed…
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pnet of the spine
My fiance has just been diagnosed with pnet of the spine. He is 27 years old. The tumor was seen in a contrast MRI 2 weeks ago between L2 and L3. The doctors suspected it to be a neurofibroma. It was surgically removed 2 days later. The biopsy report came in and the doctors now say it is a pnet. PET scan has been done of…
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Metestatic Melanoma in the pluera
Has anyone been using Zelboraf as their only option? Side effects?
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Invasive Sqamous Cell Carcinoma
Hi everyone, I was misdiagnosed 7 times last year with 6 different dr's who said I had MRSA. It turned out to be Squamous cell carcinoma. It was in my nose and eating my septum. I underwent25 radiation treatments and then had to have surgery that removed my nose, pallet, teeth and some lymph nodes.I have searched…
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When your will to live lessens every day
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Anyone out there with cancer of the ampula?
I had a cancer lumped in with pancreatic cancer by docs because it is so rare. It is cancer of the ampulla of vader (I think of it as Darth Vader and just want to blurt out "I had Darth Vader". The treatment was just the same as for adenocarcinoma of the pancreas. I had the Whipple Proceedure followed by 4 mos. of chemo…
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Neuroendocrine carcinoma: liver, maybe pancreas, one of my lower vertebrae
I was diagnosed with neuroendocrine carcinoma last August (2012) when a scan revealed a large mass in one side of my liver. The first recommended treatment was to insert radioactive isotopes into this mass to try and shrink it, which we did, in preparation for a later surgery to remove it. Surgery was scheduled, but three…
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myxopapillary ependymoma
I am 18 years old and have myxopapillary ependymoma its a mouth full trust me I know. I was origanally diagnosed when I was 12 years old and had surgery to remove the majority of tumor after I had surgery then I had Proton beam radiation. The tumors in my lower spine where I had the majority of the radiation have not…