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Cancer Centers of America
My mom has adrenal cancer. She is being treated at the Cleveland Clinic. I'm wondering if anyone knows anything about the Cancer Centers of America. Thanks.
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Rhabdomyosarcoma Alveolar
Our 14 year old girl was diagnosed with a very rare and aggressive cancer: Rhabdomyosarcoma Alveolar. We have been informed there are only on average of 450 cases diagnosed in the United States per year. Would like to talk with others dealing with this type of cancer.
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Questions for Gleevec users
I was diagnosed in Nov of 09 with a GIST in my stomach, which was removed. I have been on Gleevec 400mg ever since and am now just over 1/2 way finished (if everything goes well). I wondered if there are any Gleevec users that have noticed any side effects that aren't listed anywhere in the Gleevec information. I think it…
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My Fiance has Cancer, but the Hospital he is Currently at are not Starting Treatment
Good Morning Everyone, My name is Sarah and my fiance's name is Roger. We found out three weeks ago now that my fiance has adenocarcinoma of the duodenum (tissue cancer of the small intestine) and liver cancer (doctors noted actual type of cancer, but I cannot remember the name of it). Roger is currently at Spectrum…
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Follicular Non Hodgkin's Lymphoma in the small bowel?
Hi, I have read about people that has or had small bowel cancer, but I am wondering if there is anyone out there that has or had follicular non hodgkin's lymphoma in the small bowel?? Thank you!
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Just diagnosed Stage IV Small Bowel Cancer
Hi - I'm a 49 year old vegetarian female just diagnosed 4 weeks ago with Stage IV Small Bowel Cancer. I'm still pretty stunned as the last 6 months the doctors were treating me as having gastroparesis. :-( If anyone can share their experience and treatment that would be great. The tumor was 2.2 cm causing obstruction. The…
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Signet ring cell stomach cancer...please help
My father was diagnosed with signet ring cell cancer stage 4 in March and it has spread to the abdominal walls. They said surgery is not possible. Started chemo with Oxciliplatin (is supposed to be the strongest) in March. Had the 5th cycle on Wednesday and a check up soon. He is in his late 60s. His state of mind is very…
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1 year survivor
my wife was diagnosed with one of the rarest ( i guess ) type of cancer in the early month of last year she had then undergone whipple surgery last june 2012 and 6 chemotherapy sessions until december of last year. after a year of her operation, she healed greatly and living her life just like the way she had before her…
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VOTRIENT
Have any of you ever been treated with Votrient? My husband (44) has been battling a paraganglioma for 9 years now, it has mets on the lungs and bones, slow growing- spot radiation when needed. Lately it has gone into the bone marrow. He underwent a series of chemo treatments with no luck, he has started on Votrient which…
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HAI and pancreatic cancer
Hello group, My mother was diagnosed with stage 4 pancreatic caner with liver mets in May. She's responding well to her GTX treatment (little nausea and pain; she says she feels "normal!", but a doctor at Sloan Kettering said she's a good candidate for HAI. It's common procedure for liver cancer to have this pump, but I…
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pancreatic insufficiency requiring enzyme supplements after radiation
Is there anyone with pancreatic cancer who has had radiation treatment and pancreatic insufficiency requiring enzyme supplements? I'd like some advice/information about how you are dealing/dealt with it and what options you considered. I will of course reciprocate.
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linitis plastic gastric metastasis to rectum
Need help......any new developments, treatments heard? CT-PET Does not give too much information. Any suggestions on scanning equipment that may have more updated information available and where located? UCLA? City of Hope?
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Strange things happening - Wondering if anyone has ever had this problem Duodenal Polyps
At age 33 5 years ago, I was diagnosed with Colon Cancer, and extremely lucky enough to be able to have them do a partial collectomy with no further treatment but a regular colonoscopy. After I got out of the hospital my oncologist recommended I go for a Upper GI where they found that I have thousands of polyps throughout…
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Sandostatin Question
My husband had been doing well with the short acting Sandostatin injectable for the initial two week period. He started the long acting version three days ago and the diarrhea has resumed. How long before the long acting takes effect? I have one vial of the short acting that I can give him but it is only good for five…
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anal to bone/inner ear?
Okay, maybe I don't belong here. I am two years tx this august 15th from stage 3 anal cancer at 6:00 (picture an analog clock). So I had lots of pain before my diagnosis. I was taking Lyrica for fibromyalgia and the pain was just getting worse and worse. I was getting better and exercising, doing lymphedema treatments…
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Carcinoid Cancer
My husband was recently diagnosed with carcinoid cancer. During endoscopy and colonoscopy two polyps were removed. They were biopsied and a carcinoid was in the ileum. He has mets to the liver. A liver biopsy was done and it was shown to be low grade highly differentiated carcinoid. I don't have the pathology with me. He…
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Advanced Bile Duct Cancer- Few Symptoms?
am writing this in the hope that someone can help guide me. It is August 25 2012. Back in the early part of June, my mom was taken to the ER. She started the week as an amazing active 83 year old woman with type II diabetes that had been managed with diet for over 10 years. She also had survived a run in with endometrial…
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Adrenal cancer
My beloved friend has just been diagnosed with adrenal cancer. I am looking for a survivor who might be able to provide insight and support. Thank you so much.
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My mom was diagnosed with pancreatic cancer
I just finished my sophomore year of college and a week after I came home from school for the beginning of summer, my mom was diagnosed with pancreatic cancer. She is currently elligible for surgery in August. My question is, I have three younger sisters, ages 18, 16, and 12. The 18-year-old is supposed to start college…
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Adrenal cancer
Hello all, I was diagnosed on June 29th 2012 with ACC. I had a 24cm tumor on my adrenal gland,it had spread to my liver where a 12cm tumor had formed and to my right lung where a 1.4cm tumor had formed. Chemo did not work, I went from Maine med. to Sloan Kettering in NYC. The greatest docs in the world! I had an…
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Malignant Glomus Tumors
is there anyone out there that has this rare tumor that I may share my story with?! I know that I am number 29 so there are 28 of you out there and I would like to know what happened in your cases. Contact me.
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K20/CK20 staining on inguinal lymph nodes
Hello Does anyone know the reason why K20/CK20 staining would be done to a lymph node biopsy? I went into the Dr office to get my results and the nurse came in and told me that they were sent out for staining and would not be ready for another few days. It has already been a week. I just want to know if this type of…
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Metastatic Paraganglioma
My daughter has Metastatic paraganglioma of both lungs, I have just been told that I have a Paraganglioma tumor in my neck. Can you tell me if there is any research being done anywhere. All because of a bad gene SDHD
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Vulvar Cancer: squamous cell carcinoma
Hi I am new to this discussion board. Feeling very isolated with my type of cancer. Have not found too many people I can talk to about it. Dx in March 2012 Stage 11 Squamous Cell Carcinoma of vulva. Had chemo ( 2 cycles of 5 days continuous, 5FU, Cisplatinum) with 25 radiation treatments, plus 3 brachytherapies. Finished…
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Mucoepidermoid Cancer
Hi, My name is Janice. I was recently dianosed with Mucoepidermoid cancer on the base of my tongue. From what the doctors tell me this a rare. They meaning Oakwood, U of M, and Mayo clinic doctors have never seen a case like mine. Mocoepidermoid cancers are rare in them selves and mine being on the base of the tongue is…
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Pancreatic Cancer Question
My husband has been having loose stools after eating fatty foods for about one year. Two weeks ago he had an abdominal ultrasound that showed a slightlly enlarged liver with several lesions concerning metastases, the largest measuring 4 cm. He had a CT of abdomen and pelvis which showed rectal thickening. I fully expected…
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neuroendocrine carcinoma high grade
Our daughter age 34 just had her 3rd baby 4 weeks ago, at the routine c section, her ovary was the size of a grapefruit. Turns out after 3 weeks of pathology she is diagnosed with neuroendocrine carcinoma high grade. PET scan revealed thymus, lung, hip bone, 2 spots on her brain. She had no symptoms, of any problems, other…
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Recurring Gall bladder cancer
Hi! My finace had his gall bladder removed in 2011.It was full of cancer and they took part of his liver at that time as there were lesions on it. He went through 6 months of chemo and was told there were no signs of cancer after that time. About 6 weeks ago, he developed a cough,went to the Dr who diagnosed bronchitis and…
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Possible Signet Cell cancer
Helllo, I don't know if anyone else has this cancer or has CUP. I am very frustrated and find it hard to find the positive in anything. Let me explain. Last November otherwise pretty healthy went to doctor for what i thought was a bladder infection. By january 2013 I was told cancer but not bladder cancer. Ihave spent the…
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Side affects of Whipple Procedure
A year and a half ago my friend was diagnosed with pancreatic cancer. Soon after that she was underwent the Whipple procedure. During the past year she has lost a total of 50 pounds. She has been able to gain 12 pounds of it back. However, the more time that passes the harder it is for her to keep down food, or to even…