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Urination after surgery
I am hoping that someone can tell me if what I am experiencing post surgery is normal. I am now two weeks post surgery. Foley was removed on October 10th, was able to void in doctors office but had to bear down as if I was defecating to force urine out. Since then I am incontinent with mostly a steady drip with more force…
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Treatment with xofigo
My brother is pondering whether to do this treatment or not. The drawbacks seem heavily weighted against the benefits. Has anyone of you or your loved ones gone through this treatment and can offer data/experience that I can relay to him?
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Prostate Cancer Metastasized to my Spine
My prostate and surrounding tissues were surgically removed in April 2014 and I also received follow-on radiation treatment and hormone blocking therepy (Firmagon). While my PSA levels declined to almost zero, the weight gain lead to the onset of Type 2 Diabetes. I remained in that condition for nearly two years. Then in…
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Provenge
Has anyone with advanced prostate cancer had the Provenge treatment, and if so, what were the results? I had my prostate removed in March 2016 after finding 11 of 12 biopsy hits cancerous. My PSA was 17. Gleason score was an 8. Cancer was found in one lymph node. I had no radiation and was placed on Lupron injections. My…
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Provenge? Anyone scheduled for this treatment?
Hope all is well to all. I am scheduled for first Provenge treatment on October 22, 2010, one of three, and am wondering if anyone has experienced or has an appointment for such? My last PSA was 1.58 with Casodex failure, lasted about 5 months, stage IV, with some micrometastatic lesions to upper spine. Not too bad at his…
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Cryotherapy as first course of action?
Im 63 white male with a PSA of 4.31, clinical stage T2a and Gleason score of 4+3=7. Biopsy showed 5 of 12 cores, all on right side. PTI was 1 to 5% for 4 cores and 60% for one. All came back as perineural invasion not identified. Currently scheduled for RP surgery by Davinci in 6 weeks. A friend's father swears by…
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AUS 800
I am in my 13th year dealling with incontinence after prostate surgery. The last 2 years has been much worse (6-8 pads per day). I have considered the AMS 800 since the onset of incontence and recently had the procedure 5 days ago and am very concerned with the outcome. first I noticed a weak stream and trouble empting my…
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Looking for da Vince doc in Atlanta
I am looking for recomendations for a robotic prostrate surgeon in the Atlanta area. I received my diagnosis and biopsy from Dr. Shah, who just as I received my diagnosis, quit surgery to take an adminsitarative position. I was very pleased with Dr Shah, and very sorry to have lost him as my doctor. I am Gleason 3/3 and my…
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Hormone therapy may boost prostate cancer growth
Hormone Depletion Activates Tumor Survival Process in Prostate Cancer, Study Shows The article linked above begins: "Prostate cancer hormone depletion treatments might, in fact, be boosting cancer growth and making a tumor more aggressive, researchers at England’s University of Surrey found."
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New Drug
I was watching football yesterday (Thanksgiving Day in the US), and two or three times I saw a commercial for a "New Chemotherapy Drug" that supposidely is "better than Taxotere" (Docetaxal). It did not say what cancers it was for, but Taxotere is the main chemo used against metastatic prostate and breast cancers. The…
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Pathology results
I am nine days past a ten hour Da Vinci removal, and I received my pathology report on Tuesday along with the catheter removal. My recovery so far has been unremarkable, except that my scrotal sack is still huge. Here are the pertinent findings; 21 lymph nodes all negative Bladder neck and smooth muscle negative for cancer…
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Which treatment????
I am about a week into the time to treat decision phase (even that is unsure). I had 4 cores 3+3 and one was upgraded to 3+4, decipher test showed intermediate risk. My doc who I trust suggests it is time to treat. On these forums, I get many different opinions, which is why I am on them. I totally seek diversity of…
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Best Doctors
hello who are the best and most experience Doctors in the US for prostate cancer?
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Proton Therapy
I had my prostate removed in March 2016 after finding 11 of 12 biopsy hits cancerous. My PSA was 17. Gleason score was an 8. Cancer was found in one lymph node. I had no radiation and was placed on Lupron injections. My PSA stayed at 0.02 for 6 months and then increased to 0.04 in February. Cat scans were negative but bone…
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AS no longer an option
Well, my Decipher results came back in the intermediate risk category and with the other factors, my doc is recommending we intercede. I have been walking the tightrope for a couple of months and time to start the process of deciding and actioning the intervention. I am leaning towards RP but still need to do a bit more…
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Persistent Pelvic Pain, ten months after RP
Hello, I had a radical prostatectomy in December 2016. Gleason was 3+4 and PSA following surgery (in March) was undetectable. PSA in August was 0.1 I am still using one pad a day. My main problem is persistent pain when I'm sitting, especially on hard surfaces. Also, if I sit on a hard surface I will have an "accident"…
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Is AS deciding not to decide?
I am new at this PC adventure and in the early decision-making state. I read a great deal, am active on a few forums, have a great Doc and feel well informed. Yesterday on a forum a Gentleman shared his AS story and the shock of going from G6 to G9 in five years. A great discussion in the thread occurred. To say it set me…
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Excellent video ADT + Zytiga for long term hormone therapy
The video on the "uro today" website involves two specialists discuss how practice will change since the recent articles in New England Journal of Medicine about prescribing Zytiga/Abiraterone with hormones for men with high risk, node positive or metastatic men on long term hormone therapy. A Clinical Conversation with…
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PSA slowly rising post radical and radiation
confused and need input, please. My PSA has gone from 0 to 3.57 for almost 20 years. April was 2.69 and Oct was 3.57. Lupron frightens me with all its side effects, so I have decided to continue to watch and wait in my 73.5th year. Any other ideas or suggestions. Many thanks for your help.
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Docetaxel treatment before or after surgery
Hello All, New thread for some that may have read or responded to my others. I'm the 47 year old with recently diagnosed G9 and metastasized into local lymphes nodes and lower abdomen. I thught I had my treatment course of action nailed down. My choices were : (A) At cancer center "X" - Leuprolide (Lupron) + Abiraterone…
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support group central florida
I live 20 minutes outside Orlando. Anyone know of an in-person support group for PC? Denis
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It's Time For a Decision
Hello my PC brothers. I started on this site a few weeks back when I first had my diagnosis of PC. This forum has been extremely helpful to me and also provided some much needed comic relief as so of you are great writers. So here I am after meeting with doc's/teams from 2 highly regarded institustions I need to make a…
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One Month Post Surgery
I am doing much better and no pain at all. Still incontinent, but improving there also. Slept without padded underwear the other night and the padded sheet was almost dry in the morning. I did the same thing the next night and the padded sheet was wet- go figure- :) Went to a Urologist at Cleveland Clinic Florida today,…
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delayed symptoms from cyberknife treatment
during a consult my ucsf doc said within 5 years 50 per cent have sexual issues from cyberknife.later reading on my own i see that urinary issues also can occur after cyberknife up to 5 years past treatment,i am also concerned with possible rectal cancer connection.any comments particularly about the urinary difficulties…
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psa doubling false negatives
I have been reading your posts for a while - appreciate your input and from other great suppotive folks on list. New to list not sure where to start, please reply to me or list as is appropriate. Me - IMRT in 2012. Gleason 3 + 4, PSA at time of radiotherapy 7.4. after IMRT 2012 PSA was 0.2. Climbed since then at abt a .7…
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Gleason 9 after 2 yrs HRT, Brachy therapy, and of focused beam radiation
Just call me, "Bud" Male, 63, 5' 10", 240 pounds January 2010 - the family doctor noted that while my psa was only 4.5, the ratio to the free psa indicated there might be a problem. Biopsy in March 2010 - 4+5 Gleason stage 9 Began Lupron therapy immediately. Full body scan was negative. About the biopsy, it hurt like hell!…
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Sleep
does anyone else have a hard time going to sleep after chemo and how do they overcome it. Thanks
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no modesty during IMRT (please don,t laugh)
If Iam not mistaken one of the female techs did say take everything off put on clinic supplied pants(draw string) oh leave on your T shirt and socks I I was instructed how to lay on the table under the IMRT thing (I.ll get the name down) and put your legs in the mold.One of the girls getting you ready says pull yor pants…
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Question for anyone who has had radiation treatment for Prostate Cancer
New to the forum and looks like some interesting information on cancer. I finished up 44 radiation treatments for prostate cancer about 13 months ago. The treatment was not that difficult physically and I never had any of the issues typically mentioned by my Oncologist. I was able to maintain my exercise and full work…
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Research reports and the lingo
I have some experience with research reports, both writing and reading. In this forum, we come across many and are trying to make sense of them. One of the best tips I ever got about research is the following 4 steps. 1.Practical problem (does X effect Y)? 2.Statistical problem (does a sample population have a…