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Anyone on AS taking Proscar?
I've petty much decided that given my test results, AS is the way for me right now. That leaves me with BPH and all the symptoms that go with it. My urologist mentioned Cialis as a possibility, but I don't think that actually shrinks the prostate. I have a pretty big one, 72 cc sticks in my mind, and shrinking it makes…
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feeling the burn
Half way through radiation and I've started to feel the burn in urination. Will this last through the rest of the treatment? I've completed 20 of 39 treatments
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Hormone Therapy hot flashes
I started hormone therapy 6 weeks ago. Im having 5-6 hot flashes per night that are wet sweating ones. Does anybody have any helpful tips. I went to a naturalist doctor and he had me on liver supplements but no help, he now put me on some other supplement 2 days ago. As of last night, nope not helping.
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Value of having an MRI before a biopsy
Study: MRI can rule out clinically significant disease (video) https://www.youtube.com/watch?v=t6_OH9VQWTg&feature=youtu.be
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Best Imaging For Recurrent & Metastatic PCa
Brothers, I am lining things up for a future cyberknife treatment and believe that the centerpiece to a successful outcome is the best imaging possible that clearly shows the tumor location plus any junior bandits that may be lurking elsewhere. Here is a link to an article I pulled from Renal and Urology News.com that…
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gravitational incontinence 2 years after daVinci prostatectomy
59 years old. I'm two years post-op daVinci prostatectomy. Have attempted 3 months of pelvic floor therapy one year ago with minimal improvement. Bladder does not retain urine at all when standing. Leak when sitting and sometimes when lying down. Change 6-8 pads per day. Two urologists say AUS 800 only way to go with one…
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metformin and radiation
I just started radiation and just found out how beneficial metformin is along w/ radiation. If you are going through or will go through radiation, look at the benefits of metformin. Only thing is that it helps to get Rx if you are diabetic or pre diabetic.
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Meds - Xtandi
Dr. called last week, scan revealed cancer cells from my prostate cancer (treated with radiation therapy 3 years ago) cells are in a lymph node near the aorta. Saw the doc - urologist - who has been treating it this AM. It's not as dire, apparently, as we had imagined from that brief phone call. He's starting the paperwork…
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Two New Books That Discuss Prostate Cancer
How Not To Die by Dr. Micheal Greger has chapters on Breast Cancer, Prostate Cancer, and other killers. He focuses on diet, exercise, and natural products, such as ground flaxseed and ginger to prevent cancer and halt it's spread. The Truth About Cancer by Ty Bollinger focuses on natural and "underground" cures for cancer.…
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A Fork In the Road on my PCa Journey.
Hi Everyone, To Recap, I was diagnosed with PCa in Feb 2014 and had a RP two months later. My PSA at the time of the procedure was 7.4 with a Gleason of 4+3. My side effects from the RP are ED and severe incontinence that I've endured ever since. In Sept of 2014 the PCa came back and I went through two months of EBRT and…
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What sense to make of these post-prostatectomy test results?
My six-week post-prostatectomy PSA was 0.47. Three weeks later this was 0.39. Can anyone help me understand what is most likely going on? The background results are as follows: 5.5 pre-op PSA (age 65) 7 or 7.5 Gleason with seminal vesicle involvement. Clean margins and clear lymph nodes according to the post-op pathology…
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PSA
Hi, Can you tell me the best supplement to help with PSA levels?
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Xofigo users information
is anyone currently on Xofigo? I will be starting it next month. Everything I am finding on line seems very negative. I am 65. Most of the other post I found were from 2013. And the patients were men in their 80s. Please help. Need some current information on side effects and is it worth taking. God bless
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Surgical clip stuck in urethra after robotic surgery
Has anyone had a surgical clip get stuck in their urethra after robotic prostrate surgery?
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4 yrs. out and 1st PSA rise
I apologize if I'm doing this wrong, this is my first discussion board or chat room, yes, believe it. Had RP by DaVinci method in March, 2014. Gleason of 7(4+3), involved whole left side, 3 at 100%, 2 at 90% and 1 at 30%. Did the radiation and 2 yrs. of hormone therapy. Been surviving at PSA's of <.01 for 2 yrs. testing at…
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Prostate cancer is never an emergency
This is from Duffy Myers Prostapedia, October 2017: So then men should definitely ask their urologist how the imaging information might change things before the imaging study is even ordered? Dr. Cooperberg: Absolutely. You should never order any test—imaging or otherwise—that is not going to change your management, not…
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Immunotherapy Trial: Atezolizumab
Has anyone had any experience or exposure to this therapy (not-yet-FDA approved for PCa) that blocks the PD-L1 pathway? A local clinical trial is open in Phase3, testing enzalutamide in combination with atezolizumab in pateients with mcrPCa who had failed hormone therapy and not yet undergone chemo. I have enrolled…
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Radiation therapy and colonoscopy
I had rad therapy in Feb 2016. I'm due for a routine colonoscopy screening soon. Does anyone know if there are any precations I need to take due to the prior radiation Rx? Obviously I should let the MD doing the procedure know. Has anyone else had any issues? Thanks.
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Scared all over again
Hello All, My husband has the following information: June 2011 Robotic prostatectomy Prior PSA 7.51, Gleason 7 (3+4) Sept 2011 PSA 0.46 then retested at 0.28 Started imrt SRT in November 2011 April 2012 PSA 0.31 Oct 2012 PSA 0.11 May 2013 PSA 0.06 Nov 2013 PSA 0.058 Sept 2014 PSA 0.035 Sept 2015 PSA 0.030 Oct 2016 PSA…
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My husbands experience Bladder Neck Contracture I hope it will help you!
8-13-07 Radical Prostatectomy The PSA Tests have all come back cancer free! But he has had complications in scaring and has gone through the following procedures to keep the bladder neck open... Office Dilations: Lasting 1st Dilation 14 days 2nd Dilation 8 days 3rd Dilation 0 days 4th Dilation 21 days 5th Dilation 2 days…
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Advice sorted based on the attached Biopsy, PSA, MRI, etc. reports
Hello, My father has been diagnosed with Prostate Cancer. Life has been rather overwhelming for me in the sense that when my father was younger and healthy, my relationship with him was non-existence (there a was good 10 years gap since we spoke just recently). We have both realized that "Life can only be understood…
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Sucralfate 10% enema off-license treatment for radiation proctitis
Has anybody here been treated or know anyone who's been treated for radiation proctitis with Sucralfate 10% enema? it's an off-license treatment. I need to find out the "shelf life" for the Sucralfate 10% enemas. Prostate cancer treatment was provided in the US; patient now living in the UK. Thanks.
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Encouragement for Newbies
Today I got the good news of PSA 0! This is 8 years post Davinci Surgery. Four years post radiation for a recurrence. Great news to start Movember. Origin Gleason 7 (4+3).
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Need help re Xofigo
My husband has been fighting prostate cancer for 5-1/2 years. When first diagnosed in 2012 it had already metastasized to 80% of the bones in his body. He has been on Lupron, Casadex, Taxatere, radiation to the L5 veterbrae and now Zytiga. He's developed an osteo necresosis in his jaw from exgeva, has had hypercalcemia ,…
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How cancer effects me!
I have cancer in my body and my job is to keep it out of my spirit! The shock of cancer can only be understood by those who have it. I have known many who had cancer and felt empathy for them but did not get the gut-wrenching shock until my doctor said, “you have cancer!” My mind went to almost shut down as he talked, and…
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zytiga
has anyone had a riding psa and declining alk the fist two months on Zytiga. I am very voncernef
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chronic radiation proctitis
My husband had hormone treatment, followed by external beam radiation, followed by seeding. The seeding was done a year ago. He is now suffering intense pain from radiation proctitis. Would like to hear from anyone else who has had this problem. Thank you.
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Leery of Lupron - Please Help!
I've been lurking for the past 3+ months in this most helpful, compassionate forum while waiting for a comprehensive medical analysis of my particular PCa condition. Condensation: 1997-2006 Treatment for BPH (Benign Prostatic Hyperplasia - Prostatitis Unspecified) with periodic R/X (Cipro) for low-grade infection and…
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Where to from here?
I just had a radical prostatectomy with removal of 23 lymph nodes for Gleason 9 (5+4) prostate cancer. Surgical pathology staged the tumor p3aN1Mx. Cancer was found in the bladder neck as well as 1 lymph node. I am a type 1 diabetic and have an open ulcer on my leg that is being very difficult to heal. I am 58 years old…
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Stage 4
I believe I last wrote about 4 months ago. My partner diagnosed with Stage 4 cancer in August/16. He finished his taxotere in Dec. Three days later he was rushed to the hospital for quintuple heart bypass surgery . He was in the hospital for two weeks. After he got out about a week later he got a gum infection and was on…