The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Prostate Cancer

insurance question
just realized something that i didnt think of...does med insurance cover the cost of consultaions...i sure hope so otherwise i will be owong a ton of money..thanks i have 2 insurances a primary and secondary..i would hope Drs and hospitals would let us know in advance if its not covered ..thanks everone
Treatment of PC with RSO
Is there anyone on this forum currently treating their prostate cancer with RSO? What are your experiences? I'm taking a gram a day. The oil is pure (I made it myself). I have been diagnosed with non-metatastic cancer in 10 of 12 cores, G8 and a PSA of 37. I have been accepted into a clinical trial in which I will get…
active survellance or robotic
After having second opinion at Vanderbilt Hospitail it confirmed gleason 6 from previous pathology . 2 out of 12 positive, one 5mm and 3.5mm cores, 60% and 35% of core length. Oncotype dx test was 23 very low psa 2.97, considering active survellance, Then psa checked in April and prostate fusion mri within a year . Both…
33 year old
I am a 33 year old who was in a motorcycle accident a couple of weeks ago. while in the er they found something wrong with my prostate all they would tell me was i had to see a urologist. I finnaly got the radiology report and it said: "small mediastinal and bilateral hilar lymphnodes. residual thymis tissue in the…
Dry then not dry
It has been 8 months since my combined prostatectomy/diverticulotomy, and I'm still dealing with the unpredictable incontinence. I can go several days without much of an issue, then it flares up again. I'm to the point where I should always wear a diaper just in case. Is that a normal feeling to have? I can deal with it,…
Low T
I am 14 1/2 months post RP. At my most recent visit to urologist for follow up, I had long conversation with my doc about my feelings which progressively worsened in the past couple of months. He checked my testicles and penis, try to get soft stretch which was disappointing, and asked multiple questions about any new…
High PSA should I wait Dr want to keep going with Anti-biotics
HI, I have just turned 60, last month had a regular check up/blood test, PSA came back 12.5. Dr put me on a 4 week course of Cypro. Just had another blood test PSA down a bit to 11.8, he wants to keep me on for another month then another PSA test. I am concerned its not an infection and I may be wasting a month, should I…
Psa of 5 4 k score 20 percent
hello new here psa 5 4 k score 20 percent Doc wants biopsy any thoughts 64 years old
New diagnosis - would like some input
Hi Gentlemen! I'm 51 and was just diagnosed last week 1/4/18. I feel I'm very fortunate to only have 3 of 12 with Gleason 6 (3+3). There are a couple other areas that were abnormal, but not cancerous. My stage is considered T1c and PSA just recently topped at 10.6. I'm keeping an optimistic attitude about it since it seems…
Sexual function recovery after radical prostatectomy
Here s the most honest answer to sexual function recovery after radical prostatectomy. Honest researc done by Dr. Levine. First time I see something like this with no over promising and and other nonsense. Please, read full article! http://www.medscape.com/viewarticle/854273
What does a PSA level of 600 mean ? / Gary has Passed.....
I am writing about a friend, who is 72 years old. I have had lymphoma myself, but never prostate cancer (I am currently in full remission from lymphoma), and know relatively little about prostate diesease. My friend Gary had his prostate (surgically) removed 13 years ago, and went cancer-free for 8 years. His PSA shot back…
Dad 72 Prostate Cancer
Hi to everyone within this group - I had previous posts about my Dad and the help that everyone gave me and the support was unbelivable. My Mam 3 years ago also went for a routine check up regarding her eyes and she had a cataract that needed to be removed so she asked to be knocked out for it and they said no problem and…
Permanent urinary catheter and Firmagon or any HT
Please could anyone with PC who has had a permanent urinary catheter inserted and is having Firmagon injections (HT) let me know what their experience has been? My husband with PC has one because he could not urinate properly, and has been told that perhaps with Firmagon he´ll be able to urinate without the catherer…
Firmagon (Degarelix) Initial dose
Hi I´m new in this forum so I hope you can all bear with me. My husband has an aggressive prostate cancer with metastasis in bone region (L2). Gleason>7 T3, N1 M1 PSA 36. His docter wants to start hormone therapy immediately tomorrow, but because he has heart problems (arythmias and myocardiopathy, takes sotalol) and is…
First holiday season with cancer.
First holiday season with cancer. Today I am at peace and grateful for the many gifts in my life. While I am not grateful to have cancer, I am very grateful for the people I have met, the wonderful medical professionals who go out of their way to help me. I am also extremely grateful I live in a country where quality…
Firmagon (Degarelix) substitute for Lupron
After discovering this new gonadotropin drug I discussed taking this with my Oncologist and we decided to inject this in a week or two since my PSA doubled from 2.8 to 4.7 this past month. If you have any experience with Firmagon from Ferring Pharma I would love to hear back on side effects etc. I'm a 58 yr. old two year…
The Holy Grail -interesting but not conclusive
Interesting article on cancer cell cycle deregulation. Don't know if what they are saying is true or not... Could be another weapon in the arsenal or it could be snake oil. https://chipsahospital.org/1001-the-cancer-killing-ratio-how-this-combination-of-vitamin-c-and-k3-is-changing-the-way-we-fight-cancer/
Bone Density after long use of Casodex
Bone Density after long prostrate cancer control. I had a radical prostatectomy in 1993 and everything was fine until 2000 when my PSA jumped to 50-60. The PSA has been controlled with Leuprolide & for the last 4 years with casodex and my PSA is still only 0.4 or so. However, after being on Leuprolide & casodex for so…
Hypofractionated radiation
Gentlemen, Anyone have thoughts about salvage radiation reducing the number (27 vs 39) of sessions of radiation? Each session radiation is increased but delivered over a shorter period of time. Recovery from side effects actually quicker?
Considering FLA
Has anyone had experience with Sperling Prostate Center or Prostate Laser Center, or had FLA anywhere else? Husband has PSA 11, Gleason 7 (3+4) one core and one Gl 6. Age 60. Was considering CK but discovered this treatment. Thanks!
Advice, support, anything you would like to add
New to the site, I have read some of the diagnosis that other men on the forum have had and have read how they are handling their issues. My PSA results have been creeping higher in the last few years. My original test in 2011 was 3.9 so during my yearly check up this year my GP was not going to do a PSA but I asked to…
choosing a DR if you dont have PC yet but are worried
i started another trend..not sure if it will help anyone but it might...i was recently dignosed PC..early stages thank the Lord for that because i skipped teating for a year and could have been much worse....so 8 years back at 48 first PSA test 5.0 biopsy negative..dr made light of it but needed to be checked ever 6…
Celebrating 10 Year Anniversary
Well it has been 10 years (Feb/2008) since we got the news about PC from our general doctor. It was dialed in at GL 9 with a PSA of 32 with MRI indications that the cancer was outside the gland. After two rounds of radiation treatment (IMRT and PB) and a round of cryoablation treatment in between, the last PSA results…
Newly diagnosed - is CK for us?
My husband was diagnosed with PC in July. PSA: April 10.4, July 14.7. BX: Gleason's 7 (3+4) in one of 4 cores 30% of total tissue, 7.1MM. I hope this is enough info. Scheduled surgery for January but then learned about CK. Was not told about that option by oncologist. He is a "young age 60" according to doctors so that's…
Recently diagnosed - PSA 114 - Gleason score 8
I'm 46 and was just diagnosed last week with prostate cancer. Today I was told that my Gleason score is an 8 and my Doctor said that he would like to meet with a team next Thursday to get a few other opinions on how to proceed. His first though is to have me start hormone shots to slow down my testosterone which in return…
Uptick in gleason score
Have had prostate cancer for a long time now, do not know how long but at lest 4 years, have been on AS since then,got the results of my latest biopsy today and one core showed up as gleson 7. 3 plus 4. Three other cores showing gleason 6. 13 cores taken with 4 showing cancer. The 7 shows 30% of the core as cancerous. Will…
Multiparametric MRI Raidologist within a few hours of Tampa Bay
There is a debate on-line at the 2016 American Urological Association meeting which gives the for and against arguments for having a multiparametric mri done with a fusion biopsy instead of having the standard biopsy of the prostate. I think I would like to have the mri and fusion biopsy. However, it is only the better…
How to decide on treatment, facts, and prejudices.
Today I was reading a few new guys posts and the wonderful feedback they were receiving. I reflected on my journey to date and was struck by the difficulty I had and time it took to get to a decision. What factors affected my decision? First my decision path was not linear, not rational at times, and certainly influenced…
active surveillance
Any body on active surveillance status? Just wondering how often blood work required and biospy is done. I am considering it once i get my oncotype dx testing back . I have 3+3=6 gleason score t2a 25% left mid psa 2.97. negative for lymphovascular or perineural invasion 61 years old also considering robotic surgery at…
cyberknife success rate
Hi Everyone... Just diagnosed with prostrate cancer. I'm 67 in otherwise very good health,gleason score is7, PSA11.5,biopsiedtwice, Gleason score described as 7 [3+4] and tumor is local- still only in prostrate. I have to choose the method of treatment. I prefer cyberknife but have some questions. Would I be a good…

Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Prostate Cancer

Discussion List

Discussion Boards