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Prostate Cancer

Age 55 w/ Gleason score of 9 - Latest Update
Hello all, I'm 55 years old and received my diagnosis of prostate cancer on July the 13th (Friday). It's just a date, but how ironic! Let me give a little background that has led me to where I am today. In April of 2011, my gastro Doctor diagnosed me with a condition known as GAVE (gastric antral vascular ectasia) aka…
Firmagon and insomnia
I am in month three of Firmagon and have developed a wicked case of insomnia. Wake up 1 - 6 times a night all edgy and uncomfortable and do the zombie walk as we call it. Anyone else have this and solve this problem? I have developed a nasty case of cumulative sleep derprivation. Thanks, George
What are my odds for recurrence?
PSA 1/2013 was 3.6, DRE normal. PSA 8/2014 was 5.5, DRE normal. Was sent to Urologist for biopsy. Only thing we remember is the word “CANCER”. Retropubic Prostatectomy 11/20/2014. My age 55. On the table for approximately 5.5 hours. Came out with a scratched cornea from an eyelash being turned under during surgery. That…
Rectum?
Rectum irritation is setting in at the half way point of salvage radiation. What worked best for you guys? Anything not in a messy mineral oil base? Thanks, George
Soy for those on Hormone Shots?
This is a post responding to something gjeck posted in another thread RE soy. First, it is known that soy encourages the production of estrogen, which is nice for ladies, and not bad for men under normal conditions. But I am not normal right now. I am on Eligard that blocks all testosrone production in my body. Do I as a…
Bone Scan question a little nervous here
I had a bone scan yesterday.. Ordered by my Othopedic for hip issues... during the scan.. they asked me if I had fractured my leg and arm..the answer was no.. then they called in Dr to look at it and see and if he wanted to do more test.. I am waiting for the report from my Orthopedic.. So my question is does metestized…
Deepening Problems for Coloplast Virtue Male Sling
Since I continue to suffer since the implantation of Coloplast's Virtue male sling, more than four months ago; each week I check FDA's MAUDE Reports for physician reported injurious Adverse Events, requiring intervention, regarding the Coloplast Virtue Male Sling. This past week, the number of reported Adverse Reports grew…
Reoccurence after HDR Brachytherapy and MDS
I was treated for PC in Feb and March of 2013 with High Dose Rate Brachytherapy (HDR). In October of 2014 I was diagnosed with Myelodysplastic Syndromes (MDS). I was treated for that with a stem cell transplant. Since then my platelets have taken a nose dive (I receive platelets every week) and my PSA has steadily…
Nerves spared on one side = impotence ?
I am new to this forum . Having nerve sparing robotic surgery in a few weeks . Dr said can only spare nerves on the left side . Biopsy report was 7 out of 12 . Gleason scores were 7 in all core samples . 6 of the 7 were on my right side . Dr feels like he can get all the cancer but I am concerned about ED . Is it possible…
After Robotic Surgery
crazy question I know But really don't know answer. After prostate is removed will that be the end of having kids?
Neuropathy after HDR Brachytherapy and 25 dose IMRT
I recently finished up my course of IMRT to close out the radiation therapy end of my Prostate Cancer treatment, and have started experiencing neuropathy in my feet. I met with my Neurologist yesterday and he basically said that the radiation has effected the nerve bundle called the Lumbar Plexus. I've seen numerous other…
Doctor ordered a bone scan and mri after my radiation therapy because of pain in neck and spine
Finished seven weeks of my radiation therapy treatments and a doctor's appointment month after. Radiation Oncologist asked me how I feel and I tell him about all the pain in my neck and left shoulder and arm and my lower back sciatic pain in left hip and feels like a couple of ribs out of place on left side and been very…
Posting again on the danger of Xofigo treatment
Well, after my husband endured 6 treatments of Xofigo what life he did have at the time went steadily off the cliff. Now, 6 months later, the onocologist is calling it quits. The promise of this wonder drug is a lie. They test your blood before each poison injection, and the bloodwork clearly shows deteriation of the red,…
low Lymphocytes after radiation anybody else experince this?
My blood Dr have been watching my Platelet counts for a while.. Due to beinging under 100.. After prostate radiation the are now down to 75.. Which still isn't too gets down to 10 or 20 I will satrt worring.. But I have noticed my Lymphocytes went down during radiation and are still low 15% almost 3 months later. Has…
9 Days Until Surgery. Any tips?
Hi Guys, Is there a sticky with tips on how to prep for robotic surgery? I've been doing my kegels, bought several sweat pants, gone Vegan, got various lotions...What else should I be doing? The first few days, how mobile are you? Do you lay in bed? Sit in a chair and watch TV? Zonked out on pain killers? Thanks, Nick
Quote of the Day (Thanks to Grinder)
"Life is not a matter of holding good cards, but playing a poor hand well." ...Robert Louis Stevenson. Embrace it and be the storm!
Agent orange Gleason 9 open surgery prepubic radical prostatectomy and pelvic lymph node dissection
I'm sorry I don't know if this is properly way to seek information from other prostate cancer members. It doesn't matter how old you are or if you are a southern Vietnam veteran exposed to agent orange herbicides. I am 68 / 69 December 12. My little dog Buddy, thirteen half years old Westie died December fifth after having…
Comparing Male Slings for Incontinence
I am a mid-sixties male that underwent a prostatectomy approximately ten years ago. I remain cancer free but have required 1-2 pads per day for the urinary incontinence that resulted from this surgery. I did not require radiation or chemotherapy due to early detection. This made me the perfect candidate for male sling…
I'm Still Around
It's been over a year since my last post, so let me reintroduce myself to the new members of the forum. My story is here: https://csn.cancer.org/node/264905. Cyberknife treatment September 2014. Understandably, I'm thrilled to report continued great numbers as of March 2017, at 64yrs: Ultrasensitive PSA less than .1,…
New PT Scan Available
In May of 2016 the FDA approved a new tracer for PET SCAN to help detect recurrent Prostate cancer. It is Axumin and is approved exclusively for “imaging in men with suspected prostate cancer recurrence based on elevated blood prostate specific antigen (PSA) levels following prior treatment. For more information you can…
Radiation after Chemo?
Hi! My dad (75) was diagnosed last August PSA 31 up to 92 after biopsy, had spread beyond prostate (bone mets, lymph nodes) began Lupron and Casodex, began Chemo in December and completed 6 rounds of docetaxal in March. Chemo was tough but the chemo and hormone therapy did the trick as his PSA was down to .08ish in April…
Diet after RALP
Since I do not have a prostate anymore, will diet still keep my PSA down? Right now, I'm on a healthy does of Turmeric, brocolli, real pomegranate, among a few other things. I will be having radiation mid to late August, and have read that I do not need to have Lycopene while on radiation. Also, my brother sent me articles…
advice for locally advanced Pca
Hi My father is 71 years old, and recently diagnosed with Pca. PSA = 28, 7/12 core positive (gleason score 4+4) from biopsy, one lymph node enlarged (2cmx3.4cm) and a gross extraprostate extension from MRI. The only good news is no bone or other distant metastasis found (I really hope that is true). Our urologist…
Calutide tablet has reduced my PSA level dramatically….
Dear Sir, I am 45 years old. On February 2017, I checked my PSA level found 6.83 ng/ml and Gleason’s Grade 3+3=6/10 by biopsy test. On April 2017, my doctor suggested me to take Hormone Therapy (3 Zoladex Injection). Already I have taken two injections. He also suggested me to take Calutide tablets 50mg per day without any…
Can Someone Knowledgable Interpret These MRI Results?
Hello, On Wednesday I had surgery but on Monday I had a MRI and just got the results. It's all Greek to me! If someone can distill it down to layman's terms I'd greatly appreciate it. The surgeon, who has done 4000 RPs said it all went well and he felt a firmness on the left side of the prostate. Path lab results come next…
6 week follow up after RALP
Well, I'm better off than I expected. They did take out the SV's. The cancer was outside the margins though and still plan to take radiation to kill remaining cells. Got PSA test and Dr called me on my 3 hour ride home and let me know the PSA was 0.01. Feeling much better. I do not feel that my diet change has resulted in…
New to forum, looking for advice
I am 53, had a TURP last year, discovered Geason 6 cancer, so watch and wait. 8 months later, biopsy showed Gleason 9, so prostatectomy w/ pre PET Scan. Dr told me 10 days after surgery that I will need to go through radiation, due to cancer being in margin walls and in seminal vesicles. Dr removed 34 lymph nodes and all…
New Treatment Heading To Clinical Trials
Warriors, News from the Prostate Cancer Foundation: https://prostatecancernewstoday.com/2017/06/30/galeterone-shows-promise-as-a-next-generation-prostate-cancer-drugs/?utm_source=Prostate+Cancer&utm_campaign=9ecc05196a-RSS_MONDAY_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_a6d9c27ca8-9ecc05196a-72180173
Do False-Stable results exist? My latest tests
I would like to inform about my tests of December. The PSA come as 1.28 ng/ml and the Testosterone at 278 ng/dL. In contrast with the previous, the PSA did practically not increase (+0.04) but the Testosterone decreased significantly (-078) and I do not know if the treatment for my case of shingles did affect these…
Am I a Candidate for FLA? Surgery in 3 Days!!
Maybe I'm getting cold feet? I had ruled out radiation because the hormone therapy would be bad for my comorbidities of diabetes and cardiac, so I researched the best doc and hospital in Chicago and on Wednesday I am going in for RP surgery. However, by total coincidence I am going in for a new type of MRI tomorrow: 2…

Prostate Cancer

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