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Rare and Other Cancers

merkel cell
Just found out that I have merkel cell had a lump in the left groin about the size of a hen egg. ct scan in the morning to see what thy can see have no idea what to expect as I still feel fine just sc…
50 views
0 point
Started by shep124
Dec 13, 2012
Rare and Other Cancers
Adult PNET cancer
Hi all, I am a 38 year old female who was recently diagnosed with Adult PNET in my spinal area but not my brain. I was just curious if there was anyone else out there who knew anything about this type…
76 views
6 comments
0 point
Started by jszura
Most recent by franm2655
Dec 8, 2012
Rare and Other Cancers
Pancreatic Neuroendocrine with liver mets - Sutent
Would like to know if anyone has been treated with the drug "Sutent" for this type of cancer? My husband has been battling this disease since Dec. 2007. He has gone thru Temador, Xeloda, Nexavar, Afin…
66 views
3 comments
0 point
Started by Suzi_cue1961
Most recent by BeckyGma
Dec 6, 2012
Rare and Other Cancers
"You know that rare cancer that Steve Jobs had."
Or more officially Metastatic Panceriatic Nueroendcrine Tumors. No wonder we're not popular. So are there any more of us out there?
107 views
11 comments
0 point
Started by dawn98
Most recent by pridgen813
Dec 3, 2012
Rare and Other Cancers
Pancreatic cancer
Is there any who would be willing to discuss pancteatic cancer with me? I see many other cancer types listed but not pancreatic. I would like to see how you are doing and coping. I have type 2 and hav…
529 views
46 comments
0 point
Started by gwen66
Most recent by 1warrior
Nov 23, 2012
Rare and Other Cancers
I started having very strong pain on the left side of my abdomen
I hope you can help me. I started having very strong pain on the left side of my abdomen since July this year and the doctors have not found the reason yet. I contacted with author of http://painlefts…
84 views
1 comments
0 point
Started by eleskum
Most recent by GreenArtist
Nov 18, 2012
Rare and Other Cancers
Adrenal Cancer
My daughter was diagnosed with adrenal cancer. surgery was performed and thankfully it was fully encapsulated it was 14 cm so based on these characteristics it was stage 2 the surgeon approached this …
25 views
0 point
Started by gspeirs
Nov 15, 2012
Rare and Other Cancers
Noninvasive Micropapillary Serous Carcinoma of Ovaries - Anyone else?
Doctors say it's very rare. Would love to hear treatment plans of others. I'm only 27. Thanks.
25 views
0 point
Started by aussie_84
Nov 13, 2012
Rare and Other Cancers
Anyone had Ascites with Pancreatic Neuroendocrine w/mets
Trying to find out information if anyone has ever had Ascites. The last few weeks my husband has been saying he has been feeling bloated. And every time we went to doctor in the last month he had weig…
96 views
3 comments
0 point
Started by Suzi_cue1961
Most recent by djs123
Nov 10, 2012
Rare and Other Cancers
neuroendocrine somatastatin tumors on pancreas with liasions on liver.
Looking to compare notes with anyone who has had the somatastatin diagnosis of this type of tumor.
24 views
1 comments
0 point
Started by bowk61
Most recent by Suzi_cue1961
Nov 8, 2012
Rare and Other Cancers
Pancreatic Cancer
Hey guys help me out, Docs found out a mass in the head of the pancreas a year and 1/2 ago, the size of 3cmx2x2, last month I repeat the cat scan and the mass is growing, and is now 3.8cmx2.2x2.2. The…
21 views
1 comments
0 point
Started by Ben Ar
Most recent by Suzi_cue1961
Nov 8, 2012
Rare and Other Cancers
strange growth
I had a whipple on January 20, 2005, no other procedure or follow up after, then on the 21st of June, I had a CT scan and a finger sized growth was found, a biopsy done and the growth was said to be m…
43 views
4 comments
0 point
Started by jimnsherry
Most recent by shadow1963
Nov 8, 2012
Rare and Other Cancers
Neuroendocrine Cancer
Hi. I am just wondeirng if there are others who have been treated for neuroendocrine cancers? I had surgery in 2011 and am wondering about follow up treatment. My NET was in small intestine with sprea…
133 views
18 comments
0 point
Started by Marynb
Most recent by redlensman
Oct 29, 2012
Rare and Other Cancers
Vaginal Cancer ( squamous cell carcinoma )
Is there anyone that has or had this type of cancer.
71 views
6 comments
0 point
Started by mhjsh27
Most recent by Brenda1954
Oct 27, 2012
Rare and Other Cancers
new short film on cancer - looking for stories for next film
I am from the colon cancer group but want to post this : PSA on Early Detection for colon cancer ... http://www.youtube.com/watch?v=86jEIEBLPNM&feature=player_embedded the next one will be on diet & a…
26 views
0 point
Started by jr2012
Oct 26, 2012
Rare and Other Cancers
Rhabdomyosarcoma Adult
Hi, I am Justianus Rachmat from Indonesia. My father recently just had the PET SCAN and Biopsy and the result, he has a Rhabdomyosarcoma Tumor in his upper back tight. The tumor has spread to his lung…
26 views
0 point
Started by Justianus
Oct 25, 2012
Rare and Other Cancers
Tongue Cancer when Radiation is NOT an option
Hello All... My mother was recently diagnosed with Cancer of the Tongue. It was surgically removed and The pathology came back with invasion to the lymph nodes and nerve. She had tonsil cancer with me…
45 views
0 point
Started by Nichole0617
Oct 22, 2012
Rare and Other Cancers
Iris melanoma at 24?
(sorry this is a little long) I am 24, and my husband (also 24) My husband is an amazing guy, my high school sweetheart (been married for about 6 years) we have no kids (waiting to get school over wit…
43 views
2 comments
0 point
Started by Giuoco06
Most recent by alisa d
Oct 21, 2012
Rare and Other Cancers
interferon vs chemo in lymphomatoid granulomatosis
my 29 yr old husband was diagnosed with grade 3 lymphomatoid granulomatosis...he has endured a round of r chop chemo and is now on the r ice chemo regiment. i recently found out about interferon as a …
22 views
0 point
Started by alisa d
Oct 21, 2012
Rare and Other Cancers
Bile duct Cancer
I'm looking for anyone told they have Metistatic Bile duct cancer with no tumors in the Bile Duct. My husband was diagnosed with Pancreaticbiliary cancer of and unknown primary with no tumors in pancr…
149 views
1 comments
0 point
Started by Arizona
Most recent by northa914
Oct 9, 2012
Rare and Other Cancers
Pancreatic cancer
Hi I'm not a person with a lot of words but I'm in a place in my life that needs some direction .My mother have to go to the doctor because they believe she might have cancer on her pancreas and but s…
21 views
0 point
Started by MyMommy66
Oct 7, 2012
Rare and Other Cancers
Fibrolamellar Liver Cancer
My daughter was diagnosed with fibrolamellar hepatocellular carcinoma in August, 2000, when she was 19 years old. She had a liver transplant in October, 2000, and did fine until a metastacies of this …
100 views
13 comments
0 point
Started by jevans
Most recent by cindyu
Oct 4, 2012
Rare and Other Cancers
gallbladder cancer
gallbladder cancer
59 views
0 point
Started by starfish17
Oct 4, 2012
Rare and Other Cancers
gallbladder cancer stage 4
HI, My name is Evelyne, I was diagnosed with cancer back in August. After what seemed like an eternity of waiting to hear what type of cancer I had and a lot of tests, I was finally told in September …
976 views
32 comments
0 point
Started by eveterry
Most recent by bevs niece
Sep 30, 2012
Rare and Other Cancers
Help to develop a new cancer treatment against nevroendocrine tumors with liver metastases
Se following link for further information about the project and donation! http://www.uu.se/en/support/oncolytic/
42 views
1 comments
0 point
Started by AnneLene
Most recent by AnneLene
Sep 28, 2012
Rare and Other Cancers
Gallbladder cancer - 2012 (any stage)
Hi there, my name is Libby and I am a new member. I am 55 years old and have been diagnosed with unoperatable gallbladder cancer that has spread to my liver and bile ducts. I live in New Zealand and w…
34 views
1 comments
0 point
Started by Libbyh
Most recent by westie66
Sep 28, 2012
Rare and Other Cancers
Neuroendocrine Carcinoma
Hi! I am new to this board and am joining because I'm not sure where to go, and I'm hoping someone here can relate to what I'm going through. Two years ago I had a gallbladder attack and upon ultrasou…
216 views
22 comments
0 point
Started by mjlueck
Most recent by bowk61
Sep 27, 2012
Rare and Other Cancers
Appendix- small carcinoid found after appendectomy, now what?
Hello everyone! A little over two weeks ago, I went into the ER with appendicitis and had an appendectomy 5 hours later. I am 27 years old, and up to now had been healthy and active. During the surgic…
107 views
1 comments
0 point
Started by kellyw
Most recent by abrub
Sep 24, 2012
Rare and Other Cancers
Pancreatic Cancer
I have just lost my Dad to Pancreatic Cancer in June 2012, This is such an awful cancer, He was diagnosed in Feb, They call it the silent killer, by the time you have any syptoms its usualy to late as…
36 views
0 point
Started by PaulsDaughter611
Sep 23, 2012
Rare and Other Cancers
Powerport issues
I just had a powerport inserted to begin my chemo treatments for gallbladder cancer. I am concerned about the constant pressure I feel on either my esophogus or larnyx (I can't tell which). Is this so…
30 views
1 comments
0 point
Started by pastorobin
Most recent by Oneshot
Sep 20, 2012
Rare and Other Cancers

Rare and Other Cancers

Rare and Other Cancers

merkel cell

Adult PNET cancer

Pancreatic Neuroendocrine with liver mets - Sutent

"You know that rare cancer that Steve Jobs had."

Pancreatic cancer

I started having very strong pain on the left side of my abdomen

Adrenal Cancer

Noninvasive Micropapillary Serous Carcinoma of Ovaries - Anyone else?

Anyone had Ascites with Pancreatic Neuroendocrine w/mets

neuroendocrine somatastatin tumors on pancreas with liasions on liver.

Pancreatic Cancer

strange growth

Neuroendocrine Cancer

Vaginal Cancer ( squamous cell carcinoma )

new short film on cancer - looking for stories for next film

Rhabdomyosarcoma Adult

Tongue Cancer when Radiation is NOT an option

Iris melanoma at 24?

interferon vs chemo in lymphomatoid granulomatosis

Bile duct Cancer

Pancreatic cancer

Fibrolamellar Liver Cancer

gallbladder cancer

gallbladder cancer stage 4

Help to develop a new cancer treatment against nevroendocrine tumors with liver metastases

Gallbladder cancer - 2012 (any stage)

Neuroendocrine Carcinoma

Appendix- small carcinoid found after appendectomy, now what?

Pancreatic Cancer

Powerport issues

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Rare and Other Cancers

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