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Retinoblastoma
Hi there :] My name is Katy and I'm a 19 year survivor of retinoblastoma. My cancer was diagnosed when I was four months old and my right eye was removed immediately upon its discovery. I have lived virtually my entire life with a prosthetic right eye and no reoccurances of cancer. I know I am absolutely blessed to be…
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myelofibrosis
I resently had an MRI for a herniated disc. When getting the report to take with me to meet with an orthopedic I noticed in the findings thaat it showed Fibrous marrow associated with myelofibrosis or smoking, obesity, certain anemic states. After reading up on mylofibrosis I am scared and lost. I do not know who to go to…
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anal cancer resection
May 31 2009 Hi, I have advanced anal cancer. I have had chemo & radiation. There is residual cancer according to doctors. I can also still feel the lump. I have not had biopsy yet but when I do have it & if it is still cancer (which according to doctors is most likely) I have to make up my mind quickly about surgery. I…
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Urethral CA
Not much research on urethral cancer. Please bare with me I am new to CSN. I am looking for anyone who has had to deal with urethral CA. My type of CA is rare and aggressive. I have completed chemo treatments and I am patiently waiting for my surgery, which will be life changing for me. I am 41 yrs old and a single mother…
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Daughter/Wife torn between cancer mom and husband abroad
<p>Hi all,</p> <p> I'm new to this site and I'm really new at telling people about my problems... but here goes! (I apologize for the lengthy post. I wanted to be as concise as possible but it's a really long story to begin with)</p> <p>My husband and I were working as researchers in Korea. We were in our third month there…
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gallbladder polyps
Two weeks ago I had my gallbladder removed because I had polyps in it. Yesterday the biopsy results were in and it showed that one of the polyps was malignant. My doctor says that I am cancer free however, since the gallbladder was removed and the cancer was in the gallbladder. I happen to be a worry wart and fear that…
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Primary Peritoneal Carcinoma
Hello. Is anyone out there a survivor of Primary Peritoneal Carcinoma? I wonder what your follow up schedule is? I've moved since my surgery (Sept 05) and chemo, & am missing the good care my old doctors gave me. I'm feeling isolated,and unsure what I should be doing. If you've got advice or suggestions, I'd appreciate…
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merkel cell
Just found out that I have merkel cell had a lump in the left groin about the size of a hen egg. ct scan in the morning to see what thy can see have no idea what to expect as I still feel fine just scared spitless.
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Adult PNET cancer
Hi all, I am a 38 year old female who was recently diagnosed with Adult PNET in my spinal area but not my brain. I was just curious if there was anyone else out there who knew anything about this type of cancer. I know it is very rare so any information would be great. Thanks, Joellyn
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Pancreatic Neuroendocrine with liver mets - Sutent
Would like to know if anyone has been treated with the drug "Sutent" for this type of cancer? My husband has been battling this disease since Dec. 2007. He has gone thru Temador, Xeloda, Nexavar, Afinitor. Sir Spheres(twice), chemoembolization. Now the doctors are putting him on Sutent. If you have taken this drug for this…
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"You know that rare cancer that Steve Jobs had."
Or more officially Metastatic Panceriatic Nueroendcrine Tumors. No wonder we're not popular. So are there any more of us out there?
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Pancreatic cancer
Is there any who would be willing to discuss pancteatic cancer with me? I see many other cancer types listed but not pancreatic. I would like to see how you are doing and coping. I have type 2 and have had a Whipple with follow up chemo and radiation and would like to compare notes. Thanks gwen66
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I started having very strong pain on the left side of my abdomen
I hope you can help me. I started having very strong pain on the left side of my abdomen since July this year and the doctors have not found the reason yet. I contacted with author of http://painleftside.net and he told me it may be diverticulitis, kidney stones, or cancer (at worst), but he doesn't know without medical…
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Adrenal Cancer
My daughter was diagnosed with adrenal cancer. surgery was performed and thankfully it was fully encapsulated it was 14 cm so based on these characteristics it was stage 2 the surgeon approached this very agressive he removed the adrenal gland and took a lot of extra tissue once tested the outer portion of the tumor and…
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Noninvasive Micropapillary Serous Carcinoma of Ovaries - Anyone else?
Doctors say it's very rare. Would love to hear treatment plans of others. I'm only 27. Thanks.
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Anyone had Ascites with Pancreatic Neuroendocrine w/mets
Trying to find out information if anyone has ever had Ascites. The last few weeks my husband has been saying he has been feeling bloated. And every time we went to doctor in the last month he had weight gain. Well I kept thinking that was strange since he has not been eating much. Well we r waiting on bloodwork to come…
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neuroendocrine somatastatin tumors on pancreas with liasions on liver.
Looking to compare notes with anyone who has had the somatastatin diagnosis of this type of tumor.
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Pancreatic Cancer
Hey guys help me out, Docs found out a mass in the head of the pancreas a year and 1/2 ago, the size of 3cmx2x2, last month I repeat the cat scan and the mass is growing, and is now 3.8cmx2.2x2.2. They suggested me WS, but I have been reluctant, the biopsy from last year shows is benevolent. What do you think, should I go…
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strange growth
I had a whipple on January 20, 2005, no other procedure or follow up after, then on the 21st of June, I had a CT scan and a finger sized growth was found, a biopsy done and the growth was said to be mostly solid, very little liquid areas but was non-cancerous. The growth was found on the back of my liver. Is this to be…
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Neuroendocrine Cancer
Hi. I am just wondeirng if there are others who have been treated for neuroendocrine cancers? I had surgery in 2011 and am wondering about follow up treatment. My NET was in small intestine with spread to lymph glands. I have not had any further treatment or scans and doctors have me on wait and. See approah. Any…
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Vaginal Cancer ( squamous cell carcinoma )
Is there anyone that has or had this type of cancer.
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new short film on cancer - looking for stories for next film
I am from the colon cancer group but want to post this : PSA on Early Detection for colon cancer ... http://www.youtube.com/watch?v=86jEIEBLPNM&feature=player_embedded the next one will be on diet & alternative therapy during remission. If anyone has a story to share, please message me. I want to keep making these videos…
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Rhabdomyosarcoma Adult
Hi, I am Justianus Rachmat from Indonesia. My father recently just had the PET SCAN and Biopsy and the result, he has a Rhabdomyosarcoma Tumor in his upper back tight. The tumor has spread to his lung and until today, he has no pain or sickness felling. I desperately need some information regarding the outcome of survival.…
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Tongue Cancer when Radiation is NOT an option
Hello All... My mother was recently diagnosed with Cancer of the Tongue. It was surgically removed and The pathology came back with invasion to the lymph nodes and nerve. She had tonsil cancer with metastasis to the neck lymph nodes 7 years ago. She had radiation and was cancer free for 7 years. It came back on the…
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Iris melanoma at 24?
(sorry this is a little long) I am 24, and my husband (also 24) My husband is an amazing guy, my high school sweetheart (been married for about 6 years) we have no kids (waiting to get school over with), but we do have furbabies, and we have our whole life ahead of us. He is currently going through some tests for Iris…
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interferon vs chemo in lymphomatoid granulomatosis
my 29 yr old husband was diagnosed with grade 3 lymphomatoid granulomatosis...he has endured a round of r chop chemo and is now on the r ice chemo regiment. i recently found out about interferon as a possible treatment through my own research. he has had no luck with chemo and his dr. has not even mentioned interferon as a…
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Bile duct Cancer
I'm looking for anyone told they have Metistatic Bile duct cancer with no tumors in the Bile Duct. My husband was diagnosed with Pancreaticbiliary cancer of and unknown primary with no tumors in pancreas or bile duct, second opinion at Sloan says tumor in liver is Bile duct cancer. We had a Pathwork that said 27%…
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Pancreatic cancer
Hi I'm not a person with a lot of words but I'm in a place in my life that needs some direction .My mother have to go to the doctor because they believe she might have cancer on her pancreas and but so far they just saying a large mass I'm so scare and confuse on this disease because everything u look up is bad .I know it…
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Fibrolamellar Liver Cancer
My daughter was diagnosed with fibrolamellar hepatocellular carcinoma in August, 2000, when she was 19 years old. She had a liver transplant in October, 2000, and did fine until a metastacies of this same cancer was found on her lung in Sept of 2001. She had a lobectomy in Feb of 2002. She had a grapefruit sized tumor…
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gallbladder cancer
gallbladder cancer