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Hoping to avoid hormone therapy if I can help it...
Hello all, I'm new to this forum. I was diagnosed with PC on May 8, 2017. I'm 53 years old, in otherwise excellent health. I had not a physical for a few years and never had a PSA test, so my primary care physician strongly advised that I take it - so I did. My first PSA result came back as 5.89, then took it again (after…
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How long after surgery until you were able to work physically?
I am 64, in good shape, semi-retired. However, I do want to work several days a month to bring in extra cash and my work can be physical. I am a professional videographer, so there is the loading and unloading of heavy cases into my van, a fairly heavy camera on my shoulder, twisting, bending, etc. I have read that for six…
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IMRT Radiation Treatment Warning. Painful side affects. You will be screaming and crying.
Hi. I feel the need to warn people about IMRT radiation treatment. My husband had this done with Calypso technology. He had 45 doses of radiation. He is also Stage 1 so his treatments were not agressive. About halfway through, he started experiencing a lot of pain when he had to go the bathroom. It burns to pee and hurts…
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Prolaris Score?
I just ran across this website: https://prolaris.com/prolaris-for-patients/what-is-prolaris/?gclid=CLPw07GQ7tMCFQQxaQodk9EH0g Has anyone else heard of this or had it done? It proclaims to help someone have a better understanding of the cancers progression which would lead to a more accurate estimate of the outlook for an…
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PSA decreased after january test
Hi everyone. My dad had his PSA tested in January as part of his regular scheduled post op PSA test following prostatectomy 4 years ago for T2c Nx Mx Gleason 6 prostate cancer. All tests following the operation had showed up as <0.04 ng/mL, that is until this past january when it returned as 0.13 ng/mL. So the doctor had…
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Peeing symptoms
Hi all Pre-op on Monday so all progressing. In the meantime... Last two days have suffered serious "garden sprinkler knob" when peeing, usually when near empty or when waking or getting up from rest. Am also having some trouble kick starting the process sometimes. Ealier in the week I was fine. Only used to get this after…
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Webmaster: what does this mean?
Nothing to do with prostates or cancer, but when I navigate to CSN forums I get the following message: Notice: Undefined property: stdClass::$new_replies in template_preprocess_forum_topic_list() (line 1205 of /mnt/resource/www/html/modules/forum/forum.module).
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Another Game Changer for Men with Metastatic Prostate Cancer
This just came in today from the Prostate Cancer Foundation and is a potential game-changer for men with metastatic prostate cancer: https://www.pcf.org/news/breaking-news-2017-asco-meeting-results-from-the-latitude-study/?utm_source=NewsPulse&utm_medium=email&utm_campaign=ASCO17NP
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PSA trending up What should I do?
I a 70 year old guy who PSA is trending up. 6.1 in February. My GP recommend I see a Urologist. Yesterday he said I had a "firmness" on one side. He recommended a biopsy. Do I really need to do that? I do not have frequent need to pee, never have to get up at night. I don't belive the prostrate is enlarged..atleast no one…
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Firmagon vs Lupron during Salvage Radiation
PSA 22, RP in October 2016, Gleason 7 (4+3), negative margins, seminal vesicle involvement, negative lymph nodes, PSA did not become undetectable (lowest was 0.3) and then started rising rapidly, doubling every 2 months. Bone scan and pelvic CT scan negative after rising PSA. Decided on salvage radiation therapy along with…
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A New Era of Precision Medicine
This was in today's LA Times: http://www.latimes.com/science/sciencenow/la-sci-sn-cancer-immunotherapy-drug-20170526-story.html
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New to all this and scared
It is hard to know where to even begin writing. My husband hasn't been dx'd with prostate cancer yet but with the information we have I am very afraid the dx. is soon to come. I will start with his history. He is 56 yrs old. Always been healthy and never went to a doctor for routine yearly exams or tests. Months ago he…
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Lupron and its effects
I am a 61 year old man with a gleason 6 and a PSA of .2 after a TURP done in June 2001. I have bee told by a urologist that I need to be give a shot of Lupron to arrest the PC. and then be eligable for radiation in a few months. Due to the TURP, I am not a candidate for a radical or seeds. Can anyone share their…
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Question about catheter use?
My neighbor had a foley catheter for 32 days. It was removed five days ago. His ability to urinate has declined each day. He is up and going every few minutes and has to strain in order to produce anything. His prostate is quite large with a large tumor on one side. I'm thinking that his ability will continue to decline.…
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Should I be worried?
I just received a PSA of 2.3. It was .9 last year at this time. The doctor will take another one in 6 weeks. Should I be worried? I think my main reason for worry is the fear that it will rise again when I get it redone. I know 2.3 in itself is not alarming, but the fact that it rose from .9 is causing Anxiety, because I…
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LUPRON and effects doctors don,t know about...POWERFUL MED''''Talk 2 me if u like....
this drug surprises me every day I am 6 weeks into a 3 monther...wowow the hot flashes were a breeze...the migraines and my pressure of the charts while being on pressure meds for years....i am excited to know what will happen next...talk to me anytime...I hate being in the dark and will share whatever I know aand/or have…
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"Hot"
I went to my annual lymphoma wellness check last week, all ok. I mention this because in reviewing "issues" I told the N.P. that I have been experiencing episodes of "radiating heat." I feel like a nuclear reactor, and people sitting near me have commented over the last few months that I feel "hot" (they sense this wihout…
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If radiation doesn't work after localized PC will they know right away with first psa test
Ok Still a little worried.. Even though they were predicting it is localized PSA 4.9 with two cores out of 12 being 3+4 @50% and 2 being 6 @5%. No MRI ...Finished Radiation 2 weeks ago. Still get sharp pains in prostate area every so often like needle being stuck in me.. I know worry never fixed anything.. But my question…
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Good news?
My neighbor is responding to the hormone and chemo. His PSA was down from 606 to 314 today. This is good news, correct? They are going to test it every month. Another question. I've done some reading in other threads and it seems that taking calcium may be contraindicated during treatment, but I'm uncertain of that. They…
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Diet and lifestyle
Hi all Thought I would start adding back rather than taking so here goes I was talking to my dietician friend and she suggested that a diet biased towards alkali would me more conducive to recovery as cancer thrives in an acidic environment. I have also seen it suggested that cutting out red meat with the logical extreme…
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Post-Op Soaring PSA: Next Step? Axumin Scan?
Full history of my prostate cancer is on MY CSN Space. Summary: 64 yr old, 3 and half years after laparoscopic radical prostatectomy , Gleason 8, with removed pelvic lymph nodes also positive. Post-op, PSA level rose. I have been through radiation therapy (completed late Feb 2015) and on/off Casodex (off since Sept…
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Rookie, looking for feedback
Hi All, what a great resource. First the stats----PSA Nov '16 5.17, Mar '17 7.98, April '17 8.32, Biopsy --Left Sec "A" (right side), 3mm, 13% of surface area of core biopsy, Gleason 6 (3+3), Sec "D" (next to "A", Atypical Small Acinar Proliferation) Follow up with Urologist April 17... As expected, I'm looking for advise…
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More accurate Dx details
Hi all Got a standard cc: from the consultant to my GP which contained the specific details of the Dx. * Gleason 7 (4 + 3) * Adenocarcinoma * 40% of 4 cores, maximum length 6mm * Prostate 20cc * Classfication: Intermediate Anyone know if this sheds further light on my original information in terms of risk? Cheers C
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Lupron Results
Great news everyone. My cancer is now in the undetectable range. In February of this year, right after I learned that the cancer had metastasized to my spine and hips, I started on ADT therapy and received my first Lupron injection. At the time, my PSA was 6.6. Now it's less than 0.1 which to me is a stunning turn of…
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The count down begins..
Down to 8 radiation treatments out of 40 left.. It hasn't been pleasant.. I believe I had issues from the biopsy. The oncologist says it doesn't sound like issues from the radiation and the Urologist says it is issues from the radiation.. Pain in Penis Butt and Prostate and sort of itchy feeling in the uretha had since…
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New to this
Hi all, Found out two weeks ago I got Prostate cancer... still coming to grips with it. All started about 7 years ago with a psa test as part of my annual doctor visit... test came back with an 8 so my GP sent me to urologist who did an in office biopsy (never again awake)... but nothing found. So they put me on…
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Good (for want of a better word) news
So we went in to see the consultant and senior consultant post my MRI scan. Got told it was "good news" in that there did not seem to be any mets as far as the scan could see and the overall scan looked good. I was told they did not see the need for a bone scan. I even had a good look at the MRI scan and stared down the…
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Radical Prostatectomy
Hello All, My husband has just had a radical Prostectomy. This all came on very suddenly. From the time he started to notice blood in his semen and urine, it was only a week later we were in the hospital. He has been out of the hospital for about 11 days. It was done robotically so his wounds are healing nicely. He has not…
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Testosterone Level When Fighting PCa
I'm looking at my previous blood test results from the Oncology Center and I don't see anything on the report that jumps out at me regarding my testosterone level. What should I be looking for? Do I specifically have to ask to have this value listed? What is a normal value and a low value?
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When a guy won't take care of himself?
Thanks to everyone who has helped with advice regarding my neighbors stage 4 metastatic prostate cancer. It's been so helpful and I need advice from other guys about helping him. He is not taking care of himself in many areas. He is an adult, I know I'm not his mom (acknowledging he is responsible for himself), he is very…