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looking for anyone surviving Mucinus Adenocarcinoma with unknown Primaries.
Was diagnose in 2010. Went with Duke, had total hysterectomy with a 2lb. mass on ovary, tumor markers shown unkown primaries..via mosty CEA's. Did 6 treatments with Taxol/Carbo. finished in April 2011. It really has taken me this long to really over the chemo., It took it's toll on my body, mind and soul. I had to step…
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My mom has cancer, don't know what to do...
February 1st, my mom was diagnosed with abdominal carcinoma, which at that point had spread to her esophagus, stomach, and colon. She had been sick for 5 months before the diagnosis, not being able to keep down any food and ended up losing about 35 lbs. Her cancer is tumorless (probably microscopic) and the original…
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Pancreatic Cancer
My brother at age 44 was diagnosed with Stage 2 Pancreatic Cancer last Dec, 2011. He was out hunting and actually thought he was having a heart attack, went to the hospital only to find out a month later his heart was fine but they had found a tumor in his pancreas. He had PET scans and every other test known I think, told…
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Cholangiocarcinoma Stage 4 battle - Taking a chance
It's already 4 weeks since the malignant tumor was discovered inside my husband's liver and lungs, and still, we couldn't start treatment. I'm screaming out for help from doctors: they all look at us with this 'I'm sorry' look that leaves nothing but a miserable lump in the throat and my husband in pain. Even his close…
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NET's
Was diagnosed with neuroendocrine carcinoma, the same kind that is usually found in the lungs, but my tumor was on the vulva which the docs can't figure out why. Surgery removed the tumor, only 1 cm, and now started on chemo for the next 5 months. They are treating me as though I had lung CA due to the type of cells in the…
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Hi Im new diagnosed with Malignant caricnoid tumors in June 2010 during a exploratory surgery when n
My name is Crystal and I had been sick since 2007 when I first had symptoms but due to the fact I was pregnant the symptom i had are pretty common to pregnancy symptoms. after i had baby i still had symptoms but i was having other problems it seemed like my health decided to come crashing down all at once. I had to have…
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Whipple procedure
I am about to undergo the Whipple Procedure. I am attempting to gather feddback from individuals that have undergone this procedure. Can anyone tell me from their experience what I will face? I have a 3 cm muscinuos cyst in the head of my pancreas. PET scan shows potential for caner around the outer rim of this cyst. I am…
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Adrenal Cancer
Has anyone who has adrenal cancer lived on Camp Lejeune prior to 1980? My son in law died of undeteced adreanal cortical carcinoma at age 29 in 2002. In my research of the disease I found that there were several toxic chemicals in the water at camp lejeune where he was concieved and lived as a child. This water…
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Cancer of small intestine
Cannot find anyone in the UK who has this type of cancer, sometimes called small bowel or cancer of duodenum, can anyone help, my brother has this type of cancer .
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Patient-Specific Cancer Cell Lines Designed To Predict Chemotherapy Sensitivity
In laboratory studies, scientists at the Johns Hopkins Kimmel Cancer Center have developed a way to personalize chemotherapy drug selection for cancer patients by using cell lines created from their own tumors. If the technique is successful in further studies, it could replace current laboratory tests to optimize drug…
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Husband 44 has bile duct cancer
Hello as I said my husband is 44 and was diagnosed with bile duct cancer on November 30, 2012. He has one tumor the size of an apple, 10cm. Its in two lymph nodes as well but no where else. He has had chemo and the surgeon said it was inoperable but our oncoligist said he would refer us to MD Anderson. We are so shocked…
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Tips on telling people I have cancer?
Hi everyone, Pretty new to this website... But thanks for reading and thanks in advance for any tips you can provide. So I am 19 years old and was diagnosed with stage 3A gallbladder cancer 4 months ago, October 2012. I have been on Adrucil, which very luckily has not made me lose my hair (although it is thinner) and am at…
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Retinoblastoma
Hi there :] My name is Katy and I'm a 19 year survivor of retinoblastoma. My cancer was diagnosed when I was four months old and my right eye was removed immediately upon its discovery. I have lived virtually my entire life with a prosthetic right eye and no reoccurances of cancer. I know I am absolutely blessed to be…
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myelofibrosis
I resently had an MRI for a herniated disc. When getting the report to take with me to meet with an orthopedic I noticed in the findings thaat it showed Fibrous marrow associated with myelofibrosis or smoking, obesity, certain anemic states. After reading up on mylofibrosis I am scared and lost. I do not know who to go to…
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anal cancer resection
May 31 2009 Hi, I have advanced anal cancer. I have had chemo & radiation. There is residual cancer according to doctors. I can also still feel the lump. I have not had biopsy yet but when I do have it & if it is still cancer (which according to doctors is most likely) I have to make up my mind quickly about surgery. I…
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Urethral CA
Not much research on urethral cancer. Please bare with me I am new to CSN. I am looking for anyone who has had to deal with urethral CA. My type of CA is rare and aggressive. I have completed chemo treatments and I am patiently waiting for my surgery, which will be life changing for me. I am 41 yrs old and a single mother…
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Daughter/Wife torn between cancer mom and husband abroad
<p>Hi all,</p> <p> I'm new to this site and I'm really new at telling people about my problems... but here goes! (I apologize for the lengthy post. I wanted to be as concise as possible but it's a really long story to begin with)</p> <p>My husband and I were working as researchers in Korea. We were in our third month there…
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gallbladder polyps
Two weeks ago I had my gallbladder removed because I had polyps in it. Yesterday the biopsy results were in and it showed that one of the polyps was malignant. My doctor says that I am cancer free however, since the gallbladder was removed and the cancer was in the gallbladder. I happen to be a worry wart and fear that…
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Primary Peritoneal Carcinoma
Hello. Is anyone out there a survivor of Primary Peritoneal Carcinoma? I wonder what your follow up schedule is? I've moved since my surgery (Sept 05) and chemo, & am missing the good care my old doctors gave me. I'm feeling isolated,and unsure what I should be doing. If you've got advice or suggestions, I'd appreciate…
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merkel cell
Just found out that I have merkel cell had a lump in the left groin about the size of a hen egg. ct scan in the morning to see what thy can see have no idea what to expect as I still feel fine just scared spitless.
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Adult PNET cancer
Hi all, I am a 38 year old female who was recently diagnosed with Adult PNET in my spinal area but not my brain. I was just curious if there was anyone else out there who knew anything about this type of cancer. I know it is very rare so any information would be great. Thanks, Joellyn
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Pancreatic Neuroendocrine with liver mets - Sutent
Would like to know if anyone has been treated with the drug "Sutent" for this type of cancer? My husband has been battling this disease since Dec. 2007. He has gone thru Temador, Xeloda, Nexavar, Afinitor. Sir Spheres(twice), chemoembolization. Now the doctors are putting him on Sutent. If you have taken this drug for this…
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"You know that rare cancer that Steve Jobs had."
Or more officially Metastatic Panceriatic Nueroendcrine Tumors. No wonder we're not popular. So are there any more of us out there?
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Pancreatic cancer
Is there any who would be willing to discuss pancteatic cancer with me? I see many other cancer types listed but not pancreatic. I would like to see how you are doing and coping. I have type 2 and have had a Whipple with follow up chemo and radiation and would like to compare notes. Thanks gwen66
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I started having very strong pain on the left side of my abdomen
I hope you can help me. I started having very strong pain on the left side of my abdomen since July this year and the doctors have not found the reason yet. I contacted with author of http://painleftside.net and he told me it may be diverticulitis, kidney stones, or cancer (at worst), but he doesn't know without medical…
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Adrenal Cancer
My daughter was diagnosed with adrenal cancer. surgery was performed and thankfully it was fully encapsulated it was 14 cm so based on these characteristics it was stage 2 the surgeon approached this very agressive he removed the adrenal gland and took a lot of extra tissue once tested the outer portion of the tumor and…
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Noninvasive Micropapillary Serous Carcinoma of Ovaries - Anyone else?
Doctors say it's very rare. Would love to hear treatment plans of others. I'm only 27. Thanks.
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Anyone had Ascites with Pancreatic Neuroendocrine w/mets
Trying to find out information if anyone has ever had Ascites. The last few weeks my husband has been saying he has been feeling bloated. And every time we went to doctor in the last month he had weight gain. Well I kept thinking that was strange since he has not been eating much. Well we r waiting on bloodwork to come…
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neuroendocrine somatastatin tumors on pancreas with liasions on liver.
Looking to compare notes with anyone who has had the somatastatin diagnosis of this type of tumor.
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Pancreatic Cancer
Hey guys help me out, Docs found out a mass in the head of the pancreas a year and 1/2 ago, the size of 3cmx2x2, last month I repeat the cat scan and the mass is growing, and is now 3.8cmx2.2x2.2. They suggested me WS, but I have been reluctant, the biopsy from last year shows is benevolent. What do you think, should I go…